Archie Bland’s heartfelt essay recounts the moment his infant son, Max, stopped breathing and was resuscitatedโpossibly interrupted SIDSโand the years spent coming to terms with his resulting disability. Bland is not shy in recounting his frustration and rage, making this a very real portrayal of life after a shattering event. But we also discover the important lessons a loved one’s disability can teach us about ourselves.
Iโve thought a lot about why Iโm writing this. I know that Iโm repelled by the kind of spiritual vultures who might scour Maxโs story for shareable aphorisms, and that ideally, Iโd like to slap them with an injunction. On the other hand, I also know that what happened has changed me utterly, and confronted me with things about the world that I had never even tried to understand: how unbelievably precarious it all is, the breadth of what constitutes a meaningful life, and the medieval state of anxiety that the disabled world still produces in the typical one.ย I hate the way that disabled lives recede out of view because other people are too squeamish to talk about them, and I want to confront that tendency. Mostly, though, I think Max is already a thousand times more interesting than anyone Iโve ever met, and I want to tell you about him.
More picks on disability
The Blind Leading the Gamers
“Ross Minor lost his eyesight at 8 years old. Today, heโs a hardcore gamer who runs YouTube and Twitch channels and consults for big studios. This is notโnecessarilyโan inspirational story.”
Loving Him Meant Facing My Greatest Fear
“Living with a disability, I shielded myself from dance. Then I met him.”
The Long Haul
“Now I rarely let myself think of those Before Times. Describing what was once my life is like trying to recapture a sensation, a place that only ever existed in a dream.”
Is Anyone Ever Well?
Two new books see disability as a source of solidarity.
Space to Breathe
“I can suction while gathering my spirits, while holding out for my sonโs right to exist, to be present, to take up space, to interrupt ‘usual’ life.”
Was This Professor Fired for Having Tourette Syndrome?
“We want to ensure harassment-free climates in schools and workplaces, and we want to protect the rights of people with disabilities. What happens when these imperatives collide?”
