Search Results for: health

The Digital Security Threat Inside Jameson Rich’s Body

Pacemaker, The University Hospital In Lille, France, Pacemaker And Heart Defibrillator. (Photo By BSIP/Universal Images Group via Getty Images)

For the past four years, author Jameson Rich has had a small defibrillator implanted in his chest. Its job? To detect and prevent an arrhythmia that could end his life.

At OneZero Rich reports on what happens when the cure itself brings a whole host of new problems. The defibrillator, called an ICD, is part of the internet-of-things, sending data to his doctor and updating its software to patch vulnerabilities. Despite empty assurances from device manufacturers, anything on the internet can and will eventually be hacked. Is it only a matter of time before malicious people hack the very device that protects his heart’s rhythm?

The ICD would be a fail-safe, a tiny defibrillator inside my body that could go everywhere that I went.

When I came across an FDA safety notice warning that some ICDs, namely those made by a company called St. Jude, could be hacked, I was only days away from surgery. Once hacked, the devices could allow an external actor to gain control of the ICD, reprogram its functions, and inflict all kinds of damage—even trigger death.

In the past 13 years, these devices have also been fully integrated into the so-called Internet of Things—millions of everyday consumer items being programmed for and connected to the internet. Once connected to the internet, the devices ease the work of physicians and hospitals, who can now manage the device and monitor the patient’s condition remotely. Patients are typically charged each time their device sends data to the hospital. Think of it as a subscription—for your heart.

ICDs are just one increasingly popular medical gadget in a rising sea of clinical and commercial wireless health devices. Whether it is the growing suite of cardiac-monitoring devices available at home and on the go or an Apple Watch outfitted with diagnostic software, we are outsourcing more and more of our health to internet-enabled machines.

Having now lived with an ICD for more than three years and a pacemaker for the preceding 14, I understand intimately the consequences of being a body paired to the grid. If your smart fridge loses connectivity, maybe your food goes bad a few days early. But if a wireless ICD experiences a failure, the result could be lethal. I am stalked by the fear of the device misfiring and have wondered endlessly whether the documented security risks posed by these devices could end up harming me.

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‘No One Is Listening to Us’

Longreads Pick

“The most precious resource the U.S. health-care system has in the struggle against COVID-19 isn’t some miracle drug. It’s the expertise of its health-care workers—and they are exhausted.”

Author: Ed Yong
Source: The Atlantic
Published: Nov 13, 2020
Length: 11 minutes (2,841 words)

Living With Depression and Anxiety During a Global Pandemic

Longreads Pick

“With mood disorders on the rise during the COVID-19 pandemic, people who’ve never experienced mental health issues are enduring some of the emotions I feel almost every day of my life. Maybe that’s why I can finally tell my story.”

Source: 5280 Magazine
Published: Nov 2, 2020
Length: 13 minutes (3,395 words)

There She Goes: How to ‘Feminize’ a Face

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When most people think of the medicine of gender reassignment, hormone therapy and genital surgery likely come to mind. In a thoughtfully written feature in The Guardian, journalist Jenny Kleeman describes a new frontier: facial feminization surgery, or FFS. Kleeman introduces readers to trans women who, unsatisfied with — or traumatized by — the way they are perceived physically, visit surgeons who shave jawlines, plump cheeks, lift brow lines, and perform other procedures that can make faces read as more feminine. “I’m not trying to make myself beautiful,” says Sophia Drake, the main subject of the story. “I see testosterone as a poison in my body, a poison that I had to deal with for 20 years. I want to put my face to the way it would have been if testosterone had never been [there].” Her surgeon, Dr. Keith Altman, operated on Drake in October 2019:

There was no more easy chatter between the doctors when Altman returned to the theater to operate on Drake’s brow and forehead. This was the most difficult part of the surgery. It would remove the parts of Drake’s face she thought were most male, the features she hated so much. Altman brushed sterile aqueous iodine over her face and hair, rendering her first rusty red and then yellow. He made an incision into her hairline with a swift, steady hand.

He drew back her skin in either direction from her hairline until it gathered in folds on one side at the tip of her nose, and draped back across her crown on the other. With a tiny steel mallet and a chisel, Altman set to work carefully chipping away her brow bone, before filing it with a tiny drill bit. Then he stopped, and everyone in theatre craned in to see the difference.

When he was satisfied with the result, Altman changed his gloves and turned his attention to her forehead. The MRI on the lightbox showed Drake had a large sinus cavity with a thin wall; the challenge was to saw the bone down without perforating the sinus, and the best way to do this was to remove part of her forehead entirely. Altman drew a 5cm by 3cm rectangle on to her skull with marker pen. He sliced into it with another fine tool, then prized out the section of bone. He held it in his hand as he filed it back, turning a flat plane into a gentle curve. When he put it back in place, he pulled the skin over it, tilting his head to the side to check his work. Finally, the piece of forehead was fixed back in the skull with two 4mm titanium plates, which his trainee, Maini, secured using a tiny screwdriver. Drake’s skin was smoothed back for a last time. “Good,” Altman nodded.

As Kleeman details, FFS raises challenging questions about privilege and beauty standards. The surgery is expensive and not covered by the National Health Service in most of the United Kingdom. According to Juno Roche, author of Trans Power, FFS contributes “a kind of two-tier system where, on the whole, the most successful trans people are beautiful people that pass. People who are proud to be trans, and those people who can’t afford the surgery, fall into a separate category. That’s most people. And we have to create safety for everyone.” Then again, Roche adds, “Trans people deserve an easy life. This is a tough gig.”

For Drake, the results of FFS were life-changing. Kleeman interviewed her two months into post-surgery:

The change was almost imperceptible to me, at first. But I could soon detect a new poise: her face seemed narrower, and strangely her shoulders did, too. Her dimples were more prominent, her eyes looked brighter and more expressive. There was a faint, pale pink sliver of a scar along her hairline, mostly covered by the dark roots of her fringe.

“It was just enough, without being too much,” she told me. “The hairline frames my face better. I find that my eyes aren’t sunken, they’re further out. I feel that I’ve got a lot more expression in my eyebrows now. Other people spot this”—she cupped her hands around her jaw—”more than I do. But when I go back and look at old pictures, I see a massive difference.”

The biggest change was in Drake’s demeanor. She no longer sat with her arms across her chest or played with her jewelry. She was open, at ease, comfortable.

“It’s made me so much happier. Calmer. I can sit and relax in ways I’m not sure I’ve ever been able to,” she said. “I don’t walk around any more worrying that people are looking at me.”

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‘Social Media Managers Are First Responders’

INDIA - 2019/08/30: In this photo illustration online social media logos are seen displayed on a smartphone. (Photo Illustration by Avishek Das/SOPA Images/LightRocket via Getty Images)

Constantly navigating a 2020 news cycle that eats itself and a Twitter stream that endlessly flows, “social media managers are first responders,” writes Marta Martinez. The people tasked with handling social media at a company are expected to stay abreast of what’s happening in the world, react swiftly, and act as an official voice for a brand. Yet individuals in these roles are not always provided the support and resources to do their jobs well, and the time and effort involved in this type of work, including strategy, content creation, and community management, is often dismissed as trivial. Hey, can you whip up a few tweets? Can you promote this on our accounts? Let’s launch more channels! Let’s build a community! 

Under “normal” circumstances, social media management is hard work that requires a varied skillset. In 2020, it’s a stressful and hazardous job, says Matthew Kobach, who worked as the New York Stock Exchange’s social media manager, and one that should be paid accordingly.

At OneZero, Martinez reports on the experiences of social media managers and strategists during the pandemic and Black Lives Matter protests, at organizations like DCist, the University of Michigan, and Mount Sinai Health System.

Brown has not been able to meet most of her co-workers in person yet and, as a social media manager and a young Black woman, she often wonders whether she is being taken seriously as an equal professional within the newsroom. Social media managers are in high demand. But these jobs are often performed by young people who are underpaid. The national average salary of a social media manager is about $57,000, considerably less than what marketing managers make — over $135,000.

Social media managers are making important — and very public — decisions all the time. They need to respond to news and conversations quickly to be effective. The public voice and image of companies, media outlets, public figures, and institutions are in their hands at a very delicate time. Yet their job is still often seen as something anyone could do, or left to those who are just getting started in their careers.

“It’s like putting an intern to be your press secretary,” says Alan Rosenblatt, a social media consultant for political campaigns who teaches digital and social media strategy at George Washington University and Johns Hopkins University. “It’s a recipe for disaster.”

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How We Got Here

Longreads Pick

“Texas’ health system has been underfunded, understaffed, and unprepared for years. Here, COVID-19 found the perfect place to spread.”

Source: Texas Observer
Published: Nov 9, 2020
Length: 20 minutes (5,065 words)

‘You Just Have to Have a Strong Mind’: Shantonia Jackson on Working in a Nursing Home During the Pandemic

Photo by Matthias Zomer / Pexels

This summer, Gabriel Winant, an assistant professor of history at the University of Chicago, interviewed Shantonia Jackson, a certified nursing assistant (CNA) who works at City View Multicare Center in Cicero, Illinois. CNAs like Jackson provide general care (making sure patients eat and shower) and are often the only people that offer support and companionship when residents need someone to talk to.

City View experienced a major COVID-19 outbreak: 253 residents out of 315 contracted the virus, and many of them died. Jackson’s colleague, a 64-year-old woman named Camelia Kirkwood who was supposed to retire in June, was among those who contracted COVID-19 and died. Before coronavirus, the two oversaw 35 residents apiece. Now on her own, Jackson provides care for 70 men in an all-men’s unit.

Winant and Jackson’s conversation in Dissent reveals what it’s like to work in a nursing home, and the challenges and exploitative conditions hardworking healthcare workers like Jackson face, especially during the pandemic.

She describes how she felt after her colleague, Camelia, died from the virus, and the lack of support from the nursing home’s management:

It just devastated me when she passed away. I really, really took that very hard. But I had to come back and explain it to the residents, because they wanted to know where she was. They were hearing that she was sick or she died, but one by one I would talk to them and let them know she was in a better place. And you have to do that with psych and behavioral patients, because they can kill you. They could take the fire extinguisher off the wall and just bash it up the side my head, you know what I’m saying? So I develop a rapport with them.

Management never came upstairs on the floor with me to see what I was dealing with. They would come upstairs and yell at me, “Well, you need to give a shower.” I already gave thirty showers out of seventy people. I can’t make sure seventy take a shower. Because I’ve got to still pass trays. I’ve got to still make beds. It’s hard.

Even with the kitchen. Even with laundry. Who wants to have bugs? It’s supposed to be clean, but the nursing home industry is so cheap. We sometimes don’t have a housekeeper on our floor. It’s like, really? Call somebody in. But you don’t want to, because you don’t want to pay them. That’s crazy.

It’s common for nursing home workers like Jackson to juggle more than one job, often at other care facilities or in people’s homes, which is one of the ways the virus spreads.

I took a leave, because I felt like I didn’t want to take the virus from City View, with 253 infections, to Berkeley, which didn’t have one case. So I took it upon myself. And the nursing home industry is so fickle, and selfish, and disrespectful, because they were actually angry at me for leaving. I thought my director of nursing would be appreciative, because what if I came over here and I transmitted to all these elderly people? They all would have died. And they have the nerve to be mad at me, and calling me, saying, “You’re not going to come back?” No! I’m dealing with 253 cases over here. I want to be careful for the grandmas and the grandpas.

Later in the interview, Winant asks: “If you could make nursing homes change in any way, what would be your vision?” Jackson describes:

My vision would be to make sure that every CNA had at most only five residents. I would make sure it would be properly staffed. And that way we can comb their hair, brush their teeth, lotion their body, change them every two hours, make sure they get their needs, so we can do what we were put there to do, when their family members couldn’t do it. The residents would get proper food. You should see some of the food that they feed them. I wouldn’t feed that to my kid. Why would you feed them this? In America, we don’t care about the elderly; they’re about to die anyway, we don’t care. We should have respect, because they have wisdom.

When Winant asks how Jackson manages to care for all her patients, she responds, “I’ve got a strong mind. You just have to have a strong mind. It’s all I can do.”

Read the interview

The Top 5 Longreads of the Week

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Illustration by Glenn Harvey

Along with the Top 5 Longreads of the week, we’re proud to bring you an “Atlas of the Cosmos” by Shannon Stirone.

If you love space and exploration and maps, you’re going to enjoy Shannon’s story. She travels to Kitt Peak observatory to meet DESI, the high-powered telescope that’s working on mapping the entirety of the cosmos, one galaxy at a time. Yes, the entire cosmos.

Shannon’s written previously for us on space. Be sure to read “The Hunt for Planet Nine.”

The quest might seem a bit nonsensical. Why does it matter when or how the universe began? Why does it matter when or how it ends? It matters for the same reason your locations throughout your life carry context for who you are. We exist on a timeline together — we pop into existence and then one day we stop. It matters for the same reason one of the first questions you learn to ask in another language is, “where are you from?” To know where you are at any given time is a frame of reference in which to measure your life in some way and in many ways those locations, those slices of time, hold a great deal of meaning.

Read An Atlas of the Cosmos

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This week, we’re sharing stories from Hannah Dreier, Doug Bock Clark, Samanth Subramanian, Michael Hobbes, Jonathan Cohn, Kate Sheppard, Alex Kaufman, Delphine D’Amora, Chris D’Angelo, and Emily Peck, and Kris Willcox and Michelle Ruiz.
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1. What to Do About Ahav?

Hannah Dreier | The Washington Post | October 24, 2020 | 18 minutes (4,600 words)

“A mother’s fight to save a Black, mentally ill 11-year-old boy in a time of a pandemic and rising racial unrest.”

2. Arrested, Tortured, Imprisoned: The U.S. Contractors Abandoned in Kuwait

Doug Bock Clark | The New York Times Magazine | October 28, 2020 | 34 minutes (8,500 words)

“Dozens of military contractors, most of them Black, have been jailed in the emirate—some on trumped-up drug charges. Why has the American government failed to help them?”

3. Data Disappeared

Samanth Subramanian, Michael Hobbes, Jonathan Cohn, Kate Sheppard, Alex Kaufman, Delphine D’Amora, Chris D’Angelo, Emily Peck | HuffPost Highline | October 29, 2020 | 46 minutes (11,700 words)

Over nearly four years, the Trump administration has “defunded, buried, and constrained dozens of federal research and data collection projects across multiple agencies and spheres of policy: environment, agriculture, labor, health, immigration, energy, the census.” This is an accounting of the damage.

4. The Alhambra

Kris Willcox | Kenyon Review | October 28, 2020 | 14 minutes (3,639 words)

“A long time ago, I took a vacation because I thought I was irreparably broken, when, in fact, I was simply normal. Lonely, and waiting for the future. In other words, alive.”

5. AOC’s Next Four Years

Michelle Ruiz | Vanity Fair | October 28, 2020 | 22 minutes (5,611 words)

“The history-making congresswoman addresses her biggest critics, the challenges that loom no matter who wins, and what she’s taking on next.”

Data Disappeared

Longreads Pick

Over nearly four years, the Trump administration has” defunded, buried, and constrained dozens of federal research and data collection projects across multiple agencies and spheres of policy: environment, agriculture, labor, health, immigration, energy, the census.” This is an accounting of the damage.

Published: Oct 29, 2020
Length: 46 minutes (11,700 words)

Shades of Grey

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Ashley Stimpson | Longreads | October 2020 | 26 minutes (7,001 words)

It’s been nearly a decade since the numbers were tattooed in her ears, but they remain remarkably legible. In the right one, dots of green ink spell out 129B: Vesper was born in the twelfth month of the decade’s ninth year and was the second in her litter. The National Greyhound Association (NGA) gave that litter a unique registration number (52507), which was stamped into her moss-soft left ear. If I type these figures into the online database for retired racing greyhounds, I can learn about her life before she was ours, before she was even Vesper.

Smokin’ Josy was born to a breeder in Texas, trained in West Virginia, and raced in Florida. Over three years, she ran 70 races. She won four of them. In Naples on May 12, 2012, she “resisted late challenge inside,” to clinch victory, according to her stat sheet. In Daytona Beach on April 17, 2013, she “stumbled, fell early.” Five days later, after a fourth-place showing, she was retired.

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