Search Results for: autism

Why I Discuss My Son’s Autism on Social Media

Longreads Pick

A personal essay in which Alysia Abbott writes about the importance of presenting her autistic son on social media — fostering inclusiveness, normalizing his differences, connecting with other parents with similar children — and confesses her tendency to often only show him in the most flattering light.

Source: Dame Magazine
Published: Oct 30, 2019
Length: 9 minutes (2,316 words)

Autism’s hidden habit

Longreads Pick

Addicted and autistic? The unexpected biological and psychological commonalities of addiction and autism and some new science which suggests that combination may be more common than you think.

Source: Spectrum
Published: Mar 1, 2017
Length: 11 minutes (2,845 words)

Autism Inc.: The Discredited Science, Shady Treatments and Rising Profits Behind Alternative Autism Treatments

Longreads Pick

Parents of children on the autism spectrum are wading through a considerable amount of information on the Internet purporting effective treatment and “cures” for autism. A majority of the treatments have been discredited:

“Almost by accident, Laidler says he and Ann, discovered the diet they’d put their son on didn’t work. ‘He was gluten-free and we thought it was a miraculous cure for our son because he’d made pretty dramatic strides from the age of 3 to 4. We were starting to see real progress. But on a trip to Disneyland, he grabbed a waffle off the table and ate it before we could stop him. Doctors had told us that one drop [of gluten] would cause a dramatic relapse—we’d been told anecdotal stories that a speck of wheat bread would cause an autistic child to have weeks of bad behavior. And nothing happened.’

“The Laidlers had also tried chelating their son, and as physicians they had helped other families who wanted to try it. ‘Nobody ever told me it did any good. So to regain my sense of mental balance I started asking a lot of pointed questions: Have you tried chelation? What was the result? Ninety percent of people I asked said they saw no improvement.'”

Source: Texas Observer
Published: Jan 30, 2013
Length: 22 minutes (5,712 words)

Navigating Love and Autism

Longreads Pick

From the beginning, their physical relationship was governed by the peculiar ways their respective brains processed sensory messages. Like many people with autism, each had uncomfortable sensitivities to types of touch or texture, and they came in different combinations.

Jack recoiled when Kirsten tried to give him a back massage, pushing deeply with her palms.

“Pet me,” he said, showing her, his fingers grazing her skin. But Kirsten, who had always hated the feeling of light touch, shrank from his caress.

“Only deep pressure,” she showed him, hugging herself.

He tried to kiss her, but it was hard for her to enjoy it, so obvious was his aversion. To him, kissing felt like what it was, he told her: mashing your face against someone else’s. Neither did he like the sweaty feeling of hand-holding, a sensation that seemed to dominate all others whenever they tried it.

Author: Amy Harmon
Published: Dec 26, 2011
Length: 21 minutes (5,446 words)

Autism’s First Child

Longreads Pick

Children with autism will become adults with autism, some 500,000 of them in this decade alone. What then? Meet Donald Gray Triplett, 77, of Forest, Mississippi. He was the first person ever diagnosed with autism.

Source: The Atlantic
Published: Oct 1, 2010
Length: 32 minutes (8,165 words)

Autism as Academic Paradigm

Longreads Pick

The unacceptable ways we sometimes talk and think about the autism spectrum.

Published: Jul 13, 2009
Length: 11 minutes (2,782 words)

A Broken Trust: Lessons from the Vaccine–Autism Wars

Longreads Pick

Researchers long ago rejected the theory that vaccines cause autism, yet many parents don’t believe them. Can scientists bridge the gap between evidence and doubt?

Author: Liza Gross
Source: PLoS
Published: May 26, 2009
Length: 19 minutes (4,843 words)

A Radical New Autism Theory

Longreads Pick

A groundbreaking study suggests people with autism-spectrum disorders such as Asperger’s do not lack empathy—rather they feel others’ emotions too intensely to cope.

Source: Daily Beast
Published: May 11, 2009
Length: 4 minutes (1,033 words)

‘The Fledglings Are Out!’

Images courtesy of Milkweed Editions

Dara McAnulty | Diary of a Young Naturalist | May 2021 | 1,979 words (7 minutes)

***

Prologue
This diary chronicles the turning of my world, from spring to winter, at home, in the wild, in my head. It travels from the west of Northern Ireland in County Fermanagh to the east in County Down. It records the uprooting of a home, a change of county and landscape, and at times the de-rooting of my senses and my mind. I’m Dara, a boy, an acorn. Mum used to call me lon dubh (which is Irish for blackbird) when I was baby, and sometimes she still does. I have the heart of a naturalist, the head of a would-be scientist, and bones of someone who is already wearied by the apathy and destruction wielded against the natural world. The outpourings on these pages express my connection to wildlife, try to explain the way I see the world, and describe how we weather the storms as a family.

***

Tuesday, 5 June
The garden has blossomed in the warmth of these late spring days. So much light and sunshine, compensating for the heaving tiredness and exasperation that comes, for me, at the end of the school year. Friendship has always eluded me – what is it anyway? A collection of actions and words between two people or more, people who grow and change anyway. It’s a good thing, apparently. That’s what some people say. I don’t have any experience, though. I mean, I play board games with a group at my school. We play, we deconstruct the game. We don’t ‘talk’. What is there to say? Sometimes, I feel that if I start, I might not shut up. That has happened, lots of times. It doesn’t end well. Kids in my class, they walk around town together, they might play football together or whatever other sport takes their fancy. They don’t talk, though. They smirk and snigger at anyone who is different. Unfortunately, for me, I’m different. Different from everyone in my class. Different from most people in my school. But at breaktime today I watched the pied wagtails fly in and out of the nest. How could I feel lonely when there are such things? Wildlife is my refuge. When I’m sitting and watching, grown-ups usually ask if I’m okay. Like it’s not okay just to sit and process the world, to figure things out and watch other species go about their day. Wildlife never disappoints like people can. Nature has a purity to me, unaffected. I watch the wagtail fly out and in again, then step a little closer. Peering in, I see that last week’s eggs are now chicks. Tiny bright-yellow beaks, mouths opening and closing silently. This is the magic. This bird, which dances and hops at everyone’s feet in the playground, unnoticed by most. Its liveliness and clockwork tail, ticking constantly, never touching the ground. It appears again, and the squawking starts in earnest. I giggle inside, in case someone sees. I have to hold so much in, phase so much out. It’s exhausting.

At home, I mooch around the garden and notice the first herb robert flowers, pink wild bloom amongst the verdant. I note it down on my list of firsts in the garden and feel good. I hear Dad come back from work, and with him an injured bat. She’s the first of the year and we tend to it – females only have one pup a year, such precious cargo. We feed it mealworms and put water in a milk-bottle lid. The bat’s mouth is so small I use one of Bláthnaid’s paintbrushes to put droplets on its tongue, hoping it will be something like lapping dewdrops from a leaf or puddle. Dehydration is the main killer of an injured bat, so it’s important to get it to drink. But as they’re getting better they’ll chew up a mealworm like a piece of spaghetti.

They’re such innocuous and timid creatures, not worthy of the silly hype that surrounds the movies and Hallowe’en. They’re insect-controllers: a single pipistrelle eats 3,000 midges a night. Can you imagine the swarms really ruining your camping holiday if we didn’t have healthy numbers of bat populations? It’s unimaginable.

The bat sleeps in my room. They always do because it’s quiet away from the hustle and bustle of the rest of the McAnulty family. I always sleep so soundly when I have a bat staying in my room. I hear it scratching about in the night and am never afraid, I am comforted.

Friday, 8 June
I trudge to school with a leaden heart: the bat didn’t make it through the night, and we didn’t lose just one bat, we’ve lost every generation that could have followed. Her injuries, caused by a cat, were too much and she died, Dad thinks, from infection. I feel so heartbroken. I’ve finished all my exams but that isn’t enough to lighten my spirits.

After school, Lorcan and I arrive home to squeals of delight from Mum and Bláthnaid. ‘The fledglings are out! The fledglings are out!’ Mum roars with all the childish delight that many of the kids I know have lost before they’re eight or nine. The excitement is intoxicating, and it spreads into me and I feel a little airy. We watch through the window as a just-emerged coal tit, blue tit and sparrow rest on the branches of the pine trees, open-mouthed, noisy and boisterous and splendiferous.

Watching the discordant gang, I realise that I won’t see them when they’re fully grown. Not if we move house. I’ve been in complete denial about moving house. Tomorrow, though, we’re going house-hunting in County Down, in Castlewellan – a small town six miles from our new school in Newcastle (which Mum and Dad say is too expensive for us to live in). I’m not sure if I feel really annoyed about the whole thing, or whether that tickle I sometimes get thinking about it is a sign of the excitement there might be in starting over again. The opportunity to reinvent myself.

Mum notices my mood shifting. I give her my best broad grin and a hug. It’s not easy for any of us, but she and Dad will do most of the work – and the worrying.
Every day, ever since I can remember, Mum has sat me down, sat us all down, and explained every situation we’ve ever had to deal with. Whether it was going to the park, to the cinema, to someone’s house, to a café. Every time, all manner of things were delicately instructed. Social cues, meanings of gestures, some handy answers if we didn’t know what to say. Pictures, social stories, diagrams, cartoons. Many people accuse me of ‘not looking autistic’. I have no idea what that means. I know lots of ‘autistics’ and we all look different. We’re not some recognisable breed. We are human beings. If we’re not out of the ordinary, it’s because we’re fighting to mask our real selves. We’re holding back and holding in. It’s a lot of effort. What’s a lot more effort, though, is the work Mum did and does still, so light-heartedly. She tells us it’s because she knows. She knows the confusion. That’s why she and Dad will be doing the worrying about moving, and why Mum will be doing all the planning and mind- mapping, and will somehow know how everything fits together. I’m lucky, very lucky.

Many people accuse me of ‘not looking autistic’. I have no idea what that means. I know lots of ‘autistics’ and we all look different. We’re not some recognisable breed. We are human beings.

Saturday, 9 June
The day is glorious. It’s summer weather, I have a new Undertones T-shirt (the ‘My Perfect Cousin’ one) and I feel good wearing it. I don’t know why I love T-shirts with some part of me brandished on them. Maybe it’s because it will either scare people away or start a conversation without me having to do anything. Well, either way, that hasn’t happened yet!

We arrive at the first house for viewing and Mum hates it, I can tell. I don’t like it either. Everything about it is squashed, though we can see the Mourne Mountains from upstairs. The second house is much better but needs a lot of work – the views are extraordinary. Neither of them lights a fire in anyone’s belly, though, so that’s it for today, thankfully. And because it’s still morning we’re going to explore the Castlewellan Forest Park, a government-owned forest with native woods, conifer plantation and red kites. It even has a lake and a mountain path. Lorcan and Bláthnaid have already been but it’s a first for me. It’s so beautiful. I feel a swell of anticipation – if we move here we could live beside a forest. We could be near trees! We might not be crammed in by suburbia anymore. I could ride my bike without worrying about cars.

You see, this is a big deal for us kids. We can’t access nature the way my parents’ generation could. Our exposure to wildlife and wild places has been robbed by modernity and ‘progress’. Our pathways for exploration have been severed by development and roads and pollution. Seriously, you take your life into your own hands if you choose to cycle anywhere in Enniskillen. The roads are congested, busy and unfriendly, especially if, like me, you want to stop and stare. We always have to travel to forest parks or nature reserves for our dose, returning to the starkness of concrete and manicured lawns. To think we could live beside a forest!

The thought keeps echoing and I feel euphoric, almost delirious. We all feel it in the glow of the sun with swallows, house martins and swifts above us, dancing everywhere. So many. I’ve never seen so many all at once. Not all three together. It’s heady and intense. We’re all springing, bouncing off one another with sideway glances and controlled smiles. Hoping and holding it all in.

We find a peace maze in the park, created after the Good Friday Agreement in 1998. It has 6,000 yew trees and was planted by 5,000 school children and others from the nearby community. We rage through it until we come to a rope bridge. I stop and get out my binoculars: red kites, three of them, wheeling and soaring, ascending, dropping right over our heads. It’s staggering. We gawp at the sky and you can feel our family agreement travelling through us, silently: this might be a good place to live.

Exhausted after the long drive and the day’s events, we head back to Granny’s house in Warrenpoint, where we’re staying tonight. My Granny Elsie has amazing views from her back garden. We can see Carlingford Lough and the Mournes and the Cooley Mountains. Every day looks different there, with subtle changes of colour or the way the clouds sit then disperse on the mountains. Today, the sparrows are chattering and the sun is still high. We decide we need another walk along the beach before we get dinner.

We do a beach clean as we go, but not too much today, which gives us plenty of time for exploring. Lorcan has the best find of the day: a cuttlefish bone smoothed by the sea, silk-soft. The bones, which are not really bones at all but a shell, are usually from the females who die a few weeks after breeding, and the dead cephalopods’ skeletons are later washed up on the beach. Lorcan’s find has the kind of piddock holes that we normally see in soft rocks and clays, and there still seems to be life inside them so we carry it back to the sea before it dries out. We find another, bone-dry, which we bring back to Granny Elsie’s.

Later that night, in the darkness, sharing a room with Lorcan, we talk about the move in hushed tones and excitement, until we both sink like stones into sleep.

Excerpted from Diary of a Young Naturalist. Published by Milkweed Editions.

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Dara McAnulty is the author Diary of a Young Naturalist, forthcoming in Spring 2021. He is the recipient of the Wainwright Prize for nature writing. Dara lives with his mum, dad, brother Lorcan, sister Bláthnaid and rescue greyhound Rosie in County Down, Northern Ireland. Dara’s love for nature, his activism and his honesty about autism, has earned him a huge social media following from across the world and many accolades: in 2017 he was awarded BBC Springwatch ‘Unsprung Hero’ Award and Birdwatch magazine ‘Local Hero’; in 2018 he was awarded ‘Animal Hero’ of the year by the Daily Mirror and became ambassador for RSPCA and the iWill campaign; in 2019 he became a Young Ambassador for the Jane Goodall Institute and became the youngest ever recipient of the RSPB Medal for conservation.

The Silent Farm for Developmental Disabilities

Photo by Jesús Hellín/ Europa Press via Getty Images

This gentle essay by Mark Mann for Beside takes us into the understated world of David and Peter, who share a friendship spanning four decades, yet no words. Peter’s form of down syndrome means he is non-verbal, so ever since David first became his support worker they have been finding other ways to communicate — beginning with artmaking, to gardening, and ultimately, to farming. When David bought a 25-acre farm in 1998 he realized it was a place where he could “break the limitations imposed on people with developmental disabilities.” Abhorring the condescension he sometimes saw Peter face, on the farm David lets Peter take the lead in the quiet routines of  “preparing and sharing meals, tending to a few animals, and passing the time.”

This essay radiates with the peace that David has created for Peter in their silent sanctuary. It may not be a productive farm, but “rather than crops or yields, David and Peter’s harvest is each little detail noticed and celebrated: a trusting moment that passes between Peter and one of the horses, or the bright red sumac buds that David hangs above the kitchen table.”

Inspired by what David and Peter were doing at the Farm, others began joining them. David and Peter were connected to a larger network of families with members who were on the autism spectrum and used no spoken language, and some of these men became regulars. Neighbours started dropping in regularly, and friends and acquaintances from around Ontario began making the trip, to lend a hand and savour the atmosphere. (I was one of those, for several years.) The numbers have ebbed and flowed, but a small community has always coalesced around the Farm: loose, evolving, and delightfully unlikely. Today, it’s mainly just Peter and his close friend Kevin. Kevin doesn’t use spoken language either, but he, Peter, and David have found a rich and subtle terrain of conversation that goes beyond words: gestures, body language, touch, and eye contact.

… if everyone is feeling well, they make a trip to the barn. The 300-foot journey is as slow and deliberate as a religious procession, especially across the winter snow and ice. Once arrived, the atmosphere inside the barn is precisely like a cathedral, with its sombre light and air of stillness. One feels an instinct to whisper, and, like Peter and Kevin, to take careful, quiet steps.

The first order of business is to feed and water the sheep. On this particular day, we discover that one of the ewes has given birth. The little newborn is already skittering around on four legs while keeping close to its mother. Seeing the lamb, the quietness among the men intensifies. For several long minutes, they hover in the corner, taking in the scene. Kevin reaches out and removes some straw from Peter’s hat.

Read the essay