Search Results for: competition

Invaders on Holiday (or, The Consequences of Time Travel at the International Stone Skipping Competition)

Longreads Pick
Published: Mar 1, 2018
Length: 15 minutes (3,942 words)

The Mackinac Island Stone Skipping Competition

Longreads Pick

Ever tried to skip a flat stone across a body of water? Happy with a few skips? Elated at five or more? To be the best stone skipper in the world, you need 89 skips to beat current Guinness World Record holder Kurt “Mountain Man” Steiner (88 skips).

Published: May 24, 2017
Length: 11 minutes (2,759 words)

Evolution and Chill: Survival Is No Longer Just About Competition

By studying the phylogenetic history of related species, we can begin to correlate the interplay of behaviors with evolutionary dynamics in the real world. This year scientists from Lund University, in Sweden, analyzed the breeding strategies of 4,000 bird species, tracking their movements into new ecosystems using known genetic relationships between the birds. It’s long been known that cooperative-breeding strategies are common in harsh environments. The assumption was that difficult conditions encouraged species to evolve sociable behaviors (at least toward relatives). But what if this presumed causality had it backward? By analyzing the historical migrations of birds, the researchers discovered that species that had already evolved cooperative behaviors in a benign environment were twice as likely to have moved into a harsh one than non-cooperative breeders. The researchers speculate that cooperation buffers against unpredictable breeding seasons, allowing already social populations to be more successful in invading new niches. The harsh environment didn’t drive the evolution of the behaviors—the behaviors enabled the colonization of harsh environments.

In Nautilus, neuroscientist and graphic designer Kelly Clancy challenges the traditional interpretation of Darwinian natural selection by arguing that, when organisms no longer have to perform in a competitive environment, a species’ fitness is no longer tested by being selected for or against, and evolution actually occurs according to very different factors: cooperation and mutation. It’s, like, really complicated, man.

Read the story

How In-N-Out Withstood Competition By Not Changing Anything and Taking Care of Employees

Under her three-year tenure, In‑N‑Out has expanded—cautiously—into Texas, a move she says has been in the works for a decade. That foray brought one rare, considerably less-than-daring change to the company’s formula: It added iced sweet tea to the menu. “We knew that everybody loves sweet tea there,” Snyder explains. “It’s not that hard. We just need to bring sugar in.” But don’t expect to see it on the menu in Orange County anytime soon, because, she says, “Texas is so separated from here.”

Instead, Snyder concentrates on subtle improvements. While she’s an iced-coffee lover, she has never considered adding that or any other fancy coffee drinks to the menu as McDonald’s has. Instead, she set out to improve In‑N‑Out’s basic brew. “I went to the [supplier’s] plant, and did the taste test, and learned about the beans, all the things related to coffee,” she says. “So now I feel like an educated coffee-ist.”

Similarly, she often takes a hand in what would seem like branding details too minor for the involvement of a CEO, such as supervising radio ads and overseeing the design of the classic car T-shirts the company sells in its gift store, in restaurants, and online. She runs teamwork-building workshops and conferences that, at another company, would be the province of a human resources subordinate.

Instead of focusing on the size of her restaurant chain, “I put more thought into how we’re going to maintain the family atmosphere and the closeness,” she says. “We do a lot more that we weren’t doing, getting everyone together more.” Indeed, In‑N‑Out Burger has a reputation for taking unusually good care of its workforce. According to the Web publication Business Insider, In‑N‑Out ranked highest among 13 fast-food chains in pay, with workers starting at $10.50 an hour—nearly $2 more than its next-closest competitor.

In Orange Coast magazine, Patrick Kiger profiles Lynsi Snyder, the 31-year-old president of In-N-Out Burger who is maintaining the legacy of the company her grandparents founded in the 1940s. Read more profiles at Longreads.

***

Photo: Jeremy Hall

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Doctors Without Patients: The Eritrean Physicians Stuck in American Licensing Limbo

Illustration by Carolyn Wells

Shoshana Akabas | Longreads | October 2021 | 16 minutes (4,762 words)

*Haben Araya was working in the local hospital when a farmer came in, bleeding from his gums. He was suffering from a snakebite — a case she’d seen many times.

*At the request of the doctors involved, some names have been changed.

Before Araya sought asylum in the United States, before she helplessly watched the COVID-19 pandemic tear across the country, and before she learned about what doctors must go through to relicense in America, she worked as one of a handful of physicians on staff at a local hospital in her home country of Eritrea. She was a general practitioner, responsible for everything from pediatric preventative medicine to minor surgeries and gynecology. She served as the regional appointed physician for malaria case management and the hospital’s Director for Tuberculosis Control. If a patient needed to be transferred to another hospital, she had to write the referral. Call the ambulance. Make sure the ambulance has enough gas. Find someone to fill up the tank.

Snakebite cases were heartbreaking for Araya because she knew the medication was prohibitively expensive: 840 Eritrean Nakfa for a single vial (about 56 USD). Sometimes four or five vials were required, costing more than many farmers would earn in a year.

The hospital insisted on taking some sort of collateral until the bill was paid, but Araya knew the farmers were good for the money. She also knew that they would likely sell their goats or sheep — whatever animals they relied on for their livelihoods — to pay for the treatment. And then, she knew, they and their children would return in a few months’ time with severe cases of malnutrition and a host of consequent health issues.

A nearby military clinic, where there was no on-site physician, had a stock of antivenom. In exchange for a free supply for her patients, Araya told the administrator of the unit that she would provide medical consultation and training. It was not a perfect solution, Araya admits, but her job was to do anything she could for her patients. “We have to do our best with what we know,” she says. “Every day we had to be more than a doctor.”

***

Doctors trained in resource-limited environments possess a unique skill set. They’re adaptable, creative, and work well under pressure. Yet, upon arriving in the U.S., internationally trained physicians like Araya must go through a licensing process so arduous it can take nearly ten years to complete. There are currently an estimated 165,000 internationally trained medical professionals living in the United States and underutilizing their skills. Many, like Araya, are sitting on crisis management experience the United States never thought they would need — until the pandemic hit.


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Eritrea has a single medical school: the Orotta College of Medicine and Health Sciences, offering a six-year medical program. With only 30 to 40 spots in each graduating class, the nationwide competition was fierce. “When I applied to medical school, my dad always tried to impress on me that I need to have Plan B and Plan C,” says Lily Yemane, an expat Eritrean physician like Araya.  But she couldn’t think of any other job she wanted to do.

In the United States, the pandemic forced many doctors who had never experienced shortages to make life-or-death choices about who would be given oxygen, but for Araya and Yemane, that kind of challenge was part of their regular work as physicians. “You have an idea of how a certain patient can be helped, but you don’t have the resources,” explains Yemane. “Two or three patients need a medication, and you have to decide who to give it to.” With only one or two ambulances per hospital, she often fought to convince the administration to deploy their ambulance for her patients.

Resource scarcity wasn’t the only issue. Living under the oppressive regime in Eritrea bled into every aspect of their personal and professional lives. “We don’t choose where we work, we don’t negotiate our salaries,” says Araya. “The government, basically they put our names in a fishbowl.”

Since President Isais Afwerki came to power following the country’s independence in 1993, freedom has been stifled. Afwerki’s extrajudicial executions, imprisonment of journalists and religious minorities, indefinite forced labor sentences, and other human rights violations have been documented by the United Nations Human Rights Council. Reporters Without Borders, on its World Press Freedom Index this year, ranked Eritrea last, below North Korea. There have been no presidential elections held in the country’s 28-year history. “ … You don’t get any say, you don’t vote. We’ve never voted in our entire life,” says Yemane.

When political prisoners were brought to the hospital for care — often for tuberculosis or scabies, the result of years in captivity — doctors were forced to defer to a system they vehemently opposed. Some prisoners were journalists; others had been caught at the border, trying to flee the country. “You almost never ask why,” says Yemane. “You don’t want to know.”

Each time a prisoner was brought for treatment, Yemane had to convince the guards to admit the patient to the hospital for necessary care, raising suspicions that she was on the prisoner’s side. Except once: Yemane supervised the care of a prisoner with kidney failure. When she went to check on him in the recovery facility, she was surprised to find the patient with his family, and the guards nowhere to be found. “He was free,” she says, “but they only let him go because they thought he was dying.”

There was no single moment that pushed Yemane or Araya to leave and follow their family and friends who had already fled to the US. Instead, the burden of oppression and persecution simply grew until they felt they had no choice. “My rights as a human being were being violated,” says Araya. “I did not have the freedom — that basic, basic freedom … we all deserve as human beings.”

 ***

Yemane did not arrive in the United States naive to American culture or to the challenge ahead. She’d read plenty of English literature and loved watching Oscar-nominated movies, from My Fair Lady to La La Land. But still, the culture shock was real. While waiting the nine months for her work permit to be approved, she lived with a family member and took an anatomy course at the local public college, working towards a physician assistant’s degree in case she couldn’t relicense. Eager to resume medical practice, she also began volunteering at a free clinic, which helped her to feel more at home as she gradually met more like-minded people.

Reporters Without Borders, on its World Press Freedom Index this year, ranked Eritrea last, below North Korea. There have been no presidential elections held in the country’s 28-year history.

When Araya reached the United States the following year, more than a dozen Eritrean doctors like Yemane — who’d fled in the months before her — warned her of the difficult road ahead. She’d have to have her credentials verified before she could sit for the three intensive U.S. medical licensing exams (USMLE) and apply for a residency program to repeat her training — the last step before finally being able to practice on her own.

For most refugees arriving with few resources, the financial cost — of translating educational records into English, covering the exam fees (nearly $1,000 each), and working a clinical internship (often unpaid) to help get a residency — is prohibitive. And the Eritrean doctors were struggling to get past the very first step in the process. For their primary source verification, authorized representatives from the Eritrean medical school would need to confirm that their documents, including their diploma and transcript, were authentic.

They’d contacted the Educational Commission for Foreign Medical Graduates (ECFMG), a non-governmental, non-profit agency, responsible for primary source verification. Of roughly 3,500 operational institutions in the World Directory of Medical Schools, ECFMG accepts credentials from approximately three-quarters — including the medical school in Eritrea. But when Araya and Yemane’s colleagues applied for verification, the Eritrean administrators wouldn’t respond to ECFMG’s inquiries.

The medical school and placement system in Eritrea, like many countries, is controlled by the government, which has the power to withhold the records of anyone they don’t want to assist. “In the eyes of the government,” says Yemane, “we are traitors — which is not true. We served our country when we were there. I worked with very little pay, like everybody else in the country, for four years, outside of my hometown. And we did serve the people. We did our best. But the government was not understanding of that. So when we left, we were considered traitors.”

Kara Oleyn, Vice President for Programs and Services at ECFMG, was assigned to their case. ECFMG sees 20,000 applications each year, and Oleyn was no stranger to verification challenges. When ISIS infiltrated Iraq and medical school officials fled to the south, Oleyn’s team worked with the Iraqi Ministry of Health to track them down, so they could provide verification for their former students. In Crimea, where both the Russian and Ukrainian governments claimed the medical university, they had to determine who was actually authorized to verify credentials. “We do need to assure the public that the individuals who are going to be laying hands on them have the appropriate credentials,” says Oleyn, “and primary source verification is a big part of that.”

But Araya’s and Yemane’s cases — and the cases of their Eritrean colleagues — stumped Oleyn. “There was absolutely no information coming out of Eritrea,” she says.

Araya and her peers were devastated. “The fact that the government I left was able to affect me here — it was just heartbreaking,” says Araya. “America, they gave me protection to stay here, but the [Eritrean] government was able to retaliate and hold me hostage, even when I’m here.”

In rare cases where verification couldn’t be obtained — often for political asylees — the ECFMG used an alternate process: having three U.S.-licensed physicians who attended the same international school swear on their medical license that they have personal knowledge that the individual graduated from medical school. Unfortunately, the Eritrean medical school, founded less than 20 years ago, had no prior graduates working in the United States to provide testimony.

Oleyn’s three-person team relentlessly contacted any sources they thought might be able to share information. “We were trying to triangulate exams that we knew they took in Sudan with Sudanese officials, and we couldn’t get anywhere,” she says. Even the US Department of State couldn’t offer any contacts in Eritrea besides those already refusing to cooperate. Instead, the State Department confirmed what she recalled the Eritrean applicants had already told her: “They’re not going to reply to you, because they don’t want their physicians … their young, bright, educated people to leave their country.”

Yemane and Araya’s feeling of helplessness intensified as the pandemic rolled through their new homeland, and they watched as the news quickly became saturated with reports of hospitals running out of beds and doctors to care for COVID patients. When Eritrea went into lockdown, they feared for their friends and family left behind. Yemane would close her eyes and remember the limited number of beds in the hospital’s ICU, imagining them all filled. The staff was already underpaid and overworked before the pandemic.

“In a perfect world, when this happens, what do you do? You just go home and you help, and then you come back,” says Yemane. “We could not go back home, even to help, even to contribute.” And in America, she couldn’t help either. “… Imagine sitting with the capacity to do something but not being able to do anything … What was the whole point of your training if you cannot do something, even in a pandemic?”

Many internationally trained doctors have valuable experience working in the thick of SARS and Ebola epidemics, conflict zones, and other limited-resource conditions — not unlike the conditions faced by hospitals across the United States, as doctors scrambled for personal protective equipment. “When you have a shortage in supplies all the time, you get creative,” Yemane explains. “When we didn’t have ventilators, we could make CPAPs out of things that you can access at the hospital. So we have that kind of mindset.”

Jina Krause-Vilmar, the president and CEO of Upwardly Global, a nonprofit organization that provides career services to immigrants and refugees (including several interviewed for this story), says that, despite knowing the risks of COVID-19, their clients were anxious to help and “in tears about the idea that they were standing on the sidelines at a time when their communities were suffering.”

Unable to assist medical efforts directly, Yemane volunteered for a mutual aid society to help with cooking and delivering food to a local homeless encampment, but she wished she could do more. At the height of the pandemic, “that’s when it was most painful,” she says. “You see the hospitals running low on supplies, on skill[ed workers], and you’re sitting at home doing nothing when you could have been out there helping people.”

Yemane would close her eyes and remember the limited number of beds in the hospital’s ICU, imagining them all filled.

In a few select states, desperation finally bred change, and internationally trained physicians were given the opportunity to contribute. New York (home to roughly 13,000 foreign-trained medical professionals not able to make full use of their skills) joined New Jersey, Massachusetts, Nevada, and Colorado in adapting licensing guidelines to allow foreign-trained physicians to help with COVID efforts at various levels — but with limited success.

For some, the application was too difficult. Upwardly Global heard that in one state Russian applicants were deterred because the drop-down menu on the online application accidentally omitted “Russia” as an option for country of origin. Some, like Yemane, applied to the NJ licensing program but never heard back.

“These were emergency policies that were designed and implemented at a time of unprecedented need and at a time when states were trying to mount a response to a public health crisis like no other,” says Jacki Esposito, director of U.S. Policy and Advocacy for World Education Services Global Talent Bridge, a non-profit dedicated to helping international students, immigrants, and refugees achieve their educational and career goals. “So just by virtue of the fact that they were designed and implemented very quickly, there wasn’t the time and the space to consult all of the various stakeholders that would be consulted in a permanent reform process.”

For example, according to Esposito, some states require applicants to have active, valid licenses in another country, but many people — refugees especially — let their licenses lapse to avoid yearly fees and continuing education requirements. Esposito says the application could have required that a foreign license was in good standing when it was last active to accomplish the same goal — of weeding out those applicants with disciplinary actions on their record. “It really was a mix of getting the eligibility requirements right so that they maintain health and safety standards, but at the same time are accessible for applicants,” says Esposito. “Eligibility requirements must be workable for these policies to be effective.”

Without the time to be more intentional about the design of the application process, inform employers about the policy, or conduct outreach to applicants, the opportunity went underutilized. By the end of 2020, the New Jersey Board of Medical Examiners, which operated the most robust program for applicants without residency experience, had received approximately 1,100 applications for temporary medical licenses, but, according to a spokesperson at the New Jersey Division of Consumer Affairs, they issued emergency licenses to only 35 individuals. And according to Gothamist, not all who received emergency licenses were able to secure positions. Many applicants who were eligible for similar programs across the country didn’t know where to look for jobs, and hospitals weren’t sure they were allowed to accept internationally trained applicants — or just thought it was easier to not employ them.

“When push came to shove, the hospitals would rather repurpose a plastic surgeon,” says Tamar Frolichstein-Appel, a senior employment services associate at Upwardly Global, who believes better outcomes could be achieved if healthcare employers, legislators, and NGOs work in partnership. Without buy-in from employers who are willing to hire from this talent pool, a license doesn’t make much of a difference. “It’s a missed opportunity that we have not, as a country, leveraged the immense talent that immigrant and refugee doctors and other healthcare workers offer,” says Esposito.

Amid the crisis, a door was cracked open for a select few. But, by and large, doctors like Araya and Yemane watched the pandemic unfold, stuck outside of a system they desperately wanted to be part of. “We got so antsy to do something,” Yemane says. “It’s a privilege to be able to help in that time, and we didn’t have that.”

***

As more time passed without any news of progress from ECFMG, the persistent uncertainty began to take a toll on the Eritrean doctors stuck in limbo. “A few of us went back to medical school again. But to go to medical school twice in one lifetime — it’s a lot to ask,” says Yemane.

After fleeing Eritrea, another doctor, Abraham Solomon, chose this option to avoid being at the mercy of a stalled bureaucratic process. But he couldn’t simply repeat medical school; he had to go back even further and complete up to 90 credits of undergraduate pre-med requirements before even taking the Medical College Admission Test (MCAT). As he sat through freshman seminars for the second time in his life, he had a strong sense that this situation wasn’t fair, but he had to make peace with it. “What [I] had to do was more important than getting lost in the emotions,” says Solomon, who worked in customer service to pay for school. “At that point, you understand this is something you can’t control.”

Mohamed Khalif, who left Somalia as a refugee when he was two years old, moved around the world with his family before graduating medical school in China. While studying for the USMLE in Washington State, he worked as a security guard and then took night shifts at a pie factory so he could volunteer at a medical clinic. Khalif has valuable skills and is fluent in five languages, including Urdu and  Mandarin, but even after he passed the USMLE he failed to match with a residency program. The screening for residency programs filters out candidates without “hands-on” clinical experience in the United States: few applicants can afford unpaid internships, and few institutions are willing to take them on over U.S. medical students. The applications cost Khalif more than $6,000 each year, in addition to flights and hotels for interviews. After four years, he decided he had to go in another direction.

As the founder of the nonprofit Washington Academy for International Medical Graduates (WAIMG), he now advocates for those who face the same challenges and offers professional development opportunities through his organization. Through this work, he met folks with similar stories, like a Japanese neurosurgeon who married an American and moved to the U.S., but, even after passing the USMLE, was still working at Starbucks because she couldn’t match into a residency program. Khalif’s organization hired her for a job that would count as “hands-on” clinical experience to improve her prospects.

“Once she found this job,” says Khalif, “she actually cried. And I felt that. Because that’s what I’ve been through — those kinds of odd jobs — and I cried with her.” These stories keep him hopeful, even though he’s not able to practice: the fact that he’s making it possible for so many others.

 ***

The matching process is a major concern for Araya, Yemane, and their peers — not having their official transcripts or diplomas will likely pose problems during the difficult process of applying to residencies — once they even reach that stage. This year, only 55 percent of immigrant international medical graduates who applied for residency were matched to first-year positions, compared to 93 percent of U.S. graduates.

And every year Araya and Yemane have spent fighting for the right to even sit the exams has cost them: The more time that passes after a candidate’s graduation year, the harder it can be to secure a residency match.

“When you only consider somebody’s graduating year as a criteria and not know the story behind that, it hurts a lot of people. It hurts a lot of people who are really passionate,” says Araya. “To come here to fight for all these years to go back into your profession — that tells a lot about the persistence and the passion that person has for medicine.”

Amid the crisis, a door was cracked open for a select few. But, by and large, doctors like Araya and Yemane watched the pandemic unfold, stuck outside of a system they desperately wanted to be part of.

Khalif began to look for a solution that wouldn’t require physicians to repeat their entire residency. “Legislators did not know about this match process and this residency process,” says Khalif. “They thought people could apply for residency through Indeed Job Search or something.”

Members from Khalif’s non-profit met with legislators and eventually started gaining traction. “COVID really changed people’s minds,” says Khalif, and in May 2021, Washington Governor Jay Inslee signed into law SHB 1129, which allows limited licenses to be granted to internationally trained doctors in Washington who have completed their USMLE, without requiring residency to be repeated in the U.S. “Once you pass all your exams now, you don’t have to settle for an odd job, or leave the profession like I did,” says Khalif. “You can qualify for a license and work under the supervision of a physician, and you can take care of patients.”

The bill was overwhelmingly supported on both sides. Republican representative Mary Dye says that her small county of Garfield, with only a handful of doctors, has benefited from internationally trained physicians from Bangladesh and South Korea, who can work without the equipment, facilities, and large medical teams that most U.S. doctors rely on. “In rural America, we need people that have different experiences,” Dye explained. “We’re grateful to have … people that are capable of serving in these remote locations, under challenging conditions, with lots of limitations, and still provide wonderful medical care for our community.”

From the rural healthcare crisis to expanding medical access for at-risk populations, advocates believe internationally trained physicians could be part of the solution if given the opportunity. “I think they have a huge role to play in terms of health equity access, because of that cultural language fluency,” says Krause-Vilmar.

“We need to re-envision what the process is for licensure for doctors in the United States,” says Esposito, “so that we are not leaving out people who have 20 years of experience in a field where we know that we need more doctors.”

Without any change in legislation in California, the current residency hurdles are still daunting for Araya and Yemane, who hope that, when the time comes, institutions will consider their circumstances and give them a chance to prove themselves. “We are all a loss for our country,” Araya says. “I hope we’re not a loss here.”

 ***

One night, more than a year into the investigation process, Oleyn was working late in her Philadelphia office when she received a call from one of the Eritrean applicants. She detailed everything her team had tried — most recently, reaching out to the medical school in Cuba that had a partnership with the Eritrean medical school. But it was another dead end.

“Anything you can think of,” she asked on the phone that night. Anything at all.

In an attempt to leave no stone unturned, the applicants submitted lists of people they’d come into contact with during medical school — in the hope of providing a useful connection. As Oleyn’s team searched for leads through the lists of names, they found that one was a dean at a U.S. medical school. It turned out that a small number of U.S. physicians — faculty members of American medical schools like George Washington University — helped establish the school in Eritrea. The connection provided a glimmer of hope after months of coming up empty-handed.

A caseworker from Oleyn’s team contacted the dean; he didn’t remember the specific students but put them in touch with other American faculty members who had taught or helped design the post-graduate training curriculum in Eritrea. Oleyn’s team asked those physicians to verify the information about the applicants: the courses they took, which textbooks were used, and their graduation dates. They responded enthusiastically about the qualifications of each applicant and eagerly asked how they could help.

The alternate form of verification — with all the supporting evidence they had amassed — was presented to the ECFMG’s board of trustees, which finally granted approval in summer 2020. Araya and Yemane could move forward to the exam stage. When Yemane heard the news, she felt like she’d finally gotten her life back. “There was a time when I was too scared to be hopeful about that because I didn’t want to be disappointed,” she says.

Solomon had just finished a year of intro courses — Biology, Chemistry, and Physics — when the decision was released. He no longer had to repeat the rest of the prerequisite courses and medical school, and he was thankful to finally have some control over the next steps. “This is a challenge I can overcome,” he says. “An exam is just an exam. You study. You prepare.”

“It’s a good thing that we’re doing this exam,” Yemane says. “It’s a good way to revisit the basic sciences and to familiarize ourselves with what’s most important and most common in this country.”

The Eritrean physicians continue to stay in touch through their Whatsapp group, meeting occasionally, sharing job opportunities, and cheering each other on. Araya says she won’t stop rooting for their success. “Passing the exam, getting matched [with a residency program] has become more than even being a doctor: Just proving that the government back home, the school — whoever could not give us our certificates, credentials — that actually, there is justice in the world, and they could not dictate our professional pathways.”

This year, only 55 percent of immigrant international medical graduates who applied for residency were matched to first-year positions, compared to 93 percent of U.S. graduates.

In a thank you note Oleyn received an Eritrean physician wrote: “This shall also afford every graduate the privilege to revisit his/her oath to humanity, to summon his/her medical expertise, and to engage hereafter in the honored service of the people of the United States of America.”

It remains the most gratifying case Oleyn has seen in her 22 years at ECFMG.

 ***

On a warm Thursday in June 2021, Yemane traveled to San Jose to take her first exam. She hadn’t slept well the night before. Kept awake by nerves, she’d scrolled through Reddit, where other nervous exam-takers shared their anxieties. But in the morning, she pretended she’d had the best sleep of her life. “I think that worked,” she laughs. “I think I fooled my brain.”

The test center was familiar because she’d paid $75 to take a practice exam there earlier that week, but it was nerve-wracking all the same. “There was a lot of pressure on me, because I’m one of the first people taking the exam from my country,” she says. “And we begged for three years for this opportunity.”

She reminded herself that she was prepared. She’d done over 7,000 practice questions. She thought about a text her friend sent, telling her that the test outcome would not change her identity. She imagined her father and mother telling her, “You were created for this.”

When she finished the eight-hour exam, a sense of relief washed over her. This was the hardest test for her; the next one focuses on clinical skills, and she hopes to sit for it in spring 2022. After that, she will take the third and final test. The next challenge — applying for residencies — will be the final step in the long and expensive licensing process.

For now, though, she’s taking one step at a time. As she anxiously awaits the results, she knows that even if she doesn’t get the score she’s hoping for, she was brave just to take the exam after everything she’s been through. “That’s what I’m doing right now,” she says. “I’m celebrating the bravery.”

Shoshana Akabas is a writer and teacher based in New York. She primarily writes fiction and reports on refugee policy and issues of forced migration. 

* * *

Editor: Carolyn Wells 
Fact checker: Nora Belblidia

The Top 5 Longreads of the Week

(Photo of Kurt Cobain by Michel Linssen/Redferns via Getty Images)

This week, we’re sharing stories from Michael Azerrad, Matthew Shen Goodman, Lisa Wells, Daniel Wells, and Mary Kay McBrayer.

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1. My Time with Kurt Cobain 

Michael Azerrad | The New Yorker| September 22, 2021| (7,102 words)

Music journalist Michael Azerrad’s piece about his friendship with Kurt Cobain is honest and lucid. Azerrad recounts a number of moments with the late Nirvana singer, starting with the first time they met in 1992, when he visits the small Los Angeles apartment Cobain shared with Courtney Love to interview him for Rolling Stone. As a journalist, Azerrad gains Cobain’s trust, and eventually goes on to write a book about the band, Come as You Are: The Story of Nirvana, which was published in September 1993, the same month their third and final album, In Utero, was released. Azerrad remembers encounters over the next few years — an epic show at the Reading Festival, a business dinner with executives (“the grownups,” as Cobain referred to them), tense moments between band members while on tour, flashes of Cobain’s heroin addiction. My favorite bits, though, are Azerrad’s quiet, beautiful descriptions of Cobain away from the spotlight: the intimate hours the two spent in a Seattle hotel room as Cobain read Azerrad’s manuscript, and the time they wandered around an eerily empty downtown Dallas with daughter Frances, who was just 15 months old at the time. —Cheri Lucas Rowlands

2. It’s Triller Night, Marv!

Matthew Shen Goodman | n+1| September 18, 2021 | (4,386 words)

Look, just because I had zero interest in watching a card of fights between retired ex-champions on the twentieth anniversary of 9/11 while Donald Trump and his namesake son commentated doesn’t mean I have zero interest in reading a gimlet-eyed, absolutely bonkers polemic about it. And that’s exactly what Matthew Shen Goodman delivers in his slightly drunken, extremely lurid critical essay, which also marks his first inclusion as a Longreads Pick. The horrors on display are many, whether Snoop Dogg “performing” with the late Marvin Gaye (the essay’s headline details Snoop’s literal answer to Marvin’s titular question during a rendition of “What’s Goin’ On”) or onetime mixed martial-arts great Tito Ortiz’s plodding defeat to other onetime MMA great Anderson Silva (“veterans of one sport playing at another, their takedowns and elbows and kicks and joint breaks pared down to only punches, four-ounce semi-articulated gloves replaced with the bulbous curve of twelve-ounce boxing mitts”). The piece is half exhausted sigh, half feverish deconstruction, and entirely memorable. Punching down may be easier than the alternative, but sometimes it’s just what you need. —Peter Rubin

3. To Be a Field of Poppies

Lisa Wells | Harper’s Magazine | September 20, 2021 | (6,064 words)

This is a story about a company that is pioneering natural organic reduction (NOR), or the composting of dead bodies. Readers get all the dirt—sorry, sorry—on the science and business behind the venture, but writer Lisa Wells offers so much more than that. Her piece is a meditation on intention and guilt; grief and fear; life and loss. Perhaps above all, it is about our species’ fraught relationship with the natural world. I will be thinking about it for a long time. —Seyward Darby

4. The Secrets of The World’s Greatest Freediver

Daniel Riley| GQ | September 21, 2021 | (7,369 words)

Daniel Riley clearly relished reporting on the freediving competition Vertical Blue — a chance to be around 42 divers who feel they are doing something “sublime.” This event at Dean’s Blue Hole in the Bahamas is a mecca for all serious divers, but Riley focuses on Alexey Molchanov, who, as the world’s best freediver, is tremendously skilled at staying present in a dive, with nothing “beyond the body, the breathing, the intense focus of the next meter,” until he reaches a depth where there is no light, no sound, just sensory oblivion. Riley pulls you into the water with Molchanov, to such a degree that I went from feeling the serenity of the stillness to intense claustrophobia, as we go down and down — a rather impressive gamut of emotions to feel while in fact sitting on the sofa with a cup of tea. Riley’s respect for Molchanov is evident throughout the piece — he is, after all, a man who has dedicated his life to a sport that killed his mother, and has the potential to kill him too. —Carolyn Wells

5. Dollhouse of Horrors

Mary Kay McBrayer | Oxford American | August 31, 2021 | (4,784 words)

Come for an introduction to the uncanny work of miniature construction and collecting, stay for a rumination about what it means to cope with chaos and cruelty. “I cannot control any of the horrors that happen at me,” Mary Kay McBrayer writes. “But in my dollhouse, I own everything. I make the horrors happen. I am the one.” This is a piece for fans of Hereditary and Shirley Jackson, and for anyone struggling to make sense of our world gone mad. —SD

I Miss it All

(Photo by: Andy Stagg/View Pictures/Universal Images Group via Getty Images)

Devin Kelly | Longreads | July, 2021 | 17 minutes (4,874 words)

Read Devin Kelly’s previous Longreads essays: “Running Dysmorphic,” “What I Want to Know of Kindness,” “Out There: On Not Finishing,” and “Repetitive Stress.”

I hate the part of me that has become impatient. I notice it more these days. I notice it when I create a plan for myself and a friend’s schedule doesn’t fit that plan. I notice it in how I structure my days, even days supposedly given to leisure. How I’ll give myself an hour to read upon waking, an hour to exercise. How, if I’m going for a walk, I want to be outside by a certain time. How I’ll start to feel anxious if I’m not. I clench my jaw. I check the time. I run my thumb over my index finger and crack my knuckle. I want a drink. I straddle the edge, feel myself losing my cool, an ache in each temple. What uncertainty am I losing by being so structured? How many mysteries have gone unnoticed? Why do I feel, in a world that consistently, without fail, automates and compartmentalizes my time, like I have to do the same for myself? By structuring myself in such a way, do I lose grace?

I’ve spent the last eight months unable to run, rehabbing the damage done to my leg as a result of an osteochondral lesion in my knee. I recently underwent surgery to transplant cadaver cartilage into the small area on my femur where my defect was located. And I feel that same hatred of impatience today, as I nurse my leg post-surgery. I feel beleaguered by injury. Which is another way of saying I feel helpless. My father helped me up the stairs a week ago. My girlfriend brewed me coffee, laid out my pain pills, refilled the ice in the tiny freezer. I kept saying sorry. I kept feeling inconvenient, like I had no value. Worthless. Everything felt like something to be endured rather than loved.

Everything felt like something to be endured rather than loved.

During the eight months of injury prior to surgery, I thought I could strengthen my body back into working like it used to, and I bought a spin bike. Not a Peloton. Good lord, no. A Schwinn. A sturdy, entry-level thing to do my body justice. For nearly every morning since the end of last summer when I got hurt, I have hopped on that spin bike in my apartment and absolutely barraged my legs into oblivion. I made my own workouts at first, then, not knowing if I was pushing myself enough, enlisted the help of this British cycling team, GCN, and their indoor cycling workouts on YouTube. After exhausting myself of all of those videos and their perfect voices, I downloaded the Peloton app.

There is something about an exercise machine that speaks to every part of my personality I try to keep hidden in polite company. Prior to the pandemic, if I needed a day off from running or had to engage in something slightly less stressful to heal a running-related injury, I would go to the gym and walk on the stairmaster. I have a hard time admitting this to anyone. It feels wrong. But I would go, set the machine to scale the height of the used-to-be-named Sears Tower, which appeared as a pixelated Tetris-y block on the screen, and step until my socks dampened all the way into my shoes. There is a way that exercise machines enact the endless, grueling task of being alive in late capitalism. They feel almost Sisyphean, like how Hillary Leichter, in her novel Temporary, writes: “the world is infinite, and the work is, like, endless.” No exercise machine hides itself, or its true nature. You know this. You understand. When you step on a rotating set of stairs, or ride atop a spinning stationary wheel, or jog on a humming conveyor belt, you know that you aren’t going anywhere. And yet still, you go, even if sometimes, as Leichter writes, you feel “silly for expecting anything at all.” We feel mindless and used in our labor, and then we hop on our machines that go nowhere and perform the same kind of dance with our bodies. It’s so pervasive that it has become, in part, a cliché. We laugh about it. We say this is life under capitalism. And yet, sometimes I worry that, regardless of our ironic self-awareness, we lose a little bit of one another each day. I know I’m being sentimental. I’ll be blunt. Each day, we are losing one another. And by one another, I mean: everything. And by everything, I mean: in a world where it sometimes feels we have to jerry rig into our lives both what we love to do and who we love to do it with, where we have to apologize for the excesses of personality that are not the same as the excesses of production, where we have to somehow — I did not know this was possible, tell me if it’s possible — make time, we lose the possibilities of connection that make up so much of the inherent value of a life.


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When you decide that you want to do a Peloton workout, you can filter your wants down to the smallest, most specific extremes. You can ride for 15 minutes, 45, 90. You can spend the whole time going up a hill that doesn’t exist. You can decide if your preferred level of difficulty that day is 7.8 or 6.2. Whatever you want. You can choose your favorite instructor. When you ride, you can turn the leaderboard off. You become the curator of the museum of your experience. You don’t have to talk. You can live in the workout you demand. In doing so, you are no longer beholden to others, to their sweat, or a friend’s need for a bathroom break. You can even pause and then return. What remains, after all of this, are the only things Peloton deems a community good for: encouragement, competition, and independence. If you want to give someone a high-five, you can give them a virtual high-five. I once gave one by mistake and then fretted about it for a day. I had no reason to do it. It was an error, a stray finger. I couldn’t apologize. I couldn’t see the recipient’s face. I felt ashamed. The instructor peppers in encouragement throughout the workout. Birthdays. Milestones. Things that are holistic and uncontroversial. If it’s your hundredth time taking an on-demand spin class, you’ll get your name shouted out. If you want to race, too, you can race your community. Goodbye, friends. But if you want to go at your own pace, you can ignore the leaderboard. Either way, it’s your ride. You choose.

There is a way that exercise machines enact the endless, grueling task of being alive in late capitalism…you know that you aren’t going anywhere.

The illusion of community is at the heart of so much of our contemporary society. In his book This Life, Martin Hägglund puts it best when he writes: “If we are committed to capitalism, we are committed to commodifying more and more aspects of our lives.” One of those recently-commodified aspects is the very idea of community. In the recent documentary, WeWork: Or The Making and Breaking of a $47 Billion Unicorn, one interviewee discussed how the entire “We” corporation was “helping you live and not just exist.” The emphasis there is mine. Highlighting a difference between living and existing is central to the commodification of everything. It used to be the case that if you did not buy a certain singular product — the newest iPhone, for example — you were simply existing, not living. Now, it’s not just about product. It’s about community. If your experience of community isn’t individualized, fine-tuned to generate success on your terms, are you really living?

We know community is commodified because it is at the heart of an app like Peloton’s appeal. Even the word peloton refers to the main group of bicycle riders in a race, the ones who aren’t in the breakaway lead group or chase pack. But what is at the heart of such a community? A community where, even if you once attended a live class, the lights were dimmed low, and it felt like it was only you, your bike, and the leaderboard? A community where, if you attend from your own home, it is only you, and virtual high-fives, and the aching solitude of a screen? A community where you aren’t annoyed by people’s insecurities, by their detours, by their having-a-bad-day-can-we-take-it-slow-questions, by their endless talking, by their bathroom breaks, by the endless list of what makes a human, well, human? A community where, if you don’t want to, you just don’t have to deal with the other people in the community?

***

The sadness of the past year has been a sadness of isolation. When I got hurt and couldn’t run, I didn’t just miss being outside. I missed the sincere, unfiltered joy of being among the intricacies and inconveniences of people. Each morning, riding alone on my bike to nowhere, I nitpicked my intensity and length of workout down to the minute. I rode in intervals and rested in intervals and measured my heart rate in beats per minute. I filtered my life completely. I wanted to be out there, though, blowing hot breath on my hands as I waited to meet my friend Andrew, the cold sweeping over the Central Park reservoir while so many others ushered themselves past, each and every person part of the endless chatter and dance of things. I wanted to be inconvenienced. To have Andrew be five minutes late, or for me to be five minutes late. I wanted to arrive, and then be asked to go the other way around the park. I wanted to give in to someone else’s wants. I missed my friends. I missed them so much.

If your experience of community isn’t individualized, fine-tuned to generate success on your terms, are you really living?

In all my years of running with my friends, I have been met so many days with the inconvenient and the unexpected. Some days, I have been the cause of that inconvenience. As a walk-on runner on my college team, I often did not feel like I could manage even the pace of our easy runs. Workouts that were supposed to be gentle ended up feeling brutal. But we learned how to translate the difficulty into solidarity. When my college team arrived at Van Cortlandt Park for midseason track workouts, we heard the same refrain from our distance coach. It wasn’t some canned exaggeration about effort. Holding a takeout coffee in one hand and a stopwatch in the other, he said, over and over again: the time in the front is the time in the back. It meant something small, but important. Whether you were leading the workout’s most recent interval or being dragged along in the draft of everyone else, you all clocked in at the same time, even if you lagged a few steps behind. I guess another way of putting it is simpler: if you were faster than the rest, you were still slow. And if you were slower than the rest, you were still fast. There was no inconvenience. There was just each other.

I think about the beauty of being dependent on another’s whims so often these days. I think about missing the beauty that comes with such a long, extended moment. In Ross Gay’s essay “Inefficiency,” he writes about how he loves “just wandering,” before adding the sentence: “Maybe you’re with a friend, and maybe the inefficiency will make you closer.” I worry friendship is the next territory of consumption and commodification, to the point where you can no longer simply wander with a friend, just to see what closeness might occur. When we have been alone in so many ways for so long, I worry that we run the risk of losing the ability to find value in one another organically, in the ways people know best. The small, daily inconveniences of life. The long run cut too short. The short run ventured long.

Those small inconveniences begin with the ordinariness of a friend asking if we can do an extra mile one day. It’s not that such acts end as bigger values, but rather that such acts are of value. So often, our actions are tied to outcomes that are said to be of value, but what if the actions — as ordinary and inconvenient as they sometimes feel — are the things that are of value? When I’m running with my friends, I often think of how incomprehensible it is that we are friends. I’m a teacher who wakes up early to read. One of my friends hasn’t read a book in years. And yet, because of how often we have moved together through inconveniences, how often we have breathed side by side, or how often one of us has paused while the other has tied a shoe or sprinted into a bathroom or stopped for a drink of water, we have learned the value of connection brought on by vulnerability, the love required to go by the same stopwatch while moving, sometimes, at different speeds, each of us with wholly different needs. My friend who doesn’t read still reads everything I write.

Perhaps one central question of our daily politics is what am I open to today? It’s why I love Ross Gay’s assertion in another essay, “Loitering Is Delightful,” that “laughter and loitering are kissing cousins, as both bespeak an interruption of production and consumption.” That interruption of production and consumption is central, I think, to our experience of meaning in life. Lately, my interruptions of production are solely my own. I teach remotely because of my surgery, my leg propped up and braced beneath my laptop. In breaks between classes, I walk with my cane to the bathroom. I come back. I sit down and pick up my cane and pretend it’s a shotgun. When I can’t reach something I blow it away. When I’m frustrated, I shoot a big hole in the wall. I browse various online communities and feel at once enthralled and alone. I read. I say the words aloud. No one responds. I crave a cigarette. I get back to work. In each of those actions, I am alone. I feel helpless alone and scared alone and at work alone. The thing about laughter and loitering is that we engage in such acts among people. And the thing, sadly, about production and consumption is that our culture has fashioned it so that we can engage in such acts alone, even when we are in a room full of people. We browse alone. We buy alone. We are so close to living and dying alone.

***

Prior to being injured, I ran with my friends Nick and Matt across the state of New York. It took a week. We averaged almost 60 miles a day, through towns I don’t remember, each day beginning with these dark, foggy river valley mornings that morphed into sweltering blacktop infernos. Perhaps, reading this, you might think that there’s some greater story there. Maybe you’re thinking he should write an essay about that. The truth is, the product of our run — all those miles — meant little compared to the sidetracks. The hours spent in the crew van with the AC on full blast, eating turkey sandwiches and waiting for the heat to die down. The bear we had to slow down for, letting the big guy cross the road and then worrying for miles about him bursting out of the tree line to devour us. The detour through Pennsylvania after we found out it was illegal to run on a state highway. The morning Nick tweaked his ankle and had to stop every mile, and how we tried everything — wrapping it, kissing it, rubbing it raw with our sweaty thumbs — to make the pain go away. And how the pain didn’t go away. And how Nick had to stop. And how we had to talk, for a long time, about how it wasn’t about the miles and the daily monotonous trot of progress, how it was about us. And how that was hard.

That conversation was hard because we were confronting the decision of whether we valued the sum of our experience — the cumulative miles run, the ability to say we ran across a state — or the dailiness of our experience, the time spent among one another. The truth is, it’s hard to value the latter, because our culture gives us no way to commodify that value. “If I am really / Something ordinary,” the poet Larry Levis writes, “that would be alright.” Our culture doesn’t agree. Saying that it was okay to stop was saying that it was okay to be among one another in a different way, that we valued the dailiness of our lives together more than being able to brag that we achieved some goal. It was hard, though. Because we had to learn how to say that.

A day after Nick stopped, I stopped, and only Matt ran on the final day, from Rochester to Niagara Falls. If I could have fashioned it in my mind, I would not have fashioned it that way. We would have all run together, the entirety of the state, with joy blitzing out the sides of our mouths. But when you are among people, even and especially the people you love, you don’t get to fashion it your way. And that’s okay. The beauty of people is that you become beholden to the fragility and waywardness of others, just as they are beholden to you. I know this because I have inconvenienced many a friend. I forget every birthday. I’ll take a week to respond to a text message. I used to get sad at parties and make people stand outside with me while I smoked. I don’t know how to drive. Everyone drives me everywhere. Being friends with me is like being friends with a tiny king who hasn’t found his kingdom.

The beauty of people is that you become beholden to the fragility and waywardness of others, just as they are beholden to you.

And yet, there are people who love me. Do you know how hard that was to write? So fucking hard. I deleted it the first time I wrote it because I was scared of saying it, as if those people themselves would walk through the walls of this room where I’m sitting and say no, we don’t and then disappear. I deleted it the second time, too. And the third. But there are people who love me. People willing to walk slow with me as I amble with a cane. People willing to try to run with me across a state. People willing to wait when I am late. People who send me things to read. People who read the things I write. People whose time I’ve wasted. People who ask me how I am, even still, even still. People, though, not products or machines. And there are so many people I love.

***

In an archived interview featured in the documentary WeWork: Or The Making and Breaking of a $47 Billion Unicorn, WeWork’s co-founder Adam Neumann says, “Through helping each other, we can become more successful.” It’s a relatively innocuous thought. And it makes sense. But when considered through the lens of a company that sold the very idea of community as a means of achieving economic value, it makes you, well, question everything. At the heart of the notion of co-working is the idea, quite simply, that if you gather a bunch of smart, hard-working people in the same glass-paneled room, you can commodify every aspect of their interactions. Their leisure time spent at the communal WeWork coffee shop could become a conversation that might lead to the next unicorn startup.

This isn’t dissimilar from an app like Peloton, where you can choose the experience of community that you prefer. In both options, people can be discarded if they don’t fit your own personalized idea of success, if the experience of being with others is not aligned to the best version of yourself, as Peloton’s mission statement puts it. In his letter to potential investors, Peloton CEO John Foley wrote that Peloton “prioritize(s) culture as much as any other business objective.” Prior to that, he wrote: “Peloton sells happiness.” What does happiness mean? Why does it need to be sold? Our society has been in the business of buying and selling such things forever. Why trust corporations to determine the value not just of happiness, but of community? When he left WeWork, Adam Neumann took a 1.7 billion dollar exit package while the company laid off many of its employees. Through helping each other, we can become more successful. Okay. Why not rephrase that? Through helping each other, we, simply, find value in each other.

The thing is, I don’t really care anymore about the best version of myself. That idea changes too much. It feels fickle. And the thing is, it often takes my friends to remind me that who I am is worth something at all. They see the ordinary parts of me that I feel, sometimes, are useless. “Saint friend,” Carl Adamshick writes in the opening poem of his book Saint Friend, “carry me when I am tired and carry yourself.” I have the book in my lap right now. It’s 9:43 PM. My girlfriend is asleep, and I’m listening to an album by Chuck Johnson, a slide guitarist whose reverb-washed instrumentals sound like you’re eavesdropping on the music director of a small hillside monastery as he plays something he thinks only God can hear. I keep the music turned low so it feels intimate, like it might be coming from another room, where someone else is listening to the same song as I am. Hi, imaginary friend.

I keep the music turned low so it feels intimate, like it might be coming from another room, where someone else is listening to the same song as I am. Hi, imaginary friend.

When I think of that phrase, Saint friend, I think of an ordinary weekday two years ago, when I called in sick to work. When I told him this in a passing text, my friend George asked if I had a thermometer. I said I didn’t, and he immediately took two trains to bring one to me. That was it. He came up my stairs, took my temperature, left the thermometer on the table, and went back home. I’ve been friends with George for years. We’ve done so much together, but I remember this the most. This inconvenience I caused him, and how it let him show his love.

When I think of that phrase, Saint friend, I think of my friend Hannah, who, when they heard I had to walk with a cane, brought me a miniature cane that they bought at a store that only sells tiny things. It’s 2 inches long. I have it right here between the fingers of my left hand. What value would such a thing have out there in the world where things are bought and sold? A clumsy mouse would break it. But I cherish it. It reminds me that someone cares. It feels sad that I need that reminder. But I do.

When I think of that phrase, Saint friend, I think of sitting with Nick and Matt, learning together how to say it’s okay to stop. It was a new phrase for each of our mouths. Tonight, sitting here and remembering that moment, it’s still a new phrase. It sits heavy in my mouth. It’s okay to stop. I’m not going anywhere right now. I’m pretty fucking immobile. It’s okay to stop. It’s still hard to say. But I owe it to my friends for helping me learn to say it. Adamshick writes that life is a “destination / different than expected. So many paths. / So many apologies. So much gratitude.” Our gratitude is cultivated in small ways. This tiny fucking cane that cannot help me walk makes me more grateful than the cane that does.

It makes me sad that there is a distinction between living and existing. That people have to place a “co” in front of a verb like working to highlight that it’s done with people. Living does not need to be qualified as time spent producing, time spent buying, time spent playing, or time spent planning. Living can simply mean time spent among. I find value in this. In the time spent among one another. Not just with, or next to, but among. To be among those who love us means to be among the all-ness of those who love us. To be among the dailiness of us. Our minor squabbles, our pettiness, our arguments and frustrations. It means to spend time. The kind of time, these days, that we are told is better spent producing or consuming. The kind of time, these days, that we are told is better spent alone. Maybe with. Maybe next to. Still alone.

If friendship becomes commodified and the experience of community becomes increasingly eliminated of the various intricacies of being among people, we lose the sometimes hard, sometimes surprising, sometimes fucked up, sometimes beautiful paths that are not simply the same path each day. Maybe we lose learning how to apologize. Maybe we lose learning how to say thank you. We lose, almost certainly, many moments of gratitude. We lose friends delivering thermometers. Tiny useless canes that end up meaning the world. We lose our various saint friends. Those people in our lives who carry themselves while they carry us. I don’t know what they’d be replaced by. I do, though. Fake high fives. Co-working spaces with glass-paneled offices. Product-driven social networks. Guided workouts attended by so many people, each in a room by themselves.

***

Prior to my surgery, when I would sit on my spin bike and choose the day’s workout, I considered the time I had to squeeze whatever effort I wanted out of the morning before the rest of the day’s tasks set in. Before I had to commute to the school where I teach. Before whatever commitment I made for the weekend, whatever augmentation of time, whatever penciled-in-thing. I said I am carving out space to be my best self, and then I put my headphones in, tilted my phone sideways to get a bigger screen, and sweated in isolated silence for an hour listening to a gesticulating, smiling person somehow bathed in the perfect amount of sweat offer mantras and congratulations and attempted joy to a few hundred or thousand people I did not see.

And yet, while on the bike going nowhere among people I did not know or hear or smell, I often imagined something else. I imagined being with my friends. Next to my bike, I hung a framed poster for the New York City Marathon, a race I’ve run now countless times, each time with the company of others. There was the time Matt came to New York from a wedding on a 10 PM train and arrived at my apartment at two in the morning, just a few hours before we had to leave for the starting line. We slept in the same bed, woke bleary-eyed and groggy, and stumbled to the train in the dark, and fumbled toward the start line in the just-arriving sun. I miss that moment. I cherish it. My current injury has an uncertain recovery. I don’t know if I’ll ever run a marathon the way I used to, or if I’ll ever run another marathon at all. But on the bike alone, in a digital room of invisible others, I never imagined myself alone. I never imagined myself without the company of my friends. I put them beside me in my mind. I could hear their breathing, the janky, staccato rhythm of a bunch of various footfalls. I could see us together, such strange and perfect companions, and how we felt beautiful.

That is what I miss about running. That is what I miss about my friends. That is what I miss about running with my friends. I miss the surprise of it. I miss the run we saw Hangover Duck, this red-eyed marvel of a bird who, depending on who tells the story, opened its mouth and said something different each time. I miss the run Ben introduced us to the leaf game, which began every fall and ended come December, when we could no longer sprint to catch falling leaves mid-stride. The run when Matt had to stop and really didn’t look okay and then we asked him, we said are you okay, and he said I’m okay, and then he was, he ended up being okay. Unbelievable. I miss what feels unbelievable. And the run Ben almost shat himself. I miss that. The run Julian and I got in a fight. I miss the run when a man washing his car sprayed us all with his hose. I miss each long run on a Sunday morning when no one talked for the first mile. I miss that silence, and what filled it: our bodies, still together. I miss the run before the funeral. There was that, yeah. And the run before the wedding. That, too. I miss the way the running — and all of its detours, its pit stops and unlaced shoes — taught us how to slow down for one another, how to have grace, how to find value in what we once thought had no value.

***

Devin Kelly is the author of In This Quiet Church of Night, I Say Amen (published by Civil Coping Mechanisms) and the co-host of the Dead Rabbits Reading Series. He is the winner of a Best of the Net Prize, and his writing has appeared or is forthcoming in The Guardian, LitHub, Catapult, DIAGRAM, Redivider, and more. He lives and teaches high school in New York City.

***

Editor: Krista Stevens

You Robbie, You Baka

Illustration by Zoë van Dijk

Brian Trapp| Longreads | April 2021 | 26 minutes (7,917 words)

 

At the request of the families involved, some names in this essay have been changed to protect privacy. It includes depictions of bullying and cruelty and contains language that some people may find upsetting.

***

When I first saw him, I thought for a second that it was my twin brother sitting in his wheelchair. It was the beginning of sixth grade, and I was on the dirty gym floor trying not to hyperventilate. I had just moved from a small Catholic school in Baltimore with a class of 25 gentle Christians to a large public school outside Cleveland, and our whole class was crammed into the gym for orientation. 

I spent the summer of 1994 studying MTV with my older sister, taking precise notes on how to be cool, and came that first day armed with a binder covered in band names written in black Sharpie: Mazzy Star, Red Hot Chili Peppers, Belly, Nirvana, The Crash Test Dummies. Never mind that I was thigh-chafingly fat and had boats for feet, wore surfing shirts hundreds of miles from any kind of ocean, and covered my bedroom in puppy centerfolds cut out from Dog Fancy magazine — I knew the names of cool bands, as if I could just walk up to a kid with a skateboard, whisper “Green Day,” and get invited to his house. 

Then, across the gym, I saw him sitting up high in his wheelchair, his wrists curved down like a praying mantis, his body stiff with cerebral palsy. He was skinny with choppy brown hair, his mouth pinched into a nervous grimace with an occasional smile. Just like my twin.

I’d hoped in the move that Danny and I could finally go to the same school, that I could give him wheelies down the halls, slip him high fives in between classes, use his dimpled smile to attract girls, and listen to him laugh when someone got in trouble. We could ride the bus together and play our call-and-response, where my brother heckled me with his version of my name and I gave it right back: “I-an! Danny! I-an! Danny!” I knew twins sometimes switched places and went to each other’s classes, waiting to see who’d notice the difference. With his severe cerebral palsy and bone-thin frame, no one would ever mistake Danny for me, though it would’ve been fun to try. I at least wanted my twin to be in the same building instead of an absence I always had to explain. But Danny — who in addition to CP had intellectual disabilities, was legally blind, and could only say 12 words — was deemed too disabled to be accommodated at my school, and was bused to a larger special ed program 30 minutes away.

So perhaps, in the gym, I was missing my twin and shocked to see this stranger where I wanted my brother to be. His name was Robbie Baka. I introduced myself and said “hi” to him a few times in the halls. Maybe I didn’t need the bands. Maybe, through my brother, I had found my first friend.

***

Initially, I thought Robbie was like my brother but upgraded. While their bodies shared a similar spastic choreography, Robbie could fully control his head, which he used to nimbly toggle his power chair around corners and down ramps, dodging classmates and desks as he navigated the middle school. While my brother was limited to “eh” for “yes,” “eh-eh” for “no,” and several people’s names, Robbie was fully verbal, and spoke with a squeaky voice grounded in his sinuses. My brother was almost all vowels, but Robbie could fit his mouth around every consonant, every “ch,” “sh,” “f.” My brother revealed his intelligence through the jokes he would laugh at or a well-timed “eh-eh!” but couldn’t, for instance, read a sentence or solve a math problem. Meanwhile, Robbie was in mainstream classes — he needed his aide to write and take notes, but he completed the same book reports and took the same tests as I did.

But I quickly learned Robbie was not cool. In the hallways, he sang Disney songs at the top of his lungs, belting out in his gratingly high voice “A Whole New World” from Aladdin. He lapsed into revelry with The Lion King’s “Hakuna Matata.” If he got started on The Little Mermaid’s “Under the Sea,” he would not stop. Then he’d somehow raise that voice an octave higher, and imitate his hero: “Whoo-hoo! Hey guys. It’s me, Mickey Mouse! Whoo-hoo!” If all that wasn’t awful enough, he was also a narc. He told on kids for saying bad words and throwing pencils into the ceiling. In his annoying nasal voice, he’d say, “Mrs. Schoffer, Nate threw a pencil!” Or he’d whisper to his aide, who passed up the intel to the teacher, a game of narc telephone. In the hallways, he drove recklessly, and would run over people’s feet without so much as a “sorry.” In choir, he shout-sang every song, ruining whatever harmony we had. And in history class, he’d derail the lesson to ask stupid questions: “Are there a lot of forests in China?” Sometimes his aide would raise her hand, and he wouldn’t even ask a question, saying, “Oh. Um. I forgot.” Only later did I realize that he was playing the heel, that he knew people like me thought he was annoying, and he wanted to annoy us even more. He wanted to run over our feet.

Robbie was one of the few physically diverse students at our school. In our grade of 130, there was one Egyptian, one Asian, and two Hispanics. Our only Black kid was adopted and swore he was Sicilian. Otherwise, it was an able-bodied white-out. Did I like thinking that the only visibly disabled kid in my school was insufferable? No. I wanted him to be as charming and funny as my brother but with all the words, to be one of the cool and witty crips you see on television nowadays: Speechless’ J.J., Special’s Ryan, or even that wheezy best friend from Malcolm in the Middle. But back then, they were not on television, and every time Robbie opened his mouth, I gritted my teeth.

Part of me hated Robbie for his abilities. What my brother could do with those functioning eyes, that coordinated mouth, that agile head. I rarely wished I had a “normal” brother. What I wanted were more opportunities for my actual brother to express himself: to drive his wheelchair where he wanted, to say, “Hey asshole. Shut up.” If Danny were like Robbie, he would just be more of himself. But what did Robbie do with his abilities? He was a rolling advertisement for Walt Disney. 

And part of me hated Robbie because I was terrified about my own social status. I barely talked that first year. A girl in my class nicknamed me “the silent dude.” If I was his friend, I would have to eat lunch with him and the kid who reeked, the boy who talked to himself and still played with Power Rangers, or the girl who got bit in the face by a horse. He was a dark star of unpopularity, drawing losers into his orbit. Contact with Robbie risked revealing the real me: the Brian with puppy centerfolds.

But no matter how much I hated Robbie, the cool kids hated him even more. Mostly, they ignored him, as if to say, Are you still here? Though sometimes the boys mocked him behind his back, strangling their vocal cords into high-pitched imitations and chopping their hands spastically against their chests. When he was alone on the bus, they bounced erasers and spitballs off his face. They wondered aloud whether, in addition to helping him urinate, his aide also helped him whack off.

At my Catholic grade school, when my friend said “retard,” I told him to stop. I told my mother, who told his mother, and then my friend called me sobbing to apologize. But here, “retard” was everywhere: “Why are you such a retard?” “God, are you retarded?” “You retarded retard.” “You el-retardo.” My generation loved the word “retarded,” using it as a catch-all for anything bad. It was the bottom. It was the worst thing you could be. And it was so fun to say. Maybe we liked how it rolled off the tongue: Curve back and then three quick taps on the roof of your mouth —  re-tar-ded. You could cut it up, remix it: Tarded. Tard. Re-re. Fuck-tard. At my new school, they said it so much that I got tired. I let it happen. I was the silent dude.

But here, “retard” was also Robbie. They made it personal. They said to each other: “You stupid Robbie. You’re such a fucking Baka.” In a twist of the penis game, they’d have competitions to see who could yell “Baka!” the loudest in a crowded room. “Baka! Robbie Baka!!!” In the end, I was relieved my brother wasn’t here. I didn’t want to find out what they’d do with his name. 

“Stop,” I said. “Don’t.” I defended Robbie from the worst of the bullying, but I would not beat up Jim for a thrown eraser or punch Phil for saying “you fucking Baka” every other sentence. I would not fight for him. Because even I found him annoying. If he were my brother, I reasoned, I would make them stop. If he were my brother, I would kill these kids. But he was not my brother.

***

In seventh grade, I brought a Sunny Delight bottle to lunch half-filled with vodka and finally made some friends. They were into cool bands, were in cool bands. We took guitar lessons together. We shared CDs. We smoked cigarettes. We smoked pot cut with pine needles. We slept over at each other’s houses and skimmed our parents’ hard liquor into foul brown tinctures we sipped from Schweppes bottles. 

If he were my brother, I reasoned, I would make them stop. If he were my brother, I would kill these kids. But he was not my brother.

They did not make fun of Robbie. They just felt bad for him. When they met my brother, I was terrified about what they’d think. Would they concentrate on his crossed eyes, his tight and wispy arms, his bony knees, his pastel dog-paw bib, the cavernous gape of his mouth, the string of drool rappelling down his chin? Would they think: Retard. Re-tar-ded. Or would they wait to discover the person in there who laughed when you burped or said the word “bathroom,” who flirted with their mothers, who heckled me with his version of my name: “I-an!”

They were nervous. “Hi,” they said. “Does he shake hands?” They picked up his stiff fist as if it would break. 

My brother, shy at first, flashed them a smile. They smiled back. “Yeah,” they said, breathy with relief. “What’s up, Danny?”

When we were alone in the basement, they asked me questions: What happened to him? Will he ever get better? Can he not talk at all? How much does he understand? How does he go to the bathroom? Do you have to change his diapers? 

With our pool table and my mother’s apple cake, my house became the preferred sleepover destination, and their curiosity developed into acceptance. I’d carry my brother down into the basement, where he’d lie on the couch and listen to us make fun of each other. When they’d catch him laughing, they’d say, “See, even Danny thinks you’re a little bitch.” 

They’d use him to rib me: “Danny, how can you stand your little brother?” and Danny would respond, “I-an!” like I have no idea.

“Oh shit,” they’d say. “He’s making fun of you.” 

We’d play with his adaptive equipment. We took turns torturing each other in his electric hospital bed, jacking up both head and feet, folding our victims into pretzels. We put each other in his Hoyer lift, the small portable crane my parents used to lift him, which held us six feet aloft in its netting and made us vulnerable to kidney shots from below. We convinced one of our friends that Danny’s Hoyer could understand English and would move up for “yes” and down for “no,” hiding the switch behind our backs. The Hoyer moved up and agreed. It thought our friend was a “fag.” When one of us bragged that he could escape from anything, we duct-taped him to Danny’s wheelchair and parked Houdini screaming in the middle of the road. Through it all, Danny smiled and laughed.

They did not treat him like Robbie. They said, “What’s up, Danny? You player. You pimp. You ladies’ man. Dan, you’re the man. Dan the man.” I felt proud to be his twin brother.


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***

While my friends seemed to accept Danny, my other classmates still called each other “retard” and “Baka.” I pretended it didn’t bother me but I held so much anger inside my body. I started taking kung fu lessons. I replaced the puppy centerfolds with pictures of bald and fierce Shaolin monks crouched with spears. I bought a heavy bag and punched the skin off my knuckles. In kung fu class, my classmates said, “It’s like you want to kill somebody.”

They were right. While training after school in my basement, this was my recurrent fantasy: I am pushing my brother at a high school football game, and we walk where the middle schoolers cluster and gossip below the bleachers. I push my brother past the boys who torment Robbie and they say the usual: “You fucking Baka.” But this time, they say it to my brother. 

Cue the violins. “What did you say?” I drawl, readying my fighting stance, tightening my grip on Danny’s wheelchair handles. I’m a pudgy David Carradine. “Say it again,” I say. “See what happens.” 

They surround us, and they say it: “You retards. You fucking Bakas.”

Techno music. My opening salvo: Launch a flying double-side kick from Danny’s wheelchair handles, followed by tipping his chair back for a “footrest of fury.” Then I step out from behind Danny’s wheelchair to snap-kick their knees, to upper-cut their ribs, to crescent-kick their temples, to dragon strike their faces (palm smashing nose into the brain, fingers raking eyes).

When they’re rolling on the ground, writhing in pain, when they know they’ve lost, the last one standing lunges for my brother, and I stop him with a flying kick to the solar plexus and grind my foot into the back of his neck until I hear his bones click. If they survive, they won’t even be mainstreamed like Robbie. They’ll be bused out with my brother, and somewhere in the back of their brain-damaged minds, they’ll be sorry. 

Then I’d come upstairs covered in sweat and chug a glass of milk, my real brother safe in his wheelchair with no idea how many classmates I’d just murdered for him.

***

In eighth grade, my friends and I started a band, with me as the lead singer. My voice was too high and I got kicked out. No hard feelings. We traded copies of Penthouse and porno tapes, wishing that actual girls would let us touch them. We smoked better pot without pine needles. We got older siblings to buy us beer with fake IDs. We snorted Ritalin in the library. We wore hemp necklaces and cargo shorts. We played hacky sack in the middle of town, where we spat and smoked and slouched. We participated in zero extracurricular activities and declared so many things “gay.” When we grew tired of being cool, we escaped into my basement and pretended to be Jedi knights with pool-stick lightsabers.

When my friends slept over on the weekends, they marveled at Danny’s new augmentative communication device, which looked like a chunky proto-iPad. A small speaker on his headrest whispered phrases into his ear and he chose his option by clicking a switch with his wrist. The computer announced in a scary robot voice: “My bro-ther Bri-an is an id-i-ot.” My friends cheered.

But sometimes at school, my violence would squeak out. Once, in the gym, I watched sixth graders pour through the doorway as Robbie and his aide waited for someone to let them outside for recess. “Excuse us,” the aide said. “Please.” No one would stop. 

“Wait,” I said. “Wait!” And still they streamed through. Finally, I stepped into the doorway and hockey-checked a boy onto the ground. The line halted. He stared up at me with tears welling in his eyes. “Why?” he asked. “Asshole!”

Robbie’s aide shook her head. “You didn’t have to do that,” she said.

Yes, I did.

One day at lunch, at the beginning of ninth grade, my friends stared across the cafeteria at Robbie eating Mexican pizza. They watched as Robbie’s aide fed him cut-up bites with a fork, Robbie’s mouth clumsily masticating as the pizza fell onto the napkin stuffed into his shirt. They watched Robbie as he coughed, as his face bloomed red and he struggled to breathe, as he took long swigs from his giant water bottle. 

“Ugh,” one of them said. “Can you imagine what it’s like to be Robbie?”

“I know. You can’t even hold your dick to piss.”

“To never whack off?” said another. “Or touch a girl?”

I got quiet and still. Another friend shook his head: “Dude, I can’t imagine.”

“Someone has to take you to the bathroom? You can’t even wipe your own ass. I mean, look at her feeding him. Fuck.”

“Yeah, I can’t imagine,” said another friend. They all shook their heads, united in this not imagining. My fist clenched. My stomach knotted. But I was silent.

“If I was like that,” my friend said, “I’d kill myself. I’d blow my fucking brains out.”

They all shook their heads in agreement. It was only now that I slammed my fist on the table. “Stop,” I said. “Shut up.”

I stood. “You say that about him, you say that about my brother.”

“Come on,” they said. “We’re not talking about Danny. Don’t be so dramatic.”

These boys didn’t yell “Robbie” in a crowded room. They were my best friends, kids who’d slept over my house every other weekend, who called my twin “Dan the man” and made him smile by whispering in his ear that his brother was a “pussy.” They stayed for dinner and watched my mother feed my brother the exact same way Robbie’s aide was feeding him now, and when my brother coughed food into their faces, they’d yell, “Dan, you got me!” while my brother laughed. They’d watched with curiosity as I changed his diaper and fed him ground-up pills suspended in a cloud of apple sauce. They’d sat in the soft foam of his wheelchair, tried it out on their own bodies, and competed to see who could do the longest wheelie. I thought these were moments of play, of joy, but now I knew what they were really thinking: If I were like you, I’d kill myself.

Standing there, I wanted to flip over their lunch trays and bash in their heads. I wanted to punch their throats, rake their eyes, break their necks. But most of all, I wanted to run away and cry in the bathroom, to find new friends who wouldn’t say such awful things, who wouldn’t even imagine them.

“You are,” I choked out. “You’re talking about my brother.”

Their faces softened. They looked down into the tortured landscapes of their Mexican pizzas. “Alright,” they said. “Sorry. Now sit down.”

What did I think would happen if I walked away? If I went to sit with Robbie? What kind of adolescent hell did I imagine for myself? It is so difficult at that age to picture yourself cast out from the group. You cling so desperately to that “we” no matter what it costs. All I knew was that I didn’t want to be back in that silent year, that lonely and singular “I” on that dirty gym floor, awkward and alone with my binder of cool bands.

So I sat down. I wasn’t dramatic. We moved on. The next time someone said “retard,” I didn’t even flinch. I said it myself.

You retard. You Robbie. You Baka. You brother. You twin.

***

The rest of high school was both better and worse for Robbie. His bullies grew less cruel or more sophisticated in their cruelty: They mostly just ignored him. But if kids no longer yelled “Baka!” or threw spitballs at his head, he also grew more isolated. His middle school friends matriculated to the more diversified subcultures of high school: the goths, the freaks, the math nerds. His parents stopped throwing him birthday parties after freshman year when only three kids showed up. Sometimes the only person sitting with Robbie at lunch was his aide. And Robbie struggled with the more advanced classes and needed increased accommodations, doing subjects like math entirely in the resource room with the special ed teacher. While no genius myself, I was on the pre-college track. We rarely had a class together.

He still loved to sing, but had trouble with the increased rigor of high school choir. He struggled to learn and pronounce the songs sung in Latin and Italian, though when they started to practice “Candle on the Water” from Disney’s Pete’s Dragon, he already knew every word by heart. The more serious singers resented Robbie for his off-key voice, how he seemed to shout-squawk the lyrics, how in their beautiful wall of sound there was always the crack of his voice. He held them back. When they traveled to state-wide competitions, they were thankful that Robbie stayed home.

They’d sat in the soft foam of his wheelchair, tried it out on their own bodies, and competed to see who could do the longest wheelie. I thought these were moments of play, of joy, but now I knew what they were really thinking: If I were like you, I’d kill myself.

One class I did have with him was 11th-grade drama, where I saw a different side of Robbie. There was a lip-synching assignment, which Robbie refused to fake. He sang “Daydream Believer” by The Monkees, his body exuberant as he spun and writhed around the stage to the beat. For the monologue assignment, he inhabited Hamlet in the famous “To Be or Not To Be” soliloquy, which he performed in a low strangled rasp that gave the words a doomed weight: “Nymph, in thy orisons, be all my sins remembered … .” During improv scenes, he couldn’t stop laughing. He seemed so happy to be performing. On stage, he was comfortable with himself in a way that I envied. Didn’t he know what people might think?

He once told a friend that he loved choir and theater because he liked to express himself; he liked pretending to be someone else for a while. Sure. But I suspect Robbie also liked inviting the audience’s eyes onto his body. When so many people either ignored him or stared at him against his will, up on stage he sanctioned that stare. Elevated and under lights, he was impossible to ignore. He invited us to look and listen, translating the characters into his own choreography. In the able-bodied white-out of our small town, here was his disabled body inhabiting our heroes. Here was the song in his mouth, no matter how much he mangled it, and no, mean girl, he would not shut up.

***

Our senior year, I got my wish. My twin brother finally came to school with me. For the past three years, he’d attended Rosemary Center, a specialized school in Cleveland for severely disabled students, but his teachers worried he wasn’t getting enough opportunities to work on his social skills. So for the first two periods of the day, he’d come to my high school for commons and choir, and then they’d bus him back to Rosemary Center in time for lunch. 

I developed spidey-sense. When he was in the building and I wasn’t with him, I tingled. I was a tuning fork for danger. I wondered: As his aide pushed him through the hallway, would the high schoolers whisper: Retard. Re-tar-ded. Would they imitate his moan? Would they chop their hands against their chests? Would they call each other, “You Danny. You fucking Trapp”? Would they take one look at him and think: If I were like you, I’d kill myself. I knew what my classmates had said about Robbie, and how easily their words could ricochet off his body and onto my brother’s, though I don’t think my brother threatened them the way Robbie did. Robbie was too close to normal — he dared to occupy their same space.

The tingle lessened when Danny was with me in commons, the free period in the cafeteria dedicated to socializing and homework. Robbie was also there but mostly sat in the front of the room, parked with his aide who loved to gossip with other teachers. He would always cheerfully greet my brother: “Hello, Mister Trapp. How are you this morning?” He was so nice and upbeat. He spouted inspirational quotes: “You can do it if you try!” At age 18, he still loved Disney, singing The Lion King songs and imitating Mickey Mouse, if a little less often. He told the kind of jokes found on popsicle sticks. I no longer thought Robbie was annoying. He just seemed immature.

We’d talk for a moment. My brother must have known Robbie was like him; he must’ve heard the spastic warble of his voice, saw with his limited vision the blurry outline of Robbie’s wheelchair. And Danny was the only student in a wheelchair Robbie would see all day. What would’ve happened if I’d let my brother linger? Would Robbie have become his friend? Maybe my brother would’ve liked Robbie’s popsicle stick jokes. Maybe the jokes were just an act, Robbie’s warm-up before he got to the dirtier ones, which Danny would’ve certainly liked. Maybe Danny would’ve called him “Eddie,” the name he gave to all his good male friends.

I didn’t give them a chance. Instead, I pushed Danny past him, into the senior lounge where we’d hang out with my friends in a carpeted corner with couches. Danny brought his Dynavox, his upgraded augmentative communication device. Like the old one, it scanned pre-programmed options across a plastic screen, but when Danny clicked, instead of the scary robot voice, it was me. Technology had improved so much that I could record his options into his computer, giving him my voice.

We asked, “Where’s the party at?”

We sang blues lyrics: “I want one bourbon, one scotch, and one beer.” 

We said, “Shit.”

My classmates gathered around, astonished at my foul-mouthed voice coming from his machine, my brother smiling from his wheelchair with his wrist cocked and ready to click another. 

From the computer, we said, “What’s up, bitches?” 

We said, “Hey girl, can I get your number?” 

We said, “Hey Thompson, you’re a fuck-face.” 

They howled with laughter. Even Ben Stanley, who had loved yelling “Baka” in a crowded room four years before, smiled at Danny. “That’s so bomb,” he said to my brother, and then to me: “You are such a badass.”

“Me?” I asked. “Why? My brother said it.”

“Right,” he said and winked.

But one day we got too close to Robbie and his aide, and my brother clicked, “Steve Cooper sucks balls.” 

Robbie rocked with laughter and said, “Mister Trapp, did you just say what I think you said?”

His aide shook her head. “Come on,” she said to me. “That’s not appropriate.”

“What?” I said. “Danny said it.”

She smiled at my gambit. “I see what you’re doing there.”

My brother laughed, knowing we were getting away with something. We were in trouble at school together like true twins.

But eventually, Danny’s speech therapist discovered our page, and we were busted. Our mother made us erase the most explicit options. From then on, she would monitor my additions. A year later, they erased me completely.

At 17, I had literally given my brother a voice, imagining what he would want to say. I knew my brother mostly through translation. Read his body language, listen to the tone of his “I-an,” analyze the context, and guess what he was thinking as “eh” or “eh-eh” options: “Do you want a milkshake? Are you mad at me? Are you sick of this song? Eh or eh-eh?” Through his Dynavox, I could finally lay down the tracks of his personality, and all he had to do was click himself into existence. 

And what did I do with this awesome power? I made Danny into a crude, potty-mouthed cartoon of a teenager, a mirror of my own ID. I programmed his computer to say “bitch” and “fag” without thinking about their relationship to the word “retard.” I’m not even sure my brother always knew what he was saying through the machine, though he certainly enjoyed his audience’s reactions. 

I knew what my classmates had said about Robbie, and how easily their words could ricochet off his body and onto my brother’s, though I don’t think my brother threatened them the way Robbie did. Robbie was too close to normal — he dared to occupy their same space.

For years, I’ve regretted that I treated giving my twin brother a voice as just another joke. But now I see what I did as a reaction to Robbie. I wanted Danny to be a counterbalance against Robbie’s cheerful Pollyanna personality, his squeaky-clean Disney songs, and his Mickey Mouse impressions. I wanted Danny to be funny and subversive. I wanted him to shock those who would pity him. I wanted my classmates to hear a disabled person say “fuck” and “shit” and “shut up, asshole.” I wanted him to make fun of them. And no matter what Danny really wanted to say, he obliged me. He clicked my version of himself out into the world.

In the end, we played the twin trick. We traded places and waited for them to notice. But to this day, I’m not quite sure if they mistook me for him or him for me.

And yet, despite my best efforts, I couldn’t keep Robbie and Danny apart. After commons, Danny joined Robbie in choir without me, adding his moans to Robbie’s squawks. Together they sang a duet against that beautiful wall of sound. 

***

After we graduated, I lost track of Robbie. I assumed he’d follow the path of most people at our high school: off to college, someplace like Wright State, an accessible campus with ramps and lifts, elevators and attendants where Ohio funneled its disabled students. I expected him to at least continue down the mainstream, for him to find gainful employment someplace with that agile head and coordinated mouth, where his coworkers would enjoy his cheerful presence but secretly wish he’d cool it with the Mickey Mouse impressions. I expected him to have a very different future than my brother, who aged out of the school system and moved on to a day program for people with disabilities at United Cerebral Palsy (UCP) in downtown Cleveland. 

On Christmas break my senior year of college, I went to UCP to visit my brother. In the workroom, among the line of people in wheelchairs, there was Robbie. He was still skinny but now had a buzz cut and stubble on his chin. “Well, hello there, Mr. Trapp!” His body seized in excitement, his arms clenching down. His voice was still grounded in his sinuses but it seemed a bit lower. He had become a man, just as I had. On a long white table were scraps of wood, plastic boxes with nails, screws, and containers of glue. There was a stack of square boards, each with a hole in the middle. They were packaging boxes for birdhouses. 

My mother had mentioned that Robbie was at UCP with my brother, that they actually rode together on the bus, but it was hard to believe. Wasn’t there something more he could do? They were both part of UCP’s sheltered workshop. They did “piece-work,” an absurd parody of work. Instead of earning a set wage, workers are paid “by the piece,” a salary commensurate with their productivity when compared to a “normal worker.” My brother, for instance, would click a hand switch that activated a paper shredder. At the end of the month, they’d mail him a check for 45 cents — negative 90 cents when you factor in the cost of postage and mileage for driving to the bank to cash the check. My mother asked UCP, “Can’t you just keep it?” They could not. 

Certainly, Robbie could make a better living somewhere in the community. Certainly, he could make minimum wage. He had been in the same classes as I was. What did he learn — why endure all the mocking and isolation — if he was just going to end up in the same place as my brother? Surely our high school had prepared Robbie for a different kind of life.

No, my mother said. Robbie had significant learning disabilities. He had health problems — asthma and gastrological issues — so here he was packaging birdhouses with my brother.

Robbie said he liked it here. “They treat me pretty good. Everyone is super nice.”

“I wouldn’t go that far, Robbie Rob!” someone else said from his wheelchair, and they all laughed.

Robbie squealed and said, “Don’t start!” He turned back to me. “And your brother has become a good friend.”

“That’s great, man,” I said. “I’m glad you’re doing well, Rob.” I shook his hand and went to the next room to visit Danny.

***

That spring, to save money, UCP contracted with a cheaper bus company. The bus was late. The bus broke down on the highway. The new bus driver barely talked to Danny or Robbie. A mouth breather, my mother said. He often called in sick, and then they’d send a substitute driver who breathed even more from his mouth. When the bus got a hole in its roof, they didn’t fix it. Once, when it was raining, my mother opened the door of the bus to find Robbie with a tarp draped over his head like he was a piece of furniture. Robbie was good-natured about it, but my mother complained: “You’ve got to be kidding me. Here’s a kid with health problems and you put a tarp over him?” They fixed the bus but not the drivers.

I wanted my classmates to hear a disabled person say “fuck” and “shit” and “shut up, asshole.” I wanted him to make fun of them. And no matter what Danny really wanted to say, he obliged me. He clicked my version of himself out into the world.

I was three hours away on the other side of the state, in my last term of college. If I felt the twin tingle, if I sensed my brother was in danger that afternoon, I mistook it for an overdose of caffeine.

The bus driver pulled into the UCP parking lot to take my brother and Robbie home. I know almost nothing about this man, just what my mother told me: that he was skinny and quiet and in his forties. I know he was polite to her but wouldn’t talk to my brother. I know he worked for a company that paid him the least it possibly could. 

When I imagine him that day, I see him drive into the UCP parking lot, past the brick columns at the front of the building. He’s wearing the bus company polo shirt, the insignia that his friends make fun of at the bar after his shifts, before his shifts. His life has not gone the way he wanted. Like all of us, he was once a child and briefly beautiful but now finds himself driving this bus, making chicken scratch working for the only company that would hire him, so bored with loading the cripples on-and-off, on-and-off, while their mothers eye him suspiciously from the lawns of their nice houses. Maybe on his good days, he makes the best of it: He has a picture of his favorite niece dangling from the rearview mirror; he blasts Fleetwood Mac from the blown-out speakers and taps out beats on the steering wheel; he sometimes turns to classical and practices deep breathing.

But today is not a good day. How much does he drink before he picks them up? He gets blitzed in the neighborhood on his buddy’s porch, passing a bottle back and forth as the bus idles on the curb. Or he drinks in a corner bar, trading stories and shots of whiskey and cheap tall-boys. Wherever he is, he stands up and is drunker than he meant to get but cannot be late again. Maybe he’s battled addiction his whole life and cannot have just one even though he’d like to be a responsible custodian of these vulnerable people. Or maybe he thinks: I don’t have to be sober for this. Look who I’m driving? If we get in an accident, it would be a mercy. If I was like that, I’d … .

He stops the bus in front of the one in the power chair, who is running his mouth, as usual, talking to the other one, who stares blankly into space. They have that pretty aide behind them. He puts the bus in park. As he makes his way to the back, the aide opens the side door, and he stares at her through the metal grate of the lift platform. He feels like he’s in a cage. The hydraulic motor whirs as the platform lowers down perpendicular to his feet. No more hiding. He steadies himself. She won’t notice. “How you doing, sweet thing?” he asks. He has never called her that before. Too far? Or not far enough? She glares at him and pretends not to hear. “Damn. No offense,” he says and laughs. 

The platform lowers down to the blacktop, its lip curling flat, and the boy with the big head and the powerchair loads first, backing himself onto the platform. Robbie Rob, they call him. The aide buckles the belt, and clicks the switch to raise him to the bus floor. He shoves the chair into its space, fetches the Q-tie-downs, and straps him in. God, he hopes the kid doesn’t start singing those Disney songs. It’s too much for a man to listen to for 35 minutes. The kid continues talking endlessly to the other one, who, as far as the driver has seen, is like talking to a pile of meat. But sometimes when he glances back in the rearview, they look like twins.

The aide eyes him suspiciously like those mothers on their lawns. OK. On his best behavior. He’s not that drunk. He stands up straight. The quiet one with the bitch of a mom who got him in trouble for the tarp is already on the lift, waiting. He walks to the boy and pulls him in. “Come on, buddy,” he says. It’s easier today. It’s easier like this.

After he straps the boy to the floor, he climbs down the front steps to sign the pickup sheet. Maybe it’s here where he stumbles. Maybe his eyes are too heavy, his cheeks too flushed. Or maybe the aide has seen the signs this whole time: the swaying in the doorway, taking too long to strap in her clients, the “sweet thing” come-on and jovial laughing, the tell-tale slur. Before this, she’d worked as a bartender and knows what to look for in a drunk. She knows how to defuse his demands for another, how to call him a cab, but she’s at a loss on what to do when he wants to drive her two disabled clients half an hour into the suburbs. Now that he is ground-level, she gets a good look and is sure. She can smell it. “You’re drunk,” she says.

He laughs. “What’re you talking about?”

“You’re drunk,” she says again. “Wait right there.” She turns and runs inside the building to get help.

It’s easier today. He climbs back in the bus, slides the door shut, and fires up the engine. She comes back out and screams “Stop! Call the police!” He hits the gas and guns it out of the parking lot, the wheels screeching as he lurches right onto 101st Street. But it’s only a block to the stoplight on Euclid where the cars stream past one-way, and in the rear view he sees UCP staff members sprinting down the sidewalk, closing in. He lays on the horn and nudges the bus out into the lane. An SUV swerves and honks, nearly clipping his bumper, but the cars behind it brake and beep as he pulls the bus into the lane. There. Thank God. He drives straight, his hands at ten-and-two. He watches the UCP polo shirts grow tiny. He’s done it. He’s gotten away. Easy.

Except Robbie Rob, the one in the power chair, will not shut up. He’s been screaming since they left the parking lot. “Stop! You heard her! Stop! Pull over!”

“Quiet back there,” he barks.

“I heard her. You’re drunk! You’re drunk and you’re driving us! You’re drunk driving! Pull this bus over right now!”

The kid is thrashing in his chair, his face turning red. And now the other one starts, his teeth gnashing: “Ehhhh-ahhh-ehhhh.”

“Shhhh,” he tells them both. “That’s enough.”

He stops at the next light. He acts like everything is normal. He’s pointed the wrong way, going deeper into the city, at 95th Street, down in numbers, not up. He’ll have to turn around. He’ll drive the cripples home and pretend it was just a misunderstanding. He will nod to their mothers. They’ll have no idea. 

The light turns green and he hits the gas. “I’m taking you home, fellas. Relax. That woman was crazy.” He looks in the rearview mirror. Robbie Rob isn’t buying it.

“You think we’re idiots? Fuck you! Pull this bus over right now!” 

So the Disney kid can curse. He didn’t think he had it in him. He calls back, “You want to go home, don’t you?” He feels bad about the veiled threat, but that shuts the kid right up. He turns down a side street and goes east down Carnegie Road, finally in the right direction. “Don’t worry, gentlemen,” he says. “I got you.” He’s feeling good again. It’s easy. But then he swerves a little too much into the left lane and the cars honk. He needs to concentrate.

“You bastard!” the one in the powerchair yells. “Pull over right now, you bastard! Let us off!” The driver grits his teeth. That voice. How can one kid be so annoying? “Stop! Ahhhh!” the kid yells. He will not shut up. He will not give the driver a break.

The kid is yelling so loud that the driver doesn’t notice the sirens. But as Robbie pauses to take a breath, the driver hears the whoop whoop, sees the red and blue flashing in his rear view. “Fuck,” he says. It’s hospital security, the Cleveland Clinic police. They’re not real cops, right? He needs time to think. He could run the lights and speed through the intersections. He could barrel down side streets and ditch the bus in an empty parking lot. He could disappear into the city. And yes, there is a chance he could wreck the bus, that he could smash into another car and end up dead or maimed, not to mention what could happen to his passengers strapped to the floor. Their wheelchairs would not do well with the g-force, their skulls rattling against their headrests. If he overturned the bus, they’d hang from the ceiling like bats.

It could also be so easy. All he needs is to concentrate. All he needs is a little silence. If it was just the other one, the quiet one, he could do it. He could get away.

But the loud one will not shut up. The siren seems to make him worse and he’s thrashing more than ever, practically foaming at the mouth, and now the other one is moaning and for Christ’s sake they will not shut up. That Robbie Rob seizes with rage as he screams: “You bastard! My dad is gonna sue your ass, you bastard!”

And suddenly the driver wakes up to his own life: He is running from the cops in a short bus. He’s very drunk, and he’s kidnapped two disabled men in wheelchairs. And Robbie Rob, so annoying with that nasal voice, is right: He is a bastard. This is what a bastard does, and he is not a bastard. So he slows the bus and pulls off into a side street. He puts the bus in park, raises his hands, and waits.

When the cop opens the door, Robbie is still screaming: “You bastard! You fucking bastard!”

My whole life, I dreamed of protecting my brother. I would be there to put my body in between. I would be there to fight for Danny, to save him. But when my twin brother’s life was truly threatened, when a drunk man was speeding a bus down a Cleveland street with my brother in the back, it was Robbie, not me, who protected him. I cringe to think what would’ve happened if it had been just my moaning brother in the back, with the driver unable to interpret his sounds: What’s happening? Please stop. I’m scared. But there was Robbie being so annoying, yelling in that grating voice grounded in his sinuses, refusing to shut up. It was Robbie who fought for him. It was Robbie who may have saved my twin’s life.

***

When Robbie died five years later, I was away again, this time at grad school. My mother and brother went to his funeral. He’d passed away in his sleep. It felt incomprehensible that Robbie would die before Danny. With those functioning eyes, that coordinated mouth, that agile head, he seemed set up for one long life. But there he was, ashes in an urn. My brother was having his own health problems and my mother felt like she was attending a dress rehearsal for the death of her own son. She was right: My brother would last two more years, until the age of 28, one more year than Robbie’s 27. Now they’re both gone, twins in death, riding that bus together into the unknown.

I wonder, on those long rides home from Cleveland, if my brother ever called him “Eddie,” if he used it to heckle him when Robbie would light into his fourth Disney song that trip, or gush about their cute coworker with the long red hair, or for the second time that week ask him, “How can you tell a vampire has a cold? He starts coffin.” Maybe when I wasn’t watching, Danny learned to fit his mouth around the “r” and the “b” and added another word into his repertoire. I wonder if they passed each other’s names back and forth: Rob-bie. Danny. Rob-bie. Danny.

***

When giving directions, I have heard that instead of saying “hang a right,” the boys who tormented Robbie, now almost middle-aged men, sometimes say, “hang a Robbie,” a cruel artifact from their childhoods, an almost affectionate tribute to their tormentee, who by that time had been dead for almost a decade. After 25 years, his name was still a thrill to say out loud, to map the world with, to drive in its direction.

As I work on this essay, I write Danny’s name. I write Robbie’s too. As I approach the end, I feel terrified, like I’m that lonely and singular “I” again on the dirty gym floor, but instead of my binder of cool bands, I have this essay with their names. I want to retreat into silence again. I wonder what audience I’m writing for, if I’m still holding onto that “we” no matter what it costs. When you read their names, do you pity them? Do you secretly think: Retard. Re-tar-ded. Do you laugh along with my scenes of joy, of play, but really think: “If I was like that, I’d … .” Or can you imagine? Do you have a brother like mine? Do you look like my brother?

You Robbie. You Baka. You Brother. You Twin.

***
Brian Trapp is a fiction and creative nonfiction writer who has published work in the Kenyon Review, Gettysburg Review, Narrative, Brevity, and Ninth Letter, among other places. He teaches at the University of Oregon, and will be a 2021-2022 Steinbeck Fellow at San Jose State University.

Editor: Carolyn Wells 

Illustrator: Zoë van Dijk

Sensitivity reader: Ian Markauskas

Crosby, Stills, Nash & Young’s Lost Album, Human Highway

CSNY, January 1, 1970. (Photo by Michael Ochs Archives/Getty Images)

David Gambacorta | Longreads | March 2021 | 15 minutes (4,190 words)

They needed a song, but not just any song. It had to be a throat-clearing, lapel-grabbing, hey-what’s-that-sound number that could open what was shaping up to be one of the most anticipated albums of 1970: the debut of the super group to end all super groups, Crosby, Stills, Nash & Young. “We don’t have that song where you know that a listener will not take that needle off the record,” Graham Nash told Stephen Stills sometime in the fall of 1969, after they’d already labored for countless hours in a recording studio in San Francisco. “We need that song where we’ve got them from the very beginning.”

Nash, a skinny, shaggy former member of the British group The Hollies, and Stills, a soulful, straw-haired survivor of Buffalo Springfield, knew plenty about grabbing listeners by the ear. A year earlier, they’d discovered — at Joni Mitchell’s house in California, maybe, or Cass Elliot’s, no one’s quite sure — that they could create heavenly harmonies with David Crosby, the ex-Byrds singer who wore a droopy mustache, and the amused grin of a man who was in on some cosmic joke. They released an album, Crosby, Stills & Nash, that was filled with instant classics like the soaring “Suite: Judy Blue Eyes.” Then, at the urging of Ahmet Ertegun, the owlish Atlantic Records honcho, the trio turned themselves into a quartet, adding — with some reluctance — Neil Young’s reedy voice, barbed-wire guitar playing, and unpredictability to the mix. After the four of them played in front of 400,000 swaying, stoned people at Woodstock, their own concerts started to take on the feel of what Rolling Stone described as “mini-Woodstocks” that unleashed “effortless good vibes.”

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