Archie Bland’s heartfelt essay recounts the moment his infant son, Max, stopped breathing and was resuscitated—possibly interrupted SIDS—and the years spent coming to terms with his resulting disability. Bland is not shy in recounting his frustration and rage, making this a very real portrayal of life after a shattering event. But we also discover the important lessons a loved one’s disability can teach us about ourselves.

I’ve thought a lot about why I’m writing this. I know that I’m repelled by the kind of spiritual vultures who might scour Max’s story for shareable aphorisms, and that ideally, I’d like to slap them with an injunction. On the other hand, I also know that what happened has changed me utterly, and confronted me with things about the world that I had never even tried to understand: how unbelievably precarious it all is, the breadth of what constitutes a meaningful life, and the medieval state of anxiety that the disabled world still produces in the typical one. I hate the way that disabled lives recede out of view because other people are too squeamish to talk about them, and I want to confront that tendency. Mostly, though, I think Max is already a thousand times more interesting than anyone I’ve ever met, and I want to tell you about him.

More picks on disability

Who Can I Dance With?

Arash Dabestani | Guernica | February 15, 2026 | 4,312 words

“From sneaking into underground basements in Tehran to learning to dance with almost no words in Northern California, I had done everything I could.”

The Blind Leading the Gamers

Dexter Thomas | Wired | June 11, 2025 | 4,368 words

“Ross Minor lost his eyesight at 8 years old. Today, he’s a hardcore gamer who runs YouTube and Twitch channels and consults for big studios. This is not—necessarily—an inspirational story.”

Loving Him Meant Facing My Greatest Fear

Chloé Cooper Jones | The New York Times Magazine | April 19, 2024 | 4,755 words

“Living with a disability, I shielded myself from dance. Then I met him.”

The Long Haul

Lygia Navarro | Switchyard | January 8, 2024 | 6,110 words

“Now I rarely let myself think of those Before Times. Describing what was once my life is like trying to recapture a sensation, a place that only ever existed in a dream.”

Is Anyone Ever Well?

Natalie Adler | Lux | January 18, 2023 | 2,859 words

Two new books see disability as a source of solidarity.

Space to Breathe

Krista Lee Hanson | The Rumpus | December 6, 2022 | 2,810 words

“I can suction while gathering my spirits, while holding out for my son’s right to exist, to be present, to take up space, to interrupt ‘usual’ life.”