Search Results for: Medicine

A Frustrating Year of Reporting on Black Maternal Health

Danielle Jackson | Longreads | June 2018 |3370 words (14 minutes)

“It’s in fashion to talk about black women’s maternal care,” Bilen Berhanu, a Brooklyn-based full-spectrum birth doula told me recently. I’d asked her about the outpouring of news stories, from multiple national outlets, about infant and maternal mortality over the past twelve months.

The reporting has added flesh and aching detail to what I’ve come to think of as an embarrassing public health crisis in the United States. Among industrialized countries, our nation has the highest rate of infant deaths. We’ve had dramatic declines since 1960, but we have not kept pace with other nations we’d consider peers. New American moms face similar danger: The rate of maternal mortality in the U.S. has been rising since 2000 while falling for most other nations in our subset.

Deep, persistent inequality — access to safe neighborhoods and hospitals, functioning schools, healthy food — plays a part. But across family income levels and educational attainment, the infant mortality rate for black babies is more than twice than it is for whites, according to data from 2007-2013. Black mothers are also more imperiled than white ones — they are three to four times more likely to die from pregnancy-related causes leading up to or within a year after giving birth. In New York City, black mothers are 12 times more likely to die than their white counterparts. Read more…

Fairy Scapegoats: A History of the Persecution of Changeling Children

A Glimpse of the Fairies by Charles Hutton Lear/Getty Images

Richard Sugg | Fairies: A Dangerous History | Reaktion Books | June 2018 | 19 minutes (4,969 words)

Fairies were dangerous. Not to believe in them was dangerous. Not to respect them or take them seriously was dangerous — hence all the carefully euphemistic or indirect names one used in speaking of them, from “the Gentry” to “the Good People,” “Themselves,” “the fair folk” and “the people of peace” through to the charming Welsh phrase bendith û mamme, or “such as have deserved their mother’s blessing.” Fairies stole your children. They made you or your animals sick, sometimes unto death. They could draw the life, or essence, out of anything, from milk or butter through to people. Their powers, as we have seen, were almost limitless, not only demonic but even godlike in scale and scope.

While ordinary people still believed this less than a century ago, the educated had also believed it in the era of the witch persecutions. Witches did these kinds of thing, and fairies or fairyland were quite often referenced in their trials. Although Joan of Arc was tried as a heretic, rather than a witch, the latter association naturally clung to such an unusual woman, and it is notable that in 1431 her interrogators took an interest in the “fairy tree” around which Joan had played in her childhood in Domrémy. In the Protestant camp, Calvin later emphasized how “the Devil works strange illusions by fairies and satyrs.” In early modern Sicily one distinct type of witch was the female “fairy doctor,” the phrase donna di fuori (“woman from outside”) meaning either “fairy” or “fairy doctor.” Here Inquisitors encouraged people, including suspected witches, to equate fairy and witch beliefs. In 1587 they were especially interested in one Laura di Pavia, a poor fisherman’s wife who claimed to have flown to fairyland in Benevento, Kingdom of Naples. Read more…

We Are Scientists

(AP Photo/Saurabh Das)

Kirtan NautiyalBoulevard | Spring 2018 | 25 minutes (6,903 words)

In 1969, my father traveled alone from India to Boston so that he could enroll in the master’s program in geophysics at MIT.

I don’t know whether he flew or came by boat, so when I try to picture him setting foot in America for the first time, I don’t know what to imagine. I’ve tried to find the photographic evidence, but there aren’t any pictures of the fifteen years he spent in this country before he married my mother. Maybe he just threw out the tattered albums when we were moving between houses, but it’s more likely that he never took any photos at all. He’s never been a sentimental man.

I also don’t know why he chose to come in the first place. He has never had any great fascination with money; despite his making a good living, we lived in shabby rentals for most of my childhood, and my mother shopped for us from department store discount racks. I never felt that professional success was what he was after either. He never advanced past middle management, and except for one late-night discussion in which he made clear that he felt there was a glass ceiling for people with our skin color, I never heard one word of frustration from him about work. Maybe it was to help his family – along with his brother who came to Kansas State University earlier in the 1960s, he supported his parents in India for years with the money he earned. When trying to make us feel guilty about our second-generation lassitude, which is often, he tells us of how at MIT he had to work all hours of the night in the cafeteria and library while keeping up a full courseload, so maybe we need to be a little more appreciative that he helped with the room and board during our own time in college. Read more…

It Isn’t That Shocking

Getty / Photo illustration by Katie Kosma

Leslie Kendall Dye | Longreads | May 2018 | 22 minutes (6,055 words)

 

It is a truth not nearly enough disseminated — despite all the discussion about depression and the recourses for those who suffer from it — that electroconvulsive therapy (ECT) can work. I had it six times in the basement of Lenox Hill Hospital in New York City in 2003 when I was 27 years old.

I’d awakened the morning before my first treatment in my mother’s apartment on the East Side of Manhattan. I remember staring into the mirror, mute. My mother said: “You look haunted.” What was my mother seeing? I remember seeing “it” too. My face was cradled in my hands, as though they held up its sagging contents. I looked captive, as though I were staring from behind prison bars.

For the previous six months, I had been unresponsive to a host of psychotropic drugs called in as a breakwater against a tidal wave of morbid depression. Who had I been? The details: I was a college graduate who had been a child actor. I was a chatty and expressive person, prone to melancholy moods but capable of romantic enthusiasm for life. I had been, simply, a human being, before illness descended and set off deterioration. Now, I was a clump of raw nerve endings.

It’s an old story. Much like prostitution is the world’s oldest profession, depression, I often think, is the world’s oldest ailment. But old or not, it is my story too.

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Politics and Prose

Alex Milan Tracy / Sipa via AP Images

Marie Myung-Ok Lee | Longreads | May 2018 | 15 minutes (3,630 words)

 

“Walls are built in the mind.” — Wole Soyinka

“The whole country is outraged and outspoken and you should be too

because if you’re not, then you’re not doing your part.”

— Rachel Coye, “New Year”

As a writer, a books columnist for the literary site The Millions, the co-founder of the Asian American Writers’ Workshop, and a literary citizen with prolific and brilliant friends whose readings and performances I could probably ink every night on my calendar, let’s say I go to a lot of book signings. Some have food, some have wine. Some have people who wander in and ask irrelevant questions with disarming earnestness.

At one reading where I acted as interlocutor, the novelist I was interviewing took out a package of Swiss chocolate she’d brought with her from Geneva, and instead of putting it on the plate with the wine, handed it to me with a sly smile. I’ve been to several readings where I have been the sole member of the audience. I was asked to do a reading that would involve live exotic animals as accompaniment. I went to one on the Lower East Side, back when it was truly gritty, where the writer was accompanied — overpowered, really — by a person blowing random high notes on a flute. Each reading offers something different, delightful, educational, new.

But I’ve never been to a reading/book signing that had protesters. Especially not for a book the Cleveland Plain Dealer called a “Beautiful, eloquent, and timely” memoir authored by a young writer with a new MFA, a Fulbright, and a Whiting Award. In the era of Trump, where there is something new to protest every day (women’s rights, the EPA, the NEA, gun control, tax cuts for the rich, healthcare…), what would cause the lovely indie bookstore, Books Are Magic to send out a warning on Facebook before the event?

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But What Will Your Parents Think?

Illustration by Mark Wang

Morgan Jerkins | Longreads | May 2018 | 11 minutes (2,609 words)

 

This past February, during the book tour for my essay collection, This Will Be My Undoing: Living at the Intersection of Black, Female and Feminist in (White) America, one of the recurring questions I received most frequently from readers was about how I pushed past the fear to write about the most intimate aspects of my life? I assumed the crowd expected to hear about some grandiose regimen I followed — half an hour of meditation followed by an hour-long chat with a therapist, combined with some amount of whiskey drinking, or chain-smoking. Nevertheless, I told them the truth: I never did fully push past the fear when I wrote about my internalized anti-blackness, my surgically-modified labia, or my indulgence in pornography. Fear was ever-present as I worked on my book. I found it was best to acknowledge it, but not let its presence stun me into paralysis.

Fear is the little sister my mother never gave birth to. She appears and reappears in the furthest corner of the room in which I write and inches closer and closer as I approach the heart of a confession. I’ve discovered throughout the years that the best approach to meddlesome siblings is to acknowledge that they’re there, because if you don’t, they will wreak havoc and derail whatever it is you set out to do. This essay is the longer answer to that question.

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The Roaring Girls of Queer London

Moll Cutpurse, 1611. (Getty)

Peter Ackroyd | Queer City: Gay London from the Romans to the Present Day | Abrams Press | May 2018 | 17 minutes (4,408 words)

The story of same-sex love among women was bequeathed another chapter with the rediscovery of the clitoris by anatomists of the mid sixteenth century. It had been known to the Greeks but then disappeared from view. It could not have come as a surprise to women themselves that some organ or other was capable of arousal, but finally it had been named. A medical compendium of 1615, Helkiah Crooke’s Microcosmographia, announced that the clitoris “comes of an obscene word signifying contrectation [touching or fingering] but properly it is called the woman’s yard [penis]. It is a small production in the upper, forward . . . and middle fatty part of the share [genitals] in the top greater cleft where the Nymphs [labia] do meet and is answerable to the member of the man.” The member of the man need have nothing to do with it, however, and the reintroduction of the clitoris heralded the rise in public awareness of the tribade, the fricatrix, the rubster. These were the women who knew how to manipulate “the seat of women’s delight” with a hand, a dildo or a massively enlarged clitoris.

Helkiah Crooke himself remarked that “sometimes it grows to such a length that it hangs without the cleft like a man’s member, especially when it is fretted with the touch of the clothes, and so struts and grows to a rigidity as does the yard of a man. And this part it is which those wicked women do abuse called Tribades (often mentioned by many authors, and in some states worthily punished) to their mutual and unnatural lusts.” It is sometimes suggested that lesbianism was, before the twentieth century, an unmentioned and invisible act; in fact it has a historical identity arguably as long as that of love between men. Wherever there are bodies, there are lovers. It is found, for example, at the end of the twelfth century, in a vision of Edmund, a monk of Eynsham Abbey. He was taken to purgatory and led to that site where the souls of those guilty of same-sex love were consigned for their own particular suffering. To his astonishment, among them were a great number of women. He was surprised because he had not suspected women to be capable of such a deed. But there they were, suspended in woe and pain. Read more…

Of Breakdowns and Breakthroughs

Getty Images

Jenny Aurthur | Longreads | May 2018 | 28 minutes (6,886 words)

 

On the Monday before Thanksgiving in 2004, my father went missing. I was at the Santa Monica apartment I’d been subletting to a friend while working for three months in New York City, getting ready for bed when my phone rang. It was my mother, wondering if I’d spoken to him. I had not seen or heard from my dad since he’d picked me up from the JetBlue terminal at the Long Beach Airport three days earlier. I was 30 and had returned home to L.A. from New York to spend the holiday with my family.

I’d never missed Turkey Day with my folks. Nothing about my childhood had been typical. I was raised by atheist, socialist activists who called me “Jenny Marx,” never just Jenny, after Karl Marx’s wife. They skipped religious holidays, but observed Thanksgiving, well, religiously.

Fort Green, 1974

Thanksgiving had solidified into a legendary event among our friends, and most years we had a full house. It wasn’t unusual for so many people to show up that some had to sit cross-legged on the floor, leaning against the living room wall. The food was so good, and the company even better, that no one minded not having a seat at the table. My father cooked for an army, and there was never a shortage of food. Our parties were lively and conversations were raucous, everyone talking over one another. We were an opinionated bunch. Current events were passionately discussed, and my parents were walking encyclopedias. Topics ranged from global warming to recent movies to the upcoming local and presidential elections. The musical selections were just as diverse as the crowd, from Dixieland jazz to gospel to classical to Dylan.

Everyone got quiet when the food was ready. We passed around two kinds of homemade stuffing — one for vegetarians and one with Italian sausage. Huge bowls of steaming sweet potatoes, buttery green beans, thick slices of light and dark meat my father carved from the 20-pound bird, fresh cranberry sauce with tart orange zest, loaves of freshly baked sourdough bread, green salad, and a ceramic pitcher of hot gravy barely fit on our dining room table.

***

I started having friends come over for the holiday when I was in junior high. My mother, Elinor, and my father, Jonathan, were popular with my classmates and considered the “cool parents.” During the years I was in school and well into my twenties, our house was the place to be. After Thanksgiving dinners with their own families, droves of my old pals showed up to our house. Everyone loved being around my parents. When I was in high school, one of my best friends, Leisa, was having trouble at home, and my mom took her in. Another friend, Ania, also lived with us a couple of years later.

“I wish Elinor and Jonathan were my parents,” my girlfriends would often say.

This year, though, Thanksgiving would be different. I’d been living in New York since the late summer. Preoccupied with my work, I put the holidays on the back burner. My parents and I had decided to keep it mellow for once. Eight years after my younger brother’s suicide, for the first time, it would just be the three of us.

***

Historically the kitchen was my father’s territory, and when I was growing up, my mother, my brother, Charley, and I were careful to stay out of his way. He loved being the king of his castle, but he pretended not to enjoy it. “I’ve been burning my ass over a hot stove for the last three days for you ingrates,” he complained, acting annoyed, wiping sweat from his forehead. He loved this yearly charade, and we went along with it, rolling our eyes and laughing.

The aromas coming from the forbidden room made our mouths water and stomachs growl impatiently. Under the pretense of being helpful, my mom, my brother, and I would wander into the kitchen and lurk over the stove and poke around. We were shooed out immediately. “Everyone out of the kitchen,” my dad said with mock exasperation. The table had been set for hours; that was my job. I pulled out and polished the prized Tiffany family silver that had belonged to my grandparents, for its once-a-year appearance. My mother was responsible for buying lilies and dahlias. She also designed beautiful Japanese-style flower arrangements that she’d made in her ikebana class. Charley was in charge of dusting and vacuuming. We liked a late dinner and by the time we ate at 8:00, we were famished.

“Now can I sit down?” my dad asked, drawing out the “now,” acting like an indentured servant finally getting a break. Collapsing into his chair with a dramatic sigh, he surveyed the bounty of food, enough for Henry VIII’s court. “Well,” he said, “if we don’t have enough we can always order pizza.”
Read more…

Born Again

Illustrations by Karen Barbour

Michelle Dean Topic | April 2017 | 13 minutes (3,100 words)

This story is featured in collaboration with Topic, a digital storytelling platform that delivers an original story to your inbox each and every week. Sign up for Topic’s newsletter now.

Candace Newmaker was 10 years old when she died in 2000. There are only a few pictures of her, and even fewer biographical details. Here is what we do know: she had dark brown hair and eyes, she liked dogs and horses, and she enjoyed arts and crafts. Candace had been a ward of the state of North Carolina since she was about 5 the daughter of a very young mother who hadn’t been able to hold her own life together, and who had lost her very young children to the Department of Children and Family Services. Jeane Newmaker, a kindly nurse-practitioner who was single and in her early 40s, found Candace in the system when she was 6 and adopted her in 1996. It’s not clear exactly when things got difficult between Newmaker and her adopted daughter. Maybe things were difficult from the start. (Newmaker declined to comment for this article; this account is based on contemporaneous press reports in the Denver Post and the Rocky Mountain News.) Candace, one of the girl’s therapists later said, could be sweet, but she could also be “mean.” One therapist said it just seemed like Candace had a “defense mechanism for being through so many places” — that “it was like having the average 18-year-old adolescent in your house,” one who was trapped in a 10-year-old’s body. Read more…

Captive Audience

Lucas Mann | Captive Audience: On Love and Reality TV | Vintage | May 2018 | 13 minutes (3,553 words)

Hi (: I am ______, I am a 17 year old with a story.

I want to quit feeling like I am not important. I want to be somebody in my life, I do not want to be remembered as some face in the yearbook, I want to be heard. Currently, I make youtube videos, and I have 317 subscribers. I know it is not a big number, but I am finally being heard by some people and I love it. I just want to make people happy, in any shape or form. Putting a smile on people’s faces is my dream! If I could be casted on this show, my life would be complete. I just want people to know me more than just some girl who likes makeup. I want people to know who I am. My family is not against this, but they do think I should focus on school, which I agree with but this is my dream.

Height: 5 feet 5 inches
Age: 17
Gender: Female
Dream: This.

Please help me reach for the stars, this is my dream and if it comes true, I can’t even imagine my life. Help me out (: Help me be heard.

— from the Casting Call Hub website http://www.castingcallhub.com

I have, for a long time, suggested that we get rid of cable. I have even suggested that we throw out our TV altogether so that we may eat at our actual kitchen table and play more Scrabble. I’d say these suggestions come biannually, on average — they used to be more frequent, then ebbed, and are now increasing again. They have been going on for the better part of a decade. They arise, as most of my impulses toward change do, out of feelings of shame. They arise when we open up our home and visitors see the way we live — by which I mean what we watch and the frequency with which we watch it — and make remarks that I take to be scornful:

I cannot believe you guys have all the channels.

Or: How can someone retain so much information about Bravo?

Or: How do you do it? If I had cable, I think I would forget how to live. It’s just too easy to let your mind get lost in the slush and forget to look up.

It seems crucial that lovers put themselves in scenarios that would otherwise be boring and then very pointedly not feel bored.

The relationship between television and life is loaded. The relationship between television and love is, perhaps, even more so. Life, the way I think the term is most commonly used, is about action. Go out and live is the kind of thing that people say to those they deem flawed — ride something, climb something. Engage. Or it can be used as an insult to those who have nothing valuable to offer: get a life.

Love, the way I think the term is most commonly used, necessitates the same action. Loving passively is as shameful as living that way. When we love fully, we are doing something to make that love valid; it’s a conscious process, it’s active. Two people see each other in a way that elevates the act of sight to a challenge that must be confronted. Two people refuse to take their eyes off one another; that’s the idea. When we love fully, we are meant to engage.

*

For a long time, when you would refuse to give up television, I would pretend to be grudgingly acquiescent, as opposed to relieved. You would placate me and say that our watching was your fault, that I was merely implicated by association, the same way it is when I buy ice cream and offer you some — those aren’t your calories if you didn’t seek them out. We would, as a way to avoid any long-term legislation, briefly turn off the TV and spend the following hours in a sort of mutual meditation, leaning over the table at dinner, sometimes by candlelight, taking in the contours of the face in front of us, as though it had changed from the previous day, and the one before that, and the countless expanse of days that stretched out behind us (nearly every day of our adult lives), making us forget what it felt like to not know that face.

The literature of love, both the bad kind and the good, hinges on this type of sustained gaze. And, though the word boredom rarely comes up, it seems crucial that lovers put themselves in scenarios that would otherwise be boring and then very pointedly not feel bored. I’m thinking of Keats here, in one of those gorgeous poems to Fanny that I once read aloud to you in college, the last time neither of us owned a TV. I read to you of Keats wishing only to be:

. . . gazing on the new soft-fallen mask
Of snow upon the mountains and the moors —
No — yet still stedfast, still unchangeable,
Pillow’d upon my fair love’s ripening breast. . . .

People used to live at such a slow, sensual pace. This is the kind of thing I still say on the nights when the TV is off. Nostalgia is all wrapped up in slowness. How long we used to linger. The capacity we used to have for sustained care, sustained concentration, sustained quiet.

My favorite book about love is John Berger’s And Our Faces, My Heart, Brief as Photos. Berger wrote it in 1984 — an early–MTV era book — but he wrote with a slowness that implies timelessness, that makes a piece of writing feel resonant, or maybe the word is authentic. He was an aging icon in the French Alps then, describing the way his life had moved, the way he’d seen the world change, but at its core the book is a missive to his lover.

He writes of when he is without her, thinking of her, how she shifts in his imagination:

In the country which is you, I know your gestures, the intonations of your voice, the shape of every part of your body. You are not physically less real there, but you are less free.

How strong a gaze; how long lasting — until his love (who remains unnamed throughout) becomes the image of herself, a creation of his mind and memory as much as the person he knows. There is a bending of reality in this sentiment, and in turn a sort of dehumanizing, but in Berger’s hands it doesn’t feel gross. Instead, it is a way of seeing I aspire to. It’s the elevation of a person to art: to speak to the one I most care for and hopefully witness a grander sentiment (Love! Timeless love!) whisper out from the intimacy of that address. But Berger wrote these words long before anyone ever wrote the word mansplain, and I wonder now if he might ask for a do-over And I wonder, too, if I should try to find a better way to capture and perform my own love. You don’t need me to tell you what’s there, what’s been there, like it’s a show that only I’ve been watching. And yet I do, uncertain, trapped in my own voice, hoping you see at least a sliver of yourself in the portrait, frozen in sustained care.

We went to the Alps once, with your sister and a bunch of other leather-clad Europeans. All that money blown to spend New Year’s partying at high altitudes. Everybody else went skiing, but you knew I couldn’t, so you let me avoid the embarrassment by staying behind in the cabin. I spent a week binge-watching over bad Wi-Fi, and that experience of waiting for the screen to unfreeze while cold rain pecked at the windows of a moldy chalet only ratcheted up the claustrophobia. I watched. Sometimes I walked until I got bored, then returned to the screen again. I waited to hear you come in the door, and we’d put our cheeks together so I could absorb some of the cold from you.

On New Year’s Eve, after a long party, we lay in bed unable to sleep. The shadows of the mountains were maybe visible through our window, framed in moonlight, but we weren’t looking. We watched each other’s faces and waited for the laptop to buffer. Finally, we were able to watch The Real L Word, a show about actual lesbians in LA, developed to capitalize on the success of a show about fictional lesbians in LA that I never had any interest in watching. It’s a program we’ve only ever sought out in transit — in a motel in Pennsylvania, mid-move, U-Haul packed in the parking lot, dog whimpering at the sound of trucks passing outside, or in a semisecluded corner of O’Hare Airport on a night when all connections were grounded for tornadoes.

Sometimes it’s nice to match moods, to decide on that mood matching together. There’s a restlessness to The Real L Word that appeals only in restless moments. There’s a pulsing crassness to the way the most intimately personal is made to feel branded. The women fuck desperately in some scenes, and with the lights on, no pretense that they’re unaware of the cameras. They look up, let us see their faces, and then plunge their heads back between legs. In the nonfucking scenes, every word they say is loaded with as much pressure as sex; anything said about anyone can be taken as a slight. It’s easy to get a sense that they don’t know one another at all, or maybe they really do and this is how shallow knowing someone actually looks when there’s a camera around — another loaded thought.

Reality should not be a performance; a show, if it’s any good, should probably be exaggerating something. The resulting promise of the phrase, then, is an impossibility.

We were on the futon in the dark, in the Alps, listening to the party die down, and there was Whitney on screen, fucking white-dreadlock Whitney, celebrity makeup artist-cum-minor-celebrity, confessing in the confessional room after a pretty graphic tryst with her on-again-off-again.

Lust is easy for me, she said in front of a bright-red curtain, for some reason. Love is hard. Lust is exciting. Love is scary.

We looked at each other, like always. We didn’t say anything, but let Whitney’s cutaway lines hang between us as a question or an invitation. I saw your face, pale, and my face reflected in your dark eyes. It doesn’t take much to approximate profundity. At least not to me.

***

I’ve written about a lot of things, or it seems that way to me, but ultimately they’re all kind of the same thing. I write about loneliness, or dissatisfaction, or incompleteness. I have tried, in different (though not very different) ways, to make sense of the things that hurt. What is harder, and what I have avoided, is trying to honor the truth of everything that doesn’t hurt: that I am not alone; that (although I am reluctant to say the phrase exactly because of Jerry Maguire) I am closer to feeling complete because we are together; that often, in our little house in front of our big TV for hours until my eyes begin to sting, I am satisfied.

This is hard to reread after writing it. It seems an impossibly small statement to make, one meant to be offered only semisincerely, and a bit drunkenly, at special-occasion dinners.

Barthes says that love, as a subject, has been driven to the backwater of the “unreal.” Then, he strives to distinguish between unreal and disreal. The unreal is the fantastical — Tristan and IsoldeIt’s a Wonderful Life, that kind of thing. In its grandness and sincerity and removal, the unreal is easier to explain, always familiar. And so it’s the love story that is easiest to find in any book or movie or TV show, allowing the audience to linger in swelling impossibility.

But the disreal, Barthes argues, is where love belongs. The disreal is lived experience, the flickering, perceived moment, unsayable — if I utter it (if I lunge at it, even with a clumsy or overliterary sentence), I emerge from it.

My problem is that I am immersed in it and because I’m immersed in it, I can’t think of anything else to utter. We are in one place: our home; we see one person: the other. What else is there to say? I want to believe that I’m not interested in fantasy. I am interested in the disreal, not the unreal, both in the art that I seek and the love that I live. But if you look at any life long enough, with enough vested interest, how do you not begin to push toward the fantastical?


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Whenever you catch me looking at you, you say, What are you looking at? Which is a really loaded question. You know what I’m looking at — you, the person in front of me; what else could I be looking at? But what you’re asking for is the difference between image and interpretation — is what I see more interesting than what is really there, or what you think is really there? And all I can ever say is nothing. And then you roll your eyes and we become exactly what the world would expect us to be. And now I’ve gone from Roland Barthes to a sitcom punch line. I turn back to the TV.

***

It’s hard to trace an exact history of the “reality show.” The term is often applied retroactively — roots can be found in The Real World, back in the mid-nineties, or Cops in the late eighties, or in early eighties variety shows like That’s Incredible! or the seminal seventies docudrama An American Family. One thing remains consistent: it’s always been a tortured lineage, a confounding term.

The best parsing of the language I’ve read is this, from a book called Trans-Reality Television: “Reality show” as a phrase is self-confessing.

In proximity, the two words begin to chip away at each other’s meaning. Reality should not be a performance; a show, if it’s any good, should probably be exaggerating something. The resulting promise of the phrase, then, is an impossibility: transforming facts to the level of the spectacular.

I like that the implication isn’t that we who watch so faithfully are being bullshitted, but rather that we are willfully bullshitting ourselves to get what we want. We are promised a dynamic that cannot actually ever exist, and we accept that.

More than accept it. The genre means a lot to us, to me. I’ve never expressed that sentiment with even a gesture toward sincerity because it’s embarrassing. But I think I mean it. Sincerely. At least for now I do.

When you live alongside anything for a long time — any person, any character, any narrative structure, any screen flicker — you become a part of it and it becomes a part of you.

Far more than I’ve read Berger (or Barthes or Sontag, or any of the others on the grad-school syllabus that I claim shaped how I see the world), far more than we have walked through museums together (and really, how many times have I had the patience for more than one wing and the café?), far more than we’ve sat and listened and harmonized to the songs that we so seriously call ours, we have watched and internalized and discussed televised showings of spectacular reality. The Real Housewives of Atlanta (and New Jersey and New York and Beverly Hills and, to a lesser degree, Miami and Orange County), Keeping Up with the Kardashians, The Real World, Road Rules, The Real World/Road Rules Challenge, Love and Hip Hop, Sister Wives, Basketball Wives, Breaking Amish, Storage Wars, My 600-Pound Life, My Big Fat Fabulous Life, Shahs of Sunset, Married to Medicine, Botched, Say Yes to the Dress, Deadliest Catch, Million Dollar Listing, Intervention, The Little Couple, Vanderpump Rules — there are many more that I’m forgetting offhand, and there have been many that came and went and briefly held some importance for us, and there are many more being produced right now that we will soon adopt. These are the narratives that have underpinned our lives. These are the types of stories that we choose to live alongside.

When you live alongside anything for a long time — any person, any character, any narrative structure, any screen flicker — you become a part of it and it becomes a part of you. A part of what — and, more important, how — you remember.

***

We’re on your bed next to the window in your dorm room and we’re nineteen. I’m running my hands along your tattoo, your first one, and you tell me to stop because you don’t like your body, and I tell you that I do. You don’t believe me.

We ask for everything about each other, the kinds of details that other people wouldn’t know, as though that will confirm the importance of our conversations. My first memory was of a red vacuum cleaner on the gray carpet of my mother’s apartment on East Sixth Street. I was scared of the noise it made. It was a cramped basement apartment, and every sound was loud. I was frightened often. This was Alphabet City in the late eighties, and outside our windows I could see and hear the pacing boots of methadone patients waiting for their morning fix.

“Oh, I can picture you,” you say. “Were you blonder? Were you chubby?”

I was, both. And I want you to picture me that way: a cherub in a hard, looming world.

I do remember the vacuum cleaner, and that the carpet was gray. I have heard about the methadone clinic from my mother, mostly cheerful stories about me getting free lollipops. I don’t remember it, but I can picture it now, too.

You are running your fingers through my hair and smiling at what isn’t an outright lie, just an interpretation, the beginning of a character that I would rather you see, another in a quickly building collection — Q: How many partners have you had? A: Plenty. Q: Wait, did you come already? A: {Indecipherable, hopefully erotic grunt}.

You say you remember almost nothing. You didn’t speak as a child, you say, like not ever, because you moved to different countries and had to start learning language all over again. You remember an overall feeling of loneliness, but hardly any images. Oh, here’s one, you say. Coming back from the beach in Italy, drinking peach nectar out of a carton — how sweet and thick and simple it was. Oh, and you had a boy’s haircut. Oh, and you were bullied for your weirdness, and your silence, so you preferred to be alone — most of the memories you have are of that pain. Oh, and one more thing: you were a liar. When you did speak, it was never the truth. And there was one particular lie you told that was too big, too painful, and you’ll never talk about it even still.

This scares me a little but mostly turns me on — a repressed past; an untellable secret; dark, brooding eyes under a strange, little-boy haircut, lonely, sucking nectar out of a carton. It becomes instantly important to know that there is something unknowable about you.

***

I keep thinking of your secrets and the lonely anger, and all those redacted memories for a while, and then I forget about them as other details emerge to pay attention to. But these plot points linger, always, making each new scene a little more enthralling, and then they resurface, brief, overpowering — reminders that we can see so much of each other, know each other as best we can, and yet always, underneath, there is the unknown.

A few years later, at a party in Brooklyn, you’re talking and drinking and laughing, and then suddenly you’re silent and flushed, looking over my shoulder, down a crowded hallway. You’ve seen someone from childhood, from an American camp you were sent to when you knew no English, and your face is the face of a silent girl, alone and enraged. At first you ask me to hide you, but then she comes up and says, “Oh my God, how crazy to see you! Remember camp? Don’t you miss camp?”

I watch you glare at her, silent for a moment, and then you crescendo into emotion. You say that you don’t miss it at all. You tell this girl that she had been so cruel — does she even remember what she did to you? She says, “No, not me,” and you stand closer to her, and say with a new force, “Yes, you.”

There are others around us at the party, turned stiff and awkward, but you don’t see anybody else. The camp girl says she doesn’t remember it the same way, but then she squeaks through an apology. You don’t accept. The crowd watches; I watch, and watch them watch you. I am transfixed — by your tears, by your rage, by this beautiful soap-opera haze that has fallen over the hallway.

On the way home you don’t bring it up. You are silent; you hold your body in what looks to be a performed, anguished seethe, and I keep stealing glances at you as we walk. Years have passed, and I still remember it, a vivid, pleasurable return each time — those mysteries in you, the pain turned to brief power, probably overblown in my mind but always potent.

* * *

Lucas Mann is the author of Captive Audience: On Love and Reality TV, out in May from Vintage Books.  He is also the author of Lord Fear: A Memoir, and Class A: Baseball in the Middle of Everywhere.  He teaches creative writing at The University of Massachusetts Dartmouth, and lives in Providence, RI, with his wife.

From Captive Audience by Lucas Mann.© 2018 by Lucas Mann. Reprinted by permission of Anchor Books, an imprint of the Knopf Doubleday Publishing Group, a division of Penguin Random House.