Search Results for: Internet

Amazon’s New Stores Aren’t Happy to See You Either

(AP Photo/Elaine Thompson)

It’s come to this: We’re now eulogizing giant corporate retail chains. Suburban D.C. will lose one of its largest bookstores when the 20-year-old Barnes & Noble flagship in Bethesda closes at the end of this year. Rumored to be one of the largest and highest-trafficked Barnes & Noble locations, second only to New York’s Union Square, the store was at the center of the development of Bethesda Row, an avenue of retail outlets that now includes a Kate Spade, Sur La Table, and The North Face, making professorial Bethesda into the kind of suburb that commands $10.5 million for a “downtown” penthouse. The Barnes & Noble was the beginning of this transformation, and now it has come to the end. Read more…

Are Regular Russians Ready to Take On Vladimir Putin?

Protesters wave a national flag as they crowd in downtown Moscow on March 26, 2017. (AP Photo/Ivan Sekretarev)

The Russian presidential election is a year away, but protests have already begun. Last week, images of Russians being carried and even dragged from Moscow’s Red Square spread throughout the Western media. Then came the crackdown—blocked access to web pages and social media showing the photos, and a criminal case against the protesters. Earlier this week, the square was nearly empty despite another planned action.

The protests demanded the resignation of Prime Minister Dmitri Medvedev and objected to widespread corruption, but they also served as a rare moment of rebellion in a country that rarely dares defy its leader, President Vladimir Putin.

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Popular Enough to Live: A Reading List About Crowdfunding Health Care

Postman76 / Flickr

I’m part of the 63 percent of Americans who don’t have money to cover an emergency costing $500 or more. I don’t own a car or a house, so in the unlikely event of the aforementioned emergency (knock on wood for me, please), my personal crisis would be health expenses uncovered by Medicaid. Like the people you’ll meet in the following stories, I too would turn to crowdfunding.

Everyone, in my opinion, deserves healthcare coverage, and crowdfunding shines a spotlight on the insufficiency of the United States healthcare system. It also demonstrates that the internet is far from democratic. Crowdfunding takes time, energy, and a knack for marketing. Not everyone has these privileges or skills, and when it comes to paying medical bills or seeking life-saving surgeries, that chasm can be fatal.

1. “Sometimes, It Does Hurt to Ask” by Caitlin Cruz (Digg, January 2017)

Just today, a trans man I follow on Instagram posted a picture of the letter he received in the mail saying his health insurance would not cover his top surgery. For trans and gender non-conforming people, the cost of life-affirming medications and operations are steep—financially, physically, and spiritually. According to GLAAD, 19 percent of transgender people don’t have any form of health insurance. Hormone therapy and gender confirmation surgeries can cost tens of thousands of dollars. Instead, many trans people have turned to the internet, using PayPal donations or hosting YouCaring or GoFundMe campaigns, to ask their friends, families, and total strangers for financial assistance.

2. “Is It Fair to Ask the Internet to Pay Your Hospital Bill?” by Cari Romm (The Atlantic, March 2015)

Donating to a medical crowdfunding campaign requires donors to be at once more intimate with and more judgmental of the recipients. At its most basic and most callous, the act of giving boils down something not unlike comparison shopping: Who, out of all the people who have shared their tragedy on the Internet, is the most deserving of money? And, before that, who can entice donors to click?

As medical crowdfunding has become more popular, so too has the idea of its so-called “perfect victim,” said Margaret Moon, a bioethicist and professor of pediatrics at Johns Hopkins University: the person whose inability to pay for their care came down to sheer bad luck—and bad coverage, if they had any insurance at all. “They’d done everything right, they’d explored all the possibilities and were still left short,” she said. “The people donating to these sites don’t know if somebody’s made a request because they just couldn’t figure out their insurance, or because their insurance failed them. Wouldn’t you be more willing to donate to someone who had played out their insurance?”

3. “Who Should Pay for Evan Karr’s Heart?” by Anne Helen Petersen  (BuzzFeed, March 2017)

Evan Karr is a a precocious 13 year old Kentuckian who was born with tetralogy of Fallot, a heart defect. Evan has had three heart surgeries, and at the top of Petersen’s story, he’s gearing up for a fourth.

4. “The Real Peril of Crowdfunding Health Care” by Anne Helen Petersen (BuzzFeed, March 2017)

Most of the successful campaigns on a crowdfunding homepage fall under the rubric of “fighting unfairness,” a designation that expands to include one of GoFundMe’s most successful campaigns of all time (for Standing Rock) but mostly signifies struggles against diseases that seemingly strike at random: cancer, genetic disorders, and other afflictions ostensibly out of the victim’s control. Such conditions are often referred to as “faultless.”

It’s far harder to fund so-called “blameworthy” diseases—addiction and mental health in particular—that are popularly conceived as either the fault of the victim or somehow under their control. You rarely see campaigns for adult heart disease, for example, or “getting my life together as a single mom”—both are viewed as the result of “choices” instead of “needs.” If there’s already a hierarchy of affliction and need in this country, then crowdfunding often works to exacerbate it.

5. “Go Viral or Die Trying”  by Luke O’ Neil, Esquire, March 2017)

Luke O’Neil’s feature for Esquire opens with an anecdote about Kati McFarland, a 25-year-old young woman with Ehlers-Danlos syndrome who turned to crowdfunding to offset the cost of medical care. McFarland garnered national attention when she confronted Sen. Tom Cotton about his perspective on the Affordable Care Act.

After reading several of these crowdfunding stories, I was feeling a little jaded. I couldn’t help but cringe at the following, from YouCaring’s director of online marketing:

“The secret prize for people who raise money on the site is they find out how much people care about them,” says YouCaring’s [Jesse] Boland. “The money is the primary ask but they end up being better off for having connected to their community, so they get a sense of peace and belonging.”

O’Neil also spoke to editors from Gizmodo, Uproxx, Upworthy, and the Washington Post about their experiences studying and spotlighting viral campaigns.

6. “Kickstarting a Cure”  by Noah Rosenberg (Narratively, July 2013)

Jimmy Lin is the founder of the Rare Genomics Institute, which he describes as “Amazon-slash-Kickstarter for science.” Lin’s organization matches families with researchers and geneticists from RGI affiliates and helps them raise money to cover the costs of expensive tests:

“The biggest thing we talk about with our team is, ‘If this was our child who was sick, what extent would we go to to help them?’” Lin says of RGI’s efforts. “If this was our kid that was sick, this is exactly what we’d do.”

ESPN Has Seen the Future of TV and They’re Not Really Into It

Longreads Pick

No matter how innovative or cutting-edge ESPN makes itself, the cable money is just too lucrative, and the costs of licensing live sports are just too great, to finally cut the cord and offer itself as a standalone internet subscription service the way HBO did with HBO Now.

Published: Apr 1, 2017
Length: 13 minutes (3,473 words)

Why ESPN Still Can’t Quit Cable

As a casual sports fan, I periodically check in with myself: Do I enjoy watching live sports enough to pay for cable?

The answer for the last few years has been: No thanks, I’ll just check out these GIFs on Twitter.

ESPN is having the exact opposite problem, as Ira Boudway and Max Chafkin explain in their latest Bloomberg Businessweek cover story. No matter how innovative or cutting-edge the sports giant makes itself, the cable money is just too lucrative, and the costs of licensing live sports are just too great, to finally cut the cord and offer itself as a standalone internet subscription service the way HBO did with HBO NOW. Boudway and Chafkin do the math:

Other media companies, most notably HBO, have confronted cord cutting by offering their programming “over the top,” which is TV-speak for “on the internet.” More than 2 million people pay $15 a month for access to the HBO Now app, but that strategy doesn’t translate to ESPN. The network’s programming costs are far greater than those of HBO—the budget for an entire season of Game of Thrones costs around $100 million, or less than what ESPN pays for the rights to air a single Monday Night Football game—and ESPN’s customers are accustomed to getting the network at no additional charge as part of their cable package. If ESPN were to charge $15 a month for a standalone streaming channel, it would need more than 43 million subscribers to match the money it collects from cable carriers. HBO has about 35 million total subscribers in the U.S., including cable and over the top.

Now, I’m obviously just one person, but I’m pretty sure I would subscribe to a service that just offers an endless loop of Ezra Edelman’s O.J.: Made in America. Just a thought for the folks over in Bristol.

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Why Should a Website Decide Where You’re From?

colorful map of eastern europe with pushpins connected by pieces of yarn
Photo by Cali4Beach via Flickr (CC BY 2.0)

In Real Life Mag, information accessibility and data use expert Zara Rahman explores the limits and coercive power of a ubiquitous internet interface: the location drop-down menu. Aside from forcing people to make artificial choices, location drop-downs also assume a stable location, something that many people don’t have, and never did.

Digital technologies seem to have ignored how people actually move around in geographic space: It’s relatively new that some of us have fixed locations or even addresses at all, and in some regions, nomadic cultures still exist. In Somalia, over a quarter of the population is nomadic; in Mongolia, just under a third are still nomadic, moving from place to place with their herds. Seasonal migration from rural areas to urban ones is a way of life for many, or from poorer countries to richer ones, as Bangladeshi migrant workers who find work in countries in the Gulf do. For millions, location is and always has been fluid and complex, dependent upon a myriad of factors, from climate to the economy to geopolitics.

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Leave Them Alone! A Reading List On Celebrity and Privacy

Todd Williamson / Invision for JDRF / AP

I read Alana Massey’s essay collection, All The Lives I Want: Essays About My Friends Who Happen to be Famous Strangerswith a pencil in hand. I read it behind the counter at work when it was quiet and customer-free. I read it in bed, long after my partner and cat had fallen asleep. I read it in Starbucks when I should’ve been writing but needed inspiration. Massey is a writer I’ve followed since I became interested in journalism. I admired her incisive blend of pop culture and literary criticism. I especially loved when she wrote about religion—Massey spent time at Yale Divinity School—because I went to a conservative Christian college and I was yearning to see how I could translate my weird, vaguely traumatic religious background into beautiful sentences. I bought her book as a reward for myself for meeting a writing deadline.

This reading list is partially inspired by Massey’s excellent writing about the way our society honors and rejects celebrated women—and also about society’s inclination, if not blatant desire, to know every little detail about our favorite celebrities and judge them according to our own arbitrary moral standards. (I’m not immune to this: I spent ten minutes in bed Googling potential paramours of one of my favorite YouTube stars, even though I know it’s none of my damn business.) Why do we feel like we own celebrities—not just their art or their products, but their images and their personal lives? What do celebrities owe us, if anything?

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The Rules For Being John Hinckley

John Hinckley, Jr. arrives at U.S. District Court in Washington in November 2003. (AP Photo/Evan Vucci)

Thirty-four years after his commitment to Saint Elizabeths Hospital, after being found not guilty by reason of insanity for shooting Ronald Reagan to impress actor Jodie Foster, John Hinckley is free. Well, “free.” In a fascinating New York magazine profile that also digs into the limits of both psychiatry and juries, Lisa Miller details some of the conditions of his release into the custody of his 90-year-old mother.

Under the order of a federal judge, Hinckley has to live with his mother for at least a year. He must remain in treatment with mental-health professionals in Williamsburg, who have to be in regular touch with the doctors at St. Elizabeths and the court. He may not travel more than 50 miles from home, and he may not contact Foster or any of his other victims. He may not knowingly travel to places where “current or former Presidents” will be present, and if he finds himself in such locations he must leave. He may play his guitar in private, but in the interest of containing his narcissism, he may not play gigs. For now, he may browse the internet but not look at pornography or at information related to his crimes. He has to submit the make and model of his car to the Secret Service as well as his cell-phone number. He is encouraged to make friends in Williamsburg but may not invite a guest to sleep over at his house unless his mother (or one of his siblings, both of whom live in Dallas) is home. Violations of these terms could send him back to the hospital.

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On Happiness: A Reading List

March 20 is recognized and celebrated around the world as the International Day of Happiness. From a profile of “the happiest man in the world” to a Brit’s account of mindfulness-obsessed Americans, here are seven reads about happiness.

1. “The Happiness Index.” (Gretchen Legler, Orion Magazine, January 2014)

“Can a country that claims in its brand-new constitution that happiness is more important than money survive, let alone thrive, in a global economy that measures everything by the dollar?” Legler considers the tiny, landlocked Kingdom of Bhutan as a model for change for the rest of the world.

2. “The World’s Happiest Man Wishes You Wouldn’t Call Him That.” (Michael Paterniti, GQ, October 2016)

“When you meet a monk on his mountaintop, it’s like taking a drug called Tonsured Tangerine Euphoria or Rainbow Saffron Dreams. When you see the world through his eyes, everything turns lovely colors, and you suddenly find yourself un-encrusted—free of your baggage—suddenly loving everyone and everything. It’s a self-manufactured rave in your head.” Paterniti travels to Nepal to meet Matthieu Ricard—named the “Happiest Man in the World”—to learn the keys of ultimate happiness. Read more…

Godwin’s Law, Trump’s Era

Game Over, Bilbao 2014 by Denis Bocquet
Game Over, Bilbao 2014 by Denis Bocquet via Flickr (Creative Commons)

There’s an internet adage — Godwin’s Law — stating that once you’ve made a Nazi analogy you’ve lost the argument. This short post on The Nib gathers the work of five Jewish cartoonists who address the validity of Nazi analogies in our current political climate.

Godwin's Law by cartoonist Matt Lubchansky

Godwin’s Law by cartoonist Matt Lubchansky

I’d argue that when we invoke Godwin’s Law, we all lose.

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