Search Results for: Spiegel

Hoffnung um jeden Preis

Illustration by Xenia Latii

Lindsay Gellman | Longreadsmärz 2018 | 23 Minuten (5,717 wörter)

Read the story in English

Kurz nachdem Kate Colgans Mutter, Janet, im vergangenen Sommer in einem Krankenhaus in der Nähe von Manchester, Großbritannien, aus der Narkose aufwachte, hatte sie eine einfache Bitte: “Bring mich nach Deutschland.”

Also hat Kate, 25, die Familien-Limousine mit einem Dachträger ausgestattet und mit Gepäck beladen. Sie verfügte die Entlassung ihrer Mutter aus dem Krankenhaus gegen ärztliche Anordnung und hob sie vorsichtig vom Rollstuhl auf den Beifahrersitz. Kates damaliger Verlobter Chad fuhr sie dann zusammen mit der kleinen Tochter des Paares 16 Stunden am Stück in eine Privatklinik am Rande von Dornstetten, einer ruhigen mittelalterlichen Stadt zwischen Stuttgart und Freiburg.

Bei Janet wurde im September 2016 metastasierender Magenkrebs diagnostiziert. Ärzte des National Health Service gaben ihr höchstens ein Jahr zu leben und boten nur eine palliative Chemotherapie an.

Eine palliative Therapie zu wählen erschien Kate wie das Eingeständnis eines Aufgebens. Sie durchsuchte das Internet nach anderen Möglichkeiten, und stieß auf die Hallwang Private Onkologische Klinik, eine Einrichtung die außerhalb des streng regulierten deutschen Krankenhauswesens operiert. Die Hallwang Klinik hat sich in den letzten Jahren inmitten einer Schar von Krebskliniken, die in Deutschland Fuß gefasst haben, profiliert, und vermarktet sich als eine Art Luxus-Spa mit maßgeschneiderten Behandlungen, einer idyllischen Lage im Schwarzwald, und delikaten Mahlzeiten, die in einem Esszimmer eingenommen werden.

Die Online-Testimonials der Klinik sahen vielversprechend aus, und so erkundigten sich die Colgans nach der Behandlung. Nach Durchsicht von Janets Krankenakte sagte ein Arzt der Hallwang-Klinik den Colgans, dass mit Hilfe eines experimentellen Medikamenten-Cocktails, der anderswo nicht ohne weiteres zu haben sei, Janet eine Remission ihrer Krankheit erreichen könne. Aber der Preis sei enorm: mehr als 100.000 Euro. Die Klinik rechnet nicht über Krankenversicherungen ab und verlangt in der Regel eine Anzahlung von 80 Prozent, bevor mit der Behandlung begonnen wird.

Eine Chance auf Remission schien einen Versuch wert zu sein — um jeden Preis.

Read more…

How America Lost Its Identity

Longreads Pick

From the outside looking in: reporter Holger Stark, who spent the past four years as Der Spiegel’s Washington correspondent, asks “What led this once mighty nation into decline?”

Source: Der Spiegel
Published: Jan 27, 2017
Length: 12 minutes (3,192 words)

STAT: My Daughter’s MS Diagnosis and the Question My Doctors Couldn’t Answer

"Nearly 24 years later and still just that crazy about my kid." Photos courtesy of the author.

Maria Bustillos | Longreads | September 2016 | 40 minutes (10,049 words)

 

I.

In the first days of 2014, in her senior year at Oberlin and just a few days before the winter term she’d arranged to spend in France, my daughter Carmen’s legs went numb. First her feet got all tingly, then her ankles, calves, and knees. Over three days or so, the numbness crept up to the base of her rib cage, and then stopped. But it didn’t go away—a weird sensation all in her skin, almost as if the whole lower half of her body had been anesthetized. Shingles, the internist told us—really?—okay. The acupuncturist, too, told us he’d been seeing anomalous cases of shingles cropping up in younger people. Carmen seemed to get a little better, and off she went to Paris; the tingling and numbness subsided slowly over the next several weeks, just as we’d been told they would, and the episode faded from memory. But about a year later, they came back again: Not shingles, after all.

Carmen in a hospital bed, uncharacteristically quiet and gloomy, the dark jungle of her curls against slick, plasticky polyester pillowcases. IV steroids, and more and more tests. Legs pretty numb, still. From pregnancy onward, I imagine, most parents harbor a cold little drop of inward fear, even as each day passes peaceful and undisturbed, through birth and babyhood and all the playdates and sleepovers and math tests, rock shows and summer vacations; at any moment, perhaps, from out of nowhere, comes the pounce. Here it is, then. Multiple sclerosis: I didn’t know anything about it really, beyond calamity, wheelchairs, and Annette Funicello. Instant by instant I composed my face and steeled myself as best I could for… what?

For every cliché in the world, naturally. A soul-wracked family, just like the ones you’ll see every day on the Lifetime Channel and the evening news; a brave young person, scared and in trouble; you register a fleeting hope that things will work out for them, in fact or fiction, as you flick to the next station. Now it’s your turn, but you won’t be changing the channel. Can this thing be treated? What is it? How do I discover how bad this will get? Or maybe let me just jump out this motherfucking window this minute, because I’m going to die of the panic alone.   Read more…

A Reading List of International Nonfiction Comics

Below is a guest reading list from Daniel A. Gross, a journalist and public radio producer who lives in Boston.

* * *

Comic books bridge continents. Superman spin-offs are a hit in China; Japanese manga trickled into American culture through Frank Miller’s Ronin and even the Teenage Mutant Ninja Turtles. The Adventures of Tintin was translated from French into more than 50 languages. Alongside the superhero franchises and funny pages, a thriving genre of nonfiction comics has created new audiences and new appreciation for everything from war reporting to memoir. Here are five modern classics whose intricate illustrations have shaped the form.

1. Joe Sacco, “The Fixer and Other Stories”

The Fixer is a war story set in peacetime. In 2001, Joe Sacco traveled to Sarajevo, hoping to find the interpreter who’d helped him during the Yugoslav Wars. By this time, correspondents had cleared out and soldiers had become civilians. Memories of atrocity were starting to slip beneath the surface—but Sacco’s book excavates them. During one flashback, Sacco portrays his wartime arrival to Sarajevo, and it’s styled like film noir: hulking architecture, empty streets, long shadows. In a surreal scene at the Holiday Inn, the concierge points to the hotel on a city map. “This is the front line,” she says. “Don’t ever walk here.” Then, in the lobby, Sacco meets his fixer. Read more…

Your Phone Was Made By Slaves: A Primer on the Secret Economy

Kevin Bales | Blood and Earth: Modern Slavery, Ecocide, and the Secret to Saving the World | Spiegel & Grau | January 2016 | 34 minutes (9,162 words)

 

Below is an excerpt from Blood and Earth, by Kevin Bales, as recommended by Longreads contributing editor Dana Snitzky

* * *

We think of Steve Jobs in his black turtleneck as the origin of our iPhones.

It’s never a happy moment when you’re shopping for a tombstone. When death comes, it’s the loss that transcends everything else and most tombstones are purchased in a fog of grief. Death is a threshold for the relatives and friends who live on as well, changing lives in both intense and subtle ways. It’s the most dramatic and yet the most mundane event of a life, something we all do, no exceptions, no passes.

Given the predictability of death it seems strange that Germany has a tombstone shortage. It’s not because they don’t know that people are going to die; it’s more a product of the complete control the government exerts over death and funerals. Everyone who dies must be embalmed before burial, for example, and the cremated can be buried only in approved cemeteries, never scattered in gardens or the sea. Rules abound about funerals and tombstones—even the size, quality, and form of coffins and crypts are officially regulated. All this leads to a darkly humorous yet common saying: “If you feel unwell, take a vacation—you can’t afford to die in Germany.”

Granite for German tombstones used to come from the beautiful Harz Mountains, but now no one is allowed to mine there and risk spoiling this protected national park and favorite tourist destination. So, like France and many other rich countries, including the United States, Germany imports its tombstones from the developing world.

Some of the best and cheapest tombstones come from India. In 2013 India produced 35,342 million tons of granite, making it the world’s largest producer. Add to this a growing demand for granite kitchen countertops in America and Europe, and business is booming. There are more precious minerals of course, but fortunes can be made in granite. In the United States, the average cost of installing those countertops runs from $2,000 to $8,000, but the price charged by Indian exporters for polished red granite is just $5 to $15 per square meter—that comes to about $100 for all the granite your kitchen needs. The markup on tombstones is equally high. The red granite tombstones that sell for $500 to $1,000 in the United States, and more in Europe, are purchased in bulk from India for as little as $50, plus a US import duty of just 3.7 percent.

Leaving aside what this says about the high cost of dying, how can granite be so cheap? The whole point of granite, that it is hard and durable, is also the reason it is difficult to mine and process. It has to be carefully removed from quarries in large thin slabs, so you can’t just go in with dynamite and bulldozers. Careful handling means handwork, which requires people with drills and chisels, hammers and crowbars gently working the granite out of the ground. And in India, the most cost effective way to achieve that is slavery. Read more…

The Magic of Archives: A Reading List

I’m thrilled to present this week’s Reading List in collaboration with Samantha Abrams, an archivist and great friend. I’d planned to curate something about the importance and changing role of archiving—an oft-misunderstood or overlooked science—but I didn’t have enough in my longform arsenal. Cue Sam. I reached out to her via Twitter, asking her if she’d be willing to pass along pertinent articles, essays and interviews she’d encountered as she studied for her master’s degree at the University of Wisconsin’s School of Library and Information Studies. Sam understood immediately what I was looking for: nothing overly technical, but not condescending or simplified, either.

I spent over a year as an archivist’s assistant, working with the records collectors in a particular branch at the National Institutes of Health. My focus: digitizing records from the late 1980s and early ’90s. My favorite moments: reading someone’s journal from the 1970s and collecting documents for Freedom of Information Act (FOIA) requests. I felt like a detective. Archiving isn’t my calling, but I loved my mentors and their serious, inspired work.

On the other hand: You know the look someone gets in their eye when someone really, really loves something? Sam gets that look in her eye, because she loves her work. She has interned at the Library of Congress. She’s the first and only archivist for Culver’s. She’s kind of a genius.

Sam sees outreach as a part of her role as an archivist. Archivists are no longer stuffed into cubicles, scanning and sorting—although that can be part of their job description!—but out saving the World Wide Web, using their best judgement to decide what’s important to preserve and what isn’t. And that requires engagement with the wider world. Here, Sam is genuinely excited to share her expertise with the Longreads community, and I couldn’t be more grateful. I hope (we hope!) that you learn something new and surprising. Read more…

The True Astrid Lindgren

Longreads Pick

Who was the woman behind Pippi Longstocking? Der Spiegel looks at freshly released wartime diaries and a new biography to better understand Astrid Lindgren, the Swedish author of the Pippi Longstocking books.

Source: Spiegel
Published: Sep 24, 2015
Length: 13 minutes (3,480 words)

The Radical Pippi Longstocking

In this 2014 piece for Der Spiegel, Claudia Voigt looks at the life of Astrid Lindgren, a Swedish author best known for her Pippi Longstocking books. If you haven’t revisited the books recently, the exuberant Pippi lives on her own, does as she pleases, and describes herself as “the strongest girl in the world.” In short, she’s a radically independent, fabulously liberated leading lady, particularly for a children’s book published in 1945. But what inspired Lindgren to create such an iconoclastic protagonist?

There has been a great deal of research and academic discussion on what induced Lindgren to develop such a revolutionary and modern children’s book character. [Lindgren’s daughter] Karin Nyman remembers all too well that “there was a permanent sense of fear hanging over all of our lives,” even in Sweden. “The world was gripped by horror, and Pippi was a reaction to it. The stories were a way to oppose it, to give us a chance to come up for air.”

Lindgren was an avid reader. The novel “Hunger” by Knut Hamsun helped her endure the poverty she experienced as a young woman in Stockholm. She later claimed that the novel’s wry humor spurred her to create her radical Pippi character. The author read many children’s books to her children, Karin and Lars, including classics like “Tom Sawyer” and many fairy tales. She would later mention having been familiar with the writing of Alfred Adler, the progressive teaching theories of A.S. Neill and Bertrand Russell’s thoughts on education.

Read the story

The Top 5 Longreads of the Week

Below, our favorite stories of the week. Kindle users, you can also get them as a Readlist.

Sign up to receive this list free every Friday in your inbox.

* * *

Read more…

Homecoming and Pain: On the Etymology of Nostalgia

Why do some people look back and others refuse to? What are the pleasures of  “nostalgia”? The word itself has its etymology in the Greek nostos(homecoming) + algia (pain), but the condition is more multifaceted, combined of equal parts of homesickness, self-indulgence, sentimentality, and an alertness to the genuine, confected, or nonexistent pleasures of other times, other ages, and other places. In Updike, and many others of us, the pleasure of remembering predominates, not the pain.

The word, if not the condition, is modern, coined in 1688 by Johannes Hofer as a translation of the German Heimweh (homesickness) to describe the depression he witnessed among Swiss mercenaries longing to get home following service abroad. That its coinage coincides with the beginnings of the ages of Enlightenment and then Romanticism suggests that words both come out of their historical circumstances and affect subsequent conditions. They respond to cultural stimuli and then create new feelings, or new articulations of older ones. In The Future of Nostalgia, Svetlana Boym distinguishes between two nostalgias, a “restorative” version, a longing for return to the favored place, and a “reflective” one, which is all about irreparable loss. But in America today, the original pain of nostalgia is often replaced by the diluted pipe-dream pleasures of self-indulgent trips down Memory Lane.

Willard Spiegelman writing for The American Scholar about memory, nostalgia, and his 50th high school reunion.

Read the story