Archie Bland’s heartfelt essay recounts the moment his infant son, Max, stopped breathing and was resuscitatedโ€”possibly interrupted SIDSโ€”and the years spent coming to terms with his resulting disability. Bland is not shy in recounting his frustration and rage, making this a very real portrayal of life after a shattering event. But we also discover the important lessons a loved one’s disability can teach us about ourselves.

Iโ€™ve thought a lot about why Iโ€™m writing this. I know that Iโ€™m repelled by the kind of spiritual vultures who might scour Maxโ€™s story for shareable aphorisms, and that ideally, Iโ€™d like to slap them with an injunction. On the other hand, I also know that what happened has changed me utterly, and confronted me with things about the world that I had never even tried to understand: how unbelievably precarious it all is, the breadth of what constitutes a meaningful life, and the medieval state of anxiety that the disabled world still produces in the typical one.ย I hate the way that disabled lives recede out of view because other people are too squeamish to talk about them, and I want to confront that tendency. Mostly, though, I think Max is already a thousand times more interesting than anyone Iโ€™ve ever met, and I want to tell you about him.

More picks on disability

The Blind Leading the Gamers

Dexter Thomas | Wired | June 11, 2025 | 4,368 words

“Ross Minor lost his eyesight at 8 years old. Today, heโ€™s a hardcore gamer who runs YouTube and Twitch channels and consults for big studios. This is notโ€”necessarilyโ€”an inspirational story.”

Loving Him Meant Facing My Greatest Fear

Chloรฉ Cooper Jones | The New York Times Magazine | April 19, 2024 | 4,755 words

“Living with a disability, I shielded myself from dance. Then I met him.”

The Long Haul

Lygia Navarro | Switchyard | January 8, 2024 | 6,110 words

“Now I rarely let myself think of those Before Times. Describing what was once my life is like trying to recapture a sensation, a place that only ever existed in a dream.”

Is Anyone Ever Well?

Natalie Adler | Lux | January 18, 2023 | 2,859 words

Two new books see disability as a source of solidarity.

Space to Breathe

Krista Lee Hanson | The Rumpus | December 6, 2022 | 2,810 words

“I can suction while gathering my spirits, while holding out for my sonโ€™s right to exist, to be present, to take up space, to interrupt ‘usual’ life.”

Was This Professor Fired for Having Tourette Syndrome?

Barry Yeoman | The Nation | November 15, 2022 | 3,126 words

“We want to ensure harassment-free climates in schools and workplaces, and we want to protect the rights of people with disabilities. What happens when these imperatives collide?”