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Less Work, More Friends, No Consequences

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On our October 11, 2019 roundtable episode of the Longreads Podcast, Head of Audience Catherine Cusick, Editor-in-Chief Mike Dang, and Essays Editor Sari Botton share what they’ve been reading.

This week, the editors discuss recent stories in The Atlantic, The Cut, and HuffPost.


Subscribe and listen now everywhere you get your podcasts.


0:51 Why You Never See Your Friends Anymore. (Judith Shulevitz, November 2019, The Atlantic)

9:21 Ronan Farrow Depicts a Chilling Cover-up at NBC. (Rebecca Traister, October 11, 2019, The Cut)

11:06 One Night at Mount Sinai. (Lisa Miller, October 15, 2019, The Cut)

16:16 The ‘Glass Floor’ Is Keeping America’s Richest Idiots At The Top. (Michael Hobbes, October 13, 2019, HuffPost)

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Produced by Longreads and Charts & Leisure.

Swipe Right: A Reading List about Online Dating

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They wrote you an intro

Wow and hello. You seem phenomenal and you probably receive four million messages but I just couldn’t resist…

Gorgeous woman, you are taller than me. I’m bummed.

I am capable of taking care of you financially, emotionally, spiritually, and physically. I love unconditionally, with all my heart, and I love you as you are. 

Your hair looks nice. See ya.

My self-summary

Some days I log in and read introductory messages that ring hollow, like the promises of car salesmen. Others, I receive long and far too intense missives declaring love or making some other absurd commitment based on a quick glance at my photos. And most days, I receive a tepid “hey.” Most days, I ask myself why I bother maintaining a profile –– what am I hoping to find? And isn’t there a better way to date?

I had never used a dating app until a few months ago: a combination of introverted tendencies, a series of summers spent at an evangelical Christian camp, and a traumatic sexual assault in college made it so I was scared to form relationships with people I knew in real life, let alone strangers on the internet. But after my first long term relationship ended, I moved across the country to a town where I knew hardly anyone and made a profile for the first time. While uploading photos and answering questions, processes which underscore just how much artifice is involved with online dating, I grew a little nervous. I had heard stories from friends about men who ghosted them; who retaliated viciously via email and other social media platforms when rejected; or who showed up to the date and weren’t exactly who they said they would be. After being in a safe, committed relationship for so long, the idea of trusting someone to be kind and respectful on a first date was nerve-wracking, but I took precautions in my own way, and tried dating.

At first, it was fun, even exceeded my expectations. I met people I otherwise wouldn’t have had a chance to find within the scope of my daily life. I explored parts of my new locale with people who have histories here, and enjoyed visiting places I’ll continue to return to. And the dates were lovely, for the most part. There was homemade pizza and wine in a park; dates who snuck away to secretly cover the bill without asking for anything in return; and hikes where we foraged for berries in spots only a local would know. 

But there was also the guy who lived at home, told me his mom cooked for him every night, and that he would expect his partner to do the same. There was the man who told me, after a few dates, that his friends had agreed I was “too smart” because I had earned my PhD. And, there was the date who leaned across the table to pet my hair and told me I would be “even hotter if I hunted,” though he had proselytized veganism to me just moments before. 

After some time, skimming profiles no longer excited me. Instead, the series of photos started to look like a grid of loneliness, in each answer some sort of want.

I spend a lot of time thinking about

Are dating apps the best way to meet people in this day and age? Do they even work?

Gina DiVittorio’s viral video about dating on Hinge.

How much of my relatively positive experience on dating apps is based on location? My identity as a straight, cis, white woman who has an invisible –– rather than visible –– disability?

Are there ways to improve online dating so that it is safer, more inclusive, and less discriminatory?

What I’m actually looking for

The same as everyone else, probably: to permanently log off these apps.

1. What I Learned Tindering My Way Across Europe (Allison P. Davis, March 21, 2016, Travel + Leisure)

I use them all—Tinder, chiefly, but also Hinge, Bumble, Happn, Desperat*n (I made that one up) 3nder, Flattr—and they are all swipes to nowhere. In boom times I experience a weak trickle of men; during drought, it’s like I’m in the dating version of The Martian—except Matt Damon did eventually receive messages from humans.

When Allison P. Davis left Brooklyn to travel across Europe, she wondered if dating would be any less lackluster, or if Tinder would offer her anything other than sex. In chronicling a variety of dating experiences and encounters in London, Berlin, and Stockholm, Davis ruminates on the differences between dating in the U.S. and abroad, particularly as a black woman. 

2. Diary (Emily Witt, October 25, 2012, London Review of Books)

Subletting an apartment for a week in San Francisco, Emily Witt goes to a bar alone in hopes of finding some form of human connection. Instead, she ends up perusing OkCupid. Witt, in this piece, offers a comprehensive history of online dating and ruminates about the specific kind of loneliness that beckons people to online dating apps. 

I wanted a boyfriend. I was also badly hung up on someone and wanted to stop thinking about him. People cheerily list their favourite movies and hope for the best, but darkness simmers beneath the chirpy surface. An extensive accrual of regrets lurks behind even the most well-adjusted profile.

3. ‘So Can You F*ck?’: What It’s Like to Online Date With a Disability (Sarah Kim, April 15, 2018, The Daily Beast)

It’s not news that lots of women receive ridiculous and misogynistic messages on dating apps, especially on Tinder. But as a 22-year-old with cerebral palsy, I get one at least twice a week.

‘So can you f*ck?’

‘But you look normal in your pictures.’

When Sarah Kim creates online dating profiles, she questions whether or not to immediately disclose her disability or to let potential suitors get to know her before sharing. By interviewing a range of experts like sexologist Dr. Mitchell Tepper and therapist Dr. Danielle Sheypuk, and other people with disabilities who have dated using apps before, Kim offers valuable insight and ultimately comes to the conclusion that how –– and when –– to disclose can be handled in a variety of ways, and decisions are best left up to each individual.

 

Related read: Online dating is hard enough. Try doing it with a disability. (Timothy Sykes, January 18, 2014, The Guardian)

 

4. How a Math Genius Hacked OkCupid to Find True Love (Kevin Poulsen, January 21, 2014, Wired)

As summer drew to a close, he’d been on more than 55 dates, each one dutifully logged in a lab notebook. Only three had led to second dates; only one had led to a third.

Most unsuccessful daters confront self-esteem issues. For McKinlay it was worse. He had to question his calculations.

After largely striking out on OkCupid, Chris McKinlay decided to put his mathematical prowess to the test, using a Python script to create a database of women’s answers and subsequently analyze patterns. With his unconventional approach, he succeeded in going on far more first dates –– but not many at all led further. As Kevin Poulsen notes in this strange and fascinating story, McKinlay had to strike a balance between calculation and human intuition in order to find true love.

5. What It’s Like To Date Online as a Trans Person (Brittany Wong, October 29, 2018, Huffington Post)

Tinder only enabled users to select gender identities such as “‘transgender,’ ‘trans man,’ ‘trans woman’ and ‘gender queer’” three years ago. Slow to evolve, OkCupid, Tinder, and Grindr have put transgender users at risk in their failure to incorporate inclusive models, as Christiana Rose, Dawn Dismuke, and Jackson Bird explain in their interviews with Brittany Wong.

Though roughly 1.4 million Americans identify as transgender, there’s still a widespread lack of understanding of trans issues among the general public. And sadly, transphobia is on the rise; 2017 was the deadliest year for transgender people, with at least 28 deaths tracked by the Human Rights Campaign.

6. I Thought My Immigrant Mother Would Never Accept My Queerness. I Was Wrong. (Krutika Mallikarjuna, February 19, 2019, Bitch)

Of the many pitfalls of being a queer desi woman swiping through Tinder, I never expected to find myself getting trashed in a bar trying to forget that I was on a date with a white girl named India.

After a date unsettles her, Krutika Mallikarjuna finds herself reflecting on her mother’s reticence to accept her as queer, and experiences a deep depression. Mallikarjuna, in this essay excerpted from The Good Immigrant: 26 Writers Reflect on America, chronicles the ways her relationship with her mother has evolved as a result of therapy and phone calls, eventually leading to shared laughter over a date gone wrong.

7. ‘Least Desirable’? How Racial Discrimination Plays Out In Online Dating (Ashley Brown, January 9, 2018, NPR)

OkCupid released a blog post in 2014 showing dating that “most men on the site rated black women as less attractive than women of other races and ethnicities. Similarly, Asian men fell at the bottom of the preference list for most women.” Through interviews with people who have encountered racism on dating apps, and interviews with experts who consider how apps might evolve to become more inclusive, Ashley Brown offers a harrowing portrait of the harm caused by racist dating app users.

Other dating experts have pointed to such stereotypes and lack of multiracial representation in the media as part of the likely reason that plenty of online daters have had discouraging experiences based on their race.

8. Guys are Reporting Women On Tinder for the Crime of Not Being Into Them (Lauren Vinopal, September 10, 2019, MEL Magazine)  

After Lauren Vinopal politely declines a date with a man, he sends her a slew of rude text messages before reporting her to Tinder, resulting in her being banned from the platform. When Vinopal researches the cause, she discovers she’s not the only woman to be banned for rejecting a man –– in fact, there are a large number of others who share her experience.

Many other people have reportedly been banned for reasons that have nothing to do with terms and conditions — e.g., disclosing that they have herpes, identifying as transgender, or in the strangely specific case of 32-year-old Nichole, posting a picture with a dead deer during hunting season.

9. Why It’s So Hard for Young People to Date Offline (Ashley Fetters, September 5, 2019, The Atlantic)

Such a staggering number of millennials start dating because of connections made through apps that Camille Virginia wrote a book called The Offline Dating Method, which provides tricks and tips for potential daters to make conversation in public and frequent places where they might find a partner. Ashley Fetters, in addition to providing an overview of Virginia’s book, contemplates how much the era of “stranger danger” and the increasing prevalence of convenience in apps across the board –– in areas of food, services, etc., –– have contributed to people relying on online dating.

In the years since, app dating has reached such a level of ubiquity that a couples therapist in New York told me last year that he no longer even bothers asking couples below a certain age threshold how they met. (It’s almost always the apps, he said.)

***

Jacqueline Alnes is working on a memoir about running and neurological illness. Her essays have been published in The New York Times, Guernica, Tin House, and elsewhere. You can find her on Instagram and Twitter @jacquelinealnes.

National Parks: A Reading List

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I have a small booklet of illustrated postcards from National Parks, both ones I’ve been to and others I have yet to see: Yellowstone, the Grand Canyon, Acadia, Glacier, Olympic, and more. The cards are whimsical. Each in the set features an outline of a park, and a smattering of critters, landmarks, and flora and fauna in bright colors. There is a cartoon banana slug; a meadowlark, beak open in song; a sunny yellow coneflower, petals all the way unfurled; a bighorn sheep; a branch of a ponderosa pine; a hiking boot looming larger than a small illustrated tent; and a herd of antelope making their way toward Delicate Arch.

Whether because of the tiny size of the cards — a whole park scaled down to the size of a palm — or the natural world tuned to carefully blocked hues of teal and mustard and coral and lime green and blue, when I look at the postcards, I tend to daydream about the National Parks in a way that mirrors the illustrations themselves: my perception of the parks becomes two-dimensional, sanitized of any complication. I envision myself hiking along a dirt path, a Steller’s Jay swooping down to scavenge for seed, Ponderosa pines lining the way, the sky blue and open above the picture-perfect peaks of a mountain chain. In my daydreams, there is never anyone else around: there is just me moving through a landscape freckled with flowers, silence broken only by the chittering of birds.

Some parts of these daydreams are feasible, which I know from time spent in parks. I have followed a dirt trail for miles around a lake in Grand Teton, the woods quiet save for the stirring of small creatures. I have hiked down to the bottom of the Grand Canyon and back up in a day, the sun baking every shade of orange-red rock in sight. I have kept my body still in Yellowstone in hopes of watching a coyote limber across a field just a few moments longer. I have foraged for blueberries in Acadia, sat by the placid, shockingly-blue waters of Lake McDonald in Glacier, and hiked through parts of Denali, pink fireweed lining my way.

The time I’ve spent in National Parks has always seemed restorative, a reminder that there is wild beauty to be protected. But my perceptions can be complicated, underlying tensions teased from what I simplify. For example, as Terry Tempest Williams writes in The Hour of Land, she grew up with the myth of Yellowstone National Park being “void of people” when it was established in 1872, before learning as an adult that the lands where the park was created “was the seasonal and cyclic home of Blackfeet, Bannock, Shoshone, and Crow Nations.” She writes, “Like any good story with the muscle of privilege behind it, it seemed believable. And I never asked the question: ‘Who benefits from the telling of this particular story?’”

What stories have I told myself about the natural parks? Why do I imagine myself alone there, when I have rarely — if ever — experienced solitude on the trails? What kinds of privileges afford me the ability to travel to the parks, and who are parks truly accessible to? What types of harmful histories have I buried or blurred in the way I’ve narrativized the parks in my own mind? What environmental protections have the park lands been granted and what is at risk in a time of climate change and a president’s dangerous decisions? The essays curated here approach these questions — and more.

1. Out Here, No One Can Hear You Scream (Kathryn Joyce, HuffPost)

As a child, the outdoors felt most like home to Cheyenne Szydlo, a trait she carried with her into her professional life as a wildlife biologist. But when she earned the chance to find the elusive — and possibly locally extinct — Southwestern willow flycatcher in The Grand Canyon, her experiences outdoors took a sinister turn, not because of any natural threats, but human. A man named Dave, her river guide, perpetually harassed her and threatened to sexually assault her. 

Szydlo’s story is far from uncommon, as Kathryn Joyce writes in this harrowing longform piece. From interviews with Szydlo, women firefighters, and other women park employees, as well as a bevy of researched statistics, Joyce emphasizes the dramatic scope of sexual assault and harassment that far too many women have experienced while working in national parks and other natural places.

The agencies that protect America’s natural heritage enjoy a reputation for a certain benign progressivism—but some of them have their own troubling history of hostility toward women.

In 2012 in Texas, members of the Parks and Wildlife Department complained about a “legacy” of racial and gender intolerance; only 8 percent of the state’s 500 game wardens were women. In 2014, in California, female employees of the U.S. Forest Service filed a class-action lawsuit—the fourth in 35 years—over what they described as an egregious, long-standing culture of sexual harassment, disparity in hiring and promotion, and retaliation against those who complained.

2. We’re Here. You Just Don’t See Us. (Latria Graham, May 1, 2018, Outside)

Number seven on a list of “22 Things Black Folks Don’t Do,” an article Latria Graham finds on BlackAmericaWeb.com, is “Go to national parks.” Graham, who encounters, both online and in life, an array of stereotypes about black people not liking the outdoors, explores the premise of those stereotypes by mapping the locations of national parks and discussing the ways in which historic practices of segregation still influence people’s perceptions today. 

By blending gorgeous ruminations of growing up on her own family’s land, reminiscing on the ways in which Zora Neale Hurston’s work helped her discover her own voice, recounting her trips to national parks and incorporating hard-hitting research, Graham’s essay asks readers to evaluate their own internal biases and work to make real change. 

The parks were designed to be clean and white, and if we let the data tell the story, that’s how they’ve stayed. In 2009, the National Park Service did a comprehensive survey of the American public, consisting of phone interviews with more than 4,000 participants. According to their data, African Americans comprised just 7 percent of visitors.

3. Dear Mr. Abbey (Amy Irvine, Autumn 2018, Orion)

In this direct address to Edward Abbey, Amy Irvine writes about how life within public lands has changed since Abbey’s death, and also ways that his work might be reconceived if thought about through a more contemporary lens. Irvine, as she reckons with who has the freedom to travel to natural lands — “a privilege that belongs to the able-bodied, upper classes” — tells Abbey about the destruction of natural lands that has occurred as a result of Trump’s decisions, and discusses the ways in which her experiences of natural parks and solitude differ than Abbey’s because she is a woman.

Can you imagine, in my own book about Utah, if I had called it “Amy’s country”? I could have justified it; my family has been there for seven generations and counting. Yet even with such credentials the clan of my surname doesn’t get to call it ours because it’s all stolen property: whatever the forefathers didn’t snatch from the region’s Native Americans on one occasion, they took from Mexico on another.

4. The Government Won’t Let Me Watch Them Kill Bison, so I’m Suing (Christopher Ketcham, May 20, 2015, Vice)

The history of bison in North America is a long and sordid one, which includes settler colonial violence that, at one point, led to there being only 23 bison left in existence. Though the population of bison has increased since then, there are still tensions surrounding their existence, as Christopher Ketcham reports in this piece. Most notably, Yellowstone National Park “culls” (through slaughter) bison from natural lands. The damning part? For over a decade, park officials haven’t allowed the public to watch, spurring the ACLU to file a letter of intent to sue. 

I once saw a video of bison being trapped in preparation for their sorting and slaughter. It had been filmed in 2004, in Yellowstone, the last year the Park Service permitted viewing of their bison operations. In the video, the bison are angry, bucking and kicking. The wranglers cry, ‘Hyah, hooee, yah yah, uhsh uhsh,’ smiling as they whip and beat the animals from catwalks. The camera angle shifts to the colliding bodies of the creatures, which cram in the bottleneck of the chutes.

5. From Yosemite to Bears Ears, Erasing Native Americans from U.S. National Parks (Hunter Oatman-Stanford, January 26, 2018, Collectors Weekly)

Though the National Park Service prevented wholesale industrialization, they still packaged the wilderness for consumption, creating a scenic, pre-historical fantasy surrounded by roads and tourist accommodations, all designed to mask the violence inherent to these parks’ creation. More than a century later, the United States has done little to acknowledge the government-led genocide of native populations, as well as the continued hardships they face because of the many bad-faith treaties enacted by the U.S. government.

Accompanied by photographs, maps, historic promotional materials, and other artifacts, Hunter Oatman-Stanford lays bare a multitude of violences and injustices perpetrated against native populations in the creation of National Parks, as well as chronicles the ways in which the harm of this history still affects people today.

6. Are We Losing the Grand Canyon? (Kevin Fedarko, September 2016, National Geographic)

During an end-to-end hike of the Grand Canyon, Kevin Fedarko notes how much of the landscape has been impacted by human development and ruminates on Edward Abbey’s prediction that the wilderness he was writing about “is already gone or going under fast. This is not a travel guide but an elegy. A memorial.

How much of the Grand Canyon should be developed? And in what ways? What tensions exist because of the Grand Canyon’s capacity to generate revenue? And who has been harmed in the process of development? Fedarko explores answers to these questions, and more, in this longform piece.

But according to U.S. Geological Survey data, 15 springs and five wells inside the Grand Canyon area have levels of uranium that are considered unsafe to drink, due in part to incidents in older mines, where erosion and problems with containment have allowed uranium to leach into the groundwater.

7. Clothing Companies Are Funding Our National Parks Because Our Government Won’t (Jen A. Miller, August 27, 2018, The Outline)

Jen A. Miller, who has a goal of visiting all 417 sites in the U.S. overseen by the National Park Service, began receiving Instagram ads for “Parks Project,” a company that seeks to fund NPS-related charities through their sales of shirts and other goods. Upon researching further, Miller discovers that “Parks Project” is not the only company attempting to help with NPS funding through the sale of merchandise, a noble goal, though one that still falls far from providing the kind of money NPS actually needs to thrive.

And while on paper it looks like the National Park Service budget has gone up from $3.276 billion for fiscal year 2009 to $3.460 billion for fiscal year 2018, when adjusted for inflation, it’s really an 8 percent drop. The New York Times has referred to this paradox of rising crowds and shrinking funds as a “crisis” — I was in Zion National Park in Utah right around the time their reporter was, and I don’t think the pictures do justice to the massive crowds I had to work through.

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Jacqueline Alnes is working on a memoir about running and neurological illness. Her essays have been published in The New York Times, Guernica, Tin House, and elsewhere. You can find her on Instagram and Twitter @jacquelinealnes.

Betting the Farm on the Drought

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Seamus McGraw | Betting the Farm on a Drought | University of Texas Press | April 2015 | 41 minutes (7,419 words)

 

The sun wasn’t even up yet when Ethan Cox tugged his work boots on, along with his old barn coat, the lighter one. He knew he wouldn’t need the heavier one. He didn’t even have to check the local forecast. It was going to be warm that day, low to mid-80s as the day wore on, he guessed, pretty much the same as it had been for quite a while. He glanced out the bedroom window at the sky. It was gray and brittle. It was going to be dry, too. That was no surprise either. The first week of March 2012 had been unusually dry. So had the whole month of February. In fact, the whole winter had been warm and dry. The yuppies and the liberals across the river in St. Louis or up in Chicago or out in San Francisco and New York all talked about that as being evidence that the climate was changing, that the bill was coming due for a century’s worth of pouring all manner of poison into the atmosphere.

Ethan’s neighbors thought that was kind of amusing. They saw the warm, dry weather as a godsend. After two years of record or near-record flooding, a deluge in 2011 so powerful that the Army Corps of Engineers decided to blow up the levees along the Mississippi River to keep Cairo, Illinois, from being washed off the map and such brutal rainstorms a year earlier that the region suffered $3 billion in losses and crop and infrastructure damage that forced many farmers in the region to the brink of bankruptcy, to them the unseasonably warm and dry spring of 2012 was a sign from above that the worst was over, at least for now.

Read more…

On Representations of Disability: A Reading List

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Around the age of 3 or 4, Harriet McBryde Johnson sits in front of her family’s television set and thinks, “I will die.” The thought comes to her after an advertisement for the Muscular Dystrophy Association flashes across the screen, one that depicts a small boy’s journey from running bases as a baseball player to using a wheelchair and then to bed, one he never rises from. Born with a neuromuscular disease, this commercial, and then a telethon around the age of 5, are Johnson’s first encounters with depictions of disability in mainstream media, as she writes in her memoir Too Late To Die Young. From that first scene, the line I will die, I will die, I will die, serves as a sort of chorus, one that punctuates Johnson’s progression from kindergarten student to law school graduate to protestor and beyond. Johnson reclaims the line; as she moves through life, I will die is no longer a source of fear, but rather a lyric of defiance.

The negative representations of disability Johnson encounters in childhood do not leave her in adulthood, particularly in relation to her wheelchair. She protests against entities like Jerry Lewis, who claims, in a letter penned for Parade Magazine, that wheelchairs are a form of “steel imprisonment,” a “dystrophic child’s plight.” When, being photographed for The New York Times Magazine, the photographer asks to remove Johnson’s chair from the frame, saying that Johnson looks “frail.” The photographer argues that Johnson will look “beautiful and powerful out of the chair,” “brave,” but Johnson advocates for herself.

Johnson’s memoir reveals a litany of ableist assumptions directed toward her and other disabled people, as well as the emotional and physical tolls these perpetual violences take on her throughout her life. Harmful messages, distributed through television ads, telethons, looks others give her while she’s out, snide comments, the highly inaccessible way our world is physically built, seep so much into her consciousness that at one point, she sees wheelchair dancing as being “undignified.” It takes her years before she reckons with her own beliefs, questioning whether they are borne from what others have told her about her disability or about what she herself has experienced in her body. Then, she explains the joy that comes from moving through the world in her wheelchair, saying, “we can in our own way play with sight and sound, combine rhythm and form, move in our chairs and with our chairs, and glide and spin in ways walking people can’t.”

Though Johnson’s life experiences are unique to her, the underlying themes within her book resonate far beyond. I saw myself reflected in some of her passages, particularly when I thought back to my own experience using a wheelchair for a few months as a result of neurological symptoms, during which time I felt a sense of shame. Johnson’s reckoning with her own internalized ableism helped me realize that my feelings came not from my use of the wheelchair, which allowed me to move through the world, often with great joy, but from how I thought others might perceive me.

Her memoir, too, encouraged me to ask questions: How does pervasive ableism affect the way our society continues to be architected? In what ways have disabled people been represented in media and how can representation continue to evolve so that disabled people have more agency? How are invisible disabilities treated versus visible? What have other disabled people’s experiences been engaging with different accessible tools and technology? The essays curated here cover an array of topics related to those questions, as well as delve into intersections between disability and race, class, and gender.

1. Common Cyborg (Jillian Weise, September 24, 2018, Granta)

Jillian Weise writes against Donna Haraway’s ‘A Cyborg Manifesto,’ exposing numerous flaws in Haraway’s argument, namely, the fact that Haraway neglects to acknowledge disabled people. Weise discusses what it means to claim a cyborg identity, and how disability is treated by a group of people she names ‘tryborgs,’ who “preach cyborg nature,” but “do not actually depend on machines to breathe, stay alive, talk, walk, hear or hold a magazine.”

They like us best with bionic arms and legs. They like us deaf with hearing aids, though they prefer cochlear implants. It would be an affront to ask the hearing to learn sign language. Instead they wish for us to lose our language, abandon our culture and consider ourselves cured.

2. What It’s Like to Be a Disabled Model in the Fashion Industry (Keah Brown, September 5, 2018, Teen Vogue)

In this essential reported piece, Keah Brown, author of recently published The Pretty One, interviews three models with disabilities — Chelsea Werner, Jillian Mercado, and Mama Cax — and draws on her own experiences with cerebral palsy to emphasize the need for increased representation of diverse bodies in advertising, media, and modeling.

Disabled people and disabled models are still left out of most campaign ads and runway shows. This lack of representation has implications: When you go so long without seeing yourself it is easy to interpret that lack of representation to mean you’re ugly and unworthy, that you deserve to be invisible or even worse, are grotesque.

3. How Designers Are Failing People With Disabilities (Justin Rorlich, March 6, 2014, Hazlitt)

With estimates that there are 1.3 billion disabled people in the world who control more than $8 trillion in disposable income, you’d think there would be competition within the wheelchair market to create products with sleeker, more efficient design. But no, as Justin Rohrlich exposes in this piece, hardly any work is being done within big corporations to advance wheelchair design. Instead, individuals like Andrew Slorance are taking matters into their own hands.

In no other market do we force people to simply take whatever product gets shoved down their throats, especially one of this size,’ Donovan says. ‘It’s really sort of unbelievable.

You’d think that companies would have figured out long ago how to sell to a cohort this size. For some reason, it remains barely-touched.

4. The Complicated Dynamics of Disability and Desire (Lachrista Greco, April 6, 2016, Bitch)

After a teacher in middle school tells Lachrista Greco she’s using her invisible disability as a “crutch,” Lachrista begins to make a connection between her disability and how wanted she feels in relation to others. In examining harmful cultural moments like Kylie Jenner modeling with a wheelchair, essays by other disabled writers, and personal memories, Lachrista explores how disability is connected to desirability, both in her life, and in our culture as a whole.

Jenner appeared on the cover of the magazine sitting in a brass-colored wheelchair—sexy, glamorous, and blank. It’s fetishization to the nth degree for Jenner, an able-bodied person, to pose in a wheelchair wearing a black latex bodysuit. It’s “crip drag,” as comedian and disability rights activist Caitlin Wood calls it.

5. The Amputee Cyclist’s Art of Self-Repair (C.S. Giscombe, May 23, 2019, The New York Times)

After seeing a banner that reads “Do you remember when prosthetics weren’t mind controlled?” while on a bike ride through the U.C. campus, C.S. Giscombe reflects on his own prosthetic; ruminates on intersections of race, class, and disability; and confronts ableism.

He was amazed — as some people are, ‘because of your handicap’ — that I was riding at all, and as we talked and climbed the topic of touring came up and he was quick to inform me that it was a thing sadly beyond my capabilities, though we had just met. ‘Typically, disability is viewed as a tragedy,’ as my friend the poet Jennifer Bartlett has observed.

6. Products mocked as “lazy” or “useless” are often important tools for people with disabilities (s.e. smith, September 20, 2018, Vox)

After seeing a device called a Sock Slider ridiculed on John Oliver’s Last Week Tonight, s.e. smith compiles a list of other tools mocked on the internet: “banana slicers, egg separators, jar openers, buttoners, tilting jugs for dispensing liquids, and much more.” In interviewing people with disabilities, disability scholars, and compiling research about costs of attendants, smith not only makes clear that the use of these gadgets enable some disabled people to live independently, but also examines the role of the internet in spreading harmful messages.

When content mocking the disability community — like memes about ambulatory wheelchair users getting up to grab something high at the store — spread like wildfire, commentary from the affected community is rarely attached. This has a dehumanizing tendency, creating a world that rewards judgmental, snappy commentary and eliminates nuance.

7. I Love ‘Queer Eye.’ I Don’t Love The Way It Portrayed People With Disabilities. (Jessica Slice, July 26, 2019, Huffington Post)

Representations of people with visible disabilities on television are far and few between, so when the Fab Five of ‘Queer Eye’ featured Wesley, “a Black man, loving father, 30-year old community activist and wheelchair user” on an episode, Jessica Slice had hopes that the team would empower Wesley to embrace his identity as a disabled man in the same way they encourage others featured on the show. Instead, the episode falls short in many ways, which Slice chronicles in this well-researched piece.

Critically, being disabled is not a negative. It’s an identity, just like being queer, Black or Latinx is an identity. If it makes you pause to hear ‘Black, but not really,’ or ‘gay, but not really,’ then you should have the same reaction to ‘disabled, but not really.’

8. (Don’t) Fear the Feeding Tube (Kayla Whaley, May 8, 2018, Catapult)

When her mom brings up the idea of a feeding tube, Kayla Whaley recoils. She feels shame and fear thinking about such a concrete change being made to her body until she speaks with others who have gone through the surgery. This essay, in addition to providing a history of gastronomy tubes, also chronicles Kayla’s emotional turn from revulsion to delight in relation to her g-tube, and the ways in which her feeding tube allows her to connect with her body in new and surprising ways.

More than that, knowing what was inside felt like sharing a secret with myself. Seeing inside my gut, learning to recognize its patterns and moods, felt intimate in a way that was wholly unexpected but altogether a joy.

***

Jacqueline Alnes is working on a memoir about running and neurological illness. Her essays have been published in The New York Times, Guernica, Tin House, and elsewhere. You can find her on Instagram and Twitter @jacquelinealnes.

What Does It Mean To Be Moved?

A Dutch Ship, a Yacht and Smaller Vessels in a Breeze, c. 1660, Willem van de Velde the Younger. Found in the collection of the National Gallery, London. (Photo by Fine Art Images/Heritage Images/Getty Images)

Jennifer Wilson | Longreads | August 2019 | 10 minutes (2,734 words)

 

“Why does a ripe apple fall?” Tolstoy asks in War and Peace. “Because the wind shakes it…or because the boy standing below wants to eat it?” Technically, the wind is the movement of air across space; but in our poetry, myths, and moving pictures, wind is something else entirely. For Tolstoy, it was the forces of nature tilting downward to meet man’s desire. For others, the wind is something that gives us permission, permission to move off course, to be blown away, to be held back longer from our destination, to act wild. In Homer’s The Odyssey, Aeolus, the divine keeper of the winds, hands Odysseus a bag containing all the winds of the earth. Aeolus conjures the west wind to send the men home. But just when they have Ithaca in their sights, Odysseus’s men, convinced the bag has gold inside, open it up. The winds escape and transform into a storm that sends their ship all the way back to Aeolus. However, this time he refuses to help them, certain Odysseus has been cursed by the gods.

We have rendered wind a metaphor for anger, passion, unreason; we use it as an excuse when we want permission to lose our minds. It is that extra push to be the person you really want to be, or to explain who we already in fact are. As Wallace Stevens put it “The wind shifts like this/ Like a human without illusions/Who still feels irrational things within her.” In Joan Didion’s Los Angeles Notebook, she writes about the strong, dry Santa Ana winds that leave coastal California in disarray, sometimes on fire. But for Didion, the Santa Anas are something else too; their arrival allows for a certain relinquishing of control. “We know it [is coming] because we feel it. The baby frets. The maid sulks. I rekindle a waning argument with the telephone company, then cut my losses and lie down, given over to whatever it is in the air.” I remember reading these lines for the first time and wishing for a wind like that, something that I could surrender to. Read more…

When to Throw a Goodbye Party

Illustration by Olivia Waller

Joy Notoma | Longreads | July 2019 | 15 minutes (3,746 words)

I didn’t want a goodbye party. They always make me lonely because I can never connect with people as deeply as I want. I didn’t feel I needed one. I was happy with one-on-one time with friends during the last months before I left Brooklyn to move to Benin.

These were the days when the busyness we habitually shield ourselves with melted away. The excuses we usually find to not get together suddenly weren’t good enough; we attended to those last moments religiously, knowing that coffee dates and weekend hangs would soon dwindle to once-a-year affairs, and those even only if we were lucky. We had already seen enough life changes among us to know the fragility of our bonds — many of them were already mostly memories steeped in nostalgia for days bygone, coated with the sweetness of stories told and re-told, but brittle beneath the weight of our everyday realities. We could look at each other, our eyes shrouded in shame with the knowledge that we weren’t present for the other’s most recent tragedy, but nonetheless carrying the trust of friendship’s creed: I love you though I am not always there and if you really really really need me, I’ll do my damndest to hold you up however I can— present or not. Through this creed, we forgave each other’s absences through divorces, first years of motherhood, and even a suicide attempt. Somehow, that creed meant something even if in reality, we had not been there for each other when we were really really really needed. And then when it was decided that I was moving, all the hurts of previous absences were less important than the one that was pending.

But during my final days before I moved to West Africa, to a country that many of our friends will likely never visit, we stopped time to shore up the bonds, to declare love, and to lavishly heap that coveted resource, time, upon each other. There was no other way. We sat and laughed and celebrated and mourned the time we spent and did not spend together. I was sure that these moments with each of them were enough for me. I knew that a party would sully it.

A party would force our conversations into five-minute segments while we shifted every few seconds because we aren’t sure when, if, how we would be interrupted. A party would make it strange if eyes spontaneously filled with tears…because who can handle all that emotion when there are other people to manage and attend to? A party would make me conscious of anyone who had the need to grab and hold me tight because of my obsessive worry over anyone feeling left out. Please, I would pray for the duration of a party, let me be all things to all people.

But then during my final week in New York, something began to change. I began to crave the uncanny thrill of a crossover episode — that rare intermingling when characters from the disparate corners of my life meet on neutral ground. Against my better judgement, I decided to have a party. I sent out non-committal sounding texts: “Are you free? Thinking of a little goodbye shindig.” The replies poured in. Everyone was free. A party was happening. And then in response to the anxiety of what I had done, I lost track of the texts and replies and began to forget who I invited and who I had left off the list. In the days approaching, I kept myself busy packing my apartment, getting rid of things, and contemplating the reality of my move.
Read more…

True Roots

Daniel Berehulak/Getty Images

Ronnie Citron-Fink | True Roots | Island Press | June 2019 | 34 minutes (5.655 words)

 

How’d You do it? Are you doing that on purpose? Are you okay? Ever since I stopped coloring my silver hair, I’ve gotten a lot of questions. One of the most common during my hair transition was Why are you letting it go gray? While my roots didn’t ask permission before they stopped growing in dark brown, it was a complex mix of fear and determination that rearranged my beauty priorities. The question of why — why, after twenty-five years of using chemical dyes, I gave them up-is something I’ve thought about a lot.

My world began to shift four years ago. I was sitting in a meeting about toxics reform in Washington, DC, when an environmental scientist began to describe the buildup of chemicals in our bodies. As she rattled off a list of ingredients in personal care products-toluene, benzophenone, stearates, triclosan — my scalp started to tingle. “We’re just beginning to understand how these chemicals compromise long-term health,” she concluded.

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After a Fashion

Vianney Le Caer / AP, Illustration by Homestead

Soraya Roberts | Longreads | May 2019 |  8 minutes (2,349 words)

Rufus: Models help people. They make them feel good about themselves.
Meekus: They also show them how to dress cool and wear their hair in interesting ways.
Zoolander: I guess so.

The schadenfreude was swift and it was sharp the moment the Met Gala announced this year’s theme: camp. “do you ever wake up in the middle of the night because you remembered the met ball is camp themed this year and so many celebrities are going to have to explain what they think camp is,” tweeted New Yorker fashion columnist Rachel Syme. The idea that the fashion industry, infamously out of touch, was not only bypassing urgent matters of the present to focus on the past, but that the past it chose is defined by its indefinability — Susan Sontag’s attempt, “Notes on Camp,” is a series of contradictions for a reason — was too delicious. We were all Divine, in drag, crouching next to that puli, waiting for that shit. And when Lady Gaga and Celine Dion showed up vamping their souls out, it was the perfect symbol of fashion’s near-constant missing of the mark even when it is the mark. Because camp, a lurid pink flourish on the margins of society, is at its core the opposite of what fashion has become: a sanitized institution that sets itself apart from the mess of our reality. “Without passion, one gets pseudo-Camp,” wrote Sontag, “what is merely decorative, safe, in a word, chic.”

The stars who seemed to intrinsically understand camp, from Danai Gurira to Natasha Lyonne, are familiar with the fringes of Hollywood. And it was a surprise to no one when Billy Porter — who made his name in Kinky Boots — arrived like the second coming of Tutankhamun, in head-to-toe gold, carried by a coterie of beefcakes. This is the man whose name few knew three months ago, whose style alone threw him to the top of the red carpet, above the old A-listers in the likes of Chanel and Valentino. Like Queer Eye’s Jonathan Van Ness, he is fashion precisely because he poses outside of it. Established fashion these days is a place where tradition trumps trendiness, and the biggest couturiers seem to be moving backward rather than forward. Prada, Gucci, Burberry, and Dolce & Gabbana, among others, have lately made missteps so basic it has become clear that being clueless is not the exception but the rule. “Fashion is old-fashioned,” says Van Dyk Lewis, who has worked as a designer and teaches fashion at Cornell University. “The clothes might be cool, but actually the sentiment of fashion in our moment isn’t.” Read more…

A Rich Awakening

iStock / Getty Images Plus

Soraya Roberts | Longreads | April 2019 | 9 minutes (2,392 words)

We all the know the stats, that by 2030 the richest 1 percent could be hoarding two-thirds of the world’s wealth. Tax the rich! Redistribute to the poor! It’s the kind of thing you hear lately set to some lame music in a weirdly cut NowThis News video of Alexandria Ocasio-Cortez or Rutger Bregman. (It’s always some scrappy progressive, not some bloated billionaire because, I don’t know, *yawns, eats some cake.*) Perhaps the rich will be moved by the fact that income equality is not only bad for the collective mental health, but their own? No? That the 10 percent’s multiplying accessories — private jets and yachts and enormous holiday homes — hogs nearly half the world’s emissions, killing the earth we all share? No? Nothing? What’s that you say, infrastructure investment started plummeting just as inequality began rising? But all the philanthropy! Which, sure, America’s largest donors may give a little more than before, but they also make way more than they used to. And as Jacobin magazine recently noted, “those nations — mostly in Scandinavia — that have the highest levels of equality and social well-being have the tiniest philanthropic sectors.” When you have equality, you don’t need long Greek words.

To recognize this, as a rich person, you need to have a sort of reverse double consciousness. “Double consciousness” originates with W. E. B. Du Bois, one of the founders of the NAACP, who coined it in 1897 as one way to describe the experience of  being an African American in a white supremacist world. In The Atlantic Monthly he defined it as, “…this sense of always looking at one’s self through the eyes of others….” The concept is based on being oppressed. What I’m talking about is an inverted version based on being the oppressor. It is the recognition that not only do you have outsized means, but that they come at the expense of others. It requires not only self awareness, but other awareness, and it’s a prerequisite for change.

Roy Disney’s granddaughter, Abigail, for instance, has given $70 million away over the past four decades, which is more than she ever inherited. “The problem is that there’s a systematic favoring of people who have accumulated an enormous amount of wealth,” she tweeted after a viral appearance on CNBC last month in which she said CEOs were overpaid. “The U.S. must make structural changes by taxing the wealthy.” To say that, she had to have had some kind of awakening — but what was it? In her case it was a sudden burst of extraordinary wealth and its human toll — not on others, but on the wealthy themselves. In 1984, when the heiress was in college, Michael Eisner became the chairman and CEO of Disney and launched its stocks into the stratosphere. Abigail’s father embraced the excess income — the too-big private jet, the too-much drinking — and no one questioned him, not even about his alcoholism. “That’s when I feel that my dad really lost his way in life. And that’s why I feel hyperconscious about what wealth does to people,” she recently told The Cut. “I lived in one family as a child, and then I didn’t even recognize the family as I got older.” Read more…