“Cystic fibrosis once guaranteed an early death—but a medical breakthrough has given many patients a chance to live decades longer than expected. What do they do now?”
cystic fibrosis
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Every Parent Wants to Protect Their Child. I Never Got the Chance.
In a heartbreaking reported essay, Jen Gann writes about raising a son who suffers from incurable cystic fibrosis that will likely lead to his early death, the midwife practice that neglected to warn her that she and her husband were carriers, and the likelihood that she and her husband would have chosen to terminate the […]