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Out There I Have to Smile

Illustration by Ashanti Fortson

Heather Lanier | Longreads | March 2021 | 16 minutes (4,473 words)

 
A few years ago on a gorgeous June day, I found myself in a windowless bathroom with forget-me-not wallpaper, my butt on a toilet, without any good reason to be there. It was a standard mothering move. Beyond the door, I could hear my two small kids laughing and eating cereal, so I stayed in this little space, smartphone in hand. In an hour, I was headed to a bowling alley with my kids, both of whom could now walk through a doorway on their own. And this was a brilliant new development, not just for the 2-year-old who’d learned to walk at the standard age, but for the 4-year-old, Fiona, who’d spent the past three and a half years in physical therapy striving toward this lofty goal. Forty-five percent of people with Wolf-Hirschhorn syndrome walk, said the report when I first got her diagnosis. Her ability to walk meant I no longer had to consider wheelchair or stroller accessibility. Her ability to walk independently meant she could navigate the tight turns around a bowling ball return without having to steer a clunky walker. So I was taking my kids bowling, as soon as I stopped pretend-peeing and reading on my phone.

I was reading a friend’s blog post about a recent appointment with her counselor. As soon as she mentioned her son, who has the same chromosomal syndrome as my daughter, she began to cry. 

The therapist asked, “Why do you always cry when you talk about him in here?” 

In here was the therapist’s office, maybe a subdued room with sage walls and elephant statuettes. Out there, my friend pushed her 4-year-old son in a wheelchair. 

My friend looked up at the ceiling a moment and thought. Why do I always cry when I talk about him in here? The answer hit her, and she sobbed. She managed this sentence, eked out between heaving breaths: “Because … out there … when I’m talking … about him … I have to smile.”

I put my hand over my mouth. The windowless bathroom. The forget-me-not wallpaper. I burst into tears. 

* * *

For bodies that don’t fit into a certain mold, for bodies we call disabled, out there can be a treacherous space. Out there has steps where you need a ramp. Out there has strobe lighting that could make you seize. Out there writes stories over your body (she’s sad, broken, wrong) when you just need toilet paper. 

For parents of kids with disabled bodies, out there can be exhausting. It maintains chipper myths about babies that your child breaks. What’s with that feeding tube? It tosses questions at your feet like it’s throwing you something between flowers and rotten fruit. Why’s she so small? What happened? What’s wrong? You answer with a smile, or you answer with fatigue, or you turn your head because none of your business

Out there is risky. Your son might sit in a classroom led by a teacher who doesn’t believe he can learn. Or your daughter might need medical care from a doctor who thinks she’s a tragedy. 

Out there is inconvenient. The doorway isn’t wide enough for your adaptive stroller. The wood chips of the town’s only playground are terrible for wheelchairs. The librarian concludes public story time with a craft that requires scissors, and you must now serve as your child’s occupational therapist, back hunched, palms sweaty, enabling the arduous work of cutting paper.

Out there is not exactly designed for your kind. 

* I use both person-first and identity-first language in this essay. As a nondisabled person, I don’t have a right to claim an identity for someone, so I err on the side of identity-first language until I know a person’s preference — and my daughter hasn’t indicated one. I also use identity-first language to stand with disability activists who argue that linguistic acrobatics to avoid the word “disabled” are a manifestation of our culture’s ableism. We do not say, for instance, “I am a person with femaleness.” #saytheword

As a white, straight, cisgender, non-disabled woman, I must imagine how this sentiment holds true for other bodies. My experience as a caregiver to a kid with disabilities* has put me in the closest relationship to this truth. Out there is not designed for many. 

Which is why in here spaces are so delightful. And it’s why, especially in early parenting, I often lingered in them for longer than I needed. Idling in the bathroom. Struggling to leave the house. In here applies little pressure. In here asks no questions. In here often lets you and your kin be as you are.

In preschool, my daughter Fiona walked stiltedly. Her gait was not the smooth coordination of typical preschoolers. She slapped her right foot down, and her left foot followed pigeon-toed, afterthought more than intention. She sometimes held her arms out, and because she was nonverbal, she said, “Ahh, ahh,” plowing toward whatever caught her eye. When we were out there, people sometimes looked at her because she was adorable and magnetic and thrilled by life. And sometimes people followed her with a calibrating gaze. I could tell that they weren’t admiring the cuteness of youth but instead trying to answer the question, What’s wrong? 

“You’re lucky,” a pediatrician said to me during a routine checkup. “At least you know what’s wrong. Some parents don’t even know that.” He looked up from my kid, his eyes sharp with intensity, and nodded. “You know what I mean?” But it wasn’t a question. 

Nothing is wrong with my girl, I wanted to say.

No, of course not, the doctor might have corrected. Inside he’d likely think, Yes, of course there’s something wrong, and then he’d recite the long list of diagnoses in her medical file: epilepsy, hypotonia, hydronephrosis, scoliosis, developmental delay….

Things her medical file has never listed: loves coloring, loves cheese, rocks a Converse sneaker, appreciates jalapeños, finds the beat, will increase speed tenfold for a turn at the swing.

Wrong can slide too quickly into another concept: tragic. There’s a prevalent Hollywood cliché (which bears no resemblance to real-life statistics) that disabled people wish to die. I didn’t need a child with Wolf-Hirschhorn syndrome to spot this cliché; I’d noticed it years before I had Fiona. Million Dollar Baby: a female boxer triumphs in fight after fight only to break her neck, end up quadriplegic, and ask her coach to help her kill herself; he obliges. Me Before You: a grumpy guy in a wheelchair is hell-bent on committing suicide, then falls in love with his caregiver who tries to show him that life is worth living. He kills himself anyway, because, well, you know, wheelchairs. The films are dramatic expressions of the old, ableist assertion that I’d rather die than live like that. 

What I didn’t realize until having Fiona is that if a person is intellectually disabled, a parent’s feelings often become a barometer for their kid’s worth. What my friend and I have known, without ever knowing we’ve known, is that our culture judges the worth of our kids by judging our contentment. I hadn’t named this until I sat in the bathroom and read my friend’s blog post on my phone, but along with all the obstacles to surmount or circumnavigate or abandon, out there obliges us to offer our cheer. Are we happy? If so, then maybe the lives of our children aren’t tragic. Out there I have to smile. 

* * *

In The Spirit Catches You and You Fall Down, Anne Fadiman tells the story of Hmong child Lia Lee, who has severe epilepsy. It’s a highly lauded book, and for good reason. But midway through, Lia suffers a massive seizure, nearly two hours long, and goes from a happy, hyperactive child to a  mostly unresponsive quadriplegic. “Vegetative state,” the doctors said, and I cringed, eager for Fadiman to take the phrase to task. Because Fadiman had thus far done a beautiful job revealing the cultural biases of both the Hmong family and their Western doctors, I figured she’d unveil the ableism inherent in ever likening a human to a carrot or a beet. I thought of Martin Pistorius, who spent 12 years in an unmoving body that doctors assumed was also “as good as not there, a vegetable,” but as he says years later in his TED talk, “I was aware of everything.” 

Fadiman fails here. She doubles down on the doctors’ sentiment, offering this description of patients in so-called “vegetative states”: “pasty-skinned carcasses with slack mouths, hair like straw, bodies that smelled of urine even after they were bathed.” Carcasses. The word cuts. It describes shells in which humans once lived. It should not be used to describe actual humans, still living. Fadiman agrees with the family when they think Lia’s soul is gone.

At this point in the story, Fadiman pivots to the mother, oh the mother, and how she adapts to her child’s altered life. Fadiman paints some beautiful portraits. The mother lovingly washes her daughter once or twice a day. The mother wears her daughter in a hand-embroidered cloth carrier. The mother feeds her daughter spoonful after spoonful of rice and then kisses her rice-covered face. “Sometimes I thought: this is not so terrible,” writes Fadiman. Mid-page, I thought Fadiman might lean toward valuing Lia’s new, altered life. Admittedly, she’d do so through the trope of Lia’s gifts to nondisabled people. Look at how much love she brings her family. But gift is certainly better than carcass. 

Instead, Fadiman pivots: “But whenever I began to be lulled by this relatively rosy picture, I was drawn up short by an explosion of rage from [the father] or, more frequently, by a sudden seepage of grief from [the mother].” The parents’ feelings tip the scales. Fadiman can’t see the value of Lia’s life if it brings not just love but suffering, if caring for Lia is not just a tender and physical act of love, but also a grief-stricken, arduous job.

Out there we all have to smile. 

* * *

Happiness is an encouraged performance in America whether you’re disabled or not. By analyzing photographs, Stanford psychology professor Jeanne Tsai found that U.S. leaders are over six times more likely to display “open, toothy smiles” than Chinese leaders. This same smile, what Tsai calls “the sign of American happiness,” also appears more frequently in American children’s stories and women’s magazines than in East Asian counterparts. “A lot of immigrants have talked to me about how exhausting it is being in the United States,” she told NPR reporter Maiken Scott of The Pulse, “because you have to smile all the time.” 

But the stakes of that performance are higher for disabled people and their caregivers. Princeton ethicist Peter Singer has kept his job even after arguing that parents of disabled babies should have the right to kill their kids. Because people with disabilities cause too much suffering, he says. 

The birth of a child is usually a happy event for the parents. …  It is different when the infant is born with a serious disability. Birth abnormalities … turn the normally joyful event of birth into a threat to the happiness of the parents and of any other children they may have.

Parents may, with good reason, regret that a disabled child was ever born. In those circumstances, the effect that the death of the child will have on its parents can be a reason for, rather than against, killing it.

Singer, whose book Practical Ethics is in its third edition, at one point suggests that his argument about murdering babies applies to disabilities that make a child’s life “so bleak” that it’s “not worth living.” (How would anyone determine a life “not worth living”? And who gets to decide such a thing?) But then he argues that hemophiliacs too could be justifiably killed in infancy because a woman will only have so many children, and the hemophiliac child might prevent her from having another, healthier baby. “It is … plausible to suppose that the prospects of a happy life are better for a normal child” than for a hemophiliac, he writes. 

I think of my college roommate, a gregarious extroverted gay man who competitively roller skated and also had hemophilia. While he blasted Latin pop through our kitchen and danced with joie de vivre and sang into a spatula, I, the “normal” non-hemophiliac person, brooded in my room to the tune of melancholy female artists like Tori Amos, while writing poems about romantic angst. Certainly, disability doesn’t determine happiness. 

What I didn’t realize until having Fiona is that if a person is intellectually disabled, a parent’s feelings often become a barometer for their kid’s worth.

But the bigger issue is this: Why should a person’s happiness — or lack thereof — be used in proving their right to live? And it’s not just Singer who delivers this message. Here’s disabled writer Nancy Mairs on the subject, from “On Being a Cripple”: “In our society, anyone who deviates from the norm had better find some way to compensate. Like fat people, who are expected to be jolly, cripples must bear their lot meekly and cheerfully. A grumpy cripple isn’t playing by the rules. Early on I vowed that, if I had to have MS, by God I was going to do it well. This is a class act, ladies and gentlemen. No tears, no recriminations, no faint-heartedness.” 

You’ll hear parents of kids with disabilities negotiate this pressure to be happy all the time when they describe their children. “He has Down syndrome, and he’s nonverbal,” a father will say, “but he’s happy!” Or a mother will say, “She has cerebral palsy, and she doesn’t walk, but she’s brought us so much joy!” We can’t fault the parents. They add this caveat of happiness because they know it carries necessary currency. 

But this can be exhausting. It turns happiness into a rhetorical strategy, and makes the faces of disabled people and their caregivers a walking argument that should never have to exist in the first place. 


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* * *

During Fiona’s second year, I started a blog called Star in Her Eye. I wrote it because my child’s eyes were bursting with divine luminescence, and yet an unsmiling pediatrician called her a “bad seed.” I wrote the blog because parents at playdates were talking about babyproofing their outlets, and I was talking about the interesting sculptures at the cardiac unit of the children’s hospital. I wrote it because my girl was coming up with ingenious ways to communicate despite her verbal limitations, and yet because she didn’t babble, an early interventionist declared her “at zero.” I was in a very different field of parenting than the baby books described, and I needed to find my people. I also needed to write about ableism — how I was encountering it, how I was exhuming it from myself. A deep and abiding ethics guided my decisions about what to write and how, but I always wore the weight of my words. Tell too much of a certain kind of a truth, and I could risk further deepening the pervasive story that kids like mine were the B word: burden. 

In December 2015, three years into the blog, the disability-themed online venue The Mighty published a satirical article called “Introducing: Meltdown Bingo.” In it, an autistic parent of an autistic child used a bingo card meme to make light of her son’s meltdowns. Readers were rightfully outraged, blasting the article for objectifying a kid’s suffering. (It was eventually taken down.) Critics also noted The Mighty’s slant toward publishing, as blogger Savannah Logsdon-Breakstone put it, “warrior mommy blogger content … focused on bemoaning how hard it is to parent a child with a disability. … This is a dangerous narrative.”  

The outrage fueled important conversations about disability representation (#CrippingTheMighty). But articles also popped up admonishing parents for writing about their kids at all. In an article published soon after, the advocacy website Ollibean suggested that parents should not write about their children if they aren’t able to offer consent, a principle that would eradicate the stories of certain intellectually disabled people, pushing them and their caregivers — disproportionately women — to the unwritten, invisible margins. During the years that I wrote the blog, Fiona could not offer me consent, and one of the things I often wrote about was our very efforts to help her communicate so she could loudly disagree with me. But that took time — many years with therapists and a speech device.

The challenges of parenting a disabled child — “the prejudice and ableism, fighting systems for an equal education, equal and accessible medical care, accessibility, insurance coverage for a new wheelchair or communication device,” the Ollibean article noted — are injustices built into a system that needs to change. This is 100% true. But the quote fell under the subheading, “It’s Not Your Disabled Child, It’s the System.” In other words, parenting a kid with disabilities isn’t ever hard because of the inherent difficulties of a disability. 

It was not hard, for instance, taking my infant daughter to a swallow study (to make sure she wasn’t dying from her own spit) and two kidney reflux exams (to make sure these vital organs weren’t at immediate risk of failure). It was not hard spending four years helping her learn to walk, or three years helping her tiny, fine-motor-limited fingers navigate a robust communication device so she could tell us what she wanted to eat. Likewise, it was not hard when my husband and I hovered over her body as she jerked in convulsions, her eyes pried open by erratic brain synapses, and it was not hard to check the clock while we did this. More than five minutes, and a seizure can cause brain damage. 

Of course it was hard. Or, it was not hard because hard is the word we use to describe cellophane-wrapped candy, while this is blade-sharp, a knife slicing through the gut. 

But if we can’t say it was hard, then how can we affect any change that would help people in power understand what kind of support we might need?

And yet, if I do say it was hard, then I am fueling, as Logsdon-Breakstone put it, “a dangerous narrative.” I’m risking the chance that people will see my kid, my glorious beautiful curly-haired feisty stubborn rascal of a kid, and think, That mom’s unhappy; that kid’s life is tragic

Tell too much of a certain kind of a truth, and I could risk further deepening the pervasive story that kids like mine were the B word: burden.

My facial expressions out there are territory over which ideologies are fighting. My emotions out there have rhetorical power. And I will use everything I have to argue that my kid’s life has equal value to anyone else’s.

So I’ve smiled. Especially in those early years, I smiled at the nurse who called my kid’s name in the waiting room. I smiled as she led us to a room for X-rays. How cute, she said to my 38-inch 5-year-old in purple hospital jammies. I smiled after I unfolded Fiona’s walker with a loud click at the library, eliciting stares, and I smiled while the teacher talked me through Fiona’s low report card scores. 

It wasn’t a conscious thing, the smiling, until I read my friend’s story while sitting in the forget-me-not-wallpapered bathroom. But when happiness becomes a rhetorical move, it’s a lot less fun than regular happiness. “The freedom to be happy,” writes Sara Ahmed in The Promise of Happiness, “restricts human freedom if you are not free to be not happy.”

* * *

In “Special Olympics and the Burden of Happiness,” Lawrence Downes of the New York Times argues that Special Olympics doesn’t give itself the freedom to be unhappy either. Downes describes the hours-long medal ceremony at the 2015 World Games as a “cascade of triumphant moments” and a “carefully thought-out strategy” where music swells and the crowd cheers as athletes receive their awards. According to Downes, the organization intentionally uses joy as a rhetorical strategy to advocate for the healthcare, education, and other rights of people with intellectual disabilities. The article acknowledges the global plight of people with intellectual disabilities, many of whom are denied an education, sequestered in institutions, and suffer abuse and neglect. If Special Olympics is trying for a revolution of sorts, “its revolution is televised, happily,” writes Downes, “on ESPN.”

But Downes subtly critiques the efficacy of this strategy, calling Special Olympics “an organization so good at making its athletes and the public happy, so bursting with good will and smiles, that nobody has to take it seriously. It has waged a nearly 50-year battle for inclusion and acceptance for people with intellectual disabilities, and people still think it’s a track meet.”

In March 2009, President Obama told Jay Leno of The Tonight Show about his recent bowling score of 129. “It was like Special Olympics or something,” he said with a laugh. Before the show even aired, he was on the phone, apologizing to chairman Timothy Shriver. According to Shriver, Obama invited the athletes to the White House to school him in the sport and “help him improve his score.” If the silence in news reports is any indication, the match never happened.

* * *

Our bowling match did happen. I eventually wiped my tears and left the in here space of the forget-me-not bathroom. I drove my kids to the bowling alley, parked the car in a blue-painted spot, and hung the handicapped placard on the rearview mirror. One by one, I hauled my kids out of their car seats. I held their hands as we crossed the parking lot. I opened the glass door for them, and in they walked. Right through the door.

When we got into the lobby, my heart sank: The lanes about 50 meters ahead were dark like a nightclub. Red and blue and yellow laser beams flashed across the floor, the ball returns, the scoreboards, and the seats. Pop music blasted from above.

From the shoe rental desk, my friend Kristy, Fiona’s godmother, came to us with a worried expression. “I’m sorry,” she shouted over the music. “They just turned them on.”

I exhaled. Kristy had called in advance to be sure, and the guy on the other end had said no, they didn’t do laser bowling during the day. 

I paused, standing near the entrance, trying to figure out what to do. “It’s not like she’s had seizures from strobe lights before,” I said, recalling the EEG where a technician flashed a light in Fiona’s face and measured her brain waves. “It’s just … it’s a risk.” Further inside, I watched the laser lights spin around, casting erratic, broken-up rainbows. New seizure triggers can emerge without warning in people with Wolf-Hirschhorn syndrome.

We rented our shoes and paid for a lane. The red and blue and yellow beams swirled around us. Miley Cyrus blared. “You wanna go first?” Kristy shouted two feet from my face. Any farther and I wouldn’t have heard her. Her teeth glowed white from the blacklight. I went after Fiona, who was toddling down the lane, ready to walk its length. The bottoms of her Converse sneakers glowed. 

The place was mostly vacant. Had anyone seen us in the dark, they would have seen two adults and two kids having a leisure afternoon. They would have seen the adults center a kiddie ramp at the top of the lane and help the kids push their balls down the ramp. They would have seen the balls make their slow-rolling treks toward the pins and knock a few down. Yay! the onlookers would have heard Kristy and me say as we clapped. The kids sometimes clapped too, and sometimes turned around unfazed, heading for another spot in the darkness.

These onlookers probably wouldn’t have seen my furrowed brow, or my eyes, straining in the dark, to assess whether my daughter was having myoclonic blinks or jerks. They wouldn’t have seen me silently curse this bowling lane for turning a fun outing into a shitty, stressful event. 

Neither would they have seen Fiona seize, because — thank God — she didn’t. And they probably would not have seen me smile much, either. But if I had smiled that day, it would have glowed bright as an incandescent bulb. 

* * *

In the summer of 2020, I published a memoir, Raising a Rare Girl. How could I write a book about Fiona that avoided the trap of the “my kid’s so happy” narrative? Because it turns out, my kid is happy — often exceedingly so. Fiona, now age 9, has way more joie de vivre than me. Though not yet a swimmer, she plows her body into ocean waves and screams with delight. She yawps for joy at the mention of Kit Kats. She is really, really stoked to go for walks around the block. She and my old college roommate would get along smashingly. And yet a story that emphasizes the “look, my kid is happy!” narrative would lodge her right into the very pressure Nancy Mairs identifies: “In our society, anyone who deviates from the norm had better find some way to compensate.” 

And how could I write a book that also avoided the “my kid is so hard” narrative? Because that’s true, too.

I tried to write a book that showed my daughter’s inherent value — and our culture’s denial of it — whether she was happy or not. I ended up writing a book about what it means to be human. “This belief in the virtue of the ‘happy’ and suffering-free life sterilizes and shrinks us,” I wrote toward the end, “minimizing what makes us most beautifully human: our tenderness, our vulnerability, the profundity of our capacity for heartache, the risks of which deliver us into immense joy.” What I tried to do was show, honestly, the joy and the grief, the hard and the beautiful, and say: It all belongs. 

* * *

You ask: Am I happy? I say, sometimes less than before. Because she wakes six times a night. Because regular trips to pediatric specialists are no strolls through the park. Because special educators sometimes see her as broken, in need of fixing. Because her needs often exceed my energy. Because every time I’ve hovered above her convulsing body at night, counting the minutes, I might have gained something like courage or “life experience,” but I also felt gashed  in a bodily place that I can’t find, I can’t name. 

Because loving someone has never been so hard.

You ask: Am I happy? And I say, sometimes ten times more than before. Because her fine, blondish-brown hair brushes my cheek when we snuggle. Because her sapphire blue eyes seek out mine every day. Because at age 5, after three years of speech therapy, she at last made a hard C sound. Come, she said, and I did. Because when she was 4 and I asked which hat she wanted to wear, this one or that, she pointed and said “gamma!” (meaning “that one”) with such high-pitched glee that it felt like I held not a red wool ski cap but a lifetime supply of joy. Because the stress of a swallow study, the labor of an orthopedist’s appointment, and the fear of EEG results make the good news of a clear airway, an unchanged scoliosis curve, and an unworrying set of brain waves all the more glorious. 

Because loving someone has never been so hard.   

What I ask is that my answer doesn’t matter in determining her worth.

* * *

Heather Lanier’s memoir, Raising a Rare Girl, was a New York Times Book Review Editor’s Choice. Her recent essays appear in The Atlantic, The Wall Street Journal, and Off Assignment. She is an assistant professor of creative writing at Rowan University. You can find her on Instagram at @heatherklanier

Editor: Cheri Lucas Rowlands

Illustrator: Ashanti Fortson

Fact-checker: Nora Belblidia

Marmalade: A Very British Obsession

Jar of homemade marmalade. (Getty Images)

Olivia Potts | Longreads | July 2020 | 15 minutes (4,161 words)

The dark wood-panelled dining room is quiet, heavy with concentration. Around the room, six pairs of judges sit at tables crowded with glass jars. As the light catches the jars they glow amber, saffron, primrose. The only real sounds are the murmurs as the pairs of judges consult, and the regular pop! of sterilized jars as they open. Occasionally, there is the tap of a pen against glass, signifying that a gold medal has been awarded, followed by quiet applause or cheers depending on how sugar-drunk the judges are.

This is the judging room of the World’s Original Marmalade Awards, an annual event in Penrith, England, in the English Lake District. I’m here because I’m obsessed with marmalade. Not with making or eating it — although I enjoy both — but the enigma it represents. I suppose I’m obsessed with those obsessed with it: what is the appeal? Marmalade is made from a sour, bitter fruit that doesn’t grow in the UK; a fruit that requires days of preparation to render remotely edible. And yet, marmalade holds a central role in British life and British culture. It appears in the diaries of Samuel Pepys; James Bond and Paddington Bear eat it. Officers that served in British wars received jars of marmalade to remind them of their home country. Captain Scott took jars to the Antarctic with him, and Edmund Hillary took one up Everest. Marmalade is part of our national myth. I want to know why.

Read more…

The Grieving Landscape

RJ Sangosti / Getty / Fulcrum Publishing

Heidi Hutner | Fulcrum Publishing | June 2020 | 16 minutes (4,305 words)

We’re delighted to bring you an excerpt by Heidi Hutner from the anthology Doom With A View: Historical and Cultural Contexts of the Rocky Flats Nuclear Weapons Plant. Edited by Kristen Iverson, with E. Warren Perry and Shannon Perry, the anthology arrives from Fulcrum Publishing in August, 2020.

* * *

At thirty-five, I was diagnosed with Hodgkin’s lymphoma. One year before my diagnosis, my mother died from complications after heart surgery. At the time of her death, my mother had cancer — lymphoma. Five years prior to Mom’s death, my father passed away from a brain tumor, a metastasis from the cancer melanoma.

Two years after I had completed my chemotherapy treatment for cancer, I gave birth to Olivia. My miracle baby.

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Lloyd’s Mattress

Getty / Photo illustration by Longreads

Scott Korb | Longreads | May 2020 | 18 minutes (4,490 words)

 

1.

Our time is nearly up, but we’ve been living in our building on East 19th Street, in New York City, for more than a decade. It’s six stories, 24 units, built in 1920. A walkup. To arrive home we walk up to the fifth floor. The stone stairs grow smoother and more slippery as you descend, because more people over the years have trod the lower steps; that is, fewer people have had to climb so high as us. On the way down one has felt inclined, landing-by-landing, to step more gingerly, to grip the bannister — until these days, when we try not to touch anything or anyone outside the apartment, or when we wipe those things down before we do. Our lives will be this way until we leave, because, again, our time is nearly up.

The roof is off limits and armed with an air-raid siren that would make the dog howl.

The paint in the stairwell, a light, creamy green, bubbles and sometimes flakes off in chunks, sometimes peels, exposing paint and plaster from decades ago. For most of the time we’ve lived here, on the wall just above the landing as you ascend between the third and fourth floors, the paint was cracked and had folded itself to form the shape of a woman, nude, from beneath the breasts to just below the hips, somehow including a navel. I suspected I was the only one in the building to see her, and I was too embarrassed to alert my wife.

Not long after we moved in, in 2009, before we were married, I painted the lower half of one wall in our kitchen a clean and deep red, which now matches several striped hand towels and the new teapot. (We’ve continued making improvements.) The same day I painted in the kitchen, I also covered a wall in the living room a bright, flat blue, though we could tell right away that was a mistake — to live in a lesser Mondrian — and I repainted the wall in white just as soon as the blue was dry. For now, there’s a pair of bright red paintings, the work of a friend, centered on that wall above the blue sleeper-sofa. We’ll soon take them down. The kitchen table we use today once belonged to a woman I briefly dated and was friends with off and on for years, though I don’t recall exactly why or when I came to own the table. (My memory is not what it once was.) I seem to remember its being offered, and then loading it into a U-Haul truck beneath her loft in SoHo the same day I helped another woman move to Inwood, in Manhattan’s northern reaches, before returning home to Brooklyn late that night. Together, that other woman and I must have carried the table up to my apartment before settling in for a few hours on my mattress. This is how we lived.

The kitchen table is an antique, and for a time, in several apartments (including this one on 19th Street), I used it as an office desk. Hanging above the table these days is a bookshelf that once belonged to a couple of radical publishers, relatives of a friend who, in 2016, organized an estate sale in the couple’s warreny West Village apartment, advertising “art, furniture, lamps, tableware, a multitude of unusual curios, loads of books (especially cookbooks).” The day we left with the bookshelf and hung it on our wall we also carried away cookbooks by Molly O’Neill and Joyce Chen. Our other kitchen bookshelf once belonged to two men whose apartment we rented on 29th Street, also on the East Side, near the hospital where our son was born. This apartment had deep blue carpeting and a balcony, a pass-through from the kitchen to where we ate, and when we lived there we also owned a guinea pig. When we arrived where we live now — with the dog who came with me, the cat who came with my wife, and before our son — we posted on Craigslist an advertisement putting the guinea pig up for adoption: “Free to a good home. Full set-up.” As it grew and ate more hay, the rodent had become too messy; my wife was allergic. So after some emails, one afternoon two girls came from the Upper West Side with their mother, who insisted we take her daughters’ twenty dollars before they carried him away with his cage, which I must have lugged down the stairs and loaded into their hatchback.

Most everything about Lloyd remained mysterious. He sometimes seemed very old and unkempt, but he also displayed occasional vigor.

Over the years, many people have come and gone from our building on 19th Street. During the pandemic, the building has more or less emptied out — some, no doubt, for good. Who knows who’ll return? And yet, throughout our tenure, mostly we’ve complained — to each other and the more durable neighbors — about the turnover, which for a spate about five years ago, involved renovations to apartments in the lower floors that turned one-bedrooms into two- and two-bedrooms into three-. More bedrooms make apartments easier to share with other college students, which has been at the root of our grumbling: Our landlord’s fostering of transience. Dorm-life. (How soon we forget.) Even so, we twice wandered into these renovations, always on the lookout in New York for a little more room, but it never made sense when we considered the deal we’ve always had: our overall space isn’t much and the bathroom’s a puzzle, but there are two bedrooms and our rent remains below what the market will bear, for now, in the neighborhood.
Read more…

How I Got My Shrink Back

Getty

Susan Shapiro | Longreads | February 2020 | 28 minutes (7,036 words)

Rushing to see him that Friday evening in August, I turned the corner and was shocked to catch Haley leaving his brownstone. What the hell was she doing here? I prayed my eyes were wrong and it was another tall redhead, not my favorite student. Inching closer, I saw it definitely was her — in skinny jeans, heels and a pink blouse, her unmistakable auburn hair flapping down her back as she flounced away. I froze, so crushed I couldn’t breathe.

Darting inside, I shrieked, “I just saw Haley walk out of here. You lied to me!”

“I never lied to you,” he insisted, quickly closing his door.

“Don’t tell me you’re sleeping with her?”

“Of course not.” He looked horrified.

He wasn’t my lover, cheating with a younger woman. He was the long-term therapist who’d saved me from decades of drugs, alcohol, and self-destruction. I couldn’t believe that right before our session, Dr. Winters had met with my protégée, whom I’d loved like a daughter. For the past three years, she’d sat in my classroom, living room, beside me at literary events, and speed walking around the park. She was the only person I’d ever asked him not to see, and vice versa. I felt betrayed from both sides.

Earlier that day, Haley had emailed to see if I’d recommend my gynecologist, housekeeper and literary agency. “Want my husband too?” I’d joked. In the spring, when I’d first sensed she was ransacking my address book and life, I’d asked Dr. Winters about the eerie All About Eve aura.

“She sounds nuts,” he’d said.

“That’s your clinical assessment?” I asked, adding “Don’t be flippant. She’s important to me.”

He’d sworn he wouldn’t treat her, laughing off my paranoia.

Now I could barely speak as I realized she’d broken her vow. And he’d let her in, giving her the slot directly before mine, then ran late, as if he wanted me to catch her. Perched at the edge of his leather couch, I imagined Haley sitting right where I was, leaning on the embroidered cushions, spilling secrets she’d previously shared only with me to my confidante. His plush work space morphed from my safest haven for 15 years into the creepy crawly Cabinet of Dr. Caligari.

“Then why was she here?” I couldn’t process her so out of context.

“That woman is not my patient,” he insisted.

His technical wordplay sounded like Bill denying Monica. I craved a drink, joint, and cigarette.
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Welcome to Hive

William Gottlieb / Getty, Universal Records, Michael Ochs Archives / Getty, Epic Records

“I was happy when I saw my dance all over,” Jalaiah Harmon, 14-year old dancer, choreographer, and creator of the Renegade dance told Taylor Lorenz of the New York Times. Last fall, the suburban Atlanta teen, trained in all the classical forms, took to her bedroom and created movement to accompany the stuttering 808s of “Lottery,” a single by Atlanta hip hop artist K Camp. Its lyrics and sonics describe a flamboyant kind of self-possession. Harmon recorded the moves on her phone, uploaded her recording to the social video app Funimate, and then to Instagram. The dance went viral when TikTok influencers recorded and uploaded themselves doing it, buoyed by the attention of celebrities like Lizzo and Kourtney Kardashian. Harmon — young, Black, female and Southern — was rarely named or linked to in the frenzy. But Black Twitter intervened, and by the following winter, she would be. Harmon performed centerstage with cheerleaders at February’s NBA All Star game, and publicly, K Camp thanked her for making his song “the biggest in the world.”

In the early days of rock and roll, according to Ann Powers, “Girls ran the fan clubs, bought the records and the magazines, filled the concert halls.” Harmon’s creative brilliance, an extension of the girl-fueled heritage of popular music, is also a reminder of all the credit we have yet to give.

Women are underrepresented, missing, even, in many areas of influence and power in the music industry — as journalists, songwriters, producers, and executives. But they’ve long been the quiet center of music culture, keeping it vital. This is especially true of Black teenage girls and femme people, whose tastes and creative responses to what they love shape and originate many trends. You don’t get Beatlemania without teenage girls, or Sam Cooke without swooning adolescents like my mother, who remembers slow dancing to “You Send Me” at junior high school dances and blue light parties with Blue Magic crooning from the speakers. My memories of our household of women thrum. The TV, brown and boxy, atop a shelf of vinyl, taller than me by miles, playing “Freeway of Love” — the pink Cadillac, Ms. Franklin’s short cut and stonewash denim an everlasting, glamorous imprint. My teenage sister’s blouse with lace and ruffles and her feathered curls bouncing to the first saxophone notes of “The Glamorous Life.” My mother and her marcel irons in the bathroom mirror singing “You Bring Me Joy.” These women make the music I love, live. They help me remember that despite the dominance of male critics and tastemakers in the mainstream press, teenage girls — in hallways between classes, scrolling on their phones, making up dances in their rooms — are shaping what’s next.

Welcome to Hive, a new Longreads series about women and the music that has influenced them. The pieces in Hive live in the gap between the swarm or hive — the crowd of girls and femmes who form the base of pop trends — and the critical male voice that has shaped the “formal,” “legitimate” interpretation of music culture. The essays embrace fandom and rigor in equal parts, considering both as conduits for creativity. “Strange things happen when an artist is moved to a new depth by another,” writes contributor DJ Lynnée Denise, in her forthcoming essay about Southern crunk funk artist Joi. In this series, each contributor trusts their tastes and thinks with and through the music to tell a story of unexpected connections and embodied intellectualism.

Hive is inspired by: the Beyhive; the family of women who shaped my tastes; zines from the ‘90’s; viral Vines, the hustle, mashed potato, and dab; epistolary essays; Tumlbr; group texts; the voice of Alice Smith; and each contributor’s voice and experience.

“I wanted to be less peripheral to the things I poured my attention into,” writes contributor Eryn Loeb, in an upcoming essay about how creating a zine in her local scene as a young girl shaped her as a grown woman writer and critic. I imagine the Hive essayists writing to their teen selves, to each other, and maybe to you, reminding us that we’re all already in the center.

Also in Hive:
Welcome to Hive: Series Introduction by Danielle A. Jackson
Miami: A Beginning, by Jessica Lynne
On Watching Boys Play Music, by Eryn Loeb
Funk Lessons in Sonic Solitude, by DJ Lynnée Denise

Through a Glass, Tearfully

Illustration by Hannah Li

Maureen Stanton | Longreads | January 2020 | 26 minutes (6,448 words)

In the early 1990s I joined a stream of people strolling past the AIDS quilt spread across a gymnasium floor in Lansing, Michigan, the room quiet but for our muffled sniffling. I hadn’t expected the quilt — a patchwork of many quilts — to affect me so powerfully, the clothes and artifacts and mementos stitched into tapestries, with dates of births and premature deaths, soft beautiful tombstones.

Humans are the only creatures who cry for emotional reasons. Animals do not shed tears of emotion; apes have tear ducts but only to “bathe and heal” the eyes. Crying makes us human. In the 1956 film, Invasion of the Body Snatchers, people who’d been replaced by aliens could no longer cry, a telltale sign that they were not human. In one scene, a man carries a pod containing the alien replica of a small child. “There’ll be no more tears,” he tells the child’s mother.

***

Some people are super tasters or super smellers, or even super see-ers, with an uncanny ability to remember faces. I am a super crier, or maybe a super empathizer. An astrologer once said that my soul bears the karmic burden of feeling others’ pain as if it were my own. This is apparently because of the placement on my birth chart of the comet Chiron, “the wounded healer,” named after a Greek centaur who could heal everyone but himself.

Once, in Columbus, Ohio, I choked up at Taco John’s, a brand new mom and pop joint, all spiffy with shiny stainless steel, but empty of customers. I could see the work and sacrifice the family had made to realize their dream — opening a taco shop. I could feel their hope when I walked in the door, but I could calculate the meager profit from my order against the cost of utilities, salaries, supplies. I could see their dream failing.

I nearly lost it again at Karyn’s Kitchen, a food truck in someone’s yard along the road to my house in Maine. Karyn probably figured she’d snag summer traffic on the way to the beach, but who wants to eat in someone’s yard? I ate there once out of pity — her husband’s “famous” meatloaf, which she served with mashed potatoes, steamed carrots, and two slices of white bread with a pat of margarine. When I asked her to heat up the cold gravy, she microwaved it until the plastic container melted and handed it to me like that. When I drive by Karyn’s yard now, I can’t stand to look at the empty space where her dream failed.

A woman in a laundromat once yelled at her small son, “No one wants to hear you,” and I got a lump in my throat.
Read more…

The God Phone

Illustration by Tim Peacock

Leora Smith | Longreads | January 2020 | 18 minutes (4,961 words)

 
CW: This story discusses a suicide that occurred at the Burning Man festival in 2017, and also thoughts of suicide.
 
In between the fabric folds of towering red and white tents, a small, gray push-button phone sat on a dusty cushion, shaking with a high-pitched ring.

Outside, the air throbbed with music. Deep bass notes crisscrossed the landscape, merged with the voices and footsteps of Burning Man’s tens of thousands of attendees, and flooded the desert with sound.

But inside, there was only the phone, its ring echoing off the tent walls.

“Hello?” I answered.

“Hi,” said the voice on the other end. “Is this god?”

* * *

A well-worn phone booth stood off a busy thoroughfare in Black Rock City, the temporary metropolis that Burning Man’s participants build together every year in Nevada’s Black Rock Desert. During frequent dust storms, a sign above it reading
Talk to God beamed through the thick, whitewashed air like a desert marquee.

Below the booth a buried phone line ran about 100 feet to a secret location. There, it connected to the God Phone. Anyone who found it got to play god.

When I discovered the God Phone in 2017, the first few calls I fielded were silly, easy. Callers asked me, “What should I do tonight?” Or, “What’s god’s favorite thing out here?” Over and over they expressed glee at my gender. “I knew god was a woman,” people said, or sometimes, “I’d hoped you were.”

But about 30 minutes in, a man called, and a hesitation in his voice drew me in so closely that I felt like we were meeting in an ethereal space deep inside the phone cord.

“There’s something I want to do,” he said, “and I want you to tell me if I should or not.” The otherworldly room we inhabited shrunk around me. “What’s the thing?” I asked, already knowing he wouldn’t tell me. “I’ve tried it in the past,” he said, “and it didn’t work. But this weekend I might try it again.”

I can’t say why I thought the man might harm himself. But in the moment I felt that threat as solidly as the receiver in my hand. And I wish I’d been motivated otherwise, but all I wanted to do was drop it and run.

I asked if the thing would make him happy, and he said he thought it would. “You should do the things that make you happy,” I told him, my tongue pushing out the words while the knots in my stomach tightened, trying to rope them back in. He whispered a thank you and hung up.

A few nights later, during Burning Man’s culminating event — the burning of a giant effigy called The Man — a man died by suicide. Before he died, he was sitting just 20 feet away from me.

In a crowd that big, I know it’s unlikely he was the same person who called. But for two years I haven’t been able to shake the thought from my head.

* * *

Almost a year after my night on the God Phone, the legal services organization where I worked held a training on recognizing when clients are thinking of suicide and making space for conversations about it.

Our teacher was Karen Grant-Simba, a trainer with the suicide prevention organization LivingWorks and a former case manager at a hospital’s mental health department. She wore her hair in thick locs and spoke in a voice so soft I felt I could crawl right up and fall asleep inside it.

Karen’s training focused on “invitations,” the hints people drop that they are struggling. An invitation might be something a person said, the way they looked, or just a feeling you got in your gut around them. She described the fear we feel acknowledging these invitations. The way our voices catch in our throats. The way our better instincts bubble up like heartburn and how we push them down, back, and anywhere but out.

When someone seems like they are hurting, Karen encouraged us, take a risk and tell them you noticed. Then, she had us practice. She told us to turn to a partner and say these words out loud: “Are you thinking of suicide?” The question quickly filled the room; it pinged between partners and off the walls and my mind traveled on it, back to the man in the phone booth.

“Are you thinking of suicide?” I imagined asking, curled up by the God Phone. “Are you thinking of suicide?” I thought, and I walked to the phone booth to see him face-to-face. “Are you thinking of suicide?” I asked as I led him back to the God Phone so we could sit and talk through it. “Are you thinking of suicide?” I said and we shared a long conversation that ended in a hug.

The words began slipping off my tongue, easier and easier each time. I wished someone had painted them on the phone, had given me a warning that I might need them.

* * *

A common refrain at Burning Man is “safety third.” Every year, artwork at the event is physically dangerous.

Dance Dance Immolation, a famed installation set up a few times between 2005 and 2013 by the artist collective Interpretive Arson, had participants play a game inspired by Dance Dance Revolution in fire proximity suits that protected against flames shot directly at dancers with every missed step.

In 2018, artist Dustin Weatherford stacked seven old cars, one on top of the other, in a piece called Night at the Climb-In. People scaled the structure, navigating the rickety mirrors and rusted doors to the top where they could sip drinks in a canned-ham trailer 34 feet in the air. (Officials from the Bureau of Land Management and Burning Man closed the installation to climbers a few days into the event after someone fell and got hurt.)

But the God Phone’s risks felt different from Burning Man’s usual danger. There was no purposeful climb to a precarious lookout, no donning of fireproof gear in preparation for something that was obviously a bad idea. What sort of responsibility did the artists have for this other kind of art, I wondered, the kind where the risks were more hidden?

I never thought I’d go back to Burning Man after my God Phone experience, and I definitely didn’t think I’d go back to the phone. But in 2019, I did. I sat there for 24 hours, because I wanted to know if other conversations like mine were happening there. Was the God Phone safe? If someone got hurt, how would we know?

* * *

At 10 a.m. on the day I visited the Talk to God phone booth, a line of people already stretched from it. Would-be callers formed an impromptu catalogue of Burning Man fashion: tutus, bedazzled military hats, leather fanny packs, and dusty combat boots on every foot.

I passed the queue and traced ever-widening circles searching for the gods’ lair until I found it, just a few hundred paces away, kitty-corner from the booth, obscured only half-heartedly by a gauzy curtain.

Inside, 10-foot-tall black light paintings of a dragon and the Buddhist deity Quan Yin loomed over a man in a weathered white armchair, holding the receiver to his ear. By his feet, a speaker quietly projected both sides of the conversation, and onlookers gathered around it, sitting on large cushions draped in green faux fur.

The whole setup sat atop a plush black carpet patterned with geometric shapes in bright, elementary-school colors. Taken together, the space had the feeling of a 20-year-old’s first grown-up living room, or the basement hangout from a grainy sitcom.

I walked in and joined the group huddled around the speaker. From there, we had a clear sightline to the phone booth, and everyone who approached it.

The calls came in quickly, with barely any break between them. Lighter questions (What do you think about Christmas?) and universal ones (Why do you let natural disasters happen?) were peppered with confessions (I’m in love with someone but I’m married to someone else) and personal requests (Can you watch over my son in rehab? I’m worried this might be his last shot).

The speaker muffled everyone’s voices slightly, insulating us in the sound. We were voyeurs floating in a secret room wallpapered with worries.

What sort of responsibility did the artists have for this other kind of art, I wondered, the kind where the risks were more hidden?

A 30-something named Benji sat beside me in the huddle, his plain gray T-shirt and khaki shorts the most nonconformist outfit in a sea of eccentrics. He smiled while he talked and told me he was raised ultra orthodox Jewish just outside New York City (“Black hat, the real deal,” he said), but declared himself an atheist about five years ago. Around that time, he attended Burning Man and found the God Phone.

“The conversations we have on the God Phone are very similar to the conversations I used to have with my god,” Benji said. “There’s just one difference,” he added, laughing. “The Burning Man variation of god has it so when you pick up the phone to speak, god actually responds.” He said it with such positivity, but I couldn’t relate. My own flawed, too-mortal response had been the very thing that made me worry about this whole experiment.

More calls came: Can you tell me why my mom left? What is my purpose here? Why do children get sick?

The next time it rang, the man in the god chair looked at me. “You’re god,” he said, holding out the receiver. I shook my head, no.

* * *

The Talk to God phone booth first appeared at Burning Man in 2003, the brainchild of a group of artists from Ojai, California, who camped together under the banner OBOP, short for “Ojai Bureau of Pleasure.” While many installations only make the difficult trek to the Nevada desert once, the booth has been there, in different iterations, every year since.

OBOP member Michael Shevchuk remembered four muses merging in his brain to form the concept: Burning Man’s 2003 art theme “Beyond Belief”; a line from a U2 song (“God has got his phone off the hook, babe, would he even pick up if he could?”); an exchange between a fictionalized Andy Warhol and Jim Morrison in the film The Doors (“Somebody gave me this telephone. … And she said that I could talk to God with it, but I don’t have anything to say”); and an old telephone booth that Shevchuk walked past daily in his neighbor’s yard.

When campmates and artists Steven Jeffre and Scott Siedman heard the idea, they rushed to make it real. Within days they found an abandoned booth already missing its phone by a highway, and mined it for parts: hinges, handles, a ceiling unit that housed its lights, and the shelf where the phone rested. Using these parts and some plywood, they built a slightly enlarged replica of a classic Ma Bell booth, and the first Talk to God phone was born.

I understood that, as an artist, Miles celebrated the varied, sometimes difficult experiences people had on the phone. But as someone who lived one, I didn’t.

In the vast expanse of Burning Man, a small phone booth could get lost, but instead it made a mark. Over 16 years, thousands of people have interacted with the installation, placing a call or answering one. Reddit and Facebook threads overflow with accounts of phone calls that left an impact.

In early 2018, the Smithsonian’s Renwick Gallery hosted an exhibit of Burning Man art. That year, Smithsonian curator Nora Atkinson gave a TED Talk, positioning Burning Man as a new art movement, one where a piece’s value is determined by the emotional connection it creates between people. As she spoke, a picture of the Talk to God phone booth appeared over her left shoulder, an example of an iconic piece in a bizarro pantheon.

In 2007, OBOP disbanded and, in a ceremony common at Burning Man when a piece of art has run its course, some camp members decided to burn the phone booth. When word spread of its destruction, a community swooped in to ensure its return and continued presence. A member of a neighboring camp scavenged a new booth in a Seattle junkyard. A retired phone enthusiast in Boston recreated its technical parts, boxed them up, and mailed them to California.

Since then, two people — Jaye Hersh and Miles Eastman — have each brought the booth in different years. They call themselves its shepherds. I talked to both Jaye and Miles, and to Scott who helped build the first booth, about my unnerving God Phone experience before going back this year, and none were surprised.

“I’ve heard so many stories of people having those kinds of conversations,” Miles told me.

“Does that worry you?” I asked. On the contrary, he said, “I think that you stumbled on the purpose and the beauty of the piece.”

His answer worried me.

* * *

This year, a clipboard holding a bright orange piece of paper rested by the God Phone. Be Kind! the page read in big, rounded purple letters across the top.

Jaye — who goes by “Yay” at Burning Man — was shepherding the phone booth. On the first day I met her she wore flowers in her hair and electric blue lipstick that somehow stayed perfectly applied for the entire week of dry, lip-cracking desert heat.

As a shepherd, she had two rules. The first: Encourage “a kinder, gentler god.” The second: God always answers. Her campmates took shifts, acting as standby gods in the lair when the chair sat empty. On two nights, nobody signed up for the 4 a.m.–6 a.m. shift, so Jaye slept by the phone.

Her instructions provided a kind of lightness. When the questions got hard, kindness was easy. Sitting with experienced gods, newer gods got support and even a bit of a script. Many gods mimicked Jaye’s signature “I love you” signoff, though I couldn’t always tell if they meant it, or if they just liked hearing it back. Either way, I was unreasonably moved listening to adult men exchange unabashed, tender “I love you”s at the end of their calls.

It was a very different God Phone from the one I found two years prior.

From the God Phone’s first day at Burning Man, members of OBOP disagreed on how to run it. Scott’s approach was “get out of the way and trust people.” He said he was chasing honesty and intimacy between strangers. For him, those moments of feeling stuck, unscripted, or unsettled but forced to engage — those were the whole point.

Miles, who shepherded the booth the year I first found the phone, shared Scott’s ethos: no instructions, no supervising gods. They described their hands-off approach as an act of faith. “I trust in the love and compassion of our fellow human beings to show up for each other,” Miles said. “It’s worth the risk,” he added, “to allow that natural sort of serendipity.”

I understood that, as an artist, Miles celebrated the varied, sometimes difficult experiences people had on the phone. But as someone who lived one, I didn’t.

* * *

By 2 p.m. on my day at the God Phone, there was still a line at the phone booth. By 3 p.m. the gods had answered nearly 30 calls.

God, can you watch over my house in Florida? I just heard about the hurricane and I didn’t close the shutters.

Can you check on my brother in New York? He’s depressed and I’m worried about him.

Can you send a message to my mom and dad? One of them has been there a while, but the other is a newer arrival.

Do people who die by suicide get into heaven?

Do you know who stole my bike?

Some of the calls felt serendipitous in their timing: One caller talked about a partner leaving her and connected to a god who’d just finalized a divorce. A caller struggling in an open relationship talked to a god who had just opened up her marriage. And a person in need of a bike tire somehow reached a god who had a spare that was just the right size.

Around 3 p.m., Courtney, a woman in big rhinestone sunglasses and exuding a mama bear energy, sat beside me. She seemed like someone who, if she passed a broken-down car on the side of the road, would both stop to fix it and feed the driver home-baked muffins while they waited. Laughter danced at the edges of her words, a warm South Carolina accent curling them like a mischievous smile.

As we listened together, Courtney told me about the town where she grew up, how she learned about Burning Man online, and that the God Phone’s camp adopted her when she sought advice about the event on an online forum. “I don’t have much family,” she said, and arriving in the camp felt like coming home.

After eyeing the phone for a few calls, she decided to take one.

Hello, this is god.

I’m freaking out a little, the caller jumped right in. How do I let go of trying to control everything?

I’m god, she said, laughing. I get it.

I need to know I’m gonna be OK, he said.

Yeah. You’re wonderful, and I love you unconditionally and you can do anything you want to do.

The caller burst out in relieved laughter.

I love this, he said, with a new energy in his voice. Thank you so much.

The call hardly lasted two minutes. But as I watched that man walk out of the booth in the distance, I saw him transformed. Something lifted just by speaking his worries out loud.

So many people shared God Phone stories with me in the months leading up to Burning Man. You’re writing about the Talk to God booth? they’d say excitedly. I just have to tell you the most amazing thing that happened there.

More often than not, the conversations they described were short. To me, they often sounded almost inconsequential. But I learned that this simple opportunity to pause, to share a hurt, to hear someone acknowledge it stuck with people for years.

What stuck with them was that someone answered at all, that they had a space to say, ‘I’m in the middle of the biggest party in the world, and something inside me hurts.’

As the afternoon went on, more calls came in. Most weren’t about thoughts of self-harm or big life decisions. For the most part, they were the kind of everyday sadnesses we carry around quietly all the time.

Sometimes, I followed the callers to learn more about them. Nearly every one shooed away their friends before we talked about their experiences, not wanting to share the topic of their calls. “I don’t want to be a burden on them,” one woman told me.

Talking with them I realized how many people, like me, had run away from hard conversations. How we did it on purpose, and sometimes without realizing. How people who needed to talk waited for invitations to spit out the hard stuff, and how good it felt when they did.

In between calls, Courtney asked why I was writing about the God Phone, and for the first time that week, I told someone the whole story.

When I finished, she said, “You did the best you could that day.” And I almost believed her.

* * *

Before heading to Burning Man this year I had lunch with Karen, my teacher from the suicide training, to ask her thoughts on the booth. Was it safe to have untrained people fielding calls? Did she agree with Miles that it was worth the risk?

“There is power in just being able to verbalize how you are feeling,” Karen said, explaining that talking about thoughts of suicide was better than keeping them in. “People live their lives with thoughts of suicide in the background,” she told me. “The more we can normalize the experience the better we’ll be for it.”

Listening to Karen, I realized what she was saying wasn’t just true about thoughts of suicide, but about all kinds of sad thoughts. Still, her answer surprised me. The phone felt so risky — for the callers and the gods.

I reached out to Dan Reidenberg, the executive director of the advocacy group Suicide Awareness Voices of Education (SAVE), for a second opinion.

Shortly before the premiere of the Netflix series 13 Reasons Why, the streaming giant reached out to “Dr. Dan” for advice on a scene that depicted a teenager dying by suicide. When Netflix released the scene, to widespread criticism, SAVE partnered with another nonprofit to release a guide to help parents and teachers discuss the series with young people watching it, and to help prevent a possible copycat effect — that vulnerable people watching the scene might try to harm themselves. I imagined he’d given a lot of thought to art that engaged with issues of self-harm.

“I’ve talked to people who used that phone,” he said, shocking me. And he echoed everything Karen said.

“Obviously,” he explained, “it would be best if the people hearing these things were trained.” But faced with the option of having the phone booth as is, or not having it, he said he’d pick having it. “It doesn’t take any training to be a good person,” he added. “You just have to be compassionate, caring, empathetic, and willing to listen.”

Dr. Dan did have a word of caution. “You have to hope,” he said, “that whoever is answering isn’t going to support someone toward self-harm.” I’d planned on asking him about my conversation, but shame sank it like concrete in my throat. I managed to push it out and ask Karen directly.

“That was not a bad conversation,” Karen assured me. “A bad conversation is saying, ‘Just do it.’ A bad conversation is hanging up the phone and walking away.” Then, she added something that hit me hard: “Sometimes the fear that people have is that once they become aware of something that serious, there is an expectation to do something they are not skilled to do. But, she added, “We don’t need to be able to fix things for people.”

I thought back to the course I took with her. The way I imagined saying the right words and inviting the caller to the God Phone, imagined us talking, imagined us hugging and walking away. The way I wished I could have fixed the ache I thought I heard.

I realized that of all the people who talked to me about their God Phone experience, not one of them said god actually solved their problem. Most didn’t even remember exactly what the person who answered the phone said.

What stuck with them was that someone answered at all, that they had a space to say, “I’m in the middle of the biggest party in the world, and something inside me hurts.”

* * *

In the early evening, two women approached the phone booth. One, in a neon-orange mesh bodysuit, lifted the phone and posed while the other snapped a photograph.

In the gods’ lair, the phone rang.

This is god, Courtney said. How may I help you?

The woman in the bodysuit, unaware the phone actually connected, startled at the sound of Courtney’s voice.

Is this god? She turned around, moving as far into the booth as she could. Do you answer prayers? Then she whispered, Can you help my boyfriend to be faithful?

I watched the conversation and I thought, it’s really not very hard to ask someone if they are struggling with something. On just a moment’s notice, almost anyone could tell you that they are.

* * *

It’s easy to be cynical about Burning Man. At its worst, the event is capitalist escapism. A party where the wealthy run away from, and disdain, the most toxic elements of a system that, for 356 days of the year, many of them sustain, advance, and profit from.

But sitting at the God Phone reminded me that, at its best, Burning Man is an immersive art project. One based on values of communalism, kindness, and generosity.

Many of the people I met at the God Phone had attended Burning Man three, four, even 15 times. Some of them were wealthy, but many weren’t. I learned that a lot of people first went to Burning Man for the parties, but almost no one went back just because of them.

People went back because it was a place where they felt they could be their fullest selves, which meant wearing a tutu, taking on a new name, or just telling a stranger that sometimes they found themselves on a dance floor and all they wanted to do was cry. Then trusting that someone would say, “You’re wonderful, and I love you unconditionally.”

* * *

Just after 11 p.m. I stepped away from the phone for a nap and to change into warmer clothes. As I stood up, a new god plonked himself in the chair. When I got back at 3 a.m., he was still there, nodding off between calls.

I sat down by the speaker, untangling myself from a long string of lights woven through my shoelaces to keep me visible at night. When I was settled, the tired man in the chair handed me the phone. “You’re god,” he said, standing up before I could decline. When the phone rang and I answered it, the receiver weighed heavily in my hand.

God, what do you know about shame?

The man calling wore a gray steampunk jacket and large goggles to protect against the dust. He explained how hard he’d worked to get to Burning Man, but once he arrived, he just felt lonely. Then he felt ashamed for being lonely. A lot of people feel that way, I told him. They all call me.

He laughed, then got quiet. I thought of Karen’s advice, and instead of pulling back, I stepped in further. Do you want to come sit with me? I asked. He said he’d think about it, then ended the call. Twenty minutes later he called back, and I guided him to the God Phone.

Over the next few hours we sat together. We talked a bit, but not very much, and we listened to the calls come in. By morning I was still carrying shame inside me, and I think he was too. Neither of us had fixed anything, but it was cozy at the God Phone, and I was grateful for the company.

* * *

In the early hours of the morning, the sky lit up, its pastel colors forming a rainbow. A woman stopped in to take a few calls and explained it was her nightly ritual before going to sleep. Later, a man wearing a captain’s jacket and a top hat joined us. He said he was part of the original camp that brought the Talk to God phone booth, and he’d been taking calls at sunrise for years.

They were just two of a handful of people I met who, once they found the phone, visited it again and again.

‘I trust in the love and compassion of our fellow human beings to show up for each other,’ Miles said. ‘It’s worth the risk,’ he added, ‘to allow that natural sort of serendipity.’

When I got home, I reached out to Benji to ask why he returned so often. “It’s therapeutic,” he told me. “It reminds you that we are all struggling with things, we are all insecure, and we’re all lonely.” He added, “It’s not nice to know that other people are suffering, but it’s comforting to know that not everyone is having the best time all day long. … It feels not alone.”

* * *

Unexpectedly, 24 hours at the Talk to God phone booth reminded me of my first year of law school, when I felt so sad and overwhelmed that I sought out counseling for the first time.

In the counselor’s office at the school, she asked my field of study and I told her. She responded, Oh, I’m seeing all of your classmates. Before she said that, I’d thought I was the only one struggling. But afterward, a warm feeling washed over me. It was the same one that Benji described at the God Phone, and the same one that Karen tried to foster in her courses: normalcy.

I still wish the God Phone had some referrals or instructions for really hard moments, but my time there won me over to Karen and Dr. Dan’s perspective: Given the choice of having the phone as is, or not having it at all, I’d pick having it every time.

Because the God Phone bathed everyone — callers and gods — in that feeling of normalcy. In a place where, most of the time, everyone and everything was striving to be extraordinary, it provided an oasis of ordinary. And people gravitated to it. At every hour of the day they gathered around speakers, they lined up, they came back again and again just to feel it.

Surely, that was worth the risk.

* * *

At the end of the week, after most people had packed up and gone home, Jaye’s partner John walked out to the phone booth to disassemble it. Jaye always left it standing to the last possible minute, tearing down all the tents and rolling up the wall hangings until the booth and the God Phone lay out in the dust alone, just in case someone needed to make a call.

Finally, when everything else was done, John unplugged the God Phone. Then, they dug up the phone line, carefully refilling the trench where it lay, erasing the mark it left in the sand. They hauled the heavy booth to their pickup truck and lay it upside down for the drive home. Plonked there, legs in the air, the booth didn’t look like much, just a blue metal box with some stickers on it.

“We took it out there having no idea what would happen with it,” Jaye remembered about the booth’s first year at Burning Man. But people gravitated to it immediately. “It was clear that people needed that,” she said, “and we could give that to them.”

Jaye wrapped the God Phone’s dangling cord around it, tucked it carefully into the dusty nightstand, and packed it away for next year.

* * *

If you or someone you know is having thoughts of suicide or self-harm, there are resources for you. Reach someone for immediate support, 24/7/365, at these numbers:

* * *

Leora Smith is a writer and a lawyer living in Toronto.

* * *

Editor: Cheri Lucas Rowlands
Fact-checker: Matt Giles
Copy-editor: Jacob Z. Gross

Violence Girl

Photo by Martin Sorrondeguy

Alice Bag | Violence Girl | Feral House | September 2011 | 43 minutes (7,823 words)

 

By the autumn of 1977, new bands were popping up all the time. Seemingly every week, someone who had been in the audience the week before was now onstage in their own band. The Masque reopened in mid-October with a gig featuring a band called the Controllers. The Controllers weren’t really a new band, in fact they had been one of the first bands to rehearse and play at the Masque from its inception, but they had never had a proper coming-out show, so I think of their October 15th show as their debut. Their music was tight, fast, and melodic, and some of their songs were almost poppy which was nicely balanced by the imposing figures of Johnny Stingray and Kidd Spike, who sang up front and played with a ferocity curiously incongruous with their lighthearted lyrics. The band would evolve and get even better over the next several months, with the addition of an old friend of mine named Karla Maddog on drums.

When punk came along, it was just the perfect vehicle to express who I was as an individual. It was something completely new and wide open. Just a couple of years later, that would change, and people would have to fit into preconceived notions of what punk rock was or wasn’t, but the early scene had no such limitations, because we were the ones creating and defining it. If you had been at the Masque in 1977, you would have seen very eclectic shows, ranging from the Screamers to Arthur J. and the Goldcups, from Backstage Pass to the Controllers. There was no clearly defined punk sound, no dress code; all you had to do was show up and make your presence known. The movement was one of individuals and individual expression, each of us bringing our heritage and formative experiences with us in an organic and, in my case, unplanned way.

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If My Scars Could Talk

Illustration by Homestead Studio

Tega Oghenechovwen | Longreads | January 2020 | 15 minutes (3,777 words)

Content warning: This piece contains mentions of child abuse and childhood sexual abuse.

* * *

So we beat on, boats against the current, borne back ceaselessly into the past. — F. Scott Fitzgerald

Up from a past that’s rooted in pain

I rise — Maya Angelou

* * *

1. Why is the World Silent?

I am 7. B is 8. We are on the balcony of this monstrous brick house, naked. Our small bodies are soaking in gasoline. Our shirts, shorts, and shoes are on the concrete balustrade with our bags. A Good Samaritan who found us at the bus park trying to run for our lives just dragged us back. B’s teeth are inside his tongue. His eyes are liquid red. Tears and gasoline have washed away my sense of smell.

We face aunty Em. Her eyes pierce us to the marrow. She has a matchbox. She draws out a matchstick. She threatens to strike it. We shout as if shouting was what we were born to do. Our bodies creak and crack with fear. After a short while, Aunty Em fishes a waist-high koboko from the pantry.

“If you ever —” Lash. “If you ever try—” Lash. Lash. “If you ever try to run again —” Lash. Lash. Lash. She lashes us with the koboko until we become like raw beef; until we promise we will stomach her wickedness; that we will forget we are people’s children, and become her footstools.

Uncle Dee is in his study crafting a model boat for a client. He could be building a bomb to finish us. I wonder why he doesn’t hear us weeping. I wonder where the world is.

We hate here. The food we eat here tastes like burnt soil. Even at that, it’s never enough. Why did our parents dump us here? What did we do to deserve this? What?

I draw two eagles with enormous wings on the yellow walls of my room — one for me, the other for B. Aunty Em sees the eagles. She pops my head with the heel of her ko-ko shoe and locks me in a room without any light or window.

Silence speaks in the dark room. I hear the blood flushing my veins, and the worms eating my belly. I cry. I cry until I faint. Why is the world silent? Where is God? Why does He or She do nothing?

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