Search Results for: cancer

In the Grand Scheme of Things

Illustration by: Kjell Reigstad

Hana Schank | From ‘The Edge of Normal’ | June 2015 | 11 minutes (2,634 words)

 

The following is an excerpt from The Edge of Normal, Hana Schank’s story about what it’s like to raise a child with albinism, a genetic condition whose most striking characteristic is white blonde hair and pale skin. Many people with albinism are also legally blind. Writes Schank, “The story is not just one of life with an unusual special need, but also the story of how I’ve changed, and continue to change, as I help my daughter navigate the world.”

* * *

Two weeks after the pediatrician had introduced the word “albinism” to my vocabulary, my husband and I sat in the stuffy waiting room at the neurologist’s, gently rocking my daughter’s car seat. This was the man who would tell us what was going on with my perfect-imperfect daughter. There was still a chance the pediatrician was wrong. After all, everyone else agreed it was probably nothing. Or a brain tumor or cancer. Those were also things that could cause nystagmus or visual impairment. But it was probably nothing. Or albinism. Or nothing. It was probably nothing. Read more…

Rivers We Destroy: A Reading List

Rivers are forces of nature, but over time, humans have learned to harness their power and change their course — often for the worse. Here are four stories on how humans have changed local and regional river systems, and the disastrous and sometimes deadly consequences. Read more…

Who Killed Dolly Wilde?

Dolly Wilde, photographed by Cecil Beaton

Megan Mayhew Bergman | Almost Famous Women | Scribner | July 2015 | 36 minutes (6,383 words)

 

Our latest Longreads Exclusive is a short story from Almost Famous Womena collection by Megan Mayhew Bergman, as recommended by Longreads contributor A. N. Devers, who writes: 

“In her vital and poignant themed story collection, Megan Mayhew Bergman explores the interior lives of women who lived on the precipice of notoriety before falling into obscurity. The story here, ‘Who Killed Dolly Wilde?,’ delves into the unusual life and mysterious death of Oscar Wilde’s niece, Dorothy Wilde, building a rich portrait of a witty and wild bon vivant who dated both men and women (but mostly women), drove an ambulance in World War I, and fell prey to dangerous addictions. Bergman daringly imagines Wilde’s last days suffering with cancer and her addictions as something other than what history has recorded, which leaves a unsettling and dangerous aftertaste in the reader’s mouth—if we write women out of history, we never know the truth of things.”

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The Mysteries and Truths of Illness: A Reading List

Photo: NVinacco

In her essay “This Imaginary Half-Nothing: Time” (#10 on this list), poet Anne Boyer quotes another poet, John Donne: “We study health, and we deliberate upon our meats, and drink, and air, and exercises, and we hew, and we polish every stone that goes to that building; and so our health is a long and a regular work.” What happens when that long work is disrupted, when an irregularity appears? What if the irregularity is chronic, terminal, fatal? Here, I’ve collected 10 stories about authors reckoning with illnesses—some without cause or cure. Read more…

Tig Notaro on Going Topless Onstage, Post-Double Mastectomy

Last week, ‘Tig’, a documentary about stand-up comic Tig Notaro–whose career reached new heights in 2012 after she opened a set by announcing she had breast cancer–debuted on Netflix. In January, at Vulture, Jada Yuan spoke with Notaro about the film, the assorted grave misfortunes from 2012 that are now behind her, her plans for marrying and having kids with her partner, Stephanie Allynne–and baring her mastectomy scars through an entire set, before an audience:

You did a topless set showing your mastectomy scars in New York this November. Why did you want to do that?

Well, I felt compelled after my surgery. It amused me to think of going onstage topless and not really acknowledging it. And just kind of in the same awkward way that it is to say, “Good evening, I have cancer, how’s it going tonight? Are you guys having fun?” Delivering it like, “Any birthdays?” And then I kind of put it out of my mind. But then when I started touring again a couple years later, I felt compelled, and I told a few friends that I was thinking about it, and they were all so excited. And then one person said that they were scared I couldn’t get the audience back if I did that, and then another person said they were scared it would be a stunt, and I feel very much like it is a stunt. [Laughs.] But it’s my skin, it’s my body, it healed, and it shouldn’t be taboo. It’s not a big deal. Cancer is a big deal, but my body — the aftermath — is not a big deal. I really did get a lot of feedback that people were stunned when I took my shirt off, and then 30 seconds later they didn’t even notice. I’m in a unique position after that album that I put out two years ago, and this would be the time for me to make that kind of statement and do that sort of action.

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Gravity

"Views of a Foetus in the Womb" (c. 1510 - 1512), drawing by Leonardo da Vinci.

Elizabeth Bachner | Hip Mama | June 2015 |  8 minutes (1,874 words)

 

This essay, recommended by Longreads contributor Maud Newton, is by the writer Elizabeth Bachner and appears in the current issue of Hip Mama magazine. The first issue of Hip Mama was published in December, 1993, by the founding editor, Ariel Gore, as a multicultural forum for radical mothers. Our thanks to Elizabeth Bachner and Hip Mama Magazine for allowing us to reprint this essay here. Read more…

Author Porochista Khakpour on New Age Treatments for Lyme Disease, and ‘Mind Over Matter’

Photo via Flickr

As someone who’s twice been diagnosed with Lyme Disease, I’ve read an awful lot about it. The more I read, the more confused I am; for every long, boring article about antibiotic treatments, there are two or three about widely varying alternative cures.

The Last Illusion author Porochista Khakpour has been living with Lyme for years. In the summer edition of Virginia Quarterly Review, she catalogs her quest for relief, from one holistic healer and quack to another, while shunning Western medical approaches most of the way.

(When you’re done reading, go check yourself for ticks.)

…It began with my mother’s friend, who had just started an acupuncture business in Los Angeles. She tested my pulses and heard me and laid me out and, as usual, the needles felt good to me. One day I burst into tears, frustrated at my slow progress. “My darling,” she said, “the progress is all in your mind—you know you don’t have an illness, right?” She told me to focus on breath and prayer daily and sent me a few dried exotic Asian fruits that would calm the psyche…

…Then I called a company that got people off Western meds—a front for Scientology, I later discovered—which convinced me during a phone consult that I was a benzodiazepine addict who had ruined my own life but said, “Don’t worry we deal with many VIPs like yourself who have taken a bad turn.” They sold me very expensive bottles of sour-cherry juice (insomnia treatment) and whey powder (glutathione nutrient builder) to start taking as I reduced my Western meds…

…I talked to a psychic who said there were dead people around me jealous of me and I had to burn sage and say a mantra and eat only red things if I could from now on.

I talked to a hypnotist who said my father was the problem and who did exercises to erase him from my consciousness. “But I live with him,” I argued, “I’ve moved back home.” He’d shut his eyes and say, “He is gone he is gone he is gone.”

…I went with a few friends, a young aspiring writer and her cancer-survivor mom, to their beachside “church”—“a spiritual center and community” that had been established in the 1980s—a group I’d heard of but never knew anything about, and watched their handsome charismatic dreadlocked leader sermon about “New Thought” spirituality as his wife played on the piano, and how over and over they’d healed the ill through prayer—reversed cancers even—and how the duty of each person was to be as wealthy as they could. They did many songs and everyone swayed and sang and clapped, and at one point they made first-timers stand and they all welcomed me with glazed eyes. It bothered me that even though I always sought multiracial atmospheres, here all I could think of was footage of Jonestown as I struggled to sing along. I never went back, of course.

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The Doctor and the Whistle-Blower

Longreads Pick

How an oncologist’s nightmare discovery brought down a cancer treatment empire.

Source: Detroit News
Published: Jun 10, 2015
Length: 16 minutes (4,010 words)

Arabs, Jews, and Israel’s Pork Industry

Photo by Pixabay

Surprisingly, David Ben-Gurion, Israel’s first prime minister and a staunch secularist, opposed pork consumption. He viewed eating pork as a recent Jewish diasporic cultural development that Israelis needed to shed in order to forge a united Israeli identity. In 1962 the Knesset officially outlawed the breeding and selling of pigs, except for in Arab-Christian areas, such as the villages around Nazareth. In 1994 the import of non-kosher meat was also banned. That action, ironically, fortified what was once a black-market system of smuggling pork from the Arab-Christian pig farms into Jewish areas. Today that market is a legal, flourishing industry reliant almost exclusively on those few original farms.

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While the consumption of pork is becoming more mainstream, the production of it by Jews is still rare and sometimes still requires some justifying loopholes. Kibbutz Lahav in southern Israel, which, like many kibbutzim, started as a radically secular project, is the only one of its kind to contribute to Israel’s pork industry, albeit as a byproduct of a program to breed lab animals. Because pigs are physiologically similar to humans, they are the best animals for medical research, explains Moshe Tayar, a kibbutznik and spokesman for the kibbutz’s research institute, where they work to advance treatments for ailments ranging from diabetes to various types of cancer. Excess pigs are processed at the kibbutz factory, which sells to shops and hotels around the country.

Their workers include observant Muslims and Jews who don’t eat pork themselves, explains Tayar. (In a rare example of Muslim-Jewish agreement among Israelis, Islam also views “swine” as a particularly unhygienic and thus spiritually toxic animal, and its consumption is explicitly deemed “haram,” or forbidden, in the Quran.)

Shira Rubin writing for Roads & Kingdoms about Israel’s deepest culinary taboo, and how pork has recently taken Israel’s secular foodie scene by storm.

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Science, Chance, and Emotion with Real Cosima

Clone dance party. Photo via BBC America

Maud Newton | Longreads | June 2015 | 24 minutes (5,889 words)

 

BBC America’s Orphan Black seems so immediate, so plausible, so unfuturistic, that Cosima Herter, the show’s science consultant, is used to being asked whether human reproductive cloning could be happening in a lab somewhere right now. If so, we wouldn’t know, she says. It’s illegal in so many countries, no one would want to talk about it. But one thing is clear, she told me, when we met to talk about her work on the show: in our era of synthetic biology — of Craig Venter’s biological printer and George Church’s standardized biological parts, of three-parent babies and of treatment for cancer that involves reengineered viruses— genetics as we have conceived of it is already dead. We don’t have the language for what is emerging. Read more…