Search Results for: autism

The subtle brilliance of Sesame Street’s first episode starring an autistic Muppet

Longreads Pick

Dylan Matthews reflects on growing up with autism and reviews Sesame Street’s approach to raising awareness with a new autistic character named Julia. Sesame Street doesn’t focus on Julia navigating her world, it focuses on Elmo and Abby Cadabby — a neurotypical monster and fairy, respectively — who help Big Bird understand why Julia plays and acts the way she does. Elmo and Abby revel in Julia’s style of play and in doing so, encourage Big Bird to join the fun so that everyone can have a good time. Matthews posits that with Sesame Street’s clout among the young, and the research to back up the fact that the show “encourages prosocial, cooperative behavior among children,” Julia could have a real influence on how society embraces those with autism in the future.

Source: Vox
Published: Apr 10, 2017
Length: 7 minutes (1,830 words)

Drug Addicted and Autistic: A More Common Combination Than You Think

Photo by Kaushik Narasimhan (CC BY-SA 2.0)

Addicted and autistic? At Spectrum, Maia Szalavitz explores the unexpected biological and psychological commonalities of addiction and autism, and some new science that suggests that combination may be more common than you think.

Shane Stoner’s addiction began in 2008. He lost a factory job, his parents divorced, his father died — and then a relative introduced him to heroin. “I felt like heroin gave me confidence,” Stoner says. “I could get out of bed in the morning and do the day. No matter what happened, it made me feel like it was going to be all right.” It erased his constant anxiety.

Stoner, now 44, eventually entered detox in 2013 after he was arrested for stealing copper from an abandoned house. It was obvious at that point that he was addicted to heroin. But it would take several more years for him to get the diagnosis that truly helped him understand himself: autism.

The new label came as a relief. It explained Stoner’s sensitivity to things such as tags on his T-shirts, and his succession of obsessive interests. It clarified why he had such a difficult time fitting in as a child, his problems with roommates in college — and why he continued to struggle with social connections as an adult. “I can’t believe nobody ever mentioned it before, because I started thinking back and there’s pictures of me, like, 3 years old, and I’m honestly flapping my hands.”

Read the story

Truther Love

Illustration by: Kjell Reigstad

Sabine Heinlein | Longreads | November 2016 | 18 minutes (4,602 words)

 

She named her avatar DancingDark after a Lars von Trier movie and Björk, a beloved singer. DancingDark isn’t much of a showoff. “Super skinny. Nice, straight teeth,” she tells me. “My mom’s called me a radical, my dad’s called me a conspiracy theorist, none of my friends even know what I’m talking about.” DancingDark and I talk via Skype, but I can’t see her because she has taped-off the camera on her computer. She is pretty damn certain that the American government is spying on her. Whenever she mentions a certain country (which, for obvious reasons, she asked me not to name) her computer crashes. DancingDark is proud of her intellect. “I’m an intelligent being and I want to learn and be intellectual. That’s more of my foreplay than just being dirty online.”

Witty and personable, DancingDark’s frequent giggles easily turn into tears. As a Truther, the 37-year-old is committed to doubting “mainstream narratives.” When 9/11 happened, things just didn’t add up. There were suspicious delays in the media coverage and some dude down at the World Trade Center mumbled, “Bin Laden, Bin Laden…” Is it possible that the American government had staged the attack to legitimize its invasion of Iraq and take all their oil?

DancingDark is wise to other cons, too. When she thinks climate change, she thinks chemtrails. While the “mainstream media” claims that the crisscrossing lines left behind by planes in the sky are nothing more than contrails—streaks of frozen vapor produced during flight—DancingDark knows better. Global warming is fabricated by the government—“geoengineering above our heads.” Why? “Possibly to push carbon taxes.”

The only attractions in the village where DancingDark runs a one-woman aromatherapy cleaning business are the weekend rodeo and the local Tim Hortons. The small Canadian farming town also houses a mental institution. “Half of the people here can’t even read,” DancingDark says. The Fentanyl problem in town has recently been replaced by a meth problem, and when she passes someone in her village she says she can never be sure whether the person is a drug addict, a religious nut, a mental patient or a combination.

DancingDark has been lonely for what seems like an eternity. In pharmacology school, they were trying to teach her how cancer is cured with medication and surgery. “You just spend money on patients and you make them worse, which means more money,” she says. The system is set up for big corporations. “I couldn’t stomach it and just walked out.” It was the year 2000, and she was 20 then. One year later 9/11 happened, and DancingDark knew right away that “something fishy” was going on.

Until last year, DancingDark had at least one person whom she could talk to. “My friend could tell Illuminati symbolism right away and we could joke about it,” she says, referring to the purported secret global elite believed to control the thoughts of the credulous masses. When her friend hanged herself, there was nobody left whom she could trust fully. “I lost a lot of friends,” she tells me amidst tears.

After a period of depression and grief, she put herself out there again. An acquaintance told her about Awake Dating, a new, free dating website for Truthers and other conspiracy theorists, and DancingDark didn’t waste any time joining.

In many ways Awake Dating, which launched last April, is similar to other dating sites. It allows DancingDark to put up her photo, chat with others, and list her interests: 9/11 Truth, Not watching TV, Ancient Alien Theory, Social Conditioning, Megaliths, the New World Order and False Flags; the latter describes covert operations by the government  designed to mislead the masses and hide ulterior motives. (Truthers believe that 9/11, the Sandy Hook elementary school shooting and the terrorist attack at an airport in Brussels were staged—false flags.) In her personal statement DancingDark confesses that her “mainstream weakness” is Game of Thrones. “I’ve seen several UFOs 😮 I love to smoke weed but really don’t care for alcohol at all.” Her statement ends, “Oh and this is important!! I don’t want a golden shower!” Read more…

The Top 5 Longreads of the Week

Image by Jim Cooke/Photo courtesy Jody Goldstein

Below, our favorite stories of the week.

Sign up to receive this list free every Friday in your inbox. Read more…

The Other Sister

Longreads Pick

A moving personal essay by Ciara O’Rourke about preparing for a future in which she is the primary caregiver for her sister, who is living with autism.

Source: Seattle Met
Published: Oct 27, 2016
Length: 16 minutes (4,127 words)

Sister, Friend, Caregiver

Now 26, the thick curtain of bangs cut above her eyebrows has grown. Several years of braces corralled her front teeth. She finally learned it wasn’t her pinky she should thrust in the air if she wanted to give someone the finger. But she still wants to play like we did when we were younger.

“I’m not a kid anymore,” my mom told Ellie recently as she explained why she didn’t want to join her in a game we enjoyed in elementary school. Ellie and I would crawl on the carpet pretending to be dogs while our mom faithfully fed us invisible bowls of food and scratched our heads. She had retired from the role when Ellie last asked to play. By then, Ellie wasn’t a kid either.

“But I still am,” she said. “Why am I?”

Eight years ago, after Ellie—not her real name—turned 18, becoming an adult in the eyes of the law, a piece of paper was filed at a King County Courthouse formalizing a decision that was reached without much discussion, drama, or fanfare. If my mother died, one of her sisters would become Ellie’s guardian until I turned 30, at which point I would take over.

-A beautiful essay by Ciara O’Rourke, in Seattle Met magazine, on preparing for a time in which she will be the primary caregiver for her sister, who is living with autism.

Read the story

Mark Haddon: ‘Ultimately, There Is No Narrative Without Death’

Photo: Rory Carnegie

Jessica Gross | Longreads | May 2016 | 15 minutes (3,709 words)

 

The Curious Incident of the Dog in the Night-Time was Mark Haddon’s first novel, and the one that made him famous. Told from the perspective of an emotionally limited young man named Christopher, the book has sold millions of copies and is now being performed on Broadway. But Haddon was writing long before Curious Incident, including many books and picture books for children, and has been just as prolific since.

Haddon’s new short story collection The Pier Falls deals largely in darkness. The descriptions, soaked through with detail, often verge on the grotesque. In the title story, a pier collapses, bringing many lives with it, a process Haddon details with excruciating exactitude. In “Bunny,” we witness the effects of the protagonist’s obesity, while in “The Weir,” a newly separated middle-aged man saves a young woman from a suicide attempt, yielding an unlikely friendship. Haddon and I spoke by phone about the infusion of death and destruction in his work, his writing process, and his fascination with writing about fatally arrogant men. Read more…

The Top 5 Longreads of the Week

Illustration by Quickhoney/Art Direction by Parker Hubbard

Below, our favorite stories of the week. Kindle users, you can also get them as a Readlist.
Sign up to receive this list free every Friday in your inbox.

* * *

Read more…

The Boy Who Loved Transit

Photo via mtaphotos (Edited)

Jeff Tietz | Harper’s | May 2002 | 35 minutes (8,722 words)

 

This essay by Jeff Tietz first appeared in the May 2002 issue of Harper’s and was later anthologized in The Best American Crime Writing: 2003 Edition. Tietz has written for Rolling Stone, Harper’s, The New Yorker, The Atlantic and Vanity Fair. He has been a finalist for the National Magazine Award, the Pushcart Prize, and the Livingston Journalism Award. His work has appeared in Best American Magazine Writing, Best American Crime Writing, Best American Business Writing, and The CAFO Reader. Our thanks to Tietz for allowing us to reprint it here. For those interested in an update on Darius McCollum’s story, see this 2013 The Wall Street Journal piece (subscription req’d).

***

Before leaving his girlfriend’s apartment in Crown Heights, on the morning of his nineteenth arrest for impersonating and performing the functions of New York City Transit Authority employees, Darius McCollum put on an NYCTA subway conductor’s uniform and reflector vest. Over his feet he pulled transit-issue boots with lace guards and soles designed to withstand third-rail jolts. He took transit-issue work gloves and protective goggles. He put a transit-issue hard hat on his head. In his pockets he carried NYCTA work orders and rerouting schedules and newspaper clippings describing his previous arrests: for driving subway trains and buses and various other vehicles without authorization, possessing stolen property, flagging traffic around NYCTA construction sites, forging documents. He also carried a signed letter on NYCTA letterhead:

To: All Concerned Departments

From: Thomas Calandrella Chief Track Officer

Re: Darius McCollum Effective this date of January 10, 2000, Darius McCollum is a member of a special twelve member Special Study Group; and will analyze the operations of track safety and track operations. SSG will report directly to this office and will be issued all related gear for the respected purposes of this department and will receive assistance of any relating department.

To his belt Darius clipped a flashlight and a key ring the size of a choker. From this ring six smaller rings hung like pendants. Along the curves of the small rings, 139 keys climbed symmetrical and fanlike. Each key granted access to a secure area of the train, bus, or subway system of the New York City Transit Authority. The collection was equivalent to the number of keys an employee would acquire through forty years of steady promotions. Just before he left the apartment, Darius picked up an orange emergency-response lantern.

Six weeks earlier, Darius had been paroled from the Elmira Correctional Facility, near Binghamton, New York, where he had served two years for attempted grand larceny—”attempted” because he had signed out NYCTA vehicles for surface use (extinguishing track fires, supervising maintenance projects) and then signed them back in according to procedure. Darius has never worked for the NYCTA; he has never held a steady job. He is thirty-seven and has spent a third of his adult life in prison for victim-less offenses related to transit systems. Read more…

The Debate Over Alternative Medicine

Photo by Pixabay

The Laidlers’ story is a microcosm of the changing debate over so-called alternative medicine and its cousin, integrative medicine. In 2007, Americans spent $2.9 billion on homeopathic medicine, a treatment based on the belief that minuscule amounts of what causes symptoms in a healthy person will alleviate symptoms in someone who is ill. From nutritional supplements to energy healing to acupuncture, treatments outside the medical mainstream are big business. But the vast majority of scientists find much of alternative medicine highly problematic.

The supposed mechanisms of energy healing, homeopathy, and acupuncture are unscientific and violate basic laws of physics and chemistry. Other alternative treatments, including many nutritional supplements, are unproven, unregulated, and occasionally dangerous. This month, the fight came to a very public head when a group of doctors sent an open letter to Columbia University, demanding the school remove Dr. Mehmet Oz, who has used his syndicated TV show to promote integrative medicine, including nutritional regimens, homeopathy, and reiki—a form of energy healing that claims to use “universal life force energy” to “detoxify the body” and “increase the vibrational frequency on physical, mental, emotional and spiritual levels.” But at the same time, integrative medicine has pushed such techniques into the mainstream.

Alan Levinovitz, writing in Wired about the fight over alternative medicine, and Jim Laidler, a man who first turned to alternative medicine after both of his sons were diagnosed with autism.

Read the story