Search Results for: health

Blowin’ Up the ‘90s

Mark Terrill, Associated Press / Photo illustration by Katie Kosma

Rebecca Schuman | Longreads | December 2018 | 11 minutes (2,795 words)

The ’90s Are Old is a Longreads series by Rebecca Schuman, wherein she unpacks the cultural legacy of a decade that refuses to age gracefully.

* * *

The 1990s did not end on January 1, 2000. The monumental anti-climax of Y2K — a computer “bug” that was supposed to screech our Earth to a Scooby-Doo foot-cloud halt, but instead did bupkis — was a truly apt expression of the preceding decade. But even discounting Y2K, I’ve got some serious issues with the alleged “turn of the actual millennium” as the endpoint of the most intentionally underwhelming decade of the 20th century. And not just because 2000 (zero-zero) is so obvious and overplayed — though there is, of course, that.

The actual termination point of the ‘90s required an attitudinal shift that would decentralize the role of Generation X as the admittedly-petulant target of all culture and advertising — the thawing of the winter of the bong-ripping couch-slacker’s discontent; the disappearance of gin and juice from house-party bars; the centering of the hot tub on The Real World; the sobering realization that both men and women were from Earth and just sucked; the demise, for that matter, of Suck itself.

In point of incontrovertible fact, the 1990s would not end in the United States until the aughts’ resurgence of aggressive consumerism and even more aggressive vacuity came to dominate all aspects of sociopolitical and popular culture. So the only question is: When was that? There are more potential answers than squiggles on a Fido Dido sweatshirt.

Was it in 2001, when the original Fast and the Furious premiered? 1996, when Blur released that WOO-hoo song? Was it 2010 — you heard me, two thousand and ten — when enough grandparents had shuffled off the mortal coil to make the primary avenue of written news consumption digital rather than paper?

I have spent an unnecessarily and perhaps questionably extensive amount of time researching in this subfield, and I present my findings to you now in a perplexing new format (I believe it is called a “list-cicle”?) that is apparently the only thing young people are able to read.

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The Need for Distance: Jaclyn Gilbert on Writing and Running

Mikolette / Getty

Jacqueline Alnes | Longreads | December 2018 | 11 minutes (2,773 words)

Early in the morning, the light soft and warm and the air cool after yesterday’s thunderstorms, Jaclyn Gilbert runs a new route. From Grand Army Plaza she makes her way toward the Green Wood cemetery, hugging it through the second mile. Around the fifth mile, she passes over a parkway through a cylindrical barbed-wire tunnel, peering down at cars whirring by on their morning commutes, before continuing down Tenth Avenue back toward the park, finishing at Grand Army for a clean seven miles.

“New routes are always my favorite for the maps they form inside me: a series of sense impressions that filter through my memory as the day passes on. When I sit down to write again, these impressions reappear as remnants of light, color, or feeling, making their way into the imaginings of my characters,” Gilbert writes to me in an email. Though we live half the country apart — she in New York, I in Oklahoma — I feel a connection to her. Both of us are former Division I athletes turned writers. And both of us still run, frequently testing our limits; our writing processes are informed by our fastidious need for distance. Read more…

Who Even Watches the Victoria’s Secret Fashion Show Anymore?

Evan Agostini / Invision / AP, Jens Kreuter / Unsplash, Photo illustration by Katie Kosma

Soraya Roberts | Longreads | November 2018 | 9 minutes 2,184 words)

The most popular Victoria’s Secret Fashion Show picture on Instagram last year was of Bella Hadid. I burst out laughing when I saw it. It reminded me of that stereotypical image of the old-school flasher — beige trench, black trilby — ripping his coat open to reveal his anxious dick. Of course, Bella Hadid does not have a dick, but she’s posing like she does. The 5 foot 9 inch angel (if not capital-A Angel) stands legs akimbo in a room full of people minding their own business, splaying her petal pink robe to reveal hips jutting out of high-riding briefs and boobs pushed up so far they’re practically floating above her head. Read more…

‘Emerging’ as a Writer — After 40

Getty / Heidi Sandstrom, Unsplash / iStock

Jenny Bhatt | Longreads | November 2018 | 20 minutes (4,950 words)

I. Separation Rites (Phase 1)

“All my life I have lived and behaved very much like [the] sandpiper — just running down the edges of different countries and continents, ‘looking for something’, having spent most of my life timorously seeking for subsistence along the coastlines of the world.”

— Elizabeth Bishop; Words in Air

In early 2012, I was at a dinner with my work team in Silicon Valley. It was an unusually warm late-winter evening in shimmering downtown San Francisco as we settled around our large center table in a popular and packed Italian restaurant. We’d had a long few days at an off-site conference working through some complex issues related to a newly announced business transformation program. Amidst the clinking of dinnerware and happy chatter all around us, the much-needed glasses of wine helped ease us into lighter non-work banter. Someone — it might even have been me — started a conversation asking everyone what they would do work-wise if they had the absolute freedom of choice. That is, if money, time, talent, and skill were no object, what would they rather be doing instead?

Slowly, shyly, each one of these people, with whom I worked daily, opened up about their deeper joys: gourmet cooking; ice-cream making; theatrical singing/performing; organic farming; fashion blogging, etc. The animated faces, wistful voices, resigned smiles, and gentle shrugs — their entire range of honest emotions will stay with me forever. It was one of those sudden time-stood-still moments and, within it, we had stumbled unexpectedly onto a crucial personal connection: the universal human desire for deeper meaning and purpose in our lives.

That evening also helped me make up my wavering mind. Before the end of the month, I would hand in my notice. On the day I left, I wanted to turn around, like Jerry Maguire in that famous office-leaving scene, and say to those same team members: “Who’s coming with me?” (I did no such thing because my reasons for leaving the new job after only three months also involved a few more complicated variables beyond a need to start over.)

So, after nearly two decades of working across corporations in Europe and the US, I began my middlescence as a 40-year-old free agent. It helped that I had already sold my home in anticipation of purchasing one closer to the new job, and did not have any financial debt for the first time in nearly two decades. Also, I had some savings, a small cushion meant to get me through what I had thought and hoped would be a brief transition period into the next phase. And my relationship status was: single.

What I wanted was to write full-time. Or, rather, I wanted writing to be my main mode of being in and engaging with the world. But I hadn’t simply awakened one morning and decided this. Up until that point, I had been writing part-time for some-30 years, snatching what time I could during weekends and vacation. I had accumulated a modest publication history: a national award for a short story at age 10; a short story and a poem in a children’s print magazine at age 14; two short stories and five literary essays in an online magazine by age 29; an essay in a print anthology at age 30. From my mid-20s to my mid-30s, I had also worked on my craft through several writing courses and workshops at a couple of well-known Midwestern universities and one semester at a low-residency MFA before assorted factors led to my dropping out.

The life of a first-generation naturalized immigrant, though, is typically held hostage to their citizenship status. I was 38 when I finally received my citizenship after multiple hurdles along the way. Until then, as much as I fantasized about a literary career, I needed to earn a steady living. And I could not afford to be anything less than a model employee — hardworking, ready to take on any position or project, and near-indispensable — to stay safe from the periodic house-cleaning layoffs so loved by corporate America, which could put my immigration status in jeopardy.

Not a single one of those writing milestones, then, had occurred along a straight, smooth trajectory. For each one accomplished, there were several others missed. Most were hard-won while progressing up unsteady career ladders within the engineering, marketing, and management consulting fields. Many were interrupted while wending my way through three continents, six countries, five US states, six companies, twenty homes, and two long-term relationships. All along, there have been heavy personal tolls for persisting as a slave to two masters: the paying career and what I called my “writing hobby.” And there have been the usual lifelong roadblocks that other women from similar backgrounds will recognize: a socio-cultural conditioning rooted in a patriarchal upbringing in India; the ongoing discrimination faced as a woman of color working in white-male-dominated industries; the drawn-out process of securing citizenship of a country where I felt most at home; the never-faltering aim of wanting to be financially and emotionally independent with “a room of my own.”

I had accepted all of the above as necessary rites for frequently crossing borders both physical and metaphorical. Navigating my paths across as a minority, I had become an expert at code-switching and coping with the daily micro-inequities. In America, I had learned to perch smartly on the hyphen of my Indian-American identity, ready to hop to one side or the other, depending on who I was with or what I was doing.

Till, as a single and childless 40-year-old woman of color, I found myself slipping unwarned down a steep slope toward the verge of disappearance. In workplace, family, and friend gatherings, I was deferring more frequently to the younger, or the coupled, or the oldest. My lone voice carried the least weight at any given time. Beyond a loss of vote and visibility, it felt like an erosion of my self.

This midlife pivot was about more than making time to write. It was also my biggest mustering of courage to reclaim and re-assert my place in the world.

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The Organ Transplant Story You Don’t Hear

Getty / Photo illustration by Katie Kosma

Katya Cengel | Longreads | November 2018 | 14 minutes (3,847 words)

 

His arms are covered with the sticky gunk left after bandages come off. There is a blue bruise on the inside of his right forearm. A long plastic tube enters a hole near his belly button. When it’s not in use, James “Bo” Calvert tucks the tube that he uses for dialysis into a spandex “bra” that circles his chest.

Calvert has stage 4 kidney disease, which means his kidney function is only 15 to 30 percent. There are six stages of chronic kidney disease — stage 4 is the last stage before end-stage renal disease (ESRD), when the kidneys cannot filter waste and excess fluid from the blood. At this point, you need a transplant or dialysis to stay alive.

Calvert has had both.

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Double, Double, Toil and Trouble: A Reading List About Witches

The Witches Sabbath, by Frans Francken II, 1607.

Sara Benincasa is a quadruple threat: she writes, she acts, she’s funny, and she has truly exceptional hair. She also reads, a lot, and joins us to share some of her favorite stories (and some of her friends’ favorites, too). 

What is a witch, anyway? Is it an old woman with green skin stirring a pot of something weird and stinky in an animated fairy tale? Is it a man who lives in the wilderness in isolation and emerges only to perform specific rituals to bring the rains? Is it a hippie chick in Berkeley in flowing fabrics appropriating cultural totems and symbols in order to get a desperate wealthy tech couple fertile and baby-ready? Based on my research, the answers seem to be “sure,” “yes,” and “I mean, I guess so.”

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Looking Inside My Heart

Illustration by Brittany Molineux

Jen Hyde | Longreads | November 2018 | 22 minutes (6,055 words)

 

The women sit on stools behind four glass partitions in rows of 50, their eyes pressed into the cold eyepieces of their microscopes, sewing bovine pericardium tissue to surgical steel with loops of polyester thread. I’m entranced by the rhythm of these women at work, the fluorescent lights that hang over their heads, and the blue hairnets that match their uniform scrubs. I tell myself, They are real, their labor is real. I feel like I’m looking into a glass vitrine and I must stop myself from mistaking this room for a dream. Each stitch is so small I cannot see their handiwork with my bare eye when later I hold a sample in my hand. This is where they make bioprosthetic heart valves, the very device sewn into my own heart.

The facility, Edwards Lifesciences, in Irvine, California, is 20 miles from my childhood home. I was born with a heart murmur at Anaheim Memorial Medical Center on a late July afternoon in 1985. Shortly after, I was sent by ambulance to Martin Luther King Jr. Hospital, where I was diagnosed with Tetralogy of Fallot, a rare condition involving four heart defects. After two weeks in the NICU, the pediatric cardiology team recommended an open-heart surgery to correct leaky pulmonary and tricuspid valves and to close one of the two holes at the bottom of my heart. The murmur and the other hole, they told my parents, would likely always remain.

When I was 25 and visiting my parents for Christmas, I was diagnosed with pulmonary hypertension. The cardiologist told me that the left side of my heart had dilated and that I needed to seek further medical help. I was a graduate student living in New York City, six months shy of heart failure.

This is where they make bioprosthetic heart valves, the very device sewn into my own heart.

In a corner office that overlooked Brooklyn and the East River, a heart surgeon recommended an open-heart operation to repair my pulmonary heart valve using a bioprosthetic bovine valve. Typically, the bovine valve is used in older patients, my surgeon explained. Made of the pericardium tissue of a cow, the valve will calcify over time. Unlike the mechanical valve, the bovine valve doesn’t require medication. Your quality of life will only get better. A few months after our meeting, I underwent my second open-heart operation, then went about my life in New York in what felt like the same body I’d had before the surgery. My bovine heart valve was invisible to me. I paid $3,000 for the surgery with money I’d earned babysitting and as an office assistant at an architectural studio, and with significant help from my parents. My dad’s insurance, thankfully, covered the rest.

***

The Edwards Lifesciences Irvine campus sits off Red Hill Avenue, largely indistinguishable from the dozens of other office parks on both sides of the street for miles in either direction. The interior of the Edwards campus is sun-filled and temperate. Sarah Huoh, the director for global communications, meets me at the front entrance. Her blonde curls and blue eyes surprise me. Her demeanor is bubbly and warm. As she leads me through the campus, we pass employees in business casual and employees in scrubs. Framed artwork made by employees and patients alike line the walls of the offices. A reminder of where the valves go when they leave the manufacturing room, Sarah tells me.

I was a graduate student living in New York City, six months shy of heart failure.

To get to the production building, Sarah takes me through the center of the campus, through a courtyard where the sound of cars along Red Hill Avenue is hardly audible — a hush among the rustle of the flora and the birds flying from plant to plant. The courtyard is trimmed with succulents and birds of paradise.


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Inside, Sarah tells me that here the valves are sterilized and serialized. Only after they pass many safety inspections are they transported, under federal regulations, to hospitals throughout the United States and internationally. Most of the assemblers are women, Sarah explains. Many of them have prior experience as seamstresses, but that experience isn’t a requirement to work here. I try not to observe them through the glass, but I stare. I stare at the symmetry of their rows of workstations, their identical white lab coats, the rhythm of their elbows moving up and down with each stitch they make as they peer into their microscopes. I’m fascinated by how deeply their handiwork is sewn into my own life. My mother sewed in Indonesia, I tell Sarah. She emigrated here in the early ’80s.

Many of our assemblers are immigrants, Sarah tells me. This can be a great job for someone who doesn’t always work in English, and many of our employees tend to stay with us for a long time. Some have been here for twenty years. They like to cook for one another, and they really take care of each other.

I’m fascinated by how deeply their handiwork is sewn into my own life.

I sense how proud she is of who Edwards employs, and the pride bubbles within me too, because everything about the medical device inside me is reflective of the kind of American I am — a biracial daughter of an immigrant mother and second-generation-American father. We are a single-income, thoroughly middle class family. My first surgery was paid for with help from state grants for children’s health. We lived in a ’60s “starter” tract home in a subdivision off Imperial Highway in La Habra. My home was multicultural and multilingual largely because my bedridden Indonesian grandmother and her Latinx and Indonesian caretakers also lived with us. I built my own identity on binaries: In high school I was the only half Chinese Indonesian student. I wasn’t Asian enough to hang with the other Asian American girls. My best friends were white, and I coveted everything about their home lives and their ability to mix and match fashionable weekend outfits from Target, Nordstrom, and Delia’s. Even though we shared everything from AP English notes to six packs of Smirnoff Ice, I never felt entirely at ease in the world we inhabited as young women. Only now, moments before Sarah will introduce me to the women who sewed my valve, do I feel at ease in Irvine. I hadn’t expected my valve and this place to hold such hybridity within it.

Sarah points to a few assemblers at one end of the facility. In this area technicians clean the pericardium tissue, she explains. After it’s washed, they’ll spread the tissue on a flat surface and take something that looks like a cookie cutter and cut out the leaflets. The leaflets are then sewn onto a structure made of steel that comes from a factory in Switzerland with polyester thread that comes from France.

Only now, moments before Sarah will introduce me to the women who sewed my valve, do I feel at ease in Irvine.

Because I’ve never seen my own bioprosthetic heart valve, I couldn’t imagine its global origins or the human hands that had put it together until I peered into this room.

I watch each woman move like the blood in my body, pulsing through with desire, shame, regret, and longing. Every inch of their bodies are covered in medical garments. Sarah instructs me to put on a pair of latex gloves, then places a sample of my own valve in my hand. I hold it to my eye to study the stitches, but I have trouble seeing a single one. I can’t feel the textures of the valve with my gloved hands; it looks machine made.

Even as I hold it now and observe the women at work on the other side of the glass, it seems like a work of fiction that the valve inside my body had been assembled by them. And yet, as I hold the valve for the first time, despite my disbelief in the very existence of this room, I feel a deep gratitude for these women and their labor. That the object now inside me had been made here, had brought me here to Irvine made me wonder what else I couldn’t see about my own life.

Sarah guides me through a door at the far end of the room. Here, four women from the assembly line have come to meet me. In the changing room they store their bouffant caps, masks, and gloves and emerge in jeans. They look just like my own mother; Asian and Latina women in their early 40s to late 60s. I wonder, had my mom been formally educated, would she have sought out assembly work here?

I watch each woman move like the blood in my body, pulsing through with desire, shame, regret, and longing.

Sarah turns to one of the women: Angie, I think this is your first time meeting a patient.

It is! Angie says, I cannot believe it! She could be in her early 40s. There’s a reddish tint to her hair and a bit of green in her eyes. They are hazel, like mine, and I wonder if she’s also made this silent observation about how alike we appear to be. I lean in for a hug, but Angie does not lean in as far. When we pull away, I nod to the others. It is rare for sewers to meet their patients, Sarah explains. It’s rare for patients to reach out to us.

I’m holding a gift, a bunch of Fino lemons from a tree in my parents’ yard. This morning, my mom helped me nest them in a basket; I added a jar of local Inland Empire honey and herbal tea. My mom gathered a handful of lavender from the backyard to give the basket some color.

Sarah tells me that you like to cook for one another, I say.

The room smells like latex and iodoform. We stand in a semicircle, surrounded by the valve prototypes. The women’s faces are backlit by the lights hanging above their assembly room workstations. I explain the contents of the basket slowly so as to draw out this moment for all of us to process together, unsure of whether my gratitude for their work was accompanied by relief, bewilderment, or both. Where will this conversation go? I wonder.

Angie asks me, Are you from here? I know the hard edges of her consonants. For my mom, a th is a t. When a hearth is a heart or heard.

Originally, I say. And you?

We are from Vietnam, Angie explains, pointing to Mary and Pham. I’m from Mexico, another woman chimes in. She’s petite and doe-eyed, in her mid-40s, I think, and I see both exhaustion and peace in her eyes. I’m Fabi, she says, extending her hand to me.

Pham and Fabi are the managers of your team, Sarah explains. Pham offers her hand to shake mine. I’m so glad you are healthy, she tells me. I shake Pham’s hand and apologize to everyone for my dry, chapped fingers. I tell the women that they are the reason I’m so healthy, and that I’m just beside myself and don’t know what else to say because I don’t. There is no place to sit. I’d love for us to sink our bodies into a curved surface. I sense that none of us wants our exchange to be so formal, but in the moment, with limited resources, I blurt, My mom is from Indonesia, and she sews, too!

Angie says, Oh so you are Asian, too!

Yep, I say. I wonder if she feels bewilderment or relief or annoyance by the connection I’m bringing forth, because it makes the most obvious thing about her appear to be our only commonality.

I hand the basket to Mary, the oldest woman in the group. I do this out of respect for her age, and also because she’s smiling. I sense she may not have comprehended the entirety of my story about the origins of these lemons, that — like with my own mother — the tactility of the gift may say more than what I’ve said in words. Mary smiles and her eyes brighten. The other women peer into the basket. I look again at Angie. Fabi brushes her hand over the lemons. Her fingers move gently across the rinds. Your hands are so delicate, I tell her. Fabi smiles and stretches her hand out in front of us as though she’s admiring a fresh manicure.

I wonder if she feels bewilderment or relief or annoyance by the connection I’m bringing forth, because it makes the most obvious thing about her appear to be our only commonality.

Delicate hands are necessary for all of the small stitches that go into the valves, Sarah adds. Everyone laughs, and Mary stretches her hand out. We all have a look. They’re so youthful! I tell Mary. She blushes.

We dip our heads into the basket to take in the scent of the lemons and lavender, and I make an effort to maintain focus on these women, our semicircle, their hands. I had come with the intention of understanding the nature of the valve inside me more fully, but that fullness has taken on a different form. I knew my heart valve was a foreign object, and I had imagined it was made by foreign hands. But these women were not foreign to me. They look like my mom. They perform life-saving labor, and I wonder about the possibility of our shared experiences of living here in Orange County.

Our meeting is exceptional, Sarah tells me, because they have just finished their workday. Have I prolonged their labor now by obliging them to stay and speak with me? I hope we can meet again, I say as we say goodbye.

I knew my heart valve was a foreign object, and I had imagined it was made by foreign hands. But these women were not foreign to me.

***

My mother emigrated to California in the early ’80s. A Chinese Indonesian woman from Sumatra, she is the adopted daughter of an affluent Peranakan family. Her mother had a hair salon on Jalan Sutomo Road in Medan, a city in central Sumatra, and her family also owned and operated a sewing school just above the salon.

My mother’s two older sisters were educated as a medical doctor and pharmacist, but my mom was never sent to school. Instead, her adoptive mother trained her as a hairstylist and an embroidery teacher. She began working in the salon at 10 years old. When her sisters moved to Jakarta, my mother worked in the salon until her mother closed it and moved them to Jakarta, too. There, she received an invitation from her cousins to come visit the United States. My mom tells me that her sisters paid for her plane ticket to the States and that as she packed her bags for a six-month trip to California, she sensed she wouldn’t return to Indonesia. Her sisters took care of her financially until a year later when she married my dad. Two years after that, I was born.

Until I moved to New York, my parents and I lived in La Habra, a city on the border of Los Angeles and Orange County, whose motto is “A Caring Community.” Our neighbors were Bolivian, Japanese, Chinese, and white. My parents purchased our home in 1990, but they never updated the orange and yellow Moroccan-inspired ’70s linoleum in the kitchen or the orange and avocado carpets in our bedrooms. Apart from a large bamboo-and-glass dining table that my dad surprised my mom with for their anniversary one year, much of the furniture in our house was second-hand — cast-offs from other family members when they updated their homes. Whenever a new-to-us piece of furniture came inside, the item that it replaced was given a new spot in the house: An entertainment stand became a table in the entryway; a display cabinet in the family room became a storage unit for wrapping paper in my closet.

The prized feature of our home was the 27 rose bushes that lined our front and back yards. My mom had grown more than half of them herself with clippings she collected from our neighbors and the gardeners at Our Lady of Guadalupe, where I attended grade school. My mother learned Spanish from the women who cared for my grandmother and practiced it at every opportunity: buying fruits and meats at the Northgate Supermarket, with the owner of King’s Taqueria where we stopped for carne asada tacos, with our Bolivian neighbors.

I learned other languages by watching my mom use the vocabulary she knew to initiate conversations and to use the conversation to acquire new words, new relationships to words, and to the people who helped her find them. I peppered the language in my head with the little Bahasa phrases that enter the English I use when my mom and I speak to each other. It is my first language and her third. Adoo — can you believe it? I’ll begin.

Relationships, I was taught, are more important than the environments that surround them. If I went over to a friend’s for dinner, my mom would send me with cuttings from her garden that she placed in water bottles wrapped in colorful tissue paper — nosegays from one mother to another. As I gave the nosegay to my friend’s mom, I questioned the utility of the reassigned furniture in my house. I wondered why our dishwasher was only ever used as storage for the plastic water bottles she collected to gift her roses and if I would ever meet another person whose house resembled mine.

***

In the Edwards parking lot, I pull my phone out to queue up directions back to my parents’ house. I have seven missed calls from my mom and a text message: I’m going to Super King to get spinach and bananas. Can you pick me up?

Super King is an international discount grocery store one dial-a-ride phone call away from my parents’ new house. When my dad is at work, my mom calls this chauffeur service for senior citizens to bring her to the market for a 50-cent fee. The size of a soccer field, Super King stocks foods from a variety of cultures, and my mom goes at least once a week to practice her Spanish and to stock up on Chinese eggplant, lacinato kale, sliced jackfruit, marinated chicken thighs, handmade flour tortillas, and anything else in season and on sale.

Inside, the air bites the back of my neck. I hadn’t dressed for the arctic temperature of warehouse food preservation. I start my search in the produce section, but I cannot find her sphere of black hair or her shopping cart, full of this week’s specials. I begin a lap around the store and find her asking the butcher to slice the beef thinner. Are you almost done? I ask. I’ve been driving for an hour.

Thirty minutes later, she’s assembling a jigsaw puzzle: each of her fifteen plastic bags belongs to a specific spot in the trunk. Double-bagged steak can cradle a carton of eggs, but an Italian eggplant? Never. An Italian eggplant, like a watermelon, is a corner piece so that its weight will only roll onto the edge of the trunk, which sits lower than the farther edges that abut the backseat of my Chevy Prizm. We are only going a few miles, I say. Assisting her would be futile. We measure time differently.

In the Super King parking lot, I’m pained by the love that governs her labor and assembly and adheres to a family food budget, and I say, Adoo, nothing is going to get ruined in the trunk! She’s protective of her little collection of perfect ingredients. She’ll use them to create the dishes she tells me are my favorite: pandan spicy eggplant, wine beef, and sautéed kale. But I’ve never craved those dishes. The need for them was another feeling entirely.

I’d only spent 10 minutes with Angie, Mary, Fabi, and Pham, and already I long to know them more deeply. I also know I must long with caution, that wanting time is different than creating it. I watch my mom shift her bag of onions for the third time and think, If I could just throw all of this in the trunk, drive home, and — open sesame — the potatoes and cantaloupe didn’t knock into your mint and rosemary, would I create a future of efficient grocery shopping or destroy it?

***

When I was 2 years old, two holes in my heart were repaired in my open-heart operation. In these surgeries doctors treat your bones as elastic bands, bending your ribs and sternum to reach the arteries they will mend. You are awake before and after your surgery, but it is difficult to remember exactly what happened; you are put on a bypass machine that pumps your heart for you, pushing oxygen to your brain in quantities that can cause permanent forgetting.

Sometimes I want to use a word but only see a deep enclosure when I close my eyes, and I wait there until the word reveals my past world.

The first time I envisioned the playroom in the hospital, I saw a large bear dressed as a clown, white bookshelves, and a wheelbarrow. I focused on the the bear for a few minutes, trying to see his face, but instead I saw my mom holding out a spoonful of steamed spinach that she scooped from the Tupperware she still uses today.

***

In the assembly room at Edwards, Sarah told me that the the pericardium heart sac — the tissue used in my heart valve — can be traced back to the group of cows it belonged to. The closest I’ve come to knowing mine is learning that my valve is made of tissue from two cows: one from California and another from Minnesota.

Pericardium is a membrane that keeps the heart safe — as the ancient physician and philosopher Galen called it, perikardion, around the heart. The membrane encloses the muscle and roots of the heart’s four valves, both in the human and the cow. Our own pericardium protects us from the shock of a sudden movement, such as tripping or falling. A viral infection or a heart attack could damage it. So can external violences.

The bovine tissue was considered material waste before the biotech industry found a use for it in the human body. Now each day, some workers in the slaughterhouse slip a cow’s heart out of its sac and spread it on a table. Here, they separate the membrane from fatty tissue and prepare it for cold ship to Irvine. When it arrives, the assemblers who are not sewing receive and wash it until the tissue is neither bovine or human but pieces patterned on the table for the next step in assembly.

In order to sell a medical supply, a farm must adhere to medical safety regulations: The cow must be carefully fed and exercised. A farmer must know its origins. A cow in natural conditions can live upwards of 15 years. For a valve, it is slaughtered at or before 24 months.

In a 2014 paper published in Proceedings of the National Academy of Sciences, researchers from Bard College, Yale University, and the Weizmann Institute of Science estimated that cattle use 28 times more land, six times more fertilizer, and 11 times more water than other livestock. Their collective secretions produce more methane than gas or oil production. Before the development of bovine valves, pericardium tissue was another waste in the process of harvesting beef. Now it is another form of income.

I try to make contact with the suppliers of my bovine tissue, but Sarah tells me they often prefer to keep quiet. I don’t persist. Instead, I watch a video that Sarah sends me. It is an Australian news segment on the use of tissue from cow hearts to treat heart conditions, in which an Australian cardiologist praises the technology inside me, saying, It was as if the sky had cleared.

Later in the video two slaughterhouse workers pull a cow’s heart out of its sac like a hospital birth. One holds the muscle’s weight, the other lifts it toward the ceiling like a chalice. They work expertly in a metal room sectioned off from the cow carcasses that hang in rows. Cool pink skin stretched over an animal’s rib cage, a sternum excavated, the organs beneath it mostly gone to waste.

***

My mom doesn’t know her biological parents. She’s never mentioned a curiosity about her origins, only that she was told that her biological mother died giving birth to her and her father grew sick shortly after. He brought her to her adoptive mother, asking that she raise my mom and teach her a trade. She knows she was born in 1949, in Medan, and that as a child she chose September 20th as her birthday. She chose the name Katherine for herself in the mid-’60s when the Indonesian government forbid Chinese Indonesians to keep their given names. Only her sisters and my cousins still call her Kim-Tju. I didn’t know why she could not easily ask questions about her birth parents like I did — Don’t you want to know? I pressed. Giving birth is a painful experience, she once told me, but raising a child causes a lifetime of pain.

Once, my mom told me that when she was 12 and had learned to sew dresses, she left the salon one afternoon to buy fabric for a new outfit she had designed herself. But when she came home, the Javanese nanny that lived with her family advised her to hide what she’d bought. It would enrage her mother. Her mother scolded her for not asking permission. She never described the color, the weight, or the print, as though giving it language would bring on the pain of being a child, or of being adopted. I cannot equate the pain of her childhood to anything I felt in mine. I cannot imagine spoon-feeding a woman who once told you that you had the face of a horse, but I watched my mom do this for my grandmother after she became paralyzed from a stroke in the winter of 1991 and came to live with us.

Unintentionally, my mom passed some of her pain onto me when she prohibited me from shaving my legs or wearing makeup until one day in my junior year of high school when I emerged from the shower with blood running down my shin, having shaved off two inches of my own skin with a rusty disposable Schick razor that I had been using in secret. After that, she helped me explore my personal style. If I wanted to replicate the studded dog collar I saw at Hot Topic, she would show me how to lightly dab the hot glue onto the black faux-leather ribbon I’d bought. For my junior prom, we rode two busses to the Brea Mall to look for a dress. She picked through the price tags on the sale racks and expressed her concerns about finding a supportive 36DD bra to go with the strapless, sweetheart dresses I was drawn to. We ended up walking through the mall’s parking lot to a TJ Maxx in the shopping center across the street where we found not only a prom dress but several pairs of wide-leg cargo jean shorts that I deemed “cool” and she deemed “reasonably priced.” When it was time to head back to the bus stop, I insisted that we walk around the mall rather than through it. It’s quicker to go through Nordstrom, she said.

No, I insisted, it’s faster if we go around it. She wrapped her arms around the large TJ Maxx bag. I’m sweating from this plastic. These clothes are heavy you know, she insisted.

Well then let me carry them, I said, reaching out to take the bag.

No! she barked, turning the bag away from me as though my discount clothing was a swaddled newborn she was guarding from an unfit mother. It’s too heavy for you.

We both knew I’d made us take the long route back to the bus stop. We both knew she insisted on carrying my new clothes because she was afraid that in the heat and with my heart condition something bad might happen.

How do you think this looks? I asked, insisting I was fine and that anyone who happened to see us walking together would think I didn’t care that my five-foot, 90-pound mother was balancing a shopping bag the size of her own body, while I, her able-bodied teenager, towered above her, ambling about completely unencumbered. Who cares what people think, she said. Anything bad could happen to your heart, and then what? You want that?

We both knew she insisted on carrying my new clothes because she was afraid that in the heat and with my heart condition something bad might happen.

I didn’t believe her side of our argument, but then I did not survive the mass killings of ethnic Chinese in the mid-’60s in Indonesia. Her own father was taken for a day and her mother paid for his safe return to their family. Her neighbor was also taken by the Indonesian military for questioning. He also came home, she told me, and the blood from the finger they cut off dripped on the road as he walked to the house.

I still can’t comprehend these stories, but since I visited Edwards and began learning about the different people who’d handled the materials in my heart valve, I return to them again and again. I would love to meet the person who slaughtered my cow and the person who prepared that pericardium tissue, but it seems impossible. I could be sad, or I could see their anonymity as a way to understand how my mom feels about her adoption, and her mother. She is content knowing the family who raised her and kept her alive.

***

Three months after my first visit to Edwards, Sarah invites me to attend their first Patient’s Day. I bring my mom with me because I want to show her where my heart valve was made. We are two of 50 guests — other patients and their caregivers, Edwards employees, and nonprofit partners. The day focuses on ways we can help new patients through advocacy work. I volunteer to assist the American Heart Association with a new support network. I become a Heart Valve Ambassador, a voice from the recovery room and beyond — a survivor — who can assure someone about to undergo open-heart surgery that they are not alone. I sign up because I want to tell these new patients, Right now, another person is making a device that may save your life. I want my mom to meet these women, but because the event is so large our meeting is a brief blur. In front of the vitrines that look into the manufacturing room, among a few other patients also meeting their sewers, Edwards employees and reporters, my mom and I shake hands with Mary, Fabi, and a woman I had not met before, Marta. We only have time to say thank you and hi again. Later, The Orange County Register will run a photo of the two of us waving to my sewers. When I look at the picture, the glass window between us feels thick.

Months later, I’m still thinking about my sewers. I wonder what brought them to the United States, what their families are like, if they really were seamstresses in their previous lives.

I call Sarah to ask if my mom and I can bring food to the women who assembled my heart valve and am surprised and delighted that she loves the idea. I call my mom and ask her if she would like to have lunch at Edwards with the women who made my valve. I would love to, she says happily. It’s really special, you know, to really know who made your heart valve, to see where they work, to meet them.

Can you make lempar ayam, and gado gado and selat pohpia? I ask her.

Adoo! she says. It’s too much work. You can just buy them and say we made them.

But if you make them and I watch, I’ll know how to make them, too, I explain, because I want the lunch to be an opportunity to learn skills she has not passed onto me. To her, domestic labor is right up there with carrying my shopping bags. I only know the tradition of making lempar ayam is an inheritance of the culture I was born into, unlike my heart defect. I want to know how to make this shredded chicken and coconut rice roll because what I know of my maternal lineage ends with my mother, and I believe that her culture, like tradition, can be adopted, like taste, to which one can adapt. Adoo, if that’s what you want, she sighs.

Sarah suggests we come to Edwards in late July after she’s checked the women’s vacation requests to be sure everyone would be on campus. She sends me pictures of a few conference rooms we might have lunch in. I send her the menu and the color scheme for the table setting that I have in mind. In our email exchanges this lunch becomes an event of the season.

***

The night before, I watch my mom shred cabbage and boil melody potatoes to make gado gado. I watch her grind another shallot and thumb of ginger in a mortar with a smooth, palm-size pestle. She pours the peanuts in once she’s made a liquid paste.

I want to know how to make this shredded chicken and coconut rice roll because what I know of my maternal lineage ends with my mother, and I believe that her culture, like tradition, can be adopted, like taste, to which one can adapt.

Around 1 a.m. her pot of water comes to a boil and she reveals another secret: If you can’t get to Chinatown, you can use spaghetti noodles. She flash-fries them with pork and celery using chopsticks to make a menagerie in her serving dish.

I print and bind her recipes into pamphlets to give to everyone tomorrow. When my mom finishes cooking, I open the pantry to find large containers to transport her noodles, lempar, gado gado, and selat pohpia, a Dutch Indonesian canapé of vegetables inside a deep-fried, cup-shaped cracker. Stacks of McDonalds cups and Cool Whip and Knudson cottage cheese tubs fall all over the floor. Why do you keep these when we can afford Gladware, I scream. I’m in her kitchen, not a catalog. I know the reasons, and that I can’t ask her to tell me why every time I open a cabinet.

To save and give everything to your children. To not have ownership over a thing. To discover coupons. To be a registered alien. To be told go back to your country. To ride public transportation. To lose the doll’s clothes you sewed in a flood in your hometown. To never have seen your birth certificate. To know someone else in your family has. To have worked in your family business. To be afraid to interview. To know how you arrived and to be thankful you did not die in your life’s process. I know this like I know we’ve been up for too long, it’s past my bedtime, and I’m upset because I can’t undo my choice to remain awake.

My mom nestles her dishes into a cardboard box while I roll two yards of kelly-green felt across our living room floor and cut out a leaflike pattern to shape a table runner. Tomorrow, we’ll lay the food on top of this runner and serve it on designer paper plates.

Mom, I say, as I twist my left thumb around the pair of right-handed scissors I’m using, tomorrow, it will be helpful if you can make everyone feel comfortable.

Yeah, OK, she says, shifting the dishes around the sheets of folded paper towels she’s tucking into the corners of the box so they fit perfectly. I know, she assures me.

Sarah meets us in the parking lot. She guides us to a sunlit conference room where three square coffee tables have been pushed together around an L-shaped sofa to create a dining room. I unpack my runner and begin setting the table while my mom arranges the layers of gado gado on a glass plate. The women arrive in scrubs, and I’m glad I’d thought to bring kimonos — welcome gifts — to help them feel as pretty as the table we’d set for them. Angie hands me a large double-stem white orchid plant and I place it on the empty side table between the two couches. Pham tells us she can’t stay, so my mom quickly makes a plate of food for her while I help her choose a kimono.

The kimonos, the kelly-green table runner, the gold chargers, the food, the flowers — there’s much to take in, to admire, to start conversation. There’s another woman I did not meet on my first visit to Edwards last year. She introduces herself as Rita, a supervisor on my heart valve team. I’m struck by her radiant olive complexion and how close in age we appear to be. As we settle in on the sofa, I overhear Angie telling my mom that she memorizes her friends’ phone numbers. If you write them in your phone, and you lose your phone, you can’t find anybody, she says.

I’ve heard this before. Do not tell family secrets to anybody, my mom demands. I hate her complacent, immigrant wisdom, but I listen to Angie to see her reasoning.

Angie is an Amerasian. A Vietnamese, biracial American. She tells us that she came to California with her husband and son who drive freight trucks across America.

Fabi asks everyone, If you could go back to one minute in your twenties, what would it be?

My life was very terrible, Angie begins. I am an orphan. I’m so lucky America brings me here. When I come here, I try to work. I try to learn. She tells us that when she first arrived she rode in a taxi. On the freeway it got a flat tire. It sounded like a bomb, she shares. She’s laughing as she thinks back to her reaction. I don’t speak English, she explains. I screamed: I don’t want to die! The taxi driver said calm down. My language he doesn’t understand. He said calm down and I’m so scared.

Rita takes us to an earlier time in her life. At fourteen years old we came to America from Baghdad. We left Iraq in 1993 so I saw the Gulf War, survived the whole thing. When we came here we lived two minutes from Disneyland, and on my first night here I heard the fireworks and and thought we were being attacked again. I ran to my room, underneath my bed, and thought oh my god the Americans came back!

As she shares her story, the music from the Disneyland Electrical Parade plays in my head, and I recall the crowd gathering for the show and how easy it is, when you are young, to feel lost on Main Street when it is dark, and how those fireworks, when you are small and alone are loud, bright, and last an eternity.

Until this day, the fireworks go on every night and everything comes back, Rita continues. You know, Disneyland is supposed to be the happiest place on earth, but I really hate Disneyland.

Mary shares that she is a boat person. In 1980 she left Vietnam with her husband and four children. On a small boat with 139 people. She stopped in Indonesia for a month, then set out for Florida. She and her husband each held two babies on our lap. When I arrived, I couldn’t stand, she says. She came to Edwards in 2001. Everyday I go to work and then I cook and take care of the children, she continues. I want to go to school, but I don’t have time. Two of her children are at UC Irvine and one is at Pomona.

As we continue chatting, Mary grows quiet. I learned English from my children, she says to my mom.

Me too, my mom tells her. Thank you for saving her life, she adds.

We are eating off of compostable Wasara plates designed in Tokyo, placed atop gold craft-paper chargers. Here we are strangers sitting close to one another, drawing ourselves closer. Past their handiwork inside me, and our laughter around us, is a heart’s life expanded that could — at any moment — begin to deteriorate.

When I first came here, Angie tells us, I hate this job. I felt, I can’t do it. Sewing is hard. She tells us that she watched a video about an Edwards patient. Produced by Edwards, such a video would contain a patient’s journey through heart valve disease and would include a personal message of gratitude to employees from patients and sometimes their family members. When I looked at the video, Angie tells us, I looked at the patient and I felt like I must do this job.

Fabi tells me, When I first started to do the visual audit of the valves, to verify that the stitch is in the right place, that the tissue is in good condition, I felt dizzy. I said please God, give me patience — but the inspector who taught me to do the visual audit said Fabi, just take your time.

Nobody, I think, is born with the patience to sew pericardium tissue to a metal frame. I look over at Mary. She is telling my mom, We’re almost the same age. I’m about to be 70! I sew the very small valves now, the ones the size of your little finger. I sew them very slowly.

Rita says, I know that there is a lot of violence going on around the world, that people are hurting and killing each other. We’re in a crisis right now. It might not hit home directly, but it’s important to live your life daily and let the rest just go with the flow.

I think of them holding my heart valve under a microscope, turning it around and around to look for mistakes, for reasons to start over.

For years I have slowly been letting go of the belief that there is a being who makes people hate based on skin color and belief. That violence is unstoppable, or that to resist violence is to be enlightened. That there is a ranking system to kindness.

Toward the end of our lunch, Angie and Fabi begin sharing pictures of their daughters. Fabi’s daughter has just dyed her hair fire-engine red. Her bangs sweep across her left eye. She smiles, confident, in control of her own presence. She loves to play with colors, Fabi tells us, seemingly unenthused.

I think of them holding my heart valve under a microscope, turning it around and around to look for mistakes, for reasons to start over.

I’ve worn my hair down today, so I lift it up and spin around — to my mom’s surprise — to show them my newly shaved undercut. My mom’s not a fan of this either, I tell them. The room swells with more laughter. I look over at my mom and see that she’s placed her hand on Mary’s back. They appear to be moving between the group conversation and their own intimate one, and my heart swells as I look at them, then at the food on the table, at Fabi, Rita, and Angie. Here is the facet of Orange County that I’d hoped to finally see. Here, around this table, among my mom’s foods, I watched my mom care for Mary with the same attention I felt she smothers me with. There was a motherliness to her actions, but I also saw her shaping community with these women, and that I was building myself into this community, too.

Later that afternoon, in the car, my mom tells me she’d barely eaten anything. I hadn’t either. We were too busy listening to everyone’s stories. I have some steak at home, she says. The thought of it and the thought of the lunch we’d just enjoyed are enough to sustain us for the drive home. The two of us are at ease as we slow into rush hour traffic and everyone on the freeway comes to a brief standstill.

***

Jen Hyde is the author of Hua Shi Hua,华诗画 [Drawings & Poems from China], Ahsahta 2017. She is currently at work on Murmur, a 2016 finalist for the Creative Capital Grant in Literature.

Editor: Krista Stevens

Fact checker: Ethan Chiel

Copy editor: Jacob Gross

The Queer Generation Gap

Express Syndication / Invision / Associated Press / Photo illustration by Katie Kosma

Soraya Roberts | Longreads | November 2018 | 10 minutes (2,422 words)

Should I be married to a woman? If today were yesterday, if all this sexual fluidity were in the discourse when I was coming of age in the ‘90s, would I have been with a woman instead of a man? It is a question that “The Bisexual” creator Desiree Akhavan also poses in the second episode of her Hulu series, co-produced with Channel 4 because no U.S. network wanted it. Akhavan directed, co-wrote, and stars in the show in which her character, Leila, splits with her girlfriend of 10 years, Sadie (Maxine Peake), and starts having sex with men for the first time. So, Leila asks, if the opposite had happened to her — as it did to me — and a guy had swept her off her feet instead of a woman, would things have turned out differently? “Maybe I would’ve gone the path of least resistance,” Leila says. Maybe I did.

This is a conundrum that marks a previous generation — one that had to “fight for it,” as Akhavan’s heroine puts it, and is all the more self-conscious for being juxtaposed with the next one, the one populated by the fluid youth of social media idolizing the likes of pansexual Janelle Monáe, polyamorous Ezra Miller, undecided Lucas Hedges. Call it a queer generation gap (what’s one more label?). “I don’t know what it’s like to grow up with the Internet,” 32-year-old Akhavan explains to a younger self-described “queer woman” in her show. “I just get the sense that it’s changing your relationship to gender and to sexuality in a really good way, but in a way I can’t relate to.”

***

This Playboy bunny is chest out, lips open, legs wide. This Playboy bunny is every other Playboy bunny except for the flat hairy chest because this Playboy bunny is Ezra Miller. The star of Fantastic Beasts: The Crimes of Grindelwald calls himself “queer” but it’s hard to take him seriously. What was it Susan Sontag said: it’s not camp if it’s trying to be camp? And for the past few months, while promoting the Potterverse prequel no one asked for, this 26-year-old fashionisto has been trying his damndest, styling himself as a sort of latter day Ziggy Stardust — the monastic Moncler puffer cape, the glittering Givenchy feathers — minus the depth. Six months ago, Miller looked like every other guy on the red carpet and now, per his own request, models bunny ears, fishnets, and heels as a gender-fluid rabbit for a randy Playboy interview. Okay, I guess, but it reads disingenuous to someone who grew up surrounded by closets to see them plundered so flagrantly for publicity. Described as “attracted to men and women,” Miller is nevertheless quoted mostly on the subject of guys, the ones he jerked off and fell in love with. He claims his lack of romantic success has lead him to be a polycule: a “polyamorous molecule” involving multiple “queer beings who understand me as a queer being.”

The article hit two weeks after i-D published a feature in which heartthrob Harry Styles interviewed heartthrob Timothée Chalamet with — despite their supposed reframing of masculinity — the upshot, as always, being female genuflection. “I want to say you can be whatever you want to be,” Chalamet explains, styled as a sensitive greaser for the cover. “There isn’t a specific notion, or jean size, or muscle shirt, or affectation, or eyebrow raise, or dissolution, or drug use that you have to take part in to be masculine.” Styles, on brand, pushes it further. “I think there’s so much masculinity in being vulnerable and allowing yourself to be feminine,” the 24-year-old musician says, “and I’m very comfortable with that.” (Of course you are comfortable, white guy…did I say that out loud?) As part of the boy band One Direction, Styles was marketed as a female fantasy and became a kind of latter-day Mick Jagger, the playboy who gets all the girls. His subsequent refusal to label himself, the rumors about his close relationship with band mate Louis Tomlinson, and the elevation of his song “Medicine” to “bisexual anthem”– “The boys and the girls are in/I mess around with them/And I’m OK with it” — all build on a solid foundation of cis white male heterosexuality.

Timothée Chalamet’s sexuality, meanwhile, flows freely between fiction and fact. While the 22-year-old actor is “straight-identifying,” he acquires a queer veneer by virtue of his signature role as Call Me by Your Name’s Elio, a bisexual teen (or, at least, a boy who has had sex with both women and men). Yet off screen, as Timothée, he embodies a robust heterosexuality. On social media, the thirst for him skews overwhelmingly female, while reports about his romantic partners — Madonna’s daughter, Johnny Depp’s daughter — not only paint him straight but enviably so. Lucas Hedges, another straight-identified actor who plays gay in the conversion therapy drama Boy Erased, somewhat disrupts this narrative, returning fluidity to the ambiguous space it came from. The 21-year-old admitted in an interview with Vulture that he found it difficult to pin himself down, having been “infatuated with” close male friends but more often women. “I recognize myself as existing on that spectrum,” he says. “Not totally straight, but also not gay and not necessarily bisexual.” That he felt “ashamed” for not being binary despite having a sixth-grade health teacher who introduced him to the range of sexuality suggests how married our culture is to it.

As a woman familiar with the shame associated with female sexuality, it’s difficult to ignore the difference in tenor of the response to famous young white males like Miller, Styles, and Chalamet and famous black women like Janelle Monáe and Tessa Thompson not only discussing it, but making even more radical statements. Appearing on the cover of Rolling Stone in May, Monáe said straight up (so to speak): “Being a queer black woman in America — someone who has been in relationships with both men and women — I consider myself to be a free-ass motherfucker.” The same age as Desiree Akhavan, 32, Monáe identified as bisexual until she read about pansexuality. She initially came out through her music; her album, Dirty Computer, contains a song called “Q.U.E.E.N.” which was originally titled “Q.U.E.E.R.,” while the music video accompanying “Pynk” has actress Tessa Thompson emerging from Monáe’s Georgia O’Keeffe-esque pants. While neither one of them has discussed their relationship in detail, Thompson, who in Porter magazine’s July issue revealed she is attracted to men and women, said, “If people want to speculate about what we are, that’s okay.”

The mainstream press and what appeared to be a number of non-queer social media acolytes credited Chalamet and Styles with redefining their gender and trouncing toxic masculinity. “[H]arry styles, ezra miller, and timothee chalamet are going to save the world,” tweeted one woman, while The Guardian dubbed Miller the “hero we need right now.” Monáe, meanwhile, was predominantly championed by queer fans (“can we please talk about how our absolute monarch Janelle Monáe has been telegraphing her truth to the queers thru her art and fashion for YEARS and now this Rolling Stone interview is a delicious cherry on top + a ‘told u so’ to all the h*teros”) and eclipsed by questions about what pansexual actually means. While white male fluidity was held up as heroic, female fluidity, particularly black female fluidity, was somehow unremarkable. Why? Part of the answer was recently, eloquently, provided by “Younger” star Nico Tortorella, who identifies as gender-fluid, bisexual, and polyamorous. “I get to share my story,” he told The Daily Beast. “That’s a privilege that I have because of what I look like, the color of my skin, what I have between my legs, my straight passing-ness, everything.”

***

When I was growing up sex was not fun, it was fraught. Sex was AIDS, disease, death. The Supreme Court of Canada protected sexual orientation under the Charter when I was 15 but I went to school in Alberta, Canada’s version of Texas — my gym teacher was the face of Alberta beef. In my high school, no one was gay even if they were. All gender was binary. Sex was a penis in a vagina. Popular culture was as straight, and even Prince and David Bowie seemed to use their glam sparkle to sleep with more women rather than fewer. Bisexual women on film were murderers (Basic Instinct) or sluts (Chasing Amy) and in the end were united by their desire for “some serious deep dicking.” I saw no bisexual women on television (I didn’t watch “Buffy”) and LGBTQ characters were limited (“My So-Called Life”). Alanis Morissette was considered pop music’s feminist icon, but even she was singing about Dave Coulier. And the female celebrities who seemed to swing both ways — Madonna, Drew Barrymore, Bijou Phillips — were the kind who were already acting out, their sexuality a hallmark of their lack of control.

“I think unrealistic depictions of sex and relationships are harmful,” Akhavan told The New York Times. “I was raised on them and the first time I had sex, I had learned everything from film and television and I was like ‘Oh, this isn’t at all like I saw on the screen.’” Bisexuality has historically been passed over on screen for a more accessible binary depiction of relationships. In her 2013 book The B Word: Bisexuality in Contemporary Film and Television, Maria San Filippo describes what has become known as “bisexual erasure” in pop culture: “Outside of the erotically transgressive realms of art cinema and pornography, screen as well as ‘real life’ bisexuality is effaced not only by what I’ve named compulsory monosexuality but also by compulsory monogamy,” she writes, adding, “the assumption remains that the gender of one’s current object choice indicates one’s sexuality.” So even high-profile films that include leads having sex with both genders — Brokeback Mountain, The Kids Are All Right, Blue Is the Warmest Color, Carol, Call Me By Your Name — are coded “gay” rather than “bi.”

Despite the rise in bisexual women on the small screen like Annalise in “How to Get Away with Murder,” Syd in “Transparent,” and Ilana in “Broad City,” GLAAD’s latest report on inclusion cited continued underrepresentation. While 28 percent of LGBTQ characters on television are bisexual, the majority are women (75 versus 18) and they are often associated with harmful tropes — sex is used to move the plot forward and the characters scan amoral and manipulative. This despite an increase in the U.S.’s queer population to 4.5 percent in 2017 from 3.5 percent in 2012 (when Gallup started tracking it). A notable detail is the extreme generational divide in identification: “The percentage of millennials who identify as LGBT expanded from 7.3% to 8.1% from 2016 to 2017, and is up from 5.8% in 2012,” reported Gallup. “By contrast, the LGBT percentage in Generation X (those born from 1965 to 1979) was up only .2% from 2016 to 2017.”

Here’s the embarrassing part. While I am technically a millennial, I align more with Generation X (that’s not the embarrassing bit). I am attracted more to men, but I am attracted to women as well yet don’t identify as LGBTQ. How best to describe this? I remember a relative being relieved when I acquired my first boyfriend (it was late). “Oh good, I thought you were gay,” they said. I was angry at them for suggesting that being gay was a bad thing, but also relieved that I had dodged a bullet. This isn’t exactly the internalized homophobia that Hannah Gadsby talked about, but it isn’t exactly not. My parents and my brother would have been fine with me being gay. So what’s the problem? The problem is that the standard I grew up with — in the culture, in the world around me — was not homosexuality, it was heterosexuality. I don’t judge non-heterosexual relationships, but having one myself somehow falls short of ideal. For the same reason, I can’t shake the false belief that lesbian sex is less legitimate than gay sex between men. The ideal is penetration. “That’s some Chasing Amy shit,” my boyfriend, eight years younger, said. And, yeah, unfortunately, it is. I have company though.

In a survey released in June, billed as “the most comprehensive of its kind,” Whitman Insight Strategies and BuzzFeed News polled 880 LGBTQ Americans, almost half of whom were between the ages of 18 and 29, and found that the majority, 46 percent, identified as bisexual. While women self-described as bi four times as often as men (79 to 19 percent), the report did not offer a single clear reason for the discrepancy. It did, however, suggest “phallocentrism,” the notion that the penis is the organizing principle for the world, the standard. In other words, sex is a penis in a vagina. “While bisexual women are often stereotyped as sleeping with women for male attention, or just going through a phase en route to permanent heterosexuality,” the report reads, “the opposite is presumed of bisexual men: that they are simply confused or semi-closeted gay men.” This explains why women who come out, like Monáe and Thompson, are considered less iconoclastic in the popular culture than men who even just make vague gestures towards fluidity — the stakes are considered higher for the guys. In truth, few feel comfortable being bi. Though the Pew Research Center’s survey of queer Americans in 2013 revealed that 40 percent of respondents identified as bisexual, this population was less likely to come out and more likely to be with a partner of the opposite sex. Famous women like Maria Bello, Cynthia Nixon, and Kristen Stewart have all come out, yet none of them really use the label.

“Not feeling gay enough, that’s something I felt a lot of guilt over,” Akhavan told the Times. It is guilt like this and the aforementioned shame which makes it all the more frustrating to watch the ease with which the younger generation publicly owns their fluidity. It is doubly hard to watch young white men being praised for wearing bunny ears in a magazine that has so long objectified women, simply because the expectations are so much lower for them. “I’m not looking down on the younger experience of being queer,” Akhavan said, “but I do think that there’s a resentment there that we gloss over.” In response, many of us react conservatively, with the feeling that they haven’t worked for it, that it is somehow less earned because of that. This is an acknowledgment of that resentment, of the eye rolling and the snickering with which we respond to the youth (ah, youth!). In the end we are not judging you for being empowered. We are judging ourselves for not being empowered enough.

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Soraya Roberts is a culture columnist at Longreads.

Who Cares? : On Nags, Martyrs, the Women Who Give Up, and the Men Who Don’t Get It

Getty / Collage by Katie Kosma

Gemma Hartley | an excerpt adapted from Fed Up: Emotional Labor, Women, and the Way Forward | HarperOne | November 2018 | 16 minutes (4,288 words)

 

“Just let me do it,” I told Rob as I watched him struggle to fold our daughter’s fitted sheet shortly after he took over laundry duty. It’s a phrase I’m sure he’s heard from me countless times, and even when I’m not saying it out loud, I’ve often implied it with a single you’re-doing-it-wrong stare. I cannot pretend that I have not played a part in creating such a deep divide in the emotional labor expectations in my home. I want things done a certain way, and any deviation from my way can easily result in me taking over. If the dishwasher is loaded wrong, I take it back on instead of trying to show my husband how to load it. If the laundry isn’t folded correctly, I’ll decide to simply do it myself. On occasion I have found myself venting with friends that it is almost as if our male partners are purposefully doing things wrong so they won’t have to take on more work at home.

While I don’t think this has been the case in my own home, for some women this is a reality. A 2011 survey in the UK found that 30 percent of men deliberately did a poor job on domestic duties so that they wouldn’t be asked to do the job again in the future. They assumed that their frustrated partners would find it easier to do the job themselves than deal with the poor results of their half-hearted handiwork. And they were right. A full 25 percent of the men surveyed said they were no longer asked to help around the house, and 64 percent were only asked to pitch in occasionally (i.e., as a last resort).

Even if men aren’t consciously doing a poor job to get out of housework, their lackluster “help” still frustrates. A similar survey conducted by Sainsbury’s in the UK found that women spent a whole three hours per week, on average, redoing chores they had delegated to their partners. The list where men fell short left little ground uncovered: doing the dishes, making the bed, doing the laundry, vacuuming the floors, arranging couch cushions, and wiping down counters were all areas of complaint. Two-thirds of the women polled felt convinced that this was their partner’s best effort, so perhaps it’s not surprising that more than half didn’t bother “nagging” them to do better. They simply followed their partners around and cleaned up after them. Read more…

But Who Gets Custody of the Dog?

Image by ninjatacoshell via Wikimedia Commons (CC BY-SA 2.0)

America is an uneasy amalgam of people with very different ideas of what government — and life — should look like. So what if we codified the political and cultural divisions that already exist? Secession is one option, but almost no one actually wants that. The U.S. Constitution provides another mechanism that would allow a constructive split while still maintaining a federal government: interstate compacts.

In New York Magazine, Sasha Issenberg walks us through what that version of the U.S. might look like. Some of it’s great. Some of it’s not. All of it’s fascinating.

It was not just manufacturing and resource extraction that boomed in the Red Fed. As soon as the Blue Fed established its single-payer system, medical specialists began taking their practices to states where they wouldn’t be subject to the Regional Health Service’s price controls or rationing. Sloan Kettering now treats New York as little more than an administrative base; the majority of its hospital rooms are in Texas. Johns Hopkins considered closing its medical school when nearly half the faculty decamped en masse to Baylor. Wealthy Blue Fed residents willing to pay out of pocket now invariably travel to Houston when they want an immediate appointment with a specialist of their choice. The arrivals area at the George Bush Intercontinental Airport is packed with chauffeurs from van services run by clinics supported by specializing in such medical tourism.

Auctions of public lands across the interior west, along with the privatization of the Tennessee Valley Authority, generated a quick gusher of cash. Vowing not to let the new government wealth create more bureaucracy, Red Fed leaders deposited it all in a Free States Energy Trust Fund that would pay out an annual dividend to every adult and child in the region — a no-strings-attached cash transfer of hundreds of dollars per year. The Southern Baptist Convention encouraged its members to tithe their dividend checks directly into new aid societies to help the least fortunate. The most popular charitable cause has been a relief society to aid religious conservatives in the Blue Fed seeking to migrate to the Red Fed.

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