How Comics Helped Me Face My Diagnosis

Let me break my situation down for you in a way my doctor did not. Not much is known about my autoimmune disease, except its associations with other diseases and the antibody marker for it, anti-Jo1. Antisynthetase Syndrome is incredibly rare. One to ten people in every million have it. For comparison, according to the Lupus Foundation of America, approximately 1.5 million people in the U.S. have lupus. Whereas approximately 318 to 3,180 people in the U.S. have Antisynthetase Syndrome. I felt very alone…

Doctors give characters in tv shows, movies, and comics a moment to let the news sink in. Doctors in real life have other patients waiting to be told different news. They talk straight through all of the things you should now know about your situation, ask if you have any questions and then rush you on your way. Maybe this isn’t true everywhere. Maybe somewhere there are doctors who really say, this is serious, take your time, I’ll let you have your moment of silence.

— For years, unhelpful doctors and misdiagnoses plagued Al Rosenberg’s life. At Women Write About Comics, she discusses the validation she found in graphic novels and comics.

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