Search Results for: cancer

The Ransomeware Superhero of Normal, Illinois

Longreads Pick

By day cancer survivor Michael Gillespie — an unassuming man who lives in Normal, Illinois, along with eight cats and his wife — works at a little computer repair shop called Nerds on Call. By night he’s a ransomeware-busting superhero to scores of people whose computers have been taken over by bad guys trying to exploit their precious documents, data, and photos for money.

Source: ProPublica
Published: Oct 28, 2019
Length: 17 minutes (4,431 words)

A Woman’s Work: Till Death Do Us Part

All illustrations by Carolita Johnson

Carolita Johnson | Longreads | October 2019 | 26 minutes (6,450 words)

 

Death is a process I knew very little about until my life partner began dying. He and I had to learn everything while we went through the process together. I say “learn,” but at this point I’m not sure we learned anything. Sometimes I think Michael was the only one who learned anything real and true, as in Pete Townshend’s words in “The Seeker”:

I won’t get to get what I’m after, till the day I die.

He died three years ago, and this is the first time I’m writing about it in retrospect. I took notes during it all — the before, the during, the after — and I’m glad I did because I sometimes barely recognize the hand of the person who wrote them, much less remember much of what I wrote about. If there’s anything I’ve come to understand while reading these notes, it’s that dying isn’t just about the one person doing the dying. It’s an undertaking woven by and around many people, and this has a certain beauty.

In a couple, though, along with the unfathomable strengths it can prove, it also has the potential to expose deep, carefully camouflaged structural flaws in a relationship. It imposes financial considerations and logistical burdens, sometimes revealing unsuspected shabbiness; or worse, deliberate malice. For good or for bad, what a death unfurls in its wake will always surprise you.

The deaths that I’ve known so far all began with aging and illness. So, I won’t presume to understand death by any other cause, not by war, not by accident or any form of deliberate (first, second, or third party) intent. The deaths I’ve seen involve watching the body of someone I love get tired, begin to fall apart, stop working right, and finally begin to degrade, as they watch in helpless terror, into food for pathogens.

First my husband, then a couple years later, my dad.

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I’m 72. So What?

Illustration by Emily Press

Catherine Texier | Longreads | October 2019 | 22 minutes (5,425 words)

“I don’t believe in aging. I believe in forever altering one’s aspect to the sun.” — Virginia Woolf

One day, around 20 years ago, towards the end of my marriage, we were walking through Central Park and sat for a moment on a knoll overlooking the lake. I don’t know what we had been talking about but I clearly remember saying: “I don’t see myself growing old in the States.” I was in my late 40s at the time. Perhaps the approach of 50 felt like a milestone, the beginning of “old.” Or perhaps what I meant was that I didn’t see myself growing old with him — which turned out to be the case, since we broke up not long after that.

Perhaps, after almost 20 years in the US, I still saw myself as just passing by — forever a green card holder, resident alien, with one foot on each continent, never really settling down, ready to flee back to France, like these expats from the old European empires who retire home after they’ve put in their time in the colonies.I only had a vague notion of what I meant by “old,” and when I would want to pack up. I figured life would send me signals when the time came.

Since then, I have stayed put — notwithstanding a few half-hearted attempts to cross the Atlantic, looking for international schools for my daughters in Paris when the divorce was final, or briefly putting my New York apartment on the market while fantasizing about quaint seven-story walk-ups near Bastille, when I had a boyfriend who lived in Europe.

Now, as the years pass, I have less and less desire to leave New York, where my roots have pushed down through the cracks of its broken sidewalks, even though, technically, at past 70, I suppose I am truly getting old. But the idea of going back to France would seem alarming, a tolling of a bell of sorts. Of course, staying in New York, the city I fell in love with at 22, might seem like waving a garlic branch in front of the grim reaper, a kind of vade retro satana, a vain attempt to stay forever young, or at least delay the inevitable.
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Breaking the Family Silence on Alcoholism

Photo by Ozgur Donmaz / Getty, Illustration by Homestead Studio

Alicia Lutes | Longreads | October 2019 | 18 minutes (4,426 words)

I remember turning around, but I don’t remember why. It was sometime in 1996 or 1997; maybe 1995? I was small, sitting on the couch in our living room, probably watching a cartoon on the comically large television my father had insisted upon, when something moved me to turn around. When I did, I saw my mother, her rapidly shrinking frame surrounded by the rays of a setting sun, her wafer-thinness outlined in fiery gold, a woman on fire. I watched her through the back porch as she cried on the phone, studying the slight way she swayed, how her emotions physically moved her, and how despite her lessening weight, her body moved so forcefully, the white wine in her glass twinkling in the near-twilight — but never spilling — as she moved. She slugged gulps between sobs and unremembered utterances to who-even-knows. It was tragic and beautiful, the way wine made her anorexic form seem to languish in the misery around her.

It also made her mean.
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The Reality of Being Sick and Alone

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Diagnosed with aggressive breast cancer, Anne Boyer writes a searingly honest piece in The Guardian about the brutal nature of chemotherapy — a potential cure that is so poisonous it can destroy eyesight, speech, and memory. A treatment that also bears huge financial costs and a hidden environmental impact.

Someone once said that choosing chemotherapy is like choosing to jump off a building when someone is holding a gun to your head. You jump out of fear of death, or at least a fear of the painful and ugly version of death that is cancer, or you jump from a desire to live, even if that life will be for the rest of its duration a painful one.

My problem is that I wanted to live millions of dollars’ worth but could never then or now answer why I deserved the extravagance of this existence, why I consented to allow the marketplace to use as its bounty all of my profitable troubles. How many books, to pay back the world for my still existing, would I have to write?

Unceremoniously tipped out of the hospital and left to face the consequences of treatment, Boyer also confronts what cancer means if you don’t have a traditional family unit to offer you care.

It should be no surprise that single women with breast cancer, even adjusting for age, race and income, die of it at up to twice the rate of the married. The death rate gets higher if you are single and poor.

If you are loved outside the enclosure of family, the law doesn’t care how deeply – even with all the unofficialised love in the world enfolding you, if you need to be cared for by others, it must be in stolen slivers of time. As Cara and I sat in the skylit beige of the conference room waiting for the surgeon to arrive, Cara gave me the switchblade she carried in her purse so that I could hold on to it under the table. After all of those theatrical prerequisites, what the surgeon said was what we already knew: I had at least one cancerous tumour, 3.8cm, in my left breast. I handed Cara back her knife damp with sweat. She then went back to work.

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We All Die In the End, But Our Skin Looks Great: A Reading List

Image by Ben Rose (CC-BY-2.0)

Sara Benincasa is a quadruple threat: she writes, she acts, she’s funny, and she has truly exceptional hair. She also reads, a lot, and joins us to share some of her favorite stories

I am as superficial and vain as anyone who wants to look hot, fun, and flirty 900% of the time (and who achieves it maybe 20% of the time). But for 35 years of my life, my vanity was missing a piece. Then, sometime in 2016, the internet let me know that I needed to pay more attention to the largest organ in my body. Obsessive attention, in fact. I found it impossible to care that much about my skin, but my vanity did permit a certain amount of heightened interest in my birthday suit. So while I have not yet gone for diamond microdermabrasion, a fruit acid facial, a full-body salt scrub and seaweed wrap, gua sha, cupping, or a ritual beating with branches by a woman of Eastern European extraction, I have considered all of these! But why?

The answer, of course, is so that someone will love me. No one told me, specifically, that I must engage in one or all of these things or else risk a lifetime of loneliness, but the message that skin-care marketing sends is: Do this, or wither in isolation. It is demonstrably true that one can live happily and healthily with wrinkles, blemishes, dry skin, dark spots, light spots, inflammation, and visible pores on one’s epidermis. But digital marketing, that most seductive form of storytelling, got married to social media and found even more insidious ways to invade our brains. Look at enough of those headlines, subject lines, Instagram ads, sponsored tweets, and carefully crafted hashtags and calls to action and you, too, will fall into the abyss.

I had a great deal of fun researching the topic and I made it out without buying any goop from Goop, a website primarily known for selling pussy eggs to white women, which is surely some kind of tiny victory. So enjoy this array of skin-care research, stunt reportage, and opining from around the web.

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Dispatch from Puerto Nowhere

Merve Karahan / Getty, Photo Collage by Homestead Studio

Robert Lopez | Longreads | October 2019 | 25 minutes (6,239 words)

For years I’ve been misquoting the late Polish poet Czeslaw Milosz without knowing that Milosz is the one I’ve been misquoting. I’ve done this, I’m sure, because I heard someone else misquote Milosz. I’m pretty sure this person did so without attribution, as well.

How far back it goes is unknowable, of course, but it’s akin to a literary game of telephone that is entirely without consequence or the least bit interesting.

What I’ve been saying is this: When a writer is born into a family, it’s the end of the family.

I preface this statement with the safe and inarguable, “A writer once said …”

I used to think Flannery O’Connor said this about writers and families, as it sounds like something she would’ve said.

It isn’t very scholarly or academic to say, “A writer once said,” but it gets the point across to students. I trot this misquote out whenever I’m trying to get my students to risk more on the page, whenever I see them pussyfoot around potentially interesting and dangerous material. I use the Milosz quote to give them license to let it fly, to destroy themselves and their families.

I employ any number of quotes and misquotes when I teach fiction and nonfiction writing to students. Babel, Hemingway, Faulkner, Chekhov, Didion, Pritchett, Hannah, Shakespeare, O’Connor, Borges, Stengel, Berra, Ray Charles, A writer, etc.

The actual quote from Milosz is: “When a writer is born into a family, the family is finished.”

I like the misquote better.

There’s a finality to the misquote that feels apocalyptic, whereas the actual quote sounds softer. One can finish a coffee table or a deck. One lover can ask another, “Did you finish?” and it would be considerate, thoughtful. A diamond is finished as are countless other precious gemstones and earthly items.

A family finished can mean they’ve attained the pinnacle of human achievement. No reason to go any further, to go forth and continue with this mindless multiplying, for we have birthed a writer.

Of course, it could be an issue with translation, too, and there’s no accounting for that. And I don’t know where the quote comes from, if it was in a poem or essay or lecture or what. A google search doesn’t provide this information, and I will have to dig deeper.
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This economist has a plan to fix capitalism. It’s time we all listened

Longreads Pick

Mariana Mazzucato, author of The Value of Everything and “one of the most influential economists in the world,” first set out to rewrite a narrative of corporate innovation that omitted the role of the state’s early investments in risk-taking. Now the European Parliament has just approved Mazzucato’s proposal for Horizon Europe, a set of concrete, measurable policies designed to invest heavily in moonshot solutions in five defined mission areas: “adaptation to climate change; cancer; healthy oceans, seas, coastal and inland waters; climate-neutral and smart cities; and soil health and food.”

Source: Wired UK
Published: Oct 8, 2019
Length: 17 minutes (4,394 words)

Why Karen Carpenter Matters

Karent and Richard Carpenter performing on the BBC's 'In Concert' series. Tony Russell/Redferns

Karen Tongson | Why Karen Carpenter Matters | University of Texas Press | May 2019 | 20 minutes (4,070 words)

 

Maria Katindig-Dykes and her husband, Jimmie Dykes, had finished a six-month stint at the Hyatt Regency in Singapore and were about to wrap up a six-month residency at the Playboy Jazz Club at Silahis International Hotel in Manila when a telegram appeared under the door early one morning in our Manila suite. It was for Jimmie: MOTHER ILL. CALL HOME. It was sent by his older brother Lee.

My dad called home to find out that his mother, Marion Dykes — the woman who sternly scattered the kids taunting me on the lawn during my first visit to Riverside, California; the woman who plied me with my very first taste of stewed tomatoes — was dying of brain cancer. It was late January 1983, and we made our preparations to leave Manila, unsure of whether or not we would return right away, or ever. I remember turning to my mom on one of the first nights we were in Riverside and asking her in Tagalog if we were ever going back home. She said she didn’t know, and we both cried quietly so as not to interrupt the other more urgent processes of loss and mourning happening under the same roof.

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The Girl I Didn’t Save

Woman's spirit ascending to Heaven (1883) / Getty, Lookout Press

Cameron Dezen Hammon| Longreads | excerpt from This Is My Body: A Memoir of Religious and Romantic Obsession | September 2019 | 24 minutes (6,521 words)

 

“She’s saying ‘thank you’ when she blinks like that,” Hannah’s mother says.

Hannah is dying. She lies in her bed, in her bedroom, surrounded by cards and flowers. Her mother sits on the edge of the bed, stroking her hand. Hannah’s husband of one month is beside her, propped against pillows, cross-legged. A few close friends are here as well—they sit against the wall, knees pulled to chests, or lean against the window ledge. Every few seconds Hannah’s ribcage rises in a struggle for breath.

Matt and I met Hannah three years after Budapest, while we were working for the young Baptist at Koinonia. It was the first church we worked for with a congregation comprised of people roughly our own age, and Hannah, twenty-seven, fit perfectly into its little galaxy of artists, lawyers, and schoolteachers. She flitted easily between groups of friends, always smiling. The pastor often calls Hannah his favorite, but no one minds. Hannah is everyone’s favorite.
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