Justin Heckert profiles Anthony Carbajal, a 28-year-old photographer with the inherited form of amyotrophic lateral sclerosis (ALS). Before the disease slowly robs him of his ability to move, to swallow, and to breathe, Anthony is making the most of now by inventing hacks to allow him to make photographs. “I like to live in the present,” he said, “About 90 percent of the time, I’m looking forward to the time I do have.”
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