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How to Replace a Ghost

Bryce Duffy/Photographer's Choice/Getty

Alana Massey | Longreads | October 2017 | 10 minutes (2,448 words)

 

It is fitting that I was on my way to a museum filled with ghastly medical objects and oddities when I realized most of us are more haunted by the living than the dead. The Mütter Museum in Philadelphia is a medical history museum that houses such prized specimens as Einstein’s brain, conjoined fetuses in a jar, President Grover Cleveland”s jaw tumor, and an expansive wall case displaying Dr. Joseph Hyrtl’s human skull collection. I was on my way to the wedding of my friends Helena and Thomas, the kind of tender, brilliant oddballs so in love that I’d believe them both if they told me the other had hung the North Star or can understand the language of animals. The kind of people who get married in the Mütter Museum not because they necessarily want to, but because there are simply no other places so tastefully macabre yet oddly tender, befitting their nuptials. I don’t believe this about love but I do believe it about wedding venues: It isn’t a decision, it is destiny.

So it was not a happy or selfless thought for me to have, this one about hauntings, on the drive there. My thoughts were not in envy of the couple or of selfish indignation aimed at the attached generally; they were entirely about a love I’d recently lost. Fourteen days prior officially, but 31 days before if going by what really counts. My boyfriend of nearly two years and I had last seen each other on Monday, Aug. 21 in the morning when I dropped him off at the bus station to go back to New York from my house in the Catskills. On Aug. 22, without a fight or explanation or a breakup, he simply stopped responding to text messages.

There was ample proof of life: His name appeared on Google Hangouts and he’d make Instagram stories from time to time, and his friends reported no death on social media. I waited 17 days for a response until I couldn’t grit my teeth any longer and asked him why. Though no answer would likely satisfy me, he wouldn’t even do me the courtesy of offering an explanation for this particularly cruel tactic. He would not answer my phone call, forcing me to speak my piece and say my goodbyes over text. If you had asked me before this happened if you can get over a difficult text exchange in 14 days, I would have told you, “Absolutely.” I wouldn’t tell you that now.

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“No Fatties”: When Health Care Hurts

Illustration by Hannah Perry

Carey Purcell  |  Longreads  |  October 2017  | 4280 words (16 minutes)

Kasey Smith began gaining weight as a teenager. The numbers on the scale started increasing overnight, and no matter how few calories she consumed, they continued to go up. “It will even out,” she thought, crediting the change to puberty and hormones. But it didn’t, and her hair and skin began changing as well. “Something was definitely wrong.”

Each medical appointment, and there were many, concluded with doctors telling her to go on a diet. Smith (not her real name) remembers telling the endocrinologist about her frustrations with burning off the 900 calories she consumed each day and still gaining weight. “He looked at me and said, ‘Maybe you can cut back your McDonald’s to twice a week.’ I was stunned silent, and I went into the bathroom and broke down. ‘He doesn’t believe me. He thinks I’m just fucking with him.’”

As Smith’s weight went up, her food intake went down. Her mother signed her up for Nutrisystem, and her diet hung on the fridge for everyone in her family to see. Shame and humiliation narrowed her life down to three questions: what to eat, what not to eat, and how to burn more calories. She began to form dangerous habits, sometimes eating little more than lettuce.

Smith ultimately received a diagnosis of polycystic ovary syndrome, a hormonal disorder that can lead to excess male hormones, irregular menstrual cycles, and weight gain. She was prescribed Metformin and quickly began to lose weight, but the damage had been done. The 18-year-old developed anorexia, leaving for college at 130 pounds and coming back four months later and 30 pounds lighter, her hair falling out in clumps.

No one thought anything was wrong.

“I would go to the doctor, and there were no red flags. It was ‘You look fantastic!’ Not ‘This is alarming.’” Smith continued starving herself for another year until she ended up in the hospital, undergoing a colectomy to remove a foot and a half of her intestines, which had twisted as a result of her severe calorie restriction.

One year after the surgery, her worst nightmare returned: She was gaining weight. Celiac disease was the cause this time, but it wasn’t diagnosed until after Smith was in the habit of purging the little food she ate every day. She would regularly run in the park and pass out afterward. “I would starve all day, then I’d eat something at night, then I would purge it. In my head, I’m thinking, ‘I’m literally not consuming anything. The weight has to fall off.’”

She realized she needed professional help, and Smith found a therapist who specialized in eating disorders and began treatment at The Renfrew Center, a residential facility in Pennsylvania. She continues to struggle with discussing her weight at medical appointments. After she told her endocrinologist about her treatment at Renfrew, his reply was “I see you need to lose some weight.”

* * *

According to the National Association to Advance Fat Acceptance, one out of three doctors responds to obesity negatively and associates it with poor hygiene, hostility, dishonesty, and noncompliance, viewing fat patients as “lazy, lacking in self-control, non-compliant, unintelligent, weak-willed and dishonest.”

“Doctors may think they are doing their jobs by focusing on patients’ weights,” said Dr. Rebecca Puhl, deputy director of the Rudd Center for Food Policy and Obesity. But the effects of weight discrimination, both physical and mental, can be harmful to patients. “I do see this in health providers just as much as the general population, which is that maybe stigma isn’t such a bad thing. Maybe it will motivate people to lose weight. Maybe it will provide incentives for weight loss. But that is not what we see in research. We see the opposite — that in fact, stigmatizing people about their weight actually reinforces behaviors in health that increase body weight and obesity.”

The doctor looked at me and said, ‘Maybe you can cut back your McDonald’s to twice a week.’

As weight discrimination has increased in recent years — roughly 40 percent of adults report having experienced some form of weight stigma — so have obesity rates. A positive correlation between experiencing weight bias and developing eating disorders has been documented, and two studies have reported that overweight children are more likely to binge after being teased about their weight. Nor do these habits change as we age. In a 2006 study of more than 2,000 overweight and obese women who were part of a weight loss support group, 79 percent said they turned to food after experiencing weight stigma. Another common response: refusing to diet.

Johanna Tan encountered that stigma when she gained 80 pounds in three months after beginning the hormonal birth control Depo-Provera. Her doctor suggested weight loss, and she chose a weight loss clinic. In the weeks after undergoing her doctor-mediated diet of 500 to 800 calories a day, Tan began experiencing episodes of chest pain so severe she made more than one trip to the emergency room. Her general practitioner blamed her symptoms on her large breasts. “Never mind that my boobs have always been this big, and this was a new symptom,” Tan said, laughing wryly as she explained she had been performing special exercises and getting massage treatments to help ease the symptoms. But it wasn’t her breasts that were causing the pain, it was her gallbladder. Gallstones had blocked her common bile duct, and if left untreated it could cause acute liver failure. The cause of the gallstones? Rapid weight loss. Neither Tan’s weight gain nor her loss had been correctly assessed by her doctors. (Depo-Provera lists weight gain as a common side effect. When Tan voiced concerns to one doctor, she was told, “Everyone gets more hungry. You just need to not eat more.”)

The assumption that any health issues a fat person experiences can be chalked up to weight has not gone unnoticed by the fat community. Marilyn Wann was motivated to pursue fat activism after what she describes as her Really Bad Day, when a man she was dating told her he was embarrassed to introduce her to his friends because of her weight, and she was denied health insurance because Blue Shield of California deemed her morbidly obese.

“This double whammy of social and institutional exclusion based on my weight woke me up,” she said. “Until then, I had hoped to avoid the impact of anti-fat attitudes by avoiding the whole topic. But hiding and silence and avoidance didn’t keep the yuck from finding me. So I recognized that I had to come out as a fat person. The next day, I went to a copy store and made up business cards for my new print zine, which I decided to call FAT!SO? — ‘For People Who Don’t Apologize for Their Size!’ Immediately, my life became less stressful. Of course, I still encounter anti-fat attitudes and weight-based exclusions, but I have drawn a line between me and the hatefulness. It makes a huge difference.”

Wann still experiences bias, especially at the doctor. “I know before I enter the door that the whole system prioritizes its prejudice over my well-being,” she said. “The prejudice is what’s necessary to the institution as it stands. The medical establishment, the insurance agencies, public health agencies that are government-based have always advanced their agenda on the back of fat people. … The institutions of our supposed health systems — in the government agencies, in the insurance companies, in all of the medical practices — are saturated or have deeply ingrained anti-fat bigotry.”

Establishing the balance of information and compassion while discussing a patient’s weight is constantly on Rebecca Zuckerman’s mind. “It puts medical professionals in a weird catch-22,” said Zuckerman, a fourth-year medical student at the Pritzker School of Medicine at the University of Chicago, who understands the motivation of fat activists but whose education includes the negative medical impacts of obesity. “It’s something I’ve struggled with personally. You can only explain it and tell people their options. You can ask if it’s OK to talk about weight loss or give more information. If they say, ‘No, I don’t want to hear it,’ you have to respect that.”

Still, the intense schedule of medical professionals, who are often allotted only 15 to 20 minutes per patient, often results in less-than-ideal communication. It’s easier to reach for the quickest conclusion: telling the patient to lose weight. Says Zuckerman, “A lot of doctors and nurses experience burnout, and they start losing empathy and don’t view the patients as people anymore. Your hands are tied to stay within those 20 minutes. Everyone’s trying to make more money, and the doctors are a cog in the wheel.”

That’s along with pervasive stereotyping about fat people in the medical community. In a study of 318 family physicians, two-thirds reported that their obese patients lacked self-control, and 39 percent stated that their obese patients were lazy. Even health care professionals specializing in nutrition thought poorly of their obese patients: “Attitudes toward obesity and the obese among professionals,” a study in the Journal of the American Dietetic Association, reports that 87 percent of health care professionals specializing in nutrition believe that obese persons are indulgent, 74 percent believe that they have family problems, and 32 percent believe that they lack willpower. In 2013, the American Medical Association labeled obesity a disease.

The misdiagnoses that occur lead directly to poor health outcomes. Johanna Tan ultimately spent three years in pain, leading to four weeks of hospitalization, a series of invasive surgical procedures, and lengthy rehab — procedures that wouldn’t have been necessary had the gallstones been caught earlier. While she was enduring severe pain following her first surgery and struggling to complete her postsurgical rehab, the hospital staff accused her of being lazy. “I spent two weeks in hospital post-surgery,” she said, “copping abuse for being lazy and not participating in my own rehab, before they realized they fucked up.” Tan said the nurses were condescending, saying, “I know it hurts. It’s major surgery. You still have to get up.” The pain didn’t ease until her doctors realized they had missed some gallstones and had to perform a second surgery. Tan wasn’t able to walk more than 10 feet at a time for the first month following her surgeries. It took six months for her to be able to walk further than a block.

* * *

Fat patients also often find themselves facing off with doctors who refuse to write prescriptions or referrals until patients lose an arbitrary amount of weight, a common scenario for those seeking joint replacement surgery. Despite being in “crazy amounts of pain,” Melinda Belles-Preston was required to lose 30 pounds before receiving an operation on her hips. Losing between one and two pounds a week, a healthy pace according to the Centers for Disease Control, would delay her surgery by several months. Heavier patients see longer lags. A required loss of 50 to 100 pounds can postpone a procedure for months or even years unless the patient undergoes weight loss surgery. Without surgery, the time spent in pain is prolonged, opening the door to painkiller dependence. It took Belles-Preston roughly six months to lose the weight, and she was in pain the entire time.

“Going in nutrient-deprived and starved is probably not a good way to send someone into heart surgery or major any surgery,” Wann said; her tone made it clear she was stating what she thought should be obvious. “Someone who’s been losing weight may have worse outcomes than someone who’s stayed the same weight. … It’s amazing how someone can just look at you and decide how a random number of pounds can shift you from someone who doesn’t deserve care to someone who does.”

Pain management was barely discussed when Virgie Tovar, activist and author of Hot & Heavy: Fierce Fat Girls on Life, Love & Fashion, went to the doctor after being injured on an amusement park ride. Suffering what she described as “debilitating back spasms” that made movement “electrifyingly painful,” she was told she had to lose weight before anything could be done for her. “It was like this dogged commitment to not helping me until I was at a different weight,” she recalled. “Let’s say I lose weight at what is considered a normal pace that doesn’t endanger a person’s life. For me to get to the weight you’re talking about is like 10 years. So I just get to be in pain until I’m at that weight. And if I’m still in pain after a decade of weight loss, then you’ll think about taking care of this?”

Ideally, preventive care helps patients avoid catastrophic health problems, but it’s not always accessible to fat patients, whether because of issues with doctors, issues with technology, or both. Fat patients have been refused medical screenings, such as Pap smears, mammograms, and colonoscopies, that are considered routine and vital for thin patients. The American Cancer Society advises women to get mammograms yearly beginning at age 45 and colonoscopies every 10 years beginning at age 50, but fat people often struggle to find facilities that will perform the screenings and are told they cannot fit in the machines.

A required loss of 50 to 100 pounds can postpone a procedure for months or even years… It took Belles-Preston roughly six months to lose the weight, and she was in pain the entire time.

The importance of an MRI comes from its ability to provide higher-quality images. But the machines that provide those images are small, and other options, like CAT scans or ultrasound, don’t provide a comparable alternative. “All those scans need to penetrate the body to create an image. If a body is larger and has more fat tissue to penetrate, the image quality is poorer and blurrier, and it’s harder to make out structures,” Zuckerman explained. “It’s harder for skilled radiologists to diagnose things in patients who are larger for that reason. … The fact is, MRI machines are tiny. Some people literally cannot fit in them. So we do something else like an ultrasound or CT that is not quite as good. It’s better than nothing, but it doesn’t give us the image quality that an MRI does. You run the risk of missing something because the picture that you’re getting is not clear.”

The need for hospital equipment that can accommodate fat people has grown, and imaging devices are now available. This equipment is not available everywhere, however, and sometimes patients are referred to their local zoos. When Wann called the San Francisco Zoo’s medical department to ask about accessing its technology, the person on the phone sighed and said, “I wish people would stop saying that,” referring to requests to use the department’s CT and MRI scanners. While vet schools and zoos have larger-capacity devices, they can’t allow human subjects, and scanning humans in machines intended for animal subjects is banned by formal policies in most facilities. “That’s really beyond their certification,” explained Wann. They’re not licensed as an institution to practice medicine on people. Their entire institutional certification is being put on the line because our human medical system refuses to accommodate people above a certain size. It draws an arbitrary line and says, ‘Go beyond this line, and they’re monsters.’”

Without being properly screened, patients can’t be diagnosed. A 2008 review of previously published studies, 32 in total, reported that white, female, obese patients were less likely to be screened for breast and cervical cancer. A study from 2006 reported that only 68 percent of women with a BMI of greater than 55 were given Pap tests, while 86 percent of other women were tested.

In some cases, this is a result of fat patients opting out of health care entirely, even if they otherwise have the ability to access health care facilities and are insured: According to the International Journal of Obesity, 19 percent of participants reported that if they felt stigmatized about their weight by their doctor, they would avoid future medical appointments, and 21 percent said they would seek a new doctor.

“Fat people don’t go to the doctor often. They tend to avoid it,” writer and activist Kitty Stryker said. “A lot of fat people are ashamed of being naked. They don’t want to be touched. When I say I have a lower-back problem, I know they’re going to say, ‘Lose some weight, and that will go away.’ So what’s the point? Why bother continuing to try to get to the root of my health problems when I know the only thing they will ever tell me is ‘Lose weight’?”


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Patients often face added risk beyond concerns of being dismissed or the necessary treatment being denied: the possibility of weight loss treatments and procedures being strenuously suggested at inopportune or irrelevant moments. While the American Academy of Family Physicians recommends screening for obesity along with monthly sessions of counseling and behavioral interventions, the timing of these suggestions is crucial to the impact of motivational interviewing — and execution is often poor. Tan was mid-Pap smear when her doctor asked if she wanted a Weight Watchers pamphlet.

“The speculum’s already in and open. And she says, ‘I can tell you’re getting upset. Do you want me to continue?’” Tan recalled in disbelief. “I said yes because I didn’t want to have to make another appointment for my Pap smear. I was so mad, I was crying at this point. I couldn’t move. I couldn’t yell. She said, ‘I can tell I’ve made you upset, but weight is a serious issue.’”

Although familiar with the prejudice that came with her weight, Belles-Preston was still shocked when her general practitioner recommended weight loss surgery — while she was pregnant. “I walked out of the room. It was so incredibly offensive to me. I’m coming to you for medical advice about my pregnancy, and you’re talking to me about weight loss surgery, which is the furthest thing from my mind.”

“I have tons of resources and attitudes for confronting this kind of stuff, and it can still kill me,” Wann said as I marveled at her calm approach to discussing prejudice so severe it can result in death. “I understand not going [to the doctor]. I think it’s self-protective to some extent.… Every time I go to any kind of medical appointment I anticipate facing weight bias. I anticipate being denied the sort of services thin people would receive with no problem or being targeted for weight-based treatments that I don’t want and could harm me. I’m not interested in stomach amputation or stomach squeezing. I don’t think those are therapeutic practices in any sense. Every time I go see a doctor I’m aware they may casually say the only thing they want me to do is have my stomach cut off.”

* * *

The effects of that bias were traumatizing and long-lasting for Tan. Triggered by her uncomfortable experiences in hospital environments, Tan’s first job as an audiologist after graduate school provoked frequent panic attacks because of its location at a hospital. “I used to have to go to work early so that I could tamp down the panic associated with being in a hospital at all,” she said. “This fear of hospitals hasn’t quite gone away. Most recently, a few months ago, we had to spend a few days in ICU as my partner’s dad passed, and just being back in ICU rattled me so badly it was a month before I could stop popping several Valium a day.”

It was the adversarial relationship she had developed with doctors and nurses that contributed to Tan’s panic. And she’s not alone. For many, thin means healthy and fat means unhealthy. So small and slender equates with good health and is encouraged by medical providers, often resulting in strained relationships with their patients.

The idea that the lower the weight, the healthier the person, escalated into life-threatening conditions for Smith, who was frequently complimented on how healthy she looked while she was starving herself. “When you’re restricting [calories] you can brag about it,” she said, recalling her preparation for the colectomy. “[Doctors] asked, ‘Are you eating well and exercising?’ I said, ‘I’m very healthy. I exercise all the time. I only eat vegetables.’ It’s a funny dichotomy. Just because the scale is low does not mean that you’re healthy. A lot of doctors forget to be careful of that.”

But as the number on the scale climbs, the less flattering characteristics — greed, lack of control, messiness, lack of self-care, laziness, automatic unhealthiness — are associated with fat people, only to be furthered by the media’s portrayal of fat characters, who are typically the butt of jokes or seen as slovenly and undesirable. Women are often the punch lines, much more than men. BMI standards also are more harsh for women than for men, which is apparent in the statistics regarding weight loss surgery: Obesity rates in America are split fifty-fifty between genders, but 80 percent of bariatric surgeries are performed on women. In a 2014 study from Kansas State University, 72.8 percent to 94 percent of overweight and obese men were satisfied with their health as compared with 56.7 percent to 85 percent of overweight and obese women. There’s a reason all the stories and sources here are about and told by women.

“The truth is that there are reasons why fit people live longer, better lives,” Tovar said. “It’s because the entire culture is constructed to benefit them.” Weight discrimination is associated with an increase in mortality risk of nearly 60 percent for both women and men.

Fat activists are working to provide recourse at the community level; patients share the names of fat-friendly doctors or establishments, and Wann uses her social networks to help people get referrals for doctors and other medical providers. She also assists people with planning responses to doctors and providers who inflict weight bias. Fat activist Stef Maruch maintains a list of doctors who do not inflict bias or are fat positive, and Wann encourages people to update it whenever they can. NAAFA also publishes brochures and tool kits to assist fat people in navigating bias and fighting anti-fat legislation. A monthly newsletter updates recipients with the latest research and provides referrals to practical tools like products made for people of size. After Hurricane Harvey devastated Texas, NAAFA released a special-edition newsletter and sent plus-size clothing and supplies.

Obesity rates in America are split fifty-fifty between genders, but 80 percent of bariatric surgeries are performed on women.

The organization has also updated the brochure it gives health care providers treating fat patients. It was last updated in 2011, and per the recommendation of one of NAAFA’s advisers, its language is being revised to be much more aggressive when discussing weight bias with medical professionals. “Up until this point we’ve been trying to inform and be a little bit gentle,” explained Peggy Howell, NAAFA’s vice chairman and public relations director, citing the research scientists, Ph.D.s, and professors in medicine, law, nutrition, social work and more who serve on NAAFA’s advisory board. “The advisers came back and said, ‘I think we need to take a different approach. I think we need to be more assertive about this. There are lots of studies that support that this bias does more harm than good to the patients.’” The nonprofit’s 2011 brochure states, “NAAFA is working to help ensure that health care providers provide the best possible care by keeping in mind the special needs of their fat patients.” The new brochure reads, “We currently live in an environment that stigmatizes anyone who does not meet the aesthetic or medically defined categories of an ‘attractive’ or ‘healthy’ weight… [it] creates and sustains fat phobia and oppression, which includes weight bias, prejudice, stigma, discrimination, bullying, violence, and cultural imperialism. … Sometimes the internalized biases of health care providers directly contribute to further stigmatization of fat people.”

There is some movement on the medical end as well, driven by health care providers seeking training and resources. The Rudd Center has developed educational videos, which have been tested and found to reduce weight bias. Viewing the two 17-minute films — “Weight Prejudice: Myths and Facts” and “Weight Bias in Health Care” — resulted in improvement in attitudes toward obese people. The Rudd Center has also created a media repository of 400-plus photos and more than 80 B-roll videos that portray children and adults with obesity in non-stigmatizing ways, intended as a resource of respectful, rather than stereotypical, images for the media as well as scientists and health professionals to use when making educational presentations.

“We’ve created online courses and all different kinds of resources to use to try to increase awareness about this issue and educate providers that this is more than a social justice issue,” Puhl said. “This is a full public health issue. The stigma is making their patients’ health worse.”

For many fat people, the response is too little, too late. “I would rather doctors have signs on their door saying, ‘I don’t treat fat people,’” Wann said. “It would save everyone time and money if they had a sign on their door that said, ‘No fatties.’ At least they would be honest and own their bias.”

***

Carey Purcell is a New-York based writer who covers culture, politics and current events from a feminist perspective. She has been published in The New York Times, Vanity Fair, Politico and other publications. She has been a featured guest on AM Joy and Good Morning America, and her writing can be read at CareyPurcell.com.

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Editor: Michelle Weber
Illustrator: Hannah Perry
Fact checker: Matt Giles
Copy-editor: Sylvia Tan

My Date with Hollywood

Illustration by Annelise Capossela

Monica Drake | Longreads | October 2017 | 14 minutes (3,538 words)

 

A hot Hollywood beauty optioned the film rights to my first novel, Clown Girl, then, months later, invited me out for dinner. Specifically, her people emailed my people — me.

Her agent asked if I’d be interested and available.

I was home alone when I got the message, and beyond interested. I was instantly dizzy, maybe sleep-deprived, over-caffeinated. I grabbed the back of a chair, knocking over a paper cup of cold coffee on our cluttered dining table. I teach English Composition at a small, private art school and I write. I’m a full-time mom with a full-time job and a full-time writing career on the side, wherever “the side” is. I live in a sea of student essays, department meetings, administrative work, my own pages of writing, submission, acceptance, rejection, my daughter’s projects and a lot of late nights at the computer. This Miss Hollywood, of course, is a movie star.

Now she’d reached out to me — she, this writer and actress, a woman said to have “single-handedly reinvented [the] romantic comedy formula,” hailed as a “comedic genius” by more than one publication.

Yowza!

I didn’t check my calendar. I’d make time. Morning, noon, night, I’d be in town. When opportunity knocks, right? “Yes,” I emailed back, tapping the single word into my phone. Coffee dripped to our worn floorboards.

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Uncovering Hidden History on the Road to Clanton

Photo by Lance Warren. In Brighton, Alabama, a rare marker — installed by the Equal Justice Initiative — notes a lynching that took place in 1908. Of the more than 4,000 lynchings on record, only about a dozen have been memorialized with public markers.

Lance Warren | Longreads | October 2017 | 10 minutes (2,650 words)

 

We turned left at Maplesville and headed for Clanton, drawn by word of a Confederate flag and rumor of a lynching. Ida B. Wells wrote about the killing 125 years earlier. Now, we’d read in the paper, stars and bars flew nearby, well in view of drivers on Interstate 65 near the geographic center of Alabama. The flag adorns the Confederate Memorial Park and Museum in nearby Marbury. The lynching is all but forgotten.

One month earlier, the park grounds had seen cannon fire. Re-enactors presented a “skirmish” displaying military maneuvers that never took place in Marbury, the site of no battles. The park’s director, a man named Rambo, explained that the event offered the public an opportunity to see how Confederate forces engaged the enemy. “All of the people are trained living historians,” he beamed, reflecting on the re-enactors, “and they love to spread the knowledge. Unfortunately, a lot of people learn of history through Hollywood.”

We were there to make a film — An Outrage — a documentary about the history of lynching in the American South, and the legacy of this orphaned past. Good people in Clanton, Marbury, and beyond hadn’t learned about history that wasn’t taught. Others had succeeded in muffling open secrets that had fallen out of fashion. My wife, Hannah Ayers, and I had driven 723 miles from our home in Richmond, Virginia, to find killing fields across the region. We wanted to see how these places looked today. We wanted to explore memory, interrogate history, and ask what happens when the two do not agree.

Hard rain darkened the sky. It squeezed the spindly Route 22 to Clanton. The trees were tall, lining the way on both sides. They formed a silent swaying wall. We knew they held secrets, secrets herded into shadows, secrets long hushed.

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The Horizon of Desire

(CSA Images/Mod Art Collection/Getty)

Laurie Penny | Longreads | October 2017 | 15 minutes (4,185 words)

“Man fucks woman. Man: subject. Woman: object.”

 —The Fall, Episode 3, “Insolence and Wine”

The first thing you need to understand about consent is that consent is not, strictly speaking, a thing. Not in the same way that teleportation isn’t a thing. Consent is not a thing because it is not an item, nor a possession. Consent is not an object you can hold in your hand. It is not a gift that can be given and then rudely requisitioned. Consent is a state of being. Giving someone your consent — sexually, politically, socially — is a little like giving them your attention. It’s a continuous process. It’s an interaction between two human creatures. I believe that a great many men and boys don’t understand this. I believe that lack of understanding is causing unspeakable trauma for women, men, and everyone else who is sick of how much human sexuality still hurts.

We need to talk about what consent really means, and why it matters more, not less, at a time when women’s fundamental rights to bodily autonomy are under attack across the planet, and the Hog-Emperor of Rape Culture is squatting in the White House making your neighborhood pervert look placid. We still get consent all wrong, and we have to try to get it a bit less wrong, for all our sakes.

To explain all this, I’m going to have to tell you some stories. They’re true stories, and some of them are rude stories, and I’m telling you now because the rest of this ride might get uncomfortable and I want you to have something to look forward to.

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How Food Can Be a Platform for Activism

Shakirah Simley | “How Food Can Be a Platform for Activism,” from Feed the Resistance: Recipes and Ideas for Getting Involved | October 2017 | 6 minutes (1,351 words)

Over the course of her career, chef and cookbook author Julia Turshen has made a habit of combining her passion for cooking with her desire to help. She’s volunteered at food pantries, with hunger relief initiatives, and with organizations like God’s Love We Deliver, which provides meal for people with HIV and AIDS. Still, she was a bit taken aback earlier this year when Callie McKenzie Jayne, a community organizer for the Kingston chapter of Citizen Action of New York, tapped Turshen to be “Food Team Leader” just upon meeting her. It didn’t take her long to get on board, though, and to then translate her new appointment into an opportunity to do what she does best: put together a book that’s about making the act of cooking healthy, delicious food easy and accessible to everyone. The result is Feed the Resistance: Recipes and Ideas for Getting Involved, which is equal parts cookbook, handbook for political action, and essay anthology. Proceeds from the book will be donated to the ACLU. Below is an excerpt by Nourish|Resist co-founder Shakirah Simley. — Sari Botton

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“That Was the Final Straw”: On Reporting From Venezuela as It Spiraled Downward

diego looking at Caracas landscape.
Diego, who's on the verge of leaving Venezuela, was followed by reporter Christian Borys during the July protests. (Daniel Blanco)

On July 30, Venezuela’s anti-government movement quickly collapsed after a controversial, and possibly fraudulent, vote radically extended Nicolás Maduro’s presidential powers. On the ground in Caracas during those fateful days was Canadian journalist Christian Borys, whose Longreads Exclsuive about the unraveling of Venezuela’s Resistencia movement, “You Can See the Battle Scars,” came out last week. I recently chatted with Christian over email about the protests’ sobering aftermath, and the experience of reporting from a country caught in a dramatic downward spiral.

* * *

It’s been almost two months since you returned from Caracas. Have you been in touch with some of the people you met there? What are they telling you about the current state of things?

Yes, I’m in touch with someone almost every day. The weirdest part about what’s happening now is that nothing is happening. The movement against the government died the day after the big vote on July 30. It was as if everyone either gave up the fight, resigned themselves to a future under a dictatorship, and returned back to their work-life routine or got out of the country. A lot of people told me that their friends just left afterward. That was the final straw.

You’ve reported about protests and civil strife before, in places like Poland and Ukraine. How was the experience in Venezuela different for you as a journalist, and as an observer?

Venezuela is in a far more difficult situation than any other place I’ve been to. It’s devolved into one of the worst places in the world to live, and although they’ve managed to avoid any sort of massive internal armed conflict, people are struggling just to get basics. You have people picking through trash to find food, which you can certainly find in any country, but everyone we spoke to said that they’d never, ever seen that in Venezuela before. The food shortage and poverty had grown so extreme that people were forced to pick from scraps. We heard stories about women turning to prostitution to make a dollar, about how insanely difficult it is to acquire medicine if you can’t afford it, and even about the trouble of acquiring something as basic as a T-shirt if you want a new one. The prices have just gone to such extremes in relation to the wages that nothing is remotely affordable anymore.

People with access to U.S. currency can live like kings in Venezuela because the currency has fallen off a cliff, but not everyone has relatives in the U.S. who can send them dollars. It’s this slow descent into the abyss. I think it was Diego — a young man featured in the story — who said to me, while we were at a market, something like, “Man, this is such bullshit, nothing is affordable anymore.” And I asked him about when he began to notice the changes. He said it was slow, so slow that you just got used to it each time it happened. Each time there was a spike, you thought it can’t get worse, but then it did. For reference, when I got there, the currency was below 8,000 bolívars per one U.S. dollar. When I left, it’d dropped to 20,000 to one dollar amid the chaos. Now it’s gone all the way to 30,000. People’s real earnings have just gone up in flames.

One of the most striking things in your piece is the way it conveys the normalcy of danger. How did it feel on the ground while you were reporting? Was there a sense of imminent violence, whether from the authorities or from random crime? Has it affected the way you went about reporting this story?

The dangerous part about Venezuela — and why it was so different than Ukraine, for example — is that when you cover war, you generally know which direction the threat could be coming from, you know who could be out to cause you harm. In Venezuela you had no idea, and the options were limitless as to who might put you in danger. There was SEBIN (The Bolivarian National Intelligence Service), robbery, kidnapping, National Guardsmen, Venezuelan officers, and random murder. It was an especially difficult place to work during that time because there were checkpoints, even casual ones, all around. Authorities were looking for suspicious groupings of people in cars to figure out which ones could be protesters. There was a lot of paranoia on our part about who was watching us — and it was definitely justified. One day, on July 30 actually, the day of the Constituyente vote, a middle-aged man came up and snapped my picture, then rushed away. My colleagues and I were concerned we’d be picked up.

Your reporting took you to very different areas in Caracas — from affluent enclaves to some of the poorest barrios. Does the despair, and the reactions to it, transcend these divisions, or did you see it play out differently across socioeconomic fault lines?

Yes, we went all over the city. I wanted to make sure we saw the whole spectrum of opinions, and frankly, everyone young, without exception, was against the government. It didn’t matter if they were ultra-poor, like Gaucho, or wealthy, like Federica — who are both are featured in the story — the young people were universally against their government. It makes sense when you look at the statistics and realize that they no longer see any future for themselves in their own country. I think people sometimes discount or can’t empathize with how difficult it is to have to pack up and move to a different country, even if you speak the same language. I mean, moving apartments can be enough of a pain in the ass, but fleeing a country, finding a new place to live, building a new social and professional network, restarting school, finding a new job, starting a career from scratch, learning a new culture, establishing new routines. Those are all emotionally exhausting.

Bringing this back to a North American perspective, the concept of political “resistance” has seen a major resurgence this past year. And it’s almost always framed in optimistic terms. Your story shows the moment where a resistance movement very clearly hit a major, perhaps fatal, dead end. Is there anything that can be learned from the Resistencia activists you’ve witnessed in Caracas in the days before the July 30 vote? What’s in store for this now much-weakened movement?

I honestly have no idea what can be learned. I was shocked to see the movement die off the day after the vote. I expected some massive uprising to take place, as did many people, except for the veteran correspondents who’d spent years in Venezuela. Several people told me to expect nothing much, but it seemed like such an intense moment that I discounted that theory a bit. But that’s exactly what happened.

Some people tried to explain it to me afterward as the failure of the opposition politicians to actually keep the trust of the movement. Their message changed so often, from “Let’s march on the Presidential Palace!” to “Pull over and turn your cars off in protest.” People were disheartened by their leadership, especially when they saw their leaders willing to cooperate with the regime in the wake of the vote. I mean, people on the street were screaming “dictatorship!”, and yet the politicians who’d asked them to give their lives for this movement suddenly changed views and began to negotiate. I guess the people felt betrayed. The only way you can ensure that doesn’t happen is if you make the resistance movement apolitical, meaning you don’t let a political party co-opt it and lead the charge. You’d have to let civil society lead it, and do it for the betterment of society, not for the political goals of any party. How you can ensure that a politician doesn’t step in and take over is beyond me.

As far as what’s in store for this movement, I honestly have no idea. I feel like the country is just going to lose a ton of its young, talented people and devolve further into a shadow of what it once was economically and culturally. I don’t know if there will be a big challenge to Maduro’s regime anytime soon.

Read “You Can See the Battle Scars”

Is the Internet Changing Time?

Photo: AP Images

Laurence Scott The Four-Dimensional Human: Ways of Being in the Digital World | W. W. Norton & Company | August 2016 | 20 minutes (5,296 words) 

 

Below is an excerpt from The Four-Dimensional Human, by Laurence Scott. This story is recommended by Longreads contributing editor Dana Snitzky.

* * *

Power has been wielded through the pendulum.

‘Now all the petrol has stopped and we are immobilised, at least immobilised until we get new ideas about time.’ This was how the author Elizabeth Bowen described wartime life in Ireland to Virginia Woolf, in a letter from 1941. Bowen explored some of these new ideas in her London war fiction, which is full of stopped clocks and allusions to timelessness, the petrifaction of civilian life in a bombed city. Across the literary Channel, Jean-Paul Sartre’s war trilogy, The Paths to Freedom, is, like Bowen’s Blitz work, in part a study on how time itself becomes a casualty of war. In one scene Sartre describes German troops ordering a division of captured French soldiers to adjust their watches to their captors’ hour, setting them ticking to ‘true conquerors’ time, the same time as ticked away in Danzig and Berlin. Historically power has been wielded through the pendulum, and revolutionary change has been keenly felt through murmurs in the tick and the tock of one’s inner life. King Pompilius adjusted the haywire calendar of Romulus, which had only ten months and no fidelity to season, by adding January and February. Centuries later, the Roman Senate renamed the erstwhile fifth and sixth months of the Romulan calendar to honour Julius Caesar and Augustus, thus sparing them the derangement still suffered today by those once-diligent months September–December. For twelve years, French Revolutionaries claimed time for the Republic with their own calendar of pastorally themed months, such as misty Brumaire and blooming Floréal.

The digital revolution likewise inspired a raid on the temporal status quo. In 1998, the Swatch company launched its ill-fated ‘Internet Time’, a decimalised system in which a day consists of a thousand beats. In Swatch Time, the company’s Swiss home of Biel usurps Greenwich as the meridian marker, exchanging GMT for BMT. This is a purely ceremonial conceit, however, since in this system watches are globally synchronised to eradicate time zones. A main selling point of BMT was that it would make coordinating meetings in a networked world more efficient. This ethos severs time from space, giving dawn in London the same hour as dusk in Auckland, and binding every place on earth to the cycle of the same pallid blue sun. As it turns out, we didn’t have the stomach to abandon the old minutes and hours for beats, and the Swatch Time setting that persists on some networked devices is the vestige of a botched coup. Although this particular campaign was a failure, digitisation is nonetheless demanding that we find our own ‘new ideas about time’. For as the digital’s prodigious memory allows our personal histories to be more retrievable, if not more replicable, we are finding in the civic sphere a move towards remembrance that shadows the capacity of the network to retain the past. But while time is not lost in the ways it used to be, the tendency of digital technologies to incubate and circulate a doomsday mood is making the durability of the future less certain. As a result, the four-dimensional human is developing new strategies to navigate a timeline that seems to thicken behind us and evaporate before us. Read more…

Take Me Home

Photo of the Victory Monument (Patuxai) by Dan Lundberg (CC BY-SA 2.0)

Kathryn Kefauver Goldberg | Longreads | September 2017 | 16 minutes (4,596 words)

 

I.

When I moved to Laos in 1998, there was almost no violent crime. The landlocked country had five million people, 57 languages, and 90 million unexploded bombs in the ground. In the 10th-poorest nation in the world, Lao people focused on food, festivals, and family. Buddhism thrived. In my house in Vientiane, the salty scent of the Mekong River drifted through my screens. I was 25, and my first six months there, I rarely thought of the killings that had launched me overseas.

I lived between a temple and a beer shop, the two great traditions of solace: the monks and the drunks. My excessive sleep, a portable artifact of PTSD, blended well in Laos. All around the partially paved capital, people napped in hammocks strung on half-built buildings, on tables of stacked silk at the market, and in tuk-tuks parked in the shade of banyans. My Lao colleagues at our United Nations outpost snoozed right at their desks. I did, too.

So the morning my boss, Patrick, sauntered into my office, he found me cheek to notebook. The monsoon clattered beyond the window. I’d passed out pondering the prospect of turning 26 in two weeks’ time. Birthdays, like rain, stirred up the muck. I was alive. Others were not. Read more…

On American Identity, the Election, and Family Members Who Support Trump

Nicole Chung | “All American,” from Nasty Women: Feminism, Resistance, and Revolution in Trump’s America | September 2017 | 16 minutes (4,037 words)

There were so many disturbing moments in the run-up to the 2016 presidential election that it’s difficult to identify any particular one as the worst. Up there at the top of the list: Donald Trump narrowing his eyes and shaking his head as he called Hillary Clinton “such a nasty woman,” during the final debate. He probably didn’t count on feminists laying claim to the words he’d used to level an insult. At the post-Inauguration Women’s March on Washington, many women bore signs proudly emblazoned with those words. And on October 3rd, Picador will release Nasty Women: Feminism, Resistance, and Revolution in Trump’s America, an essay anthology edited by Samhita Mukhopadhyay and Kate Harding, featuring essays by 23 women including Cheryl Strayed, Rebecca Solnit, Jessica Valenti, Katha Pollitt, and Samantha Irby, among others. The following essay from the collection, by writer and Catapult editor Nicole Chung, captures the frustrations of dealing with Trump supporters, including one’s own family members.  

Sari Botton, Longreads Essays Editor

***

When I made an appointment to get my hair cut two weeks after the election, it was with a new stylist, a white woman in her 30s with a streak of purple in her hair. She commented on the loose, rumpled waves that show up whenever my hair gets damp, and I explained that the slight curl appeared only after I had children. She welcomed the avenue for small talk: How many kids did I have; how old were they; did I have a photo? I pulled out my phone and showed her the picture on my home screen, my two girls at the beach.

Oh,” she said, visibly surprised. “Is their dad American?” Yes, I told her. So am I. She went on to ask “what” my children were, and whether I thought their coloring was “more olive, or more yellowish like yours?” Later, as she snipped away, she revealed that she and her father and her boyfriend had all voted for Donald Trump.

Though her comments about my kids were the most offensive, it’s her assumption about my nationality that has stuck with me in the weeks since. She identified my husband as “American” when what she meant was “white,” isolating and othering me in the process. There is nothing out of the ordinary about being taken for a foreigner when you’re Asian American; by itself, without years of similar accumulated remarks, her slip might not have bothered me. But in the same month that Donald Trump was elected to our nation’s highest office, this white woman’s unthinking words served as a stinging reminder of just how many people in this country look at me and see not an American, not someone like them, but an outsider, intrinsically different.

Read more…