Search Results for: cancer

Keeping Black Farm Families Connected to the Land in Michigan

AP Photo / Gosia Wozniacka

Owning land provides families with a legacy and, hopefully, some stability, but how do farmers keep their family farming their land? At BuzzFeed, Bim Adewunmi talks with blueberry farmers around tiny Covert, Michigan, to see what life is like for farmers of color. Only 1.46% of America’s farmers are black. Many Covert growers inherited their profession and have enjoyed a rewarding rural life, steady income and something to give to their children, and land, as one farmer tells Adewunmi, is power. But they still struggle to interest their kids and grandchildren in the job.

Farming is physically demanding, financially risky, costly and tenuous, and the market, like the weather, is constantly shifting. When parents raise their kids to go to college, save money and have more opportunities at their disposal, it isn’t surprising that younger generations leave home to work instead of stay on the family farm. As one farmer said, “We worked hard to show our kids what we considered a better life, and they’re taking advantage of those opportunities. They’re doing exactly what we told them to do.”

“He worked on the Hawkins farm for a time,” she says of her husband. “He always loved blueberries, so when we bought this place, he put his own blueberries out there. They’ve been here since 2001, I believe.” Harold died of cancer a few years back, and Carol assumed responsibility for the business. It is safe to say, however, that she never wanted to be a farmer. “If this wasn’t right here at the house,” she says, gesturing out of her kitchen windows, “I would’ve sold it a long time ago, is all I can say. It was my husband’s thing. I was just… I didn’t wanna be a farmer.” She giggles, but it’s a laugh filled with resignation. When I press her about the potential significance of holding on to her late husband’s legacy, she holds firm. “Uh-uh. I keep it because it’s here at the house. You see, it’s a ‘U,’ right here. And I just don’t want anybody else out there. So that’s why I keep it. And it does pay for my son’s college, the berries. So…” This time when she trails off, her laugh is knowing.

Unsolicited family legacy aside, Carol Baber’s most pressing headache is labor. All her berries are handpicked. Blueberries are graded — the handpicked ones generally get the best price at market, but they are also the most labor-intensive to produce, and picking conditions must be dry (“Nobody wants a wet berry,” Steven tells me, sagely, when I ask), which means picking during the hottest, most arid hours of the day. And that’s before the other maintenance issues that concern a blueberry farmer: weeding, pruning, fertilizing, spraying, and so on. “It’s hard for me because I don’t have any equipment,” Carol says. The Hawkinses help out with spraying (she buys the materials), but “it’s really hard to keep the grass down. So I’m working on trying to get a tractor.”

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You Can See the Battle Scars

In east-central Caracas, an improvised memorial for Neomar Lander, a protester killed in June.

Christian Borys | Longreads | September 2017 | 20 minutes (4,916 words)

Diego

Recklessly driving through the sloping streets of Caracas, Diego blares “Bonita,” the bass-heavy reggaeton hit of the summer. The stock speakers of his tiny sedan pulsate as we pass block after block of buildings, each cloaked with layers of razor wire and electrified fencing. Diego (whose name, as well as others’, have been changed to protect their identity) laughs and looks at me, smiling cynically, when I ask why it seems like no one bothers to stop at red lights.

“Do you want to be kidnapped or something?”

It’s the night of Thursday, July 27. In less than three days, Venezuelans will live through one of the most defining days in their country’s modern history — and one of the bloodiest. A vote nicknamed the Constituyente is scheduled for July 30. If successful, it would be a major step in president Nicolás Maduro’s march toward dictatorship.

Tonight, the sidewalks are empty and the roads nearly barren. For the few brave enough to be out, traffic laws go by the wayside. Even the sunlight brings little comfort. Just the day before we met, Diego was driving home after making a late-afternoon withdrawal at a nearby bank. En route, three men on motorbikes surrounded his car and tried to steer him off the road. “I always knew it was dangerous here,” he explains, “and you get used to it. But in my whole life, that never happened to me before.”

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Taking Up Smoking at the End of the World

John Sherman | Longreads | September 2017 | 9 minutes (2,250 words)

 

I started smoking this year. In Berlin, where I lived before recently returning to New York, almost everyone seems to smoke, almost everywhere, almost all the time. It’s like a 1970s game show, but in German and with better hair.

It wasn’t the ubiquity of smoking that sold me as much as the opportunity to become excellent at rolling cigarettes — a simple task that is wildly impressive when done well. The most practiced rollers can assemble a factory-grade filtered cigarette in about ten seconds, packing it casually against a thumbnail while your own attempt looks like a slightly crumpled, pregnant snake, leaking tobacco from both ends.

I’ve watched Berliners roll cigarettes walking, standing up in a moving subway car, and even once while biking through traffic on Karl-Marx-Straße. A German friend claimed her father could roll a cigarette inside his pants pocket, which, bullshit or not, puts the bar for trick-rolling higher than I can even imagine.

Aside from being a cheap way to smoke — about €5 for a bag of decent rolling tobacco, plus €1 each for filters and rolling paper — it’s an excellent sideline for fidgeters, people like me who can’t help but curl straw wrappers into intricate fiddleheads, or peel the label off their beer bottle to fold origami fortune tellers. Cigarette rolling is a mini-craft project unto itself, repeatable and perfectible. I probably enjoy rolling cigarettes even more than I enjoy smoking them.

***

I don’t mean to be flip about the health hazards of smoking, which are illustrated in full color on every side of every tobacco product I’ve ever purchased, and rattled off by every serious smoker I’ve ever talked to about it. I was born in America in 1989; the only thing I know about smoking is that it’s bad for me.

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How the NBA Failed Royce White

Illustration by J.O. Applegate

Sam Riches | Longreads | August 2017 | 18 minutes (4,650 words)

 

Bound by professional obligation, the announcer is feigning impartiality but a wobble in his lilt, a slip of exasperation, gives him away.

“He’s stolen the ball and here he comes again.”

It’s March, 2012, the third round of the NCAA Division I Men’s Basketball Tournament, and Royce White is running free.

He barrels up court, body wide and strong. He sprints past other players bound for the NBA, including Anthony Davis, who will soon enter the world’s top league as a transcendent number one pick, a uniquely defensive wunderkind that is representative of a shift in the way the game is played; positionless and facilitative and full-throttled.

White moves past him, over him, through him.

White, who stands 6’8” and weighs 270 pounds, moves with a lumbering fluidity, a grace that belies his size. He dribbles the ball like a guard, with hands that measure nearly a foot in width. He clears space with his frame, sometimes backing down his opponents from beyond the three point line, and then flicks passes to teammates at impossible angles. He rips rebounds from the sky and then floats the ball back into the basket with a feathery touch.

It is rare sight, to see a man that large that nimble, a combination of sheer force and astonishing agility and fortuitous genetics, but it is not rare for White. It is what he knows. He moves confidently, with purpose, with intention.

After the game, Kentucky’s head coach, John Calipari, a coach who has graduated 45 college players to the NBA, will say, “Royce is Charles Barkley.” It’s a comparison that comes up often, which is fitting since both players are anomalies, at once bullish and lithe, able to snatch rebounds from other gripping hands and then ignite a fast break with equal ease. But there are other comparisons. Jim Calhoun, one of the greatest college coaches of all time, says, “He’s got some Kevin McHale stuff inside.” One of Iowa State’s then assistant coaches, Matt Abdelmassih, goes a step further. “It’s unfair to Royce,” he tells Sports Illustrated, “but LeBron is the one guy you can compare him to.”

The NBA scouting reports are jotted with similar praise. “Legitimate playmaker.” “Big time rebounder.” “Crafty low-post scorer.” “NBA ready body.” His college coach, Fred Hoiberg, now coaching the Chicago Bulls, will say, “There are just so many things that he does. I’m not sure I’ve ever seen a player like him.”

White is about to announce his own opinion on the matter. Davis swats at him, tries to slow him down, to knock him off his path, but it doesn’t work. White launches into the air, dunks the ball through the hoop and then bellows his own proclamation.

“I’M THE BEST PLAYER IN THE COUNTRY.”

At that moment, it’s hard to argue with him. In his lone season at Iowa State, White is the only player in the nation to lead his team in scoring, rebounding, assists, steals and blocks. He also led the team back into the NCAA tournament for the first time in seven years. In this game, he has thoroughly outplayed the future number one NBA draft pick.

Back on steady ground, White thumps his chest. He screams. He makes sure he will be heard, and here lies the problem.

Royce White has something to say. Read more…

Pregnant, then Ruptured

Thomas Northcut/Getty Images

Joanna Petrone | Longreads | August 2017 | 28 minutes (7,729 words)

 

It comes on suddenly as a gas main explosion, the feeling of being grabbed tightly from within and twisted. I am standing at the front of my classroom, at one, almost, with its beige institutional carpeting and faint but pervasive smell of damp paper. I’m instructing sixth-graders — sleepy and vaguely conspiratorial-looking, the way they often are on Fridays in January just after lunch — when that blue flash of pain rips through me. I stop talking. I freeze, hand on belly, and wait to find out if I’ll vomit.

Inside me everything is lightening bolts and banshee wails and chaos. Outside, obedient, slightly bored students print in marble composition notebooks. Not one of my charges says anything — no one has noticed — so I steady my breathing and shuffle next door to find another teacher to cover for me.

On the toilet, I check my underpants. There is no new red blood — only ­ the same smear of tacky rust-colored discharge that’s been soiling my pads for weeks. The bathroom light, set to a motion-sensitive timer, blinks out into darkness while I sit stock still, afraid and in pain, replaying the highlights of the last two weeks: positive pee sticks, phone calls and doctor’s offices, a sequence of blood tests, an ultrasound confirming a mass in my right adnexa (a uterine appendage), and, last night, a duo of cheerful ER nurses sheathed in full-body, bright orange hazmat suits injecting an abortifacient into my backside.

To turn the light back on, I need to move, but I am immobilized by pain so intense I can no longer tell where in my body it is coming from. After a time, the pain quiets enough for me to think over it and will my body into action. I flail my hands to trigger the light, stand up, wash. Maybe this is cramps from the methotrexate working, I think, just very bad cramps, signaling the welcome end of a doomed, rogue pregnancy.

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The Case for Believing Women Who Are In Pain

If there’s only one important takeaway from the backlash to Gwyneth Paltrow’s Goop, it’s that women seek alternative medicine — and therefore the “wellness” movement — because traditional doctors have never taken them seriously.

As Annaliese Griffin pointed out for Quartz, the American healthcare system, while undeniably terrible for nearly everyone, damages women to an extreme. Their “experience of pain is routinely minimized by health practitioners,” resulting in longer wait times, misdiagnoses and even an increased chance of death from things as common as heart attacks.

When Maxwell Williams learned a female friend of his was incapable of having sex without feeling excruciating pain but struggled to find a doctor who would take her pain seriously, he decided to investigate what was really causing the stabbing sensation that doctors kept telling his friend was all in her head. (Never mind that the head is part of the body, indeed controls all of the body, so it makes little sense to discount it.)

For his piece for GOOD Magazine, Williams spoke with about a dozen women who shared his friend’s experience, including one whose marriage unraveled because of it, and he learned of vulvodynia, a Latin medical term that roughly translates to “vulva pain.” The condition plagues far more than the dozen women he spoke with — as much as 16 percent of the female population, or 14 million women, markedly more than those who experience endometriosis or breast cancer. So why don’t we know about it? And why are treatment options so scarce?

“If you were a woman and you were asked, ‘In your last sexual encounter or your last series of sexual encounters, did you experience pain?’ what would you think the answer would be?” he says. “It’s a little over a third. That’s a freaking epidemic. One third of women in our environment are having pain during sex. That’s an unnecessary, bothersome, distressing issue. We need a lot more effort in understanding it.”

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The Top 5 Longreads of the Week

Photo: Associated Press

This week, we’re sharing stories from Libby Copeland, Patrick Blanchfield, Taffy Brodesser-Akner, Cory Taylor, and Tabitha Blankenbiller.

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Cory Taylor Answers Your Questions About Dying

Celebrated Australian novelist Cory Taylor was diagnosed with cancer in 2005. Rejecting the taboos that prevent humans from talking openly about death, she goes on the record with her answers to some of the most typical questions people have asked her about dying. In her piece at The New Yorker, she talks about her regrets, fears, priorities, what she’ll miss most, and how she’d like to be remembered. Taylor passed away on July 5th, 2016. Her book, Dying: A Memoir was published in the United States on August 1st, 2017.

A few months back, I was invited to take part in a program for ABC television called “You Can’t Ask That.” The premise of the show is that there are taboo subjects about which it is difficult to have an open and honest conversation, death being one of them. The producer of the program explained that I would be required to answer a number of questions on camera. She said questions had been sent in from all over the country, and the ten most common had been selected. I wasn’t to know what these were until the day I went into the studio for the filming.

It turned out that the producer of the program herself had a need to talk about death, as she had recently lost her father to cancer, and was struggling to cope. This is so often the case with people I talk to about my situation: they listen for a while, then they tell me their own death story, but always with a vague sense that it is shameful, that the whole sorry business is somehow their fault. In taking part in “You Can’t Ask That,” I wanted to do my bit to change things around, to win back some dignity for the dying, because I don’t think silence serves the interests of any of us.

The questions, as it turned out, were unsurprising. Did I have a bucket list, had I considered suicide, had I become religious, was I scared, was there anything good about dying, did I have any regrets, did I believe in an afterlife, had I changed my priorities in life, was I unhappy or depressed, was I likely to take more risks given that I was dying anyway, what would I miss the most, how would I like to be remembered? These were the same questions I’d been asking myself ever since I was diagnosed with cancer, back in 2005. And my answers haven’t changed since then. They are as follows.

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Questions for Me About Dying

Longreads Pick

Celebrated Australian novelist Cory Taylor was diagnosed with cancer in 2005. Rejecting the taboos that prevent humans from talking openly about death, she goes on the record with her answers to some of the most typical questions people have asked her about dying.

Source: The New Yorker
Published: Jul 31, 2017
Length: 14 minutes (3,712 words)

Twelve Truths About My Life With Bell’s Palsy

Illustration by Hannah Perry

Pam Moore | Longreads | July 2017 | 16 minutes (4,065 words)

 

1. My face—and my life—split in half ten days after my second daughter was born.

In the grainy iPhone photos taken immediately after Lucy’s birth, I am looking at the ceiling, not at her. The gray-gold glow of dusk peeks through the blinds and I feel as if it’s four in the morning, as if I’ve been laboring all day.

In fact, I’d felt the first twinge of labor around lunchtime. I put my toddler down for a nap and was halfway through an episode of Breaking Bad when I realized this was it. I made my two-year-old a peanut butter and jelly sandwich and packed her overnight bag between contractions. At three o’clock my in-laws came for her and I waddled to the sidewalk to thank them while my husband buckled her into their car. The midwives came about an hour later, and our baby was born as the summer sun dipped behind the Rocky Mountains.

In those pictures she grows pinker with every breath and all I can think is, Holy shit. Not Holy shit, she’s gorgeous or Holy shit, I am in love with her, but Holy shit, it is finally over. As in Holy shit, that was hard.

I didn’t know the hardest part was yet to come. I had no idea the next 365 days would find me depleted, sad, and anxious. I would spend the year vacillating between dreaming of a fast forward button to catapult me through time, and berating myself for squandering my daughter’s babyhood. But that would come later.

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