Search Results for: Medicine

Science Magazine’s 2013 Spoof Paper Sting Operation

Photo by Pixabay

On 4 July, good news arrived in the inbox of Ocorrafoo Cobange, a biologist at the Wassee Institute of Medicine in Asmara. It was the official letter of acceptance for a paper he had submitted 2 months earlier to the Journal of Natural Pharmaceuticals, describing the anticancer properties of a chemical that Cobange had extracted from a lichen.

In fact, it should have been promptly rejected. Any reviewer with more than a high-school knowledge of chemistry and the ability to understand a basic data plot should have spotted the paper’s short-comings immediately. Its experiments are so hopelessly flawed that the results are meaningless.

I know because I wrote the paper. Ocorrafoo Cobange does not exist, nor does the Wassee Institute of Medicine. Over the past 10 months, I have submitted 304 versions of the wonder drug paper to open-access journals. More than half of the journals accepted the paper, failing to notice its fatal flaws. Beyond that headline result, the data from this sting operation reveal the contours of an emerging Wild West in academic publishing.

John Bohannon writing for Science Magazine in 2013. Bohannon created a spoof paper and then submitted it to a plethora of open-access journals, many of whom accepted the paper. He uses this experiment as a lens to examine the lack of oversight at many open-access journals.

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The Mountain Carver

Parviz Tanavoli. Photo by Kamil Bialous

Nadim Roberts | Maisonneuve | Spring 2015 | 12 minutes (2,885 words)

 

The following Longreads Exclusive comes from journalist Nadim Roberts and Montreal-based Maisonneuve magazine.

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One morning in March 2014, shortly after returning to his home in Iran, sculptor Parviz Tanavoli awoke to the sound of his daughter’s screams. About twenty men had broken the locks on his front door and entered his house. It looked like the clumsiest art heist in history, but this ragtag group worked for the municipality of Tehran. They were there on strict orders to confiscate Tanavoli’s artwork. Read more…

Fairyland: Memories of a Singular San Francisco Girlhood

Alysia Abbott with her father Steve Abbott, 1983. Photo courtesy of Alysia Abbott.

Alysia Abbott | Fairyland, a Memoir of My Father | June 2014 | W. W. Norton & Company | 17 minutes (4,188 words)

After his wife died in a car accident in 1973, bisexual writer and activist Steve Abbott moved with his two-year-old daughter Alysia to San Francisco, a city bustling with gay men in search of liberation. Fairyland, a Memoir of My Father is that daughter’s story—a paean to the poet father who raised her as a single, openly gay man, and a vivid memoir of a singular and at times otherworldly girlhood. As noted in The New Yorker, the memoir, which vividly recalls San Francisco in the nineteen-seventies and eighties, “doubles as a portrait of a city and a community at a crucial point in history.”  Our thanks to Abbott for allowing us to reprint this excerpt here.

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I called him Eddie Body. At four years old, language was my playground. “Eddie Body’s not anybody! Eddie Body’s not anybody!” I’d repeat, relishing the near symmetry of the sounds. Eddie Body was Dad’s new boyfriend, his first serious relationship after our move to San Francisco in 1974. There’d been different men—good-looking men, funny-looking men, almost always tall and skinny and young—that I found in Dad’s bed in the mornings. But it was different with Ed. He was the only one with whom I became close. He is the only one I can remember. We spent six months living with Eddie Body. I loved him.

A twenty-two-year-old kid from upstate New York, Eddie Body had moved to San Francisco to get away from his pregnant wife, Mary Ann. He’d made a pass at my dad one afternoon over a game of chess in the Panhandle Park. Soon after, Ed moved into our apartment, a four-bedroom Victorian located a few blocks from Haight Street.

Haight-Ashbury’s “Summer of Love” had ended in 1968 with the arrival of heroin and petty crime. For years the neighborhood was dominated by bars, liquor stores, and boarded-up storefronts. But rent was cheap and soon my father, along with scores of other like-minded searchers, moved in, setting up haphazard households in the dilapidated Victorian flats that lined Oak and Page streets. Many of these new residents, if not hippies themselves, shared an ethos of experimentation and free expression. Many also happened to be gay. Read more…

The Rise of ‘Mama’

Photo: arileu

Elissa Strauss | Longreads | May 2015 | 15 minutes (4,006 words)

 

I first noticed “mama” while pregnant with my son in 2012. I was browsing on the internet—familiarizing myself the different types of mothers out there, trying to figure out what kind of mother I might become—when I noticed a number of alternative moms who referred to themselves as “mama.” This was the radical homemaking, attachment parenting, extended breastfeeding bunch, and “mama” was right at home with their folksy, back-to-the-earth approach to motherhood.

This use of mama can be traced back to women like Ariel Gore, who began publishing her alternative parenting magazine “Hip Mama” in 1993. Inspired by her experience as an urban single mom, the magazine became the source of parenting advice for riot grrrl types, tattooed and pierced women who wanted to find a way to embrace parenthood while simultaneously rejecting much of the bourgeois accouterment that comes along with it.

This fringe quality of “mama” stuck, leading to websites like the “Wellness Mama,” the home of a popular alternative lifestyle guru named Katie who is into stuff like, “cloth diapering, natural birthing, GAPS dieting, homeschooling, not eating grains, making my own toothpaste, drinking the fat and more.” For her, being a mama isn’t just about parenting one’s kids, but seeing parenting as a medium through which one can change the world.

“Here’s the thing, I can’t change the health of the world alone, but I’m absolutely convinced that as a group, women and moms can. … Not only are we raising the next generation, feeding them, teaching them, etc but we control the majority of food dollars spent around the world.”

She continues by explaining that being a “Wellness Mama” is a way for women to counter any criticism they might receive for being a stay-at-home mom. “I hope to make being #justamom just a little easier for you.” Mama isn’t just a pet name, it’s a manifesto. Read more…

The Man Who Beat HIV at Its Own Game for 30 Years

Longreads Pick

For 25 years, Kai Brothers, who is HIV positive, has been studied by AIDS researchers because he has been healthy and has never taken HIV drugs. Brothers now faces a vexing choice—a dilemma that mirrors a quandary for modern medicine.

Source: Nautilus
Published: Apr 30, 2015
Length: 9 minutes (2,480 words)

Venom That Heals: How a Swarm of Bees Saved One Woman’s Life

Photo via Flickr (Umberto Salvagnin | CC BY 2.0)

For three days, she was in pain. Then, she wasn’t.

“I had been living in this… I call it a brown-out because it’s like you’re walking around in a half-coma all the time with the inflammation of your brain from the Lyme. My brain just came right out of that fog. I thought: I can actually think clearly for the first time in years.”

With a now-clear head, Ellie started wondering what had happened. So she did what anyone else would do: Google it. Disappointingly, her searches turned up very little. But she did find one small 1997 study by scientists at the Rocky Mountain Laboratories in Montana, who’d found that melittin killed Borrelia. Exposing cell cultures to purified melittin, they reported that the compound completely inhibited Borrelia growth. When they looked more closely, they saw that shortly after melittin was added, the bacteria were effectively paralysed, unable to move as their outer membranes were under attack. Soon after, those membranes began to fall apart, killing the bacteria.

Convinced by her experience and the limited research she found, Ellie decided to try apitherapy, the therapeutic use of materials derived from bees.

Her bees live in a “bee condo” in her apartment. She doesn’t raise them herself; instead, she mail orders, receiving a package once a week. To perform the apitherapy, she uses tweezers to grab a bee and press it gently where she wants to be stung. “Sometimes I have to tap them on the tush a little bit,” she says, “but they’re usually pretty willing to sting you.”

She started on a regimen of ten stings a day, three days a week: Monday, Wednesday, Friday. Three years and several thousand stings later, Ellie seems to have recovered miraculously. Slowly, she has reduced the number of stings and their frequency – just three stings in the past eight months, she tells me (and one of those she tried in response to swelling from a broken bone, rather than Lyme-related symptoms). She keeps the bees around just in case, but for the past year before I talked to her, she’d mostly done just fine without them.

Christie Wilcox on Ellie Lobel, a woman with Lyme disease whose health has recovered after being attacked by a swarm of Africanised bees, in a March 2015 article in Mosaic. Lobel now works with a bee farm and has a business selling bee products, using the proceeds to support bee preservation efforts and Lyme disease research.

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The Craft of Poetry: A Semester with Allen Ginsberg

Elissa Schappell | The Paris Review | 1995 | 63 minutes (15,685 words)

  
We’re excited to reprint Elissa Schappell‘s essay, “The Craft of Poetry: A Semester with Allen Ginsberg.” The piece was first featured on the site in 2013 as a Longreads Member Pick, and originally appeared in the Summer 1995 issue of the Paris Review. It was later anthologized in the Paris Review’s 1999 collection Beat Writers at Work. Thanks to Schappell and the Paris Review for sharing it with the Longreads community:

Of all the literature classes I have ever taken in my life Allen Ginsberg’s “Craft of Poetry” was not only the most memorable and inspiring, but the most useful to me as a writer.
First thought, best thought.
It’s 1994 and I am getting my MFA in fiction at NYU. I’m sitting in the front row of a dingy classroom with a tape recorder and a notebook. The tape recorder is to record Allen Ginsberg, the big daddy of the Beat’s “Craft of Poetry” lectures for a feature I’m writing for The Paris Review. No. Lectures is the wrong word—Ginsberg’s thought operas, his spontaneous jet streams of brilliance, his earthy Dharma Lion roars—that’s what I’m there to capture. His teaching method is, as he explains it, “to improvise to some extent and it have it real rather than just a rote thing.”
It was very real.
The education Ginsberg provided me exceeds the bounds of the classroom, and far beyond the craft of poetry. Look inward and let go, he said. Pay attention to your world, read everything. For as he put it, “If the mind is shapely the art will be shapely.”
—Elissa Schappell, 2013

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The news that Allen Ginsberg was going to be teaching at New York University was passed around campus like a joint, making some people giddy and euphoric, others mildly confused, and still others paranoid—teachers and students alike. The waiting list to get into the class was extraordinary not only in length, but for the sheer number of times students eagerly checked to see if they had moved up. As a graduate student in the creative writing program I was given first dibs. I was curious to meet Ginsberg, curious to see how he would commandeer the Craft of Poetry class, which in the past had been taught by Galway Kinnell and William Matthews. The following excerpts were culled from a diary I kept during the semester. Read more…

Escape from Baghdad!: Saad Hossain’s New Satire of the Iraq War

Saad Hossain | Escape from Baghdad! | Unnamed Press | March 2015 | 23 minutes (6,311 words)

 

Below are the opening chapters of the novel Escape from Baghdad!, by Saad Hossain, as recommended by Longreads contributor Dana Snitzky.

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A NOTE ON THE GLOSSARY AT THE END

There is a glossary of mostly factual terms and names at the end of the text (“factual” being a relative idea open to loose interpretation (“loose interpretation” meaning we’re aiming for a 50% chance of something on the page tallying with someone else’s verified opinion.)) So, if you find yourself wondering: Who’s Moqtada Al-Sadr again? Or what does JAM stand for? Or, bless you, IED? Just refer to the helpful, mostly factual glossary. Read more…

Understanding the ‘Swiss Cheese Model’ of Error

The human lapses that occurred after the computerized ordering system and pill-dispensing robots did their jobs perfectly well is a textbook case of English psychologist James Reason’s “Swiss cheese model” of error. Reason’s model holds that all complex organizations harbor many “latent errors,” unsafe conditions that are, in essence, mistakes waiting to happen. They’re like a forest carpeted with dry underbrush, just waiting for a match or a lightning strike.

Still, there are legions of errors every day in complex organizations that don’t lead to major accidents. Why? Reason found that these organizations have built-in protections that block glitches from causing nuclear meltdowns, or plane crashes, or train derailments. Unfortunately, all these protective layers have holes, which he likened to the holes in slices of Swiss cheese.

On most days, errors are caught in time, much as you remember to grab your house keys right before you lock yourself out. Those errors that evade the first layer of protection are caught by the second. Or the third. When a terrible “organizational accident” occurs — say, a space shuttle crash or a September 11–like intelligence breakdown — post hoc analysis virtually always reveals that the root cause was the failure of multiple layers, a grim yet perfect alignment of the holes in the metaphorical slices of Swiss cheese. Reason’s model reminds us that most errors are caused by good, competent people who are trying to do the right thing, and that bolstering the system — shrinking the holes in the Swiss cheese or adding overlapping layers — is generally far more productive than trying to purge the system of human error, an impossibility.

Dr. Bob Wachter writing in Backchannel about the errors that led a young patient to receive a massive overdose of antibiotics at one of the nation’s best hospitals. The above excerpt is from the third installment of a multi-part series called “The Overdose.” The series has been looking at the nature of error in tech-driven medicine.

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The Class That Teaches Doctors ‘Clinical Empathy’

Force credits “Oncotalk,” a course required of Duke’s oncology fellows, for the unexpected accolade. Developed by medical faculty at Duke, the University of Pittsburgh, and several other medical schools, “Oncotalk” is part of a burgeoning effort to teach doctors an essential but often overlooked skill: clinical empathy. Unlike sympathy, which is defined as feeling sorry for another person, clinical empathy is the ability to stand in a patient’s shoes and to convey an understanding of the patient’s situation as well as the desire to help.

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While empathy courses are rarely required in medical training, interest in them is growing, experts say, and programs are underway at Jefferson Medical College and at Columbia University School of Medicine. Columbia has pioneered a program in narrative medicine, which emphasizes the importance of understanding patients’ life stories in providing compassionate care.

While the curricula differ, most focus on self-monitoring by doctors to reduce defensiveness, improve listening skills (one study found that, on average, doctors interrupt patients within 18 seconds), and decode facial expressions and body language. Some programs use actors as simulated patients and provide feedback to individual doctors.

Sandra G. Boodman writing in The Atlantic about the importance of empathy to the craft of medicine.

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