Search Results for: health

The Case for Believing Women Who Are In Pain

If there’s only one important takeaway from the backlash to Gwyneth Paltrow’s Goop, it’s that women seek alternative medicine — and therefore the “wellness” movement — because traditional doctors have never taken them seriously.

As Annaliese Griffin pointed out for Quartz, the American healthcare system, while undeniably terrible for nearly everyone, damages women to an extreme. Their “experience of pain is routinely minimized by health practitioners,” resulting in longer wait times, misdiagnoses and even an increased chance of death from things as common as heart attacks.

When Maxwell Williams learned a female friend of his was incapable of having sex without feeling excruciating pain but struggled to find a doctor who would take her pain seriously, he decided to investigate what was really causing the stabbing sensation that doctors kept telling his friend was all in her head. (Never mind that the head is part of the body, indeed controls all of the body, so it makes little sense to discount it.)

For his piece for GOOD Magazine, Williams spoke with about a dozen women who shared his friend’s experience, including one whose marriage unraveled because of it, and he learned of vulvodynia, a Latin medical term that roughly translates to “vulva pain.” The condition plagues far more than the dozen women he spoke with — as much as 16 percent of the female population, or 14 million women, markedly more than those who experience endometriosis or breast cancer. So why don’t we know about it? And why are treatment options so scarce?

“If you were a woman and you were asked, ‘In your last sexual encounter or your last series of sexual encounters, did you experience pain?’ what would you think the answer would be?” he says. “It’s a little over a third. That’s a freaking epidemic. One third of women in our environment are having pain during sex. That’s an unnecessary, bothersome, distressing issue. We need a lot more effort in understanding it.”

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The Hippies Who Hated the Summer of Love

Newcomers to the Haight-Ashbury neighborhood in April, 1967. At the height of the "Summer of Love," the area had a population density greater than Manhattan.

Kate Daloz | Longreads | August 2017 | 11 minutes (2700 words)

The posters began to appear around the city just after New Year’s, 1967. “A Gathering of the Tribes for a Human Be-in…Bring food to share, bring flowers, beads, costumes, feathers, cymbal flags.” On Saturday, January 14, a crowd of young people began to form on the open fields of Golden Gate Park. Throughout the day, local bands — not yet famous — took turns on the stage: The Grateful Dead, Jefferson Airplane, Janis Joplin’s Big Brother and the Holding Company. Poets Allen Ginsberg and Gary Snyder led Hindu chants to the bouncing rhythm of finger cymbals. Timothy Leary addressed the crowd, urging them for the first time ever to “turn on, tune in, and drop out.” Owsley Stanley, the rogue chemist credited with manufacturing the period’s highest-quality LSD, donated 75 turkeys for sandwiches — the bread was sprinkled lightly with crushed White Lightning acid. At one point, a skydiver descended gently into the crowd, borne by a white parachute.

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‘They Used Deadly Force to Subdue Her’

Photo by Bosc D'Anjou via Flickr (CC BY 2.0)

LitHub has an excerpt of Invisible No More: Police Violence Against Black Women and Women of Color, by Andrea J. Richie, just out from Beacon Press.

Titled “Mental Illness is Not a Capital Crime: On the Disproportional Impact of Police Violence on Women of Color,” the chapter addresses the devastating impact law enforcement’s common misconceptions about women of color can have on the women’s safety, especially when mental illness is an added factor. Police officers often are misinformed about mental and physical disability, and because of that, tend to be violent toward women who aren’t dangerous.

At least half a dozen cases of police shootings of Black women documented in Say Her Name, the report I coauthored with Kimberlé Crenshaw, arose from police interactions with women in actual or perceived mental health crisis: Shereese Francis, killed in New York City in March 2012; Miriam Carey, shot in Washington, DC, in October 2013; Pearlie Golden, shot in Hearne, Texas, in May 2014; Tanisha Anderson, killed in Cleveland in November 2014. Although no official statistics exist, based on my experience tracking cases over the years, it appears that police responses to mental health crises make up a significant proportion of Black women and women of color’s lethal encounters with police. As was the case for Eleanor and Deborah, these encounters often reflect police perceptions of Black women as volatile and violent, portrayed, in the words of historian Sarah Haley, as “daft,” “imbecilic,” “monstrous,” “deranged subjects,” “lacking essential traits of personhood and normative femininity,” to be met with deadly force rather than compassion, no matter their condition or circumstance.

Indeed, disability — both mental and physical —is socially constructed in ways comparable to, and mutually constitutive of, the construction of race and gender. As disability justice and transformative justice activist Mia Mingus points out, women of color are already understood as “mentally unstable,” regardless of whether or not they are actually “disabled.” “This kind of racialized able-ism inherently informs how police (and society at large) interact with Black and Indigenous women, and women of color.” Actual or perceived disability, including mental illness, has thus served as a primary driver of surveillance, policing, and punishment for women and gender-nonconforming people of color throughout US history.

Scientific racism has been fundamental to conceptions of mental health and disorder. According to Vanessa Jackson, the first asylums for “lunatic slaves” were created in response to a case of a Black woman found to be insane after she allegedly killed her child. Indeed, resistance to slavery was pathologized as mental illness inherent in African-descended people. The same resistance-equals-insanity trope was projected onto Indigenous people. In her pamphlet Wild Indians, Pemina Yellow Bird, a member of the Three Affiliated Tribes and psychiatric survivor activist, describes how, from 1899 to 1933, Indigenous people who resisted reservation agents, refused kidnapping of their children to Indian Residential Schools, or violated laws that criminalized traditional spiritual practices were sent to the Hiawatha Asylum for Insane Indians in Canton, South Dakota. There, “Indian defectives” were incarcerated and subjected to torture and physical, cultural, and spiritual abuses.

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‘A Boy with No Backstory’: One Teenager’s Transition

In 2014, Oregonian reporter Casey Parks contacted local hospitals to find transgender patients who were interested in telling their stories. One doctor, Karin Selva, had a 15-year-old patient named Jay who was willing to share his own. Parks met Jay and his mother Nancy the following year, soon after his first testosterone shot, and has spent hundreds of hours with him since — at home with family and friends, on school visits, and during medical appointments. In the first piece of a three-part series, Parks chronicles the realization that would prompt Jay’s medical transition.

One afternoon while his mom worked, Jay called his younger sisters to the living room. They were 8 and 10 — old enough, he hoped, to understand.

“I need to show you a video,” he told them. He streamed one of the YouTube videos on the TV. A trans guy appeared on the screen and explained how he came out to his family.

Jay stood while his sisters watched from the couch.

“This is how I feel,” Jay said when it ended.

“So you’re becoming a boy?” asked his youngest sister, Angie.

Jay paused. He couldn’t bring himself to say it out loud.

“Kind of.”

“Do you want me to tell mom?” Maria asked.

“No,” he said. Jay hadn’t talked to his mother much the past year, but he knew he had to tell her.

The next day, he crept to the other side of their trailer, his heart knocking. He pushed open his mom’s bedroom door, stood in the doorway and watched her play Candy Crush. She was zoned out after a 12-hour workday. Maybe she’d be too tired to talk about it. She already had on her favorite pajamas, gray sweatpants and a tan tank top.

“I think I figured it out,” he said.

He took a deep breath.

“I’m a boy.”

His mom looked up from the phone.

“So you want to be a butch lesbian?”

“No,” he said. He walked toward her.

“A boy.”

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The Uncomfortable Discoveries That Come with Home DNA Testing Kits

Photo: Associated Press

In the Washington Post, Libby Copeland follows the story of Alice Collins Plebuch, a 69-year-old woman who believed she was the daughter of Irish Americans until she took a “just-for-fun DNA test” that upended everything she thought she knew about her family history.

Genetic testing companies like 23andMe and Ancestry.com have made it much easier for consumers to learn more about their genealogy and health risks. But home testing kits have also led people to unexpected discoveries:

For adoptees, many of whom can’t access information about their birthparents because of closed adoption laws, DNA testing can let them bypass years, even decades, of conventional research to find “DNA cousins” who may very well lead them to their families.

But DNA testing can also yield uncomfortable surprises. Some testers, looking for a little more information about a grandparent’s origins, or to confirm a family legend about Native American heritage, may not be prepared for results that disrupt their sense of identity. Often, that means finding out their dad is not actually their dad, or discovering a relative that they never knew existed — perhaps a baby conceived out of wedlock or given up for adoption.

In 2014, 23andMe estimated that 7,000 users of its service had discovered unexpected paternity or previously-unknown siblings — a relatively small fraction of overall users. The company no longer provides data on surprise results. However, its customer base has more than doubled since 2014, and now contains more than 2 million people — and as more people get involved with recreational genomics, bloodline surprises are certain to become a more common experience. The 2020s may turn out to be the decade that killed family secrets, for better and for worse.

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My Mongolian Spot

Photo-Illustration by David Herbick

Jennifer Hope Choi | The American Scholar | August 2017 | 17 minutes (4,250 words)

 

First you should know: I was born with a blue butt.

So was my mother.

Thirty-two years and many thousands of miles of land, sky, and sea separated her creation from mine, yet we emerged the same: wailing, mad for first breaths, 10-fingered, 10-toed, chick-like tufts of black hair nested atop our soft skulls, and, incredibly, a wavy-bordered blue spot not unlike that of Rorschach’s inkblots, blooming across our tiny bums—blue like ice-cold lips, blue like the ocean at midnight, Picasso’s most melancholic bluest of blues.

By the time I learned about my blue butt, it was gone. Like a spy’s secret message written in vanishing ink, the spot disappeared sometime after my fourth birthday. The timing seems strange—to think that as soon as I could form my earliest memories, my blueness had already left me. In one such memory, I recall taking a shower with my mother. The water beat down on my shoulders thunderously. I’d misbehaved (perhaps, refused to wash my hair), and as I slid open the mottled glass door to escape, my mother smacked my bottom. Because this is my earliest butt-related memory, I mined it recently, hoping to uncover any clues of my former blue self. I remember wailing in the showy way children do when they’re old enough to know better, then peering behind me for proof: the fierce, fiery outline of my mother’s hand. But I can recall nothing but plain tush. I was neither red nor blue. We stood as nude as newborns, un-shy in our nakedness, water cascading across my mother’s towering body as she fumed and I wept in her shadow. Read more…

The Boy With the Coin-Filled Cellophane Cigarette Wrapper, and Me

Illustration by Kjell Reigstad

Amber Leventry | Longreads | July 2017 | 12 minutes (3,016 words)

 

I entered my daughter’s kindergarten classroom and walked behind her with enough distance to accommodate the swinging of her backpack and the unpredictable steps taken by a five-year-old wearing wet snow boots on a linoleum floor. We squeezed through the door and by her classmates who, with barely combed hair and missing baby teeth, are practically carbon copies of her. She shuffled over to her friends, and I placed onto a table the well-labeled Ziploc bag containing the exact amount of money she needed for the school’s pre-Christmas sale, in the exact denominations requested.

One of my daughter’s classmates placed his sack of coins on the same table, but it was not over-prepared in the way my daughter’s was. There was no label or even a seal to keep his change from spilling onto the table or floor. His money was seemingly grabbed from what could be found in pockets or the car on the way to school and was stuffed into the clear cellophane wrapper pulled off of a pack of cigarettes. It was clearly an afterthought on a morning that placed other things more stressful or pertinent above a kindergarten teacher’s reminder to send a dollar’s worth of dimes into school for a holiday tag sale.

Even with their different backgrounds hidden beneath the surface of similar physical features, each child is measured against the same school motto: Be Kind, Be Safe, and Be Your Best. The expectations are reasonable, but the ability of each child to exhibit these qualities is variable. One’s best may be viewed as far below another’s. Sometimes one’s best is only as good as what is provided at home, by what is held in one’s hands.

I don’t know this boy’s circumstances, and the similarities in our childhood experiences may start and end with this isolated detail provided by a cigarette-smoking caretaker. But his bag of tobacco-greased pennies and nickels could have been pulled from my childhood home, if my parents had been so clever or resourceful. The coins and their presentation quickly conjured memories from my childhood.

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A Transgender-Military Reading List

Transgender former US Navy Seal Senior Chief Kristin Beck. (Credit: NICHOLAS KAMM/AFP/Getty Images)

On Wednesday, President Donald Trump announced, via Twitter, a ban on transgender people serving in the United States military.

His tweeted justification was that “our military must be focused on decisive and overwhelming victory and cannot be burdened with the tremendous medical costs and disruption that transgender in the military [sic] would entail.”

It was, several Twitter users noted, an odd way to mark the 69th anniversary of President Harry Truman signing an executive order that ended racial discrimination in the military. There are currently thousands of transgender people serving in the nation’s all-volunteer military.

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How Patagonia Continues to Operate As a Model of Responsible Capitalism

How serious are you about saving the planet? Many marketing types say that activism is the new hot advertising strategy, but some businesses actually believe in the philosophies they espouse, like Patagonia. Founded in 1973, the California-based company has always aimed to balance responsible production with environmental activism, by funding environmental causes, refining its business model and manufacturing practices, and empowering like-minds. With the Trump administration’s move to dismantle environmental protections on public land and climate change, Patagonia’s staff believes that too many companies in the outdoor industry have been too passive for too long, and the time has come to spend more company profits fighting the political forces that not only threaten America, but humanity’s future. At OutsideAbe Streep examines the ways Patagonia reaches consumers, manages its factories, thinks of its role in a revolution, and urges other businesses to step up. With power and influence comes great responsibility, which puts brands in the position to influence social good. Interestingly, this socially responsible model has quadrupled Patagonia’s profits during the last ­seven years. The question is: are those other companies committed to long-term political activism?

For decades, Patagonia sought to demonstrate that profitability and environmentalism can go hand in hand—to show a better way by, for example, encouraging fair-trade practices in foreign factories. The company advised Walmart, helping the retail behemoth clean up its supply chain, and worked with Nike to create the Textile Exchange, a nonprofit that encourages more sustainable practices in the apparel industry. Chouinard now believes that he was mistaken in trying to influence publicly traded companies. “I was pretty naive thinking you could do that,” he told me.

Marcario presented an alternative: grow Patagonia into a much bigger brand so that everything it did would have greater impact. She was uniquely qualified to make this argument. In her youth, she was an outspoken progressive activist, arrested during protests on issues like LGBT rights, AIDS, and women’s health. “She understands the need for revolution,” Chouinard has said. But she also understands business. Upon taking the CFO job, she streamlined distribution and shipping, installed industry-standard software, and focused on improving e-commerce. “Doing things that, you know, like, retailers do,” she laughs. During her first year, in 2008, the global economy crashed, but Patagonia—and much of the outdoor industry—didn’t: the company experienced growth in the high single digits. Casey Sheahan, Patagonia’s CEO at the time, told me that this was due to people “aligning themselves tribally” at a time of strife. It was a hint of the opportunity that would come with the rise of Trump.

Sheahan also told me that, at the time he left Patagonia, more than 50 percent of the revenue came from direct-to-­consumer business via Patagonia’s stores and e-­commerce. He suspects that the percentage is bigger today. (The company wouldn’t confirm or deny this.) Selling directly to a consumer, rather than through a third-party retailer like Backcountry.com or REI, ­increases both revenue and influence. According to Joe Flannery, a veteran outdoor-industry marketer and senior VP of technical apparel for Newell Brands, which owns Marmot and Coleman, Patagonia’s direct-to-consumer sales “represents one of the most powerful mechanisms of any brand. When you have that direct interaction, that means the consumer is digesting what you’re saying.”

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Helping My Son Choose Between the Cub Scouts and His Beliefs about God

Photo by Mary Altaffer/AP

Kate Abbott | Longreads | July 2017 | 11 minutes (2,730 words)

 

My 8-year-old son Henry believes in Santa but not in God. I frequently question when to break the news about Santa, but I’ve never worried about his religious beliefs, or lack of them. He is so young; surely existential questions can wait. At least that’s what I thought before the Cub Scouts required him to choose between his own beliefs and a desire to go camping with newfound friends.

Friends are a problem in his life right now. Henry has had to jump from school to school in his short scholastic career, and since we’ve moved to a new town, he’s had trouble making new pals. My friend is a Girl Scout leader, and her daughters enjoy Girl Scouts, so after a particularly lonely day for my kid, I thought, why not try Cub Scouts, the Boy Scouts for younger kids? I imagined boys in uniforms with caps and kerchiefs, huddled around a campfire after a day of hiking and learning to tie knots. I had visions of Scouts helping an old lady cross the street. I thought of Henry learning the names of plants and constellations and, most importantly, the names of other boys in the pack. I emailed the nearest den leader right away.

Convincing my shy, reluctant joiner to go to a den meeting exhausted me, but when we finally got there he played with the other boys during free time near the end of the meeting, which was more playtime than he’d spent with any kids recently at all. He ran into the living room where I had been talking with the den leader and his wife, all smiles and out of breath. “We’d love to join,” I said.

We were all in: we drove 40 minutes to the closest “Scout store” and the adult Scout employee picked out all of the required bits of clothing and ornaments, down to official Cub Scout socks. I didn’t even blink when the register totaled $148.66. I handed over my credit card and told Henry he was going to have so much fun. He even seemed to think so. His enthusiasm increased and I didn’t flinch when I met with the pack leader later in the week to officially register him. I signed off on the forms freely, not reading them carefully enough, and gladly wrote a check for $100 (the fee for registration and a pack t-shirt). As I saw it, I was paying for more than stuff; I was paying for instant companionship and camaraderie.

At the next meeting, Henry balked at wearing the uniform, but I reminded him that Grandma had spent four hours sewing on all his starter patches and all the other boys would be wearing it too. He deemed the uniform “hideous” but put it on. He really wanted to try because he knew I wanted him to try.

We joined Scouts midyear, so we started off already “behind” what the other kids in the den had done and we would need to work at home to “catch up” on requirements before April. (Feeling slightly contrary already, I asked “Or what?” but I didn’t really get an answer.) Still, we had committed, so we taught ourselves how to tie a square knot by watching YouTube and I signed off as we sped through the basic requirements in the official Cub Scout handbook (spiral-bound edition, because it was far superior to the paperback edition, the guy at the Scout store had assured me). We were going to do this right, down to the spiral-edition book.

Henry has had to jump from school to school in his short scholastic career, and since we’ve moved to a new town, he’s had trouble making new pals.

When we got to the next requirement on the list, though, I had to pause. This one was called “Duty to God” and consisted of several parts. We would have to complete part 1 and choose some of the options from part 2.

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