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The New Prospectors
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Every year, members of the Gold Prospectors Association of America pack up their RVs in search of adventure, friendship, and a bucketful of pay dirt.
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Published: Jul 15, 2019
Length: 12 minutes (3,200 words)
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‘I Started to Think About the Prospect of Documenting a Culture That I Understood.’
Posted by 
Julia Wick
Julia Wick 
Photo by Amazon
After my internship, my first assignment for National Geographic was a story about the Zinacenteco Indians in the highlands of Chiapas. The subject was interesting but very challenging. As a woman, my access was mostly limited to other women who only spoke the Maya language I was struggling to learn. Once I traversed the language barrier, it was still very difficult to gain permission to photograph because it was a culture that traditionally believed that taking one’s pictures meant taking one’s soul. Each photograph was the result of a protracted pre-negotiation. While I was struggling to make pictures there, I started dreaming of photographing in a place where people actually liked being photographed. I started to think about the prospect of documenting a culture that I understood, where my perspective and understanding could actually make a difference in my seeing.
I found an old copy of Bret Easton Ellis’s Less Than Zero, a groundbreaking novel about the jaded alienation of the young and rich in Los Angeles, on the bookshelf of our rented house in Chiapas. As I reread it, I thought about how people around the world were fascinated by the depiction of Los Angeles kids in the popular TV show Beverly Hills 90210. I realized that the world I grew up in, Los Angeles, was worthy of the same kind of sociological and anthropological study, that as photographers, anthropologists and documentarians, we customarily turn on the other rather than on ourselves.
So I came back to my hometown and started documenting kids in Los Angeles, the place that fabricates the popular culture that is exported around the world.
—Photographer and documentarian Lauren Greenfield writing in Time. Greenfield studied film and anthropology in college and had initially planned to spend her career “documenting the exotic [and] the other”; instead she returned home to Los Angeles and turned the lens on the world she’d grown up in. Those photographs ended up becoming Fast Forward: Growing Up in the Shadow of Hollywood, her acclaimed first book. That was nearly two decades ago. Since then, Greenfield has become a renowned chronicler of youth culture, gender and consumerism, and is perhaps best known for her 2012 documentary The Queen of Versailles.
Doctors Without Patients: The Eritrean Physicians Stuck in American Licensing Limbo
Posted by 
Shoshana Akabas
Shoshana Akabas Illustration by Carolyn Wells
Shoshana Akabas | Longreads | October 2021 | 16 minutes (4,762 words)
*Haben Araya was working in the local hospital when a farmer came in, bleeding from his gums. He was suffering from a snakebite — a case she’d seen many times.
*At the request of the doctors involved, some names have been changed.
Before Araya sought asylum in the United States, before she helplessly watched the COVID-19 pandemic tear across the country, and before she learned about what doctors must go through to relicense in America, she worked as one of a handful of physicians on staff at a local hospital in her home country of Eritrea. She was a general practitioner, responsible for everything from pediatric preventative medicine to minor surgeries and gynecology. She served as the regional appointed physician for malaria case management and the hospital’s Director for Tuberculosis Control. If a patient needed to be transferred to another hospital, she had to write the referral. Call the ambulance. Make sure the ambulance has enough gas. Find someone to fill up the tank.
Snakebite cases were heartbreaking for Araya because she knew the medication was prohibitively expensive: 840 Eritrean Nakfa for a single vial (about 56 USD). Sometimes four or five vials were required, costing more than many farmers would earn in a year.
The hospital insisted on taking some sort of collateral until the bill was paid, but Araya knew the farmers were good for the money. She also knew that they would likely sell their goats or sheep — whatever animals they relied on for their livelihoods — to pay for the treatment. And then, she knew, they and their children would return in a few months’ time with severe cases of malnutrition and a host of consequent health issues.
A nearby military clinic, where there was no on-site physician, had a stock of antivenom. In exchange for a free supply for her patients, Araya told the administrator of the unit that she would provide medical consultation and training. It was not a perfect solution, Araya admits, but her job was to do anything she could for her patients. “We have to do our best with what we know,” she says. “Every day we had to be more than a doctor.”
***
Doctors trained in resource-limited environments possess a unique skill set. They’re adaptable, creative, and work well under pressure. Yet, upon arriving in the U.S., internationally trained physicians like Araya must go through a licensing process so arduous it can take nearly ten years to complete. There are currently an estimated 165,000 internationally trained medical professionals living in the United States and underutilizing their skills. Many, like Araya, are sitting on crisis management experience the United States never thought they would need — until the pandemic hit.
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Eritrea has a single medical school: the Orotta College of Medicine and Health Sciences, offering a six-year medical program. With only 30 to 40 spots in each graduating class, the nationwide competition was fierce. “When I applied to medical school, my dad always tried to impress on me that I need to have Plan B and Plan C,” says Lily Yemane, an expat Eritrean physician like Araya. But she couldn’t think of any other job she wanted to do.
In the United States, the pandemic forced many doctors who had never experienced shortages to make life-or-death choices about who would be given oxygen, but for Araya and Yemane, that kind of challenge was part of their regular work as physicians. “You have an idea of how a certain patient can be helped, but you don’t have the resources,” explains Yemane. “Two or three patients need a medication, and you have to decide who to give it to.” With only one or two ambulances per hospital, she often fought to convince the administration to deploy their ambulance for her patients.
Resource scarcity wasn’t the only issue. Living under the oppressive regime in Eritrea bled into every aspect of their personal and professional lives. “We don’t choose where we work, we don’t negotiate our salaries,” says Araya. “The government, basically they put our names in a fishbowl.”
Since President Isais Afwerki came to power following the country’s independence in 1993, freedom has been stifled. Afwerki’s extrajudicial executions, imprisonment of journalists and religious minorities, indefinite forced labor sentences, and other human rights violations have been documented by the United Nations Human Rights Council. Reporters Without Borders, on its World Press Freedom Index this year, ranked Eritrea last, below North Korea. There have been no presidential elections held in the country’s 28-year history. “ … You don’t get any say, you don’t vote. We’ve never voted in our entire life,” says Yemane.
When political prisoners were brought to the hospital for care — often for tuberculosis or scabies, the result of years in captivity — doctors were forced to defer to a system they vehemently opposed. Some prisoners were journalists; others had been caught at the border, trying to flee the country. “You almost never ask why,” says Yemane. “You don’t want to know.”
Each time a prisoner was brought for treatment, Yemane had to convince the guards to admit the patient to the hospital for necessary care, raising suspicions that she was on the prisoner’s side. Except once: Yemane supervised the care of a prisoner with kidney failure. When she went to check on him in the recovery facility, she was surprised to find the patient with his family, and the guards nowhere to be found. “He was free,” she says, “but they only let him go because they thought he was dying.”
There was no single moment that pushed Yemane or Araya to leave and follow their family and friends who had already fled to the US. Instead, the burden of oppression and persecution simply grew until they felt they had no choice. “My rights as a human being were being violated,” says Araya. “I did not have the freedom — that basic, basic freedom … we all deserve as human beings.”
***
Yemane did not arrive in the United States naive to American culture or to the challenge ahead. She’d read plenty of English literature and loved watching Oscar-nominated movies, from My Fair Lady to La La Land. But still, the culture shock was real. While waiting the nine months for her work permit to be approved, she lived with a family member and took an anatomy course at the local public college, working towards a physician assistant’s degree in case she couldn’t relicense. Eager to resume medical practice, she also began volunteering at a free clinic, which helped her to feel more at home as she gradually met more like-minded people.
Reporters Without Borders, on its World Press Freedom Index this year, ranked Eritrea last, below North Korea. There have been no presidential elections held in the country’s 28-year history.
When Araya reached the United States the following year, more than a dozen Eritrean doctors like Yemane — who’d fled in the months before her — warned her of the difficult road ahead. She’d have to have her credentials verified before she could sit for the three intensive U.S. medical licensing exams (USMLE) and apply for a residency program to repeat her training — the last step before finally being able to practice on her own.
For most refugees arriving with few resources, the financial cost — of translating educational records into English, covering the exam fees (nearly $1,000 each), and working a clinical internship (often unpaid) to help get a residency — is prohibitive. And the Eritrean doctors were struggling to get past the very first step in the process. For their primary source verification, authorized representatives from the Eritrean medical school would need to confirm that their documents, including their diploma and transcript, were authentic.
They’d contacted the Educational Commission for Foreign Medical Graduates (ECFMG), a non-governmental, non-profit agency, responsible for primary source verification. Of roughly 3,500 operational institutions in the World Directory of Medical Schools, ECFMG accepts credentials from approximately three-quarters — including the medical school in Eritrea. But when Araya and Yemane’s colleagues applied for verification, the Eritrean administrators wouldn’t respond to ECFMG’s inquiries.
The medical school and placement system in Eritrea, like many countries, is controlled by the government, which has the power to withhold the records of anyone they don’t want to assist. “In the eyes of the government,” says Yemane, “we are traitors — which is not true. We served our country when we were there. I worked with very little pay, like everybody else in the country, for four years, outside of my hometown. And we did serve the people. We did our best. But the government was not understanding of that. So when we left, we were considered traitors.”
Kara Oleyn, Vice President for Programs and Services at ECFMG, was assigned to their case. ECFMG sees 20,000 applications each year, and Oleyn was no stranger to verification challenges. When ISIS infiltrated Iraq and medical school officials fled to the south, Oleyn’s team worked with the Iraqi Ministry of Health to track them down, so they could provide verification for their former students. In Crimea, where both the Russian and Ukrainian governments claimed the medical university, they had to determine who was actually authorized to verify credentials. “We do need to assure the public that the individuals who are going to be laying hands on them have the appropriate credentials,” says Oleyn, “and primary source verification is a big part of that.”
But Araya’s and Yemane’s cases — and the cases of their Eritrean colleagues — stumped Oleyn. “There was absolutely no information coming out of Eritrea,” she says.
Araya and her peers were devastated. “The fact that the government I left was able to affect me here — it was just heartbreaking,” says Araya. “America, they gave me protection to stay here, but the [Eritrean] government was able to retaliate and hold me hostage, even when I’m here.”
In rare cases where verification couldn’t be obtained — often for political asylees — the ECFMG used an alternate process: having three U.S.-licensed physicians who attended the same international school swear on their medical license that they have personal knowledge that the individual graduated from medical school. Unfortunately, the Eritrean medical school, founded less than 20 years ago, had no prior graduates working in the United States to provide testimony.
Oleyn’s three-person team relentlessly contacted any sources they thought might be able to share information. “We were trying to triangulate exams that we knew they took in Sudan with Sudanese officials, and we couldn’t get anywhere,” she says. Even the US Department of State couldn’t offer any contacts in Eritrea besides those already refusing to cooperate. Instead, the State Department confirmed what she recalled the Eritrean applicants had already told her: “They’re not going to reply to you, because they don’t want their physicians … their young, bright, educated people to leave their country.”
Yemane and Araya’s feeling of helplessness intensified as the pandemic rolled through their new homeland, and they watched as the news quickly became saturated with reports of hospitals running out of beds and doctors to care for COVID patients. When Eritrea went into lockdown, they feared for their friends and family left behind. Yemane would close her eyes and remember the limited number of beds in the hospital’s ICU, imagining them all filled. The staff was already underpaid and overworked before the pandemic.
“In a perfect world, when this happens, what do you do? You just go home and you help, and then you come back,” says Yemane. “We could not go back home, even to help, even to contribute.” And in America, she couldn’t help either. “… Imagine sitting with the capacity to do something but not being able to do anything … What was the whole point of your training if you cannot do something, even in a pandemic?”
Many internationally trained doctors have valuable experience working in the thick of SARS and Ebola epidemics, conflict zones, and other limited-resource conditions — not unlike the conditions faced by hospitals across the United States, as doctors scrambled for personal protective equipment. “When you have a shortage in supplies all the time, you get creative,” Yemane explains. “When we didn’t have ventilators, we could make CPAPs out of things that you can access at the hospital. So we have that kind of mindset.”
Jina Krause-Vilmar, the president and CEO of Upwardly Global, a nonprofit organization that provides career services to immigrants and refugees (including several interviewed for this story), says that, despite knowing the risks of COVID-19, their clients were anxious to help and “in tears about the idea that they were standing on the sidelines at a time when their communities were suffering.”
Unable to assist medical efforts directly, Yemane volunteered for a mutual aid society to help with cooking and delivering food to a local homeless encampment, but she wished she could do more. At the height of the pandemic, “that’s when it was most painful,” she says. “You see the hospitals running low on supplies, on skill[ed workers], and you’re sitting at home doing nothing when you could have been out there helping people.”
Yemane would close her eyes and remember the limited number of beds in the hospital’s ICU, imagining them all filled.
In a few select states, desperation finally bred change, and internationally trained physicians were given the opportunity to contribute. New York (home to roughly 13,000 foreign-trained medical professionals not able to make full use of their skills) joined New Jersey, Massachusetts, Nevada, and Colorado in adapting licensing guidelines to allow foreign-trained physicians to help with COVID efforts at various levels — but with limited success.
For some, the application was too difficult. Upwardly Global heard that in one state Russian applicants were deterred because the drop-down menu on the online application accidentally omitted “Russia” as an option for country of origin. Some, like Yemane, applied to the NJ licensing program but never heard back.
“These were emergency policies that were designed and implemented at a time of unprecedented need and at a time when states were trying to mount a response to a public health crisis like no other,” says Jacki Esposito, director of U.S. Policy and Advocacy for World Education Services Global Talent Bridge, a non-profit dedicated to helping international students, immigrants, and refugees achieve their educational and career goals. “So just by virtue of the fact that they were designed and implemented very quickly, there wasn’t the time and the space to consult all of the various stakeholders that would be consulted in a permanent reform process.”
For example, according to Esposito, some states require applicants to have active, valid licenses in another country, but many people — refugees especially — let their licenses lapse to avoid yearly fees and continuing education requirements. Esposito says the application could have required that a foreign license was in good standing when it was last active to accomplish the same goal — of weeding out those applicants with disciplinary actions on their record. “It really was a mix of getting the eligibility requirements right so that they maintain health and safety standards, but at the same time are accessible for applicants,” says Esposito. “Eligibility requirements must be workable for these policies to be effective.”
Without the time to be more intentional about the design of the application process, inform employers about the policy, or conduct outreach to applicants, the opportunity went underutilized. By the end of 2020, the New Jersey Board of Medical Examiners, which operated the most robust program for applicants without residency experience, had received approximately 1,100 applications for temporary medical licenses, but, according to a spokesperson at the New Jersey Division of Consumer Affairs, they issued emergency licenses to only 35 individuals. And according to Gothamist, not all who received emergency licenses were able to secure positions. Many applicants who were eligible for similar programs across the country didn’t know where to look for jobs, and hospitals weren’t sure they were allowed to accept internationally trained applicants — or just thought it was easier to not employ them.
“When push came to shove, the hospitals would rather repurpose a plastic surgeon,” says Tamar Frolichstein-Appel, a senior employment services associate at Upwardly Global, who believes better outcomes could be achieved if healthcare employers, legislators, and NGOs work in partnership. Without buy-in from employers who are willing to hire from this talent pool, a license doesn’t make much of a difference. “It’s a missed opportunity that we have not, as a country, leveraged the immense talent that immigrant and refugee doctors and other healthcare workers offer,” says Esposito.
Amid the crisis, a door was cracked open for a select few. But, by and large, doctors like Araya and Yemane watched the pandemic unfold, stuck outside of a system they desperately wanted to be part of. “We got so antsy to do something,” Yemane says. “It’s a privilege to be able to help in that time, and we didn’t have that.”
***
As more time passed without any news of progress from ECFMG, the persistent uncertainty began to take a toll on the Eritrean doctors stuck in limbo. “A few of us went back to medical school again. But to go to medical school twice in one lifetime — it’s a lot to ask,” says Yemane.
After fleeing Eritrea, another doctor, Abraham Solomon, chose this option to avoid being at the mercy of a stalled bureaucratic process. But he couldn’t simply repeat medical school; he had to go back even further and complete up to 90 credits of undergraduate pre-med requirements before even taking the Medical College Admission Test (MCAT). As he sat through freshman seminars for the second time in his life, he had a strong sense that this situation wasn’t fair, but he had to make peace with it. “What [I] had to do was more important than getting lost in the emotions,” says Solomon, who worked in customer service to pay for school. “At that point, you understand this is something you can’t control.”
Mohamed Khalif, who left Somalia as a refugee when he was two years old, moved around the world with his family before graduating medical school in China. While studying for the USMLE in Washington State, he worked as a security guard and then took night shifts at a pie factory so he could volunteer at a medical clinic. Khalif has valuable skills and is fluent in five languages, including Urdu and Mandarin, but even after he passed the USMLE he failed to match with a residency program. The screening for residency programs filters out candidates without “hands-on” clinical experience in the United States: few applicants can afford unpaid internships, and few institutions are willing to take them on over U.S. medical students. The applications cost Khalif more than $6,000 each year, in addition to flights and hotels for interviews. After four years, he decided he had to go in another direction.
As the founder of the nonprofit Washington Academy for International Medical Graduates (WAIMG), he now advocates for those who face the same challenges and offers professional development opportunities through his organization. Through this work, he met folks with similar stories, like a Japanese neurosurgeon who married an American and moved to the U.S., but, even after passing the USMLE, was still working at Starbucks because she couldn’t match into a residency program. Khalif’s organization hired her for a job that would count as “hands-on” clinical experience to improve her prospects.
“Once she found this job,” says Khalif, “she actually cried. And I felt that. Because that’s what I’ve been through — those kinds of odd jobs — and I cried with her.” These stories keep him hopeful, even though he’s not able to practice: the fact that he’s making it possible for so many others.
***
The matching process is a major concern for Araya, Yemane, and their peers — not having their official transcripts or diplomas will likely pose problems during the difficult process of applying to residencies — once they even reach that stage. This year, only 55 percent of immigrant international medical graduates who applied for residency were matched to first-year positions, compared to 93 percent of U.S. graduates.
And every year Araya and Yemane have spent fighting for the right to even sit the exams has cost them: The more time that passes after a candidate’s graduation year, the harder it can be to secure a residency match.
“When you only consider somebody’s graduating year as a criteria and not know the story behind that, it hurts a lot of people. It hurts a lot of people who are really passionate,” says Araya. “To come here to fight for all these years to go back into your profession — that tells a lot about the persistence and the passion that person has for medicine.”
Amid the crisis, a door was cracked open for a select few. But, by and large, doctors like Araya and Yemane watched the pandemic unfold, stuck outside of a system they desperately wanted to be part of.
Khalif began to look for a solution that wouldn’t require physicians to repeat their entire residency. “Legislators did not know about this match process and this residency process,” says Khalif. “They thought people could apply for residency through Indeed Job Search or something.”
Members from Khalif’s non-profit met with legislators and eventually started gaining traction. “COVID really changed people’s minds,” says Khalif, and in May 2021, Washington Governor Jay Inslee signed into law SHB 1129, which allows limited licenses to be granted to internationally trained doctors in Washington who have completed their USMLE, without requiring residency to be repeated in the U.S. “Once you pass all your exams now, you don’t have to settle for an odd job, or leave the profession like I did,” says Khalif. “You can qualify for a license and work under the supervision of a physician, and you can take care of patients.”
The bill was overwhelmingly supported on both sides. Republican representative Mary Dye says that her small county of Garfield, with only a handful of doctors, has benefited from internationally trained physicians from Bangladesh and South Korea, who can work without the equipment, facilities, and large medical teams that most U.S. doctors rely on. “In rural America, we need people that have different experiences,” Dye explained. “We’re grateful to have … people that are capable of serving in these remote locations, under challenging conditions, with lots of limitations, and still provide wonderful medical care for our community.”
From the rural healthcare crisis to expanding medical access for at-risk populations, advocates believe internationally trained physicians could be part of the solution if given the opportunity. “I think they have a huge role to play in terms of health equity access, because of that cultural language fluency,” says Krause-Vilmar.
“We need to re-envision what the process is for licensure for doctors in the United States,” says Esposito, “so that we are not leaving out people who have 20 years of experience in a field where we know that we need more doctors.”
Without any change in legislation in California, the current residency hurdles are still daunting for Araya and Yemane, who hope that, when the time comes, institutions will consider their circumstances and give them a chance to prove themselves. “We are all a loss for our country,” Araya says. “I hope we’re not a loss here.”
***
One night, more than a year into the investigation process, Oleyn was working late in her Philadelphia office when she received a call from one of the Eritrean applicants. She detailed everything her team had tried — most recently, reaching out to the medical school in Cuba that had a partnership with the Eritrean medical school. But it was another dead end.
“Anything you can think of,” she asked on the phone that night. Anything at all.
In an attempt to leave no stone unturned, the applicants submitted lists of people they’d come into contact with during medical school — in the hope of providing a useful connection. As Oleyn’s team searched for leads through the lists of names, they found that one was a dean at a U.S. medical school. It turned out that a small number of U.S. physicians — faculty members of American medical schools like George Washington University — helped establish the school in Eritrea. The connection provided a glimmer of hope after months of coming up empty-handed.
A caseworker from Oleyn’s team contacted the dean; he didn’t remember the specific students but put them in touch with other American faculty members who had taught or helped design the post-graduate training curriculum in Eritrea. Oleyn’s team asked those physicians to verify the information about the applicants: the courses they took, which textbooks were used, and their graduation dates. They responded enthusiastically about the qualifications of each applicant and eagerly asked how they could help.
The alternate form of verification — with all the supporting evidence they had amassed — was presented to the ECFMG’s board of trustees, which finally granted approval in summer 2020. Araya and Yemane could move forward to the exam stage. When Yemane heard the news, she felt like she’d finally gotten her life back. “There was a time when I was too scared to be hopeful about that because I didn’t want to be disappointed,” she says.
Solomon had just finished a year of intro courses — Biology, Chemistry, and Physics — when the decision was released. He no longer had to repeat the rest of the prerequisite courses and medical school, and he was thankful to finally have some control over the next steps. “This is a challenge I can overcome,” he says. “An exam is just an exam. You study. You prepare.”
“It’s a good thing that we’re doing this exam,” Yemane says. “It’s a good way to revisit the basic sciences and to familiarize ourselves with what’s most important and most common in this country.”
The Eritrean physicians continue to stay in touch through their Whatsapp group, meeting occasionally, sharing job opportunities, and cheering each other on. Araya says she won’t stop rooting for their success. “Passing the exam, getting matched [with a residency program] has become more than even being a doctor: Just proving that the government back home, the school — whoever could not give us our certificates, credentials — that actually, there is justice in the world, and they could not dictate our professional pathways.”
This year, only 55 percent of immigrant international medical graduates who applied for residency were matched to first-year positions, compared to 93 percent of U.S. graduates.
In a thank you note Oleyn received an Eritrean physician wrote: “This shall also afford every graduate the privilege to revisit his/her oath to humanity, to summon his/her medical expertise, and to engage hereafter in the honored service of the people of the United States of America.”
It remains the most gratifying case Oleyn has seen in her 22 years at ECFMG.
***
On a warm Thursday in June 2021, Yemane traveled to San Jose to take her first exam. She hadn’t slept well the night before. Kept awake by nerves, she’d scrolled through Reddit, where other nervous exam-takers shared their anxieties. But in the morning, she pretended she’d had the best sleep of her life. “I think that worked,” she laughs. “I think I fooled my brain.”
The test center was familiar because she’d paid $75 to take a practice exam there earlier that week, but it was nerve-wracking all the same. “There was a lot of pressure on me, because I’m one of the first people taking the exam from my country,” she says. “And we begged for three years for this opportunity.”
She reminded herself that she was prepared. She’d done over 7,000 practice questions. She thought about a text her friend sent, telling her that the test outcome would not change her identity. She imagined her father and mother telling her, “You were created for this.”
When she finished the eight-hour exam, a sense of relief washed over her. This was the hardest test for her; the next one focuses on clinical skills, and she hopes to sit for it in spring 2022. After that, she will take the third and final test. The next challenge — applying for residencies — will be the final step in the long and expensive licensing process.
For now, though, she’s taking one step at a time. As she anxiously awaits the results, she knows that even if she doesn’t get the score she’s hoping for, she was brave just to take the exam after everything she’s been through. “That’s what I’m doing right now,” she says. “I’m celebrating the bravery.”
Shoshana Akabas is a writer and teacher based in New York. She primarily writes fiction and reports on refugee policy and issues of forced migration.
* * *
Editor: Carolyn Wells
Fact checker: Nora Belblidia
My Seat at the Table
Posted by 
Bernice L. McFadden
Bernice L. McFadden Getty Images
Bernice L. McFadden | Longreads | August 2021 | 15 minutes (4,049 words)
I discovered through DNA testing that my first maternal ancestor in the United States came from the country in Africa now known as Cameroon. This Cameroonian ancestor was a member of the Bamileke tribe — an ethnic group which originated in Egypt.
The table and the chair were invented in Egypt around 2500 B.C. Egypt is a country located in Northeast Africa and not in the Middle East as people have been misled to believe. Do you find it ironic that gaining a seat at the table has become a metaphor for the advancement into spaces that are historically and predominately white and male and generally resistant to Black and female representation?
Recently, Black people and women have been crashing those homogenized parties, bringing with them their own chairs or filling vacant ones at those proverbial tables.
Some of the gatekeepers feign acceptance of the racial modifications of these platforms, while others have no qualms conveying their disdain or outright outrage at the presence of a Black person at said table. For example, on Jan. 25, 2012, Jan Brewer, the former governor of Arizona, stood on the airport tarmac and chastised, like a child, one Barack Hussein Obama — a Black man who was, at the time, the sitting president of the United States of America. Moments later, when Brewer was asked about the incident she said, “He was a little disturbed about my book.”
Other gatekeepers are covert with their contempt, preferring to close their arms around unwelcomed Black people in an insincere embrace as they sink a blade into their backs.
I have a longtime friend. She and I are BFFs and are as close as sisters. She is white and Filipino, and we have been friends since 1979, when we first met at our mostly white boarding school in the rural Pennsylvania town of Danville.
We are both the eldest of four children, both raised in two-parent households.
For most of our relationship, race was not a topic of discussion. However, that changed in the early 2000s when she came to New York to spend a weeklong holiday with me. She’d spent the day in Manhattan, catching up with friends and taking in theater. Over dinner that evening, she shared that she’d had an extra ticket for the play she’d seen but hadn’t considered inviting me because she assumed I wouldn’t be interested in a staged production that did not have Black characters.
That statement stalled me. I asked if she thought that because I was Black, that my interest lay only in Black-centered entertainment?
She said yes.
I was stunned by her misconception of me and Black people on the whole. I asked if she, a biracial woman living in America, was only interested in European and/or Filipino art? She confessed that her interests were indeed diverse but couldn’t explain why she presumed it did not hold true for me or others who looked like me.
I explained that contrary to what she’d been told, Black people are not a monolith. I told her that we are diverse in every conceivable way.
This was the conversation that set us off on a journey about the myth of race, systemic racism, and what it’s really like to be Black in America.
At our school I was just one of a handful of Black students. On Saturdays, we girls, Black, white, and other, would walk from school into town, to lunch at the Arthur Treacher’s or the Hoagie Shop. Oftentimes, we would go to the local Woolworth’s to buy books, candy, and millinery supplies for sewing class. Even though I knew my white classmates were secretly slipping nail polish and lip gloss into their pockets and backpacks, it was me and the other Black girls that the store employees followed and hawk-eyed.
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Sometimes I spent weekends in the homes of my white classmates, those day students who lived in and around the town. It was always a treat to get away from campus, to sleep in a cozy bed and eat a home-cooked meal.
At the time, my family and I lived in a crowded two-bedroom apartment. The kitchen was tiny, leaving little space for a dining table large enough to accommodate a family of six. So, we children ate our meals in the kitchen while my parents ate in the living room, on the couch, plates in their laps.
My father believed that children should be seen and not heard, especially at the dining table, so talking was not permitted during meals. In contrast, the parents of my white friends encouraged and participated in mealtime discussions.
It was at one of those family dinners that I remember how my BFF’s father, a tall, slim, kind man with glasses, responded aloud to a question that I had not heard posed:
“Of course, the white race is the superior race.”
To this day, I do not know who asked the question or if in fact a question was actually asked. Perhaps, this man, who had always been nothing but kind and welcoming to me, found it necessary to remind me that even though I was in his Victorian home, sitting at his dinner table, eating the food that had been lovingly prepared by his Filipino wife — I was inferior to him.
I cannot recall if my friend and her siblings fell silent, or if my friend, her siblings, or her mother looked at me for a reaction or in consolation. I remember that I kept my eyes lowered to my plate, that the grip on my fork tightened, and the leisurely pace of my heart launched into a sprint. I was 15 years old and the situation my family had warned and prepped me for as a Black person living in white America had arrived yet again.
Before that incident, another incident took place in Brooklyn in the waning days of autumn when I was on my way home from middle school. On that day, I exited the subway on the south side of Prospect Park, in a neighborhood where very few Black people lived at the time. There, I was followed by two white teenage boys who pelted rocks at me, shouting, “Nigger, go back to Africa!”
A year or two before, my younger brother and I were walking down Rockaway Boulevard in South Ozone Park, Queens, a neighborhood that in the ‘70s was still majority Italian. As we made our way to our grandparents’ home, a group of white teenage boys and girls stalked us for blocks, hurling soda cans, bottles, and racial slurs.
The fact that my BFF’s father chose that moment to express his deepest held beliefs about his racial superiority is not beyond me. Indeed, my presence at his table was conditional — permitted only because I made his daughter happy and he enjoyed seeing his daughter happy because his love for her was unconditional.
Do I believe his declaration was meant to wound and degrade me?
Yes, I do.
Not only was I hurt, but being an empath, I also absorbed the humiliation on behalf of his Filipino wife who had not batted an eye at the insult.
Do I think that my friend’s mother believed that she, a Filipino person of color, was less than her husband because he was white, and she was not?
Yes, I do.
Mohandas Karamchand Gandhi, the Indian anti-colonial nationalist and spiritual leader, believed that Europeans were the most civilized of the races and that Indians were almost as civilized as Europeans and Africans were wholly uncivilized.
Perhaps my friend’s mother held similar beliefs.
Nevertheless, I would return to that house and eat at that table again and again, without further incident. But I would never forget the shot fired because the wound it left would not allow me to forget. The memory is lodged in me like the bullet it was intended to be.
I would return to that house and eat at that table again and again, without further incident. But I would never forget the shot fired because the wound it left would not allow me to forget. The memory is lodged in me like the bullet it was intended to be.
***
Some years after that dinner, my friend and her family traveled to the Philippines to visit her maternal family. Not too long after her return to the United States, she and I met for dinner at a Manhattan restaurant. I sat across the table from her and listened, enthralled as she recounted her trip in vivid detail. Near the end of her monologue she mentioned that when she ventured out without her Filipino mother or another Filipino family member for a walk or an excursion to one of the many marketplaces — she was baffled about why strangers addressed her in Tagalog, which is perhaps the most widely spoken language in the Philippines.
I frowned, asking, “Why was that so confusing?”
“Well,” she said, “because I don’t think I look Filipino.”
“What do you think you look like?”
“American.”
I am keenly aware that people who look like me — people born Black, without “the complexion for the protection” as comedian Paul Mooney described it — understand that when people say American, that means white. Those of us born in America who are not white are hyphenated to stress that we are not real Americans, but hybrids — like broccoflowers and limequats.
My BFF is tall, beige-complexioned with almond-shaped eyes, and long straight black hair. To me she looks Asian, but I admit, she could also pass for Native American. The one thing she cannot pass for is white, which is how she saw herself.
My BFF is tall, beige-complexioned with almond-shaped eyes, and long straight black hair. To me she looks Asian, but I admit, she could also pass for Native American. The one thing she cannot pass for is white, which is how she saw herself.
I smiled, reached for the wine glass, and asked, “Well, friend, if you look American, then what do I look like?”
I watched the epiphany rise in her eyes like the morning sun.
***
In his 1997 essay, “Deconstructing the Ideology of White Aesthetics,” John M. Kang wrote:
Like male chauvinism, the ideology of White aesthetics assumes that the politically dominant group, White people, are inherently superior to a weaker group, people of color. The ideology of White aesthetics holds that people of color, by virtue of their aesthetic inferiority to White people, deserve to remain subordinated.
Kang’s observation was validated during the 2014 National Book Awards, a major literary event that honors the best and brightest writers.
In 1953, just three years after the award was conceived, Ralph Ellison would win for his novel, Invisible Man. Ellison was the first Black writer to win a National Book Award. Two decades would pass before another Black writer would be so honored. In 1975, Virginia Hamilton received the award for her children’s book, M. C. Higgins, The Great.
In 1983, both Alice Walker and Gloria Naylor received National Book Awards for their novels: The Color Purple and The Women of Brewster Place. So if you’re counting, only four Black authors were awarded National Book Awards over a 30-year period.
The 2014 National Book Awards dinner was held at the ritzy Cipriani Wall Street restaurant located in NYC’s financial district. The nominees, their guests, and ticket holders, all dressed in their finest threads, sat at tables covered in white linen cloth. Before the awards were given, the attendees were treated to a sumptuous meal complete with wine and cocktails.
That year, Jacqueline Woodson, a Black woman, received the award in the Young People’s Literature category for her novel, Brown Girl Dreaming. After Woodson gave her acceptance speech, host Daniel Handler — aka Lemony Snicket, a white man best known for his children’s books, A Series of Unfortunate Events and All the Wrong Questions — returned to the stage and gleefully bellowed:
“I told you! I told Jackie she was going to win. And I said that if she won, I would tell all of you something I learned this summer, which is that Jackie Woodson is allergic to watermelon. Just let that sink in your mind. And I said you have to put that in a book. And she said, you put that in a book.”
Handler continued: “And I said I am only writing a book about a Black girl who is allergic to watermelon if I get a blurb from you, Cornell West, Toni Morrison, and Barack Obama saying, ‘this guy’s OK! This guy’s fine!'”
“Alright,” he chuckled when he realized the crowd was uncomfortable. “Alright, we’ll talk about it later.”
***
The Laugh Factory in Los Angeles is a well-known comedy club that has hosted many legendary comics of all backgrounds, creeds, ethnicities, and genders. The audience sits in chairs that are arranged in the form of a C around the stage.
Back in 2006, Michael Richards, former star of the popular syndicated television show Seinfeld, was performing at the Laugh Factory when he became enraged because Black audience members were heckling him during his standup routine.
The infuriated Richards took the opportunity to remind the Black audience members that: “Fifty years ago we’d have you upside down with a fucking fork up your ass.” Richards continued, “You can talk, you can talk, you’re brave now motherfucker!’
He demanded that the Black people be removed from the club, barking, “Throw his ass out. He’s a nigger! He’s a nigger! He’s a nigger! A nigger, look, there’s a nigger!”
***
If the lunch counter is the heir to the table, then the chair is the progeny of the stool. For decades, Black people, those offspring of enslaved Africans, were barred from service at lunch counters in the Jim Crow south.
On Feb. 1, 1960, the Greensboro Four, who were students at North Carolina Agricultural and Technical College — Ezell Blair Jr. (who later took the name Jibreel Khazan), David Richmond, Franklin McCain, and Joseph McNeil — walked into the Woolworth’s department store in Greensboro, North Carolina, sat down at the lunch counter, and ordered coffee and sandwiches.
Soon, their mission to disrupt and dissolve the segregationist edicts that supported Whites Only counters were adopted by Black people and their white allies in other segregated Southern states, and the “Sit In” movement was born.
The “Sit In” crusade was an act of non-violent, civil disobedience that was frequently met with violence.
Activists were spat on, milk poured over their heads, smoke blown into their faces —in some cases they were punched, slapped, and brutally removed from the lunch counters.
***
A news desk is similar to a luncheonette counter. Journalists sit at these desks to report the news. Guests are often invited to sit at news desks to enlighten viewers on a topic on which they may or may not have expertise. Sometimes, multiple guests are summoned to debate an issue.
On April 7, 2010, AWB (Afrikaner Resistance Movement) secretary-general Andre Visagie, a white South African man, appeared with political analyst Lebohang Pheko, a Black South African woman on e.tv’s current affairs show Africa 360, to discuss race relations in the wake of Eugène Ney Terre’Blanche’s murder.
Terre‘Blanche was a white supremacist and Afrikaner nationalist who founded the AWB. According to Wikipedia, Terre‘Blanche swore to use violence to preserve minority rule. In 1997, Terre’Blanche was convicted and sentenced to six years in Rooigrond Prison for assaulting a gas station attendant and for the attempted murder of a Black security guard. He served three years before being released. Terre’Blanche was murdered on his farm on April 3, 2010.
During the TV show exchange, Andre Visagie became enraged when Pheko continuously interrupted him. In the video, Visagie rips off his microphone and springs from his chair. The incensed Visagie aims his finger at Pheko, declaring: “You won’t dare interrupt me!”
Chris Maroleng, the Black South African host of the show, planted himself between Pheko and the irate Visagie. For a millisecond, it seems as though the two men might come to blows until finally, Visagie addresses Pheko again, warning, “I am not finished with you.”
Andre Visagie was born and raised under an apartheid system dissolved in 1994. In 2010, he was a silver-haired old man living in a country where Black people were no longer required to be subservient to the white minority.
As I watched the exchange between the white Visagie and the Black and female Pheko, I could sense the radiating fury of Visagie as he tried to grapple with the fact that a Black woman was asserting herself, holding her ground, and speaking her mind as if she was his racial equal.
Only that the world was watching kept Visagie from pummeling Pheko to death.
***
In some academic institutions, students sit on furniture known as a combo school desk, which is a chair with a small table attached.
In October 2015, a 16-year-old Black girl was seated in a combo school desk in her math class at Spring Valley High School in Columbia, South Carolina.
In South Carolina the school system remained partially segregated until 1970. In February of 1970 the United States Court of Appeals for the Fourth Circuit Court ordered that a school desegregation directive be issued in Lamar, a town just one hour from Columbia.
Nearly 200 hundred angry white parents, irate that their children would be taught alongside Black children, armed themselves with guns, chains, bricks, and axe handles and descended on buses carrying elementary- and high school-aged students from Lamar. The mob overturned two school buses and clashed with law enforcement before they were finally subdued with tear gas. During the melee, six Black students were injured.
The young lady in the math class at Spring Valley High School was on her cell phone, which is against the rules, but not a crime. When asked to put her phone away, she took her sweet time doing so. This infuriated her white teacher, who asked her to leave the class. When she refused, the vice principal was called in. He too asked her to leave the class. Still, she refused to leave.
Senior Deputy Ben Fields, a white school resource officer, was called in to handle the situation.
According to the LA Times, Fields “… wrapped his arm around her neck and tried to pull her from her desk, which flipped backward to the floor. He dragged her out of the desk, threw her across the floor, and arrested her for disturbing the classroom.”
***
One of the games I remember playing in grade school was musical chairs. The teacher would arrange a circle of chairs that equaled one less chair than the number of players. For example, if there were 10 students, there would be nine chairs.
The teacher would play a song on the record player and we children would march around the circle of chairs. When the teacher stopped the music, we would all scramble to secure a seat. The student left standing — because he or she failed to capture a chair — was the loser.
Afterward, the teacher removed a chair, turned on the music, and the game continued until there were only two students and one chair left.
As the number of chairs decreased, the anxiety among the players heightened. Oftentimes the game turned violent. Students would push and shove their fellow classmates to keep them from stealing the chair away from them.
The point of musical chairs is to teach children fair play and sportsmanship.
***
In May of 2019, my high school friend married the love of her life in a lovely church ceremony in Pennsylvania. The intimate wedding reception, attended by close friends and family, was held at a rustic, stylish restaurant.
The bride, her groom, and all 60 of her guests sat at a long wooden table. Good wine and delectable food were served.
I was the only Black person in attendance. I was aware of my Blackness but not uncomfortable with it.
Across the table from my friend and her new husband, I sat sandwiched between my BFF’s youngest brother and a woman who was filled with so much joy that her laughter sounded like sleigh bells.
Seated next to the happy couple was the brides’ middle brother and his wife. The teenage children of both brothers filled out the remaining seats at the west end of the table.
From the corner of my eye, I saw the wife of the second brother stealing long, probing glances at me. When I suddenly turned to meet her inquisitive eyes, her face brightened with embarrassment.
We gazed at each other until flustered she asked, “So, how do you like living in New Orleans?”
I told her that I liked it just fine, to which she nodded, looked away, and wondered aloud to no one in particular how the family cat was getting on in her absence.
Afterward, I returned my attention to the woman with the jingle-bell laughter.
There were several conversations happening at once around the table. Everyone spoke at an even decibel — just loud enough to be heard by the person they were speaking to, but not so loud that their exchange could be heard by guests seated two or three seats away.
The woman I was conversing with said something funny, and I chuckled into my palm, stifling my usual, open-mouthed guffaw, because I was aware that more often than not, white people find Black joy invasive.
I was conscious of this even before August 2015, when the Black women members of the Sistahs on the Reading Edge Book Club, were kicked off of a Napa Valley wine train in California because white passengers found their laughter “offensive.”
The woman I was conversing with said something funny, and I chuckled into my palm, stifling my usual, open-mouthed guffaw, because I was aware that more often than not, white people find Black joy invasive.
I had wiped a tear from my eye with one hand and was reaching for my water glass with the other, when one of the teenagers asked a question, loud enough for the entire table to hear:
What’s the name of that song by NWA?
I brought the water glass to my lips and even though I kept my eyes trained on the woman who’d made me laugh my eyes wet, I could no longer hear the words tumbling out of her mouth, for my ears were tuned for the response to the question. Heat crept through me and I realized that my anxiety had escalated from low-risk stage green to warning-risk stage yellow.
The question was repeated — this time a decimal above the initial inquiry.
What’s the name of that song by NWA?
To me the question sounded like the clearing of a throat, a tap on my shoulder, a nudge in my side — which is to say it yearned for my attention.
The question had been posed twice — by two of the grandchildren of the man who wounded me decades earlier. He had been dead for years, leaving his progeny to continue his legacy.
I believe his grandchildren wanted me to turn around so they could see the fire that they’d lit in my eyes. Perhaps too, they wanted to witness, firsthand, the infamous angry Black woman that is lore in white imaginations.
But I did not give them the satisfaction of seeing my anger and my pain and the leaking wound their words had reopened. Instead, I maintained my position — head turned, back to them — enduring the mental and emotional weathering — the erosion those words inflicted on me.
The microaggression veiled as an innocent question about a group whose name is an acronym for Niggaz Wit’ Attitude was asked a third time, this time by the mother who had abruptly ended her short conversation with me to wonder about her cat.
“No,” she giggled, “I don’t remember the name of that song by N … W … A.”
She dragged the letters for effect.
Nigger was the trigger to which I was expected to react. And even though the foul word itself had not been uttered, its implication was as clear as the crystal wine glasses on the table.
I understood that this word play was my verbal reminder that my seat at that table was untenable. I understood that my presence was tolerated but not welcomed and that if they had to deal with my company because the bride loved me and they loved the bride, well then, their lenience would come with a side of cruelty.
Nigger was the trigger to which I was expected to react. And even though the foul word itself had not been uttered, its implication was as clear as the crystal wine glasses on the table.
***
The table and the chair were invented in Egypt. Egypt is a country located in Northeast Africa and not in the Middle East as people have been misled to believe. I am a descendant of the Bamileke tribe — an ethnic group which originated in Egypt.
Egypt is in Africa.
Egypt is in Africa.
* * *
Bernice L. McFadden is the author of 15 novels and the recipient of the 2017 American Book Award as well as NACCP Image Award for Outstanding Literature for her novel, The Book of Harlan. She is a Professor of Practice at Tulane University.
* * *
Editor: Krista Stevens
Fact checker: Julie Schwietert Collazo
Happy is a Relative State
Posted by 
Longreads
Longreads Images courtesy of West Virginia University Press and the author
Renée K. Nicholson | Fierce and Delicate: Essays on Dance and Illness | May 2021
1,977 words (7 minutes)
***
Imagine, once you had performed splits in midair. Now, sitting in a doctor’s office chair, you’re shown an X-ray that confirms you no longer have any cartilage in your right knee. For years, you’ve hobbled around with the aid of a cane, but now even that’s not an option. You have two choices. You either have a total knee replacement or you figure out how to get around with a walker or wheelchair.
You are thirty-six years old.
One of the few times I’ve cried in public was that day in my rheumatologist’s office. I guess it wasn’t so public, but it wasn’t alone. I hate that I broke down like that, but finally I couldn’t keep my composure. My rheumatologist is a kind man, with a no-nonsense way about talking about RA. The choices were limited, and I had to accept that. I already had, of course. By this time, putting weight on my leg was more pain than I could hide, and relying on a cane was not enough. I could barely walk, but I did, perhaps by sheer willpower, to get from one place to another.
Instead of telling me not to cry, my rheumatologist let the sobs flow, until there was a break, and then he brought me into his business office and called the orthopedic surgeon he thought was the best in town. He took such a personal interest in making sure I was going to do this thing I didn’t want to do. I think he knew I’d already decided to have the knee replacement surgery, but both my rheumatologist and the orthopedist gave me the option of calling back with a decision. I slept on it, but I didn’t toss or turn a bit. I knew I had to get the surgery, so first thing in the morning, I called and asked for the next available appointment. Once I made the decision, I was determined to get it done as soon as possible. No waiting around or mulling it over. Once again, I moved on quickly.
Though I was able to get in for surgery within a couple of weeks, I still needed a way to get around in the meantime, and so I found myself in a medical supply store, shopping for a walker. I wanted something basic, because I was hoping that I wouldn’t need it all that much—just pre- and post-op. Strangely, this view betrayed optimism I hadn’t dared to feel in a long time.
There were two elderly ladies in the store with me. Onechecked out a high-end walker with wheels and hand brakes like a bike. The salesperson had tried talking me into a similar model, but I wanted the cheaper one, without wheels, without bells and whistles. Basic worked for me. It seemed weird to think of walkers as having bells and whistles, but they do. The other elderly lady in the store bought a walker organizer—a fabric caddy with various pockets—that fits over the bar across the front of the walker so you can keep things like keys and cell phones handy. The lady suggested I also get a walker organizer. She showed me the fancy ones made of zebra-, cheetah-, and leopard-print fabrics.I decided right there I would just use a backpack or my pockets. It was too much for me to consider a cheetah-print walker organizer. It certainly didn’t seem fashion forward, and I’d only just accepted the need for the walker. I was not
ready to give in to accessorizing, making the apparatus into a statement, not even when the salesperson asked if I might also like the see the giraffe print.
Before my surgery, my mother came to stay with me to help with the day-to-day stuff around my house. She cooked, cleaned, and drove me to appointments. My father also came for regular visits, both to be with my mom, who he missed at home, and me, as I prepared for surgery. During one of these visits, Dad went to see the orthopedist with me. He always carried a small notebook and a maroon Montblanc pen, and he took notes on what I needed to do and what I could expect, all of the details that only partially sunk in as I sat in the white examination room trying to be brave, or at least to not look nervous. When my father asked the doctor what I would not ask—what were the chances of success?—the orthopedist told
him he would do his best, but certain things were for God to decide. He did say he thought I would be free of pain, but there had been a lot of damage. He explained that many patients could do much more after surgery than before, and in spite of all the hope that had quietly slipped away over the years, I felt like maybe things would get better. Maybe I had to feel this way so that I didn’t feel like a thirty-six year-old getting a surgery usually meant for a senior citizen. And so I could believe it was, in fact, the best choice.
Imagine, once you had performed splits in midair. Now, sitting in a doctor’s office chair, you’re shown an X-ray that confirms you no longer have any cartilage in your right knee.
At this point, perhaps you’re thinking, yes, the happy ending is coming. This might make you sigh with relief, or become disenchanted with the story, feeling the happy ending wasn’t earned. There’s some judgment at the prospect of happiness, just as this entire story opens me up for scrutiny. Even though the surgery would help with the pain I had in my right knee, even though it partially restored what had been destroyed, it did not, of course, cure my RA. I never thought it would, and you shouldn’t think that either. I still have swelling, fatigue, fever, aches, joint damage. I can also get around in a fairly normal way now.
Happy is a relative state.
The night after my surgery I got very little sleep because I had intense pain. The night nurse had already threatened to catheterize me if I didn’t urinate, and so I willed myself to pee, only to be left atop a full bedpan. So things didn’t start off great that evening, and once the meds wore off, I felt like my thigh muscle was being slowly shredded with a cheese grater. My dad stood vigil by my bedside, getting only sporadic sleep in an easy chair. Luckily, I didn’t have to share a room with another patient. My father tried desperately to get the nurse to give me something for the pain, and perhaps she did, but I honestly can’t remember. I remember him holding my hand so maybe I wouldn’t feel so alone, and I remember squeezing because it hurt that bad.
Dancers build muscle memory from the day-in, day-out study of technique. Over the years, my thigh muscle had learned a new muscle memory, trying to pull my kneecap
up from my deteriorating joint. My orthopedic surgeon told me that even under full anesthesia my thigh muscle would not relax at first—the only time he’d ever seen this. The muscle still tried to manipulate the kneecap to avoid painful grinding in the joint. The body’s ability to adapt to protect itself is quite remarkable in this way. Though my orthopedist finally did get it to relax, my muscles retained a dancer’s memory. What could have been a minor curiosity signified to me a small connection to my former self.
After the first night, things did get better, but it was slow going. My leg was strapped into a machine that helped stimulate the new joint by continually keeping it in motion, as if pedaling or walking. I could lie down as this happened or sit propped on pillows, and many times I’d get calls from friends, which were welcome distractions, as the machine churned my leg. I learned exercises I would have to perform daily and made arrangements for physical therapy. When I was released from the hospital, I was given strong pain pills, but within a few days, I stopped taking them because I wasn’t hurting so much, not compared to how much I’d hurt before the surgery, and I worried about becoming dependent on them. Pain, by then, was one thing I knew how to contend with.
Pain, by then, was one thing I knew how to contend with.
In the weeks immediately following my surgery, I still needed the walker. My wound needed to heal, and I had to learn to walk again. I’d limped for so long, accommodating a joint that continued to fall apart, that my legs literally needed retraining on how to correctly put one foot in front of the other.
Dance had taught me how to train. So even though it took three physical therapists and some unconventional approaches, like a Pilates reformer and manipulation of the joint under anesthesia by my orthopedic surgeon, I finally made progress. First, though, a remarkable thing happened. As the wound from the surgery healed, I stopped hurting for the first time in what felt like forever. I felt nothing, and it was bliss. My father said he watched my facial features loosen and soften, too. He said I looked younger because I no longer carried the pain on my face. I didn’t know it was so evident. Perhaps I’d never hidden my anguish at all, that it was there, on display, the whole time.
I’ve never regained full mobility with my prosthetic knee, but I’m able to do things now I thought I might never do again. Take the good with bad, the saying goes, or is it the other way around? The ending isn’t simply happy or sad. It isn’t really an ending.
This past June I had the opportunity to renew my handicap placard for my car. But as the date for this renewal came and slipped by, I’ve yet to have my doctor sign the papers I’d need to file at the DMV. I can walk from any space in the lot to where I need to go. I can walk without the aid of a cane. I can walk at a normal pace and move with relative ease.
Once a week I slip the needle of a prefilled syringe into the fleshier parts of me, dispensing medicinal liquid that helps to balance my whacked-out immune system. During the week, I spend several hours in a studio, in the presence of dancers as their teacher. Twice a day, anti-inflammatories. All this give and take, but I’ve found an uneasy peace. I’ve given you a version of my story, the best I have to give. I crafted it with words I chose and plucked so carefully, shaped through revision. I’ve given you this tale and you will decide what to make of it, what to make of me. I have no control over that. You may judge or feel or discount. Perhaps a concoction of all three. I accept that, once written, my story is no longer wholly mine. Still, I give it to you.
Today I am sick, and tomorrow I will be sick, as I will be every day until I die. I may not like it, but that’s how it is. The rest of my life will always be entwined with rheumatoid arthritis. But it’s my choice to also be something more, to not feel sick, to still find those shadows of a dancer, which is to say tiny flecks of magic, within me. Like anyone who is hopelessly in love, I will always be the keeper of a flame.
***
Excerpted from Renée K. Nicholson’s Fierce and Delicate: Essays on Dance and Illness, published by West Virginia University Press.
Queens of Infamy: Boudicca
Posted by 
Anne Thériault
Anne Thériault Illustration by Louise Pomeroy
Anne Thériault | Longreads | May 2021 | 18 minutes (4,866 words)
From the notorious to the half-forgotten, Queens of Infamy, a Longreads series by Anne Thériault, focuses on world-historical women of centuries past.
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* * *
She was tall — terrifyingly large, in fact. Her tawny hair fell in a “great mass” to her hips. She was dressed in a colorful tunic and cloak, her outfit completed by a giant fuck-off gold torc. Her voice was harsh, unfeminine. She had spent the last weeks murdering and maiming her way across the British countryside, and now she led a force of hundreds of thousands of Britons in a standoff against the occupying Romans. She had a rabbit hidden in her skirt for occult purposes. She was a bloodthirsty barbarian, devoted to a ghoulish religion, out to destroy the social order of the known world. At least, this is how historian Cassius Dio described Boudicca, a British tribal queen, over one hundred years after her death — every civilized man’s worst nightmare.
But before we dive into the revolt that literally burned London to the ground, we need some context. The Romans had first cast their eyes toward Britain back in the good old days before Julius Caesar crossed the Rubicon and got himself murdered. Caesar, who had been conquesting his way through Gaul for a few years, decided to take a break in 55 BC and invade Britain as a little treat, although “invasion” is probably a stretch since he didn’t do much more than visit Kent and then turn back. But it must have been a fun caper, because he returned the next year, this time managing to cross the Thames and score a few victories against the Britons. After that Caesar had to put a pin in it due to other pressing business; he had a republic to bring down, after all, and a back that needed stabbing. In the chaos that ensued, Rome more or less ignored Britain for the next hundred years until the Emperor Claudius decided to invade again in 43 AD.
Boudicca appears in the narrative about 17 years after Claudius’ invasion. Her husband, Prasutagus, was the ruler of the Iceni, a British tribe whose territory included modern-day Norfolk and parts of Suffolk. The historian Tacitus, who gives us a near-contemporary account of Boudicca’s uprising, wrote that she was of royal blood, but beyond that we don’t know much about her. Did she come from Iceni nobility or was she a princess from another tribe who had married Prasutagus as part of an alliance? Was Boudicca her given name, or since it’s believed to come from a Proto-Celtic root word meaning victory, was it a title she adopted? We don’t even know how old she was in 60 AD — she had two daughters by Prasutagus who were probably in their tweens or early teens, and if those were her first and only children, she could have been as young as 30. Then again, if there had been other children who had died or if, for some reason, she’d married later or hadn’t been able to conceive right away, she could have been in her 40s or even 50s. All we know about her life are the scraps that Tacitus and Dio left us, and those are the highly biased Roman accounts describing an enemy they considered to be primitive and sub-human.
BOUDICCA: I mean, the Romans barely consider their own women to be people
BOUDICCA: even the ones they allegedly like
BOUDICCA: you know, the ones who’ve mastered the skills of shutting up and spinning wool
BOUDICCA: neither of which are exactly my forte
The Iceni had allied themselves with Rome and been allowed to live fairly autonomously with Prasutagus as their client king in the standard Roman model. They were apparently quite wealthy and prosperous, even as neighboring regions were gutted by invading forces. As long as the Iceni kept bootlicking paying their taxes, everything was going to be fine. Or at least that’s what they believed right up until Prasutagus died and all hell broke loose.
BOUDICCA: my husband had a will, as all responsible adults should
BOUDICCA: if you don’t have one yet, close this tab and go make one right now!
BOUDICCA: anyway, he split his assets between our daughters and the Emperor Nero
BOUDICCA: the Romans, being always fair and just, honored that agreement
BOUDICCA: oh my god, I’m sorry, I can’t even say that with a straight face
BOUDICCA: of course they didn’t honor it
BOUDICCA: but seriously, you need a will if you don’t have one already
The fact that Boudicca was not named as one of Prasutagus’ heirs, even though she was his wife and the mother of his children and was going to rule as regent until they came of age, might be a clue as to what kind of person she was. Some historians speculate that she might have had strong anti-Roman sentiments even before shit went sideways — that perhaps her family of origin may have been involved in some of the earlier revolts against the Empire. Maybe Prasutagus had strategically left her out of his will as a way of reassuring Rome that he was on their side. After all, nothing was guaranteed to stir up ire like naming a possible insurrectionist as your successor. But, as it turned out, the Romans’ ire was going to be stirred no matter what. Prasutagus’ death was the perfect opportunity for a land grab, and the Romans were going to use whatever excuse they could to make it look legitimate.
All we know about her life are the scraps that Tacitus and Dio left us, and those are the highly biased Roman accounts describing an enemy they considered to be primitive and sub-human.
The Romans claimed that Prasutagus’ agreement with the Emperor Claudius was now null and void as both parties were dead. Since there existed no contract between Boudicca and Claudius’ successor, Nero (yes, that Nero), they were under no obligation to honor Prasutagus’ will. When Boudicca pushed back, the Romans turned violent. Their army plundered Prasutagus’ lands and enslaved various members of his family. They stripped the most powerful Iceni men of their land and possessions. Worst of all, they publicly flogged Boudicca and raped her daughters. This last act was not only meant to terrorize the girls both physically and psychologically, but, from a Roman perspective, the soldiers were also marking them as damaged goods. One of the foundational myths of Rome involves a noblewoman killing herself to escape the perceived dishonour of having been raped — that was the only way she could restore her lost virtue. The assault on Boudicca’s unnamed daughters was a way to harm not only their present but also their future prospects as wives, mothers, or even just respectable women. And considering that the girls were the heirs of the King of the Iceni, it may even be seen as an attempt to curtail the future of the tribe itself.
BOUDICCA: I guess they thought they could break me
BOUDICCA: beat me into submission, that kind of thing
BOUDICCA: they weren’t used to women who fight back
BOUDICCA: or women who fight at all, full stop
BOUDICCA: which is why they failed to notice or care when I started rallying my own troops
BOUDICCA: told my daughters to get in the chariot, because we are going to burn this fucker DOWN
PASSING ROMAN SOLDIER: awww, it’s cute that a little lady thinks she has troops!
BOUDICCA: you see what I mean
Part of the reason the Romans were less than attentive to Boudicca’s casual fomenting was that they were distracted by a different British problem. Suetonius, the governor of Britannia, was tired of the turbulent British priests — the Druids — and decided to stamp them out. His official reasons? The Druids were sheltering anti-Roman political refugees on the Isle of Mona (modern-day Anglesey) and it was alleged they practiced human sacrifice. It’s honestly kind of rich that the Romans — who had only stopped ritually sacrificing people about 150 years before and who loved to, you know, watch gladiators fight each other to the death — were so hung up on the sanctity of life or whatever, but people can rationalize anything. Anyway, the real reason that Suetonius and his peers wanted to take out the Druids was because they held an uncomfortable sway over the British population and refused to be assimilated. Basically, the Romans were worried that they would stir up rebellion, and also they just found them kind of spooky.
Worst of all, they publicly flogged Boudicca and raped her daughters. This last act was not only meant to terrorize the girls both physically and psychologically, but, from a Roman perspective, the soldiers were also marking them as damaged goods.
When Suetonius and his men arrived at Mona, they could see the Druids raising their arms and chanting, while a bunch of messy-haired women in black swung burning sticks around. Tacitus would later compare these women to the Furies, which might explain why the Roman soldiers were so uncharacteristically unnerved.
SUETONIUS: it was just, you know, so uncivilized
SUETONIUS: I had to … god, this is embarrassing
SUETONIUS: I had to remind my men that women aren’t worth being afraid of
SUETONIUS: anyway, we pulverized their sacred groves
SUETONIUS: we pulverized them GOOD
SUETONIUS: Druids delenda est and all that
It’s hard to overstate the level of desecration at Mona. It wasn’t just that the island was an important place of worship; in the belief system of the Celtic Britons, every river, every lake, every grove had its own individual god. By destroying the groves, the Romans quite literally killed British gods. The tribes were already primed for revolt, and as the news about Mona reached them, it must have added fuel to their fire.
Another result of Suetonius’ decision to take on the Druids at Mona — which was on the opposite side of Britain from the Iceni territory — was that the Roman governor was conveniently out of the way when Boudicca and the Iceni set off on their tear.
Boudicca found an ally in another local tribe, the Trinovantes. Like the Iceni, the Trinovantes had an axe to grind with the Romans, namely the colonia they had established in Camulodunum (modern-day Colchester), and the rebels chose that as their first target. But before we go deeper into that story, we need to take a brief detour.
One of the Empire’s grifts was that legionaries who fulfilled their enlistment terms received a small parcel of land. So if you were an enlisted nobody from a poor family, you could pull yourself up in the world by serving the required 25 years and getting your own land grant (assuming you lived that long; plenty of legionaries didn’t). The problem, of course, was that land is a finite resource, and these land grants typically stayed in families for generations. This meant that to fulfill their promise to their veterans, the Empire had to keep expanding outward into the ether, annexing more and more territory. Of course, the Emperors had their own reasons for wanting to broaden the Empire’s boundaries! But a side benefit to all that growth was that it meant more available land for veterans — once they’d cleared out those pesky native inhabitants, of course.
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Anyway, back in the pre-Roman times, Camulodunum had been one of the most important settlements in Britain, serving at one point as the capital of the Trinovantes tribe. Naturally the Romans thought it would be the perfect spot for them to settle down. In doing so, not only did the Romans drive the Britons out, but archeological evidence shows that they forced the displaced people to live and work in brutal conditions while re-building the town to Roman specifications. According to Tacitus, the soldiers posted encouraged this abuse of the Britons, even though it went against Roman policy (this was, after all, supposed to be a peaceful settlement, not a battlefield); he noted that those soldiers saw their future selves in the retired veterans and hoped they too would be allowed to treat native populations however the fuck they wanted someday.
BOUDICCA: you can’t spell colonialism without colonia!
BOUDICCA: yes, I know that’s the point
BOUDICCA: I understand how language fundamentally works
BOUDICCA: root words, et cetera
BOUDICCA: but since my husband’s death I’ve had to take up the mantle of dad jokes in our family
As Boudicca travelled across the country, her following grew. Those joining her cause weren’t just warrior-type men from the Iceni and the Trinovantes, they were people of all genders and ages. Farmers abandoned their fields and women loaded their children into carts to join the throng. With every British settlement they passed, the mass of people bearing down on Camulodunum increased in size; according to Dio, by the time they reached the city, they were 120,000 strong. The Britons were done hedging their bets — they were either going to solve the Roman problem once and for all, or they were going to go down in a blaze of glory.
Meanwhile, in Camulodunum, strange things were happening. A statue of Victory fell over, apparently for no reason. Women went into a frenzy, speaking in tongues and making frightening prophecies. South of the city, at the Thames Estuary, people saw visions of drowned houses in the water and the North Sea seemed to turn the color of blood. But even with all these portents and the news of Boudicca’s approach, the leaders told the townspeople not to worry. It was just a rag-tag group of women, after all — and not just any women, but primitive, uncivilized British women. No big deal. There was time to evacuate, but why bother? The procurator of Roman Britain, Catus Decianus, ordered an extra two hundred men to Camulodunum and figured the problem was solved.
BOUDICCA: obviously misogyny sucks
BOUDICCA: and no one likes to be underestimated
BOUDICCA: but sometimes that kind discrimination is a gift
BOUDICCA: a gift called the element of surprise even though they saw you coming
Boudicca’s army did not just attack Camulodunum, they razed it. They slaughtered every Roman they could find, even children and the elderly. They defaced graveyards and set buildings ablaze. The head of a statue of Emperor Claudius was crudely hacked off and thrown in a river. Some townspeople barricaded themselves in a temple, but even that couldn’t save them — after two days’ siege, the Britons stormed it and killed everyone inside. The destruction was so intense and so fiery that the layer of soil from that period is a strange orange-red.
BOUDICCA: some people use the term “scorched earth” metaphorically
BOUDICCA: but I’d say I’m more of a literalist
BOUDICCA: some women just want to watch the Roman world burn, I guess
BOUDICCA: again, not in a figurative sense
One curious thing about Boudicca’s sacking of Camulodunum is that it seems to have left no bodies behind. There’s plenty of archeological evidence to show that the city was gutted, but there are no mass graves or deposits of human remains, even though everyone agrees that the Queen of the Iceni authorized wanton mass-murder. Some historians theorize that the Romans later came back and cremated the dead, while some wonder if the high death toll was a bit of exaggeration. Still others have suggested that Boudicca and her people removed the bodies to a nearby oak grove for darker purposes, perhaps some kind of religious rite to Andraste, a local goddess of victory. While Celts of all stripes did enjoy dismembering those they had conquered in battle — they would apparently embalm their heads and put them on display in their homes as trophies — this last theory is probably a little too far-fetched to be true. Then again, given some of the allegations Dio would later make against Boudicca, maybe not.
The destruction was so intense and so fiery that the layer of soil from that period is a strange orange-red.
After Camulodunum, Boudicca turned her gaze toward Londinium. Although it wasn’t a particularly big or important city, Londinium made sense as her next target because, unlike many of the other towns in Roman Britain, Londinium had likely never been a British settlement — it was a Roman enterprise, a trade outpost whose location was chosen because the river there was narrow enough for a bridge but deep enough to accommodate Roman seagoing vessels. By the time Boudicca went on her tear, the young city had already become a bustling centre of commerce, with goods from such distant locations as Spain, Greece, and Syria later uncovered in archeological digs. To strike at Londinium would, in Boudicca’s mind, have been like striking at the heart of the Roman occupation itself.
The Romans had, of course, by now figured out that this was more than a throw-two-hundred-men-at-it-and-call-it-a-day kind of problem. The IXth legion (or, at least, part of it) was dispatched to deal with the unpleasantness at Camulodunum, but they were routed by Britons just north of the colonia. Meanwhile, Suetonius himself, having finished butchering those old harpies on Mona, rushed to Londinium. He somehow made it there before Boudicca, even though he had to cross the breadth of the country and the Britons only had to saunter down the coast. That’s one of the benefits of travelling without children, I guess!
Suetonius had, at least according to Tacitus, initially hoped Londinium could be used as a military stronghold against the Britons. He quickly realized that Londinium was not fortified and was in no way capable of withstanding the type of attack that Camulodunum had suffered. He immediately abandoned the city to its fate.
SUETONIUS: look, I’m a real-talk kind of guy
SUETONIUS: I tell hard truths, and some people think that makes me an asshole
SUETONIUS: but I think it just makes me honest
SUETONIUS: so I honestly told them they were honestly fucked
SUETONIUS: I’m not a magician, I can’t make defences appear from nowhere!
SUETONIUS: so I told them I was going to make a last stand somewhere else
SUETONIUS: and I invited all the able-bodied men to join me
SUETONIUS: which I feel was very generous
It’s not known how many people took Suetonius up on his offer; it’s not even known how large the population of Londinium was at the time, although some estimates place it around 30,000. The residents there were Suetonius’ own people, they were Romans, they were the ones he was supposed to be protecting. But what are a few civilians — women, children, the elderly or disabled — worth when it comes to protecting the Empire? Not much, as it turned out.
Boudicca did to Londinium what she’d done in Camulodunum, but worse. Her brief presence there is also marked by a red layer of soil, about 13 feet below the surface. It’s full of smashed treasures, ruined food stuffs, and debris from the cataclysmic fires that swept through Londinium, which archeological evidence shows burned in excess of 1,000 degrees Celcius. The Britons continued to show no mercy, and slaughtered everyone they could find, sometimes in exquisitely cruel ways.
Boudicca did to Londinium what she’d done in Camulodunum, but worse. Her brief presence there is also marked by a red layer of soil, about 13 feet below the surface.
After Londinium, Boudicca and her forces descended on the settlement of Verulamium, which might seem like a curious choice, since it was neither a settlement full of veterans like Camulodunum or a Roman merchant town like Londinium. In fact, it was a town populated by Britons — specifically, Britons who were friendly to the Roman cause. Although Verulamium suffered the same fiery fate as the two cities that had been sacked before it, excavations of the red layer there show far less debris from personal possessions, which suggests that the inhabitants had time to gather up what was precious to them and flee. Still, according to Tacitus, Boudicca’s tear across the country had left 70,000 dead (although, again, many modern historians agree this figure is likely inflated).
The Britons didn’t just kill citizens of the cities they razed — according to Dio, they often tortured them first. The Roman historian vividly describes the gruesome acts the Britons were alleged to have committed: stripping the “noblest and most distinguished women” naked, cutting off their breasts and sewing them into their mouths, then “impal[ing] the women on sharp skewers run lengthwise through the entire body.”
Was this another Roman hyperbole meant to paint the Britons in a savage light, or is there some truth to it? Again, dismemberment or disfigurement of enemies was not outside the realm of Celtic practices. If it is true, Boudicca might have found a certain poetic justice in the act of defiling Roman women’s bodies after the violence their men had inflicted on her and her daughters. Sure, these Roman women were innocent civilians, but to the Britons they were still the enemy — interlopers, invaders, colonizers. Hadn’t the British tribes been pushed off their own lands, defrauded, and even killed so that these women could live in peace? A passive beneficiary to violence is still, in some ways, an abettor of it.
The red layer of soil in present-day London has the same curious problem as that in Camulodunum, namely that it isn’t filled with human remains. According to Dio, the Britons followed up each round of sacking with visits to groves dedicated to Andraste and other “sacred places.” There, they held sacrifices and banquets and indulged in “wanton behavior.” It’s possible that the events he’s describing — if they happened at all — were little more than boozy victory celebrations, distorted to fit Dio’s agenda. At this point, who knows? What does seem clear is that Boudicca’s spiritual beliefs seemed just as fervent and uncanny to the Romans as those of the Druids on Mona.
Speaking of the Romans, what were they up to while Boudicca was slashing and burning her way across the country? They were making plans, of course. The Britons had numbers on their side — Dio writes that by the time of the final battle, Boudicca’s army had swollen to 230,000 strong. The Romans only had a tiny fraction of that, but they had the benefit of intensive training and organization, something their enemy sorely lacked.
In fact, the Britons’ whole escapade was a bit haphazard from beginning to end. They seemed more interested in killing and plundering than they were in actually engaging the Roman forces. They’d missed several key chances to attack Suetonius while he was travelling to and from London. Why hadn’t they set an ambush for him the way they had for the IXth Legion back at Camulodunum? Maybe, drunk on their successes (and, no doubt, actual alcohol), they believed themselves to be invincible, or maybe they genuinely didn’t realize that the absolute worst thing they could do was give the Romans more time. Maybe they just thought their uprising was just too big to fail. Whatever their reasoning, it’s possible that victory may have been within the Britons’ grasp and they fucked it up.
No one is quite sure where the final battle took place, although many historians think it was somewhere in the West Midlands. According to Tacitus, Suetonius chose a spot with a forest on one side and open fields on the other, and then positioned his troops so that they weren’t vulnerable to British ambushes. Tacitus also tells us that Suetonius had 10,000 men with him, which means that even if there were only half as many Britons as Dio says, their forces were still more than ten times bigger than that of the Romans. As the two sides arranged themselves on the field, more than one Roman soldier must have wondered if this was going to be a battle or a bloodbath.
Both Tacitus and Dio have Boudicca addressing her troops before the battle; this is where Dio’s description of her as a large, be-necklaced woman with a bossy voice comes from. He has her finish the speech by calling out an invocation to Andraste and then releasing a hare from underneath her skirts (the direction it ran was supposed to predict who would win the battle). In Tacitus’ version, she speaks from her chariot, riding up and down her lines with her daughters on either side of her, telling those assembled that “it was indeed usual for Britons to fight under the leadership of women.” Both versions of the speech give off a noble savage sort of vibe: together, the Britons would throw off the shackles of Rome! Their ways were superior and more natural than those of their invaders! It would be better to follow the ways of their ancestors in impoverished freedom than to live as slaves with Roman wealth! Of course, there’s almost no chance that either of these speeches could be accurate — Boudicca would not have been speaking Latin to her people, and the Romans who were present would not have understood the British language. The words that Dio and Tacitus put in Boudicca’s mouth say more about them and how they wanted to portray the Britons than they do about anything else.
BOUDICCA: I mean, my people don’t need me to explain to them that we don’t mind women leaders
BOUDICCA: especially not when I’m literally in front of them?
BOUDICCA: but I guess Tacitus’ audience needed to hear it
BOUDICCA: at least he didn’t say my voice was ugly, unlike some historians I could name
The battle was an absolute shitshow for the Britons. They might have been numerous, but they weren’t seasoned warriors like their opponents — don’t forget that Boudicca’s following was largely made up of random men, women, and children who had joined her ranks as she marched across the country. They were far more likely to be farmers than trained soldiers, and they lacked the weaponry and armour of the Romans. Not only that, but the Britons had stationed their wagons — packed with their animals and children — in a ring around the back of the battlefield, which meant that when the Romans started pushing forward, the Britons were effectively trapped by their own people. And push forward the Romans did, killing everything in their path — even the women and “beasts of burden,” according to Tacitus. He also reported that 80,000 Britons died, as compared to only 400 Romans.
The words that Dio and Tacitus put in Boudicca’s mouth say more about them and how they wanted to portray the Britons than they do about anything else.
Boudicca died too, although not in battle; Tacitus says she drank poison, while Dio merely tells us that she “fell sick and died.” It’s possible that the Romans had her killed — Tacitus never specifies exactly who administered the poison — but that wouldn’t have been their style. They were more a “dress our conquered enemies up in golden chains and publicly humiliate them in the streets of Rome” type of people. Then again, it’s possible that Suetonius knew that parading a defeated Boudicca around might not have the effect he hoped for. There would have been little glory in having bested a woman on the battlefield, and in showing off Boudicca to a home audience, there was a good chance that he was the one who would have been humiliated. What kind of man nearly has his territory wrested from him by a lady, and a barbarian to boot? This is why the size of the British horde had to be exaggerated, why Dio had to go out of his way to describe Boudicca as large and hyper-masculine — to have struggled so hard against a smaller number of backwoods savages led by a woman would have been emasculating in the extreme. That being said, suicide is the more likely option. Boudicca had seen first-hand what the Romans did to British women who disagreed with them. Like Cleopatra before her and, possibly, Zenobia after her, she might have felt that self-inflicted death was the least painful course of action.
What kind of man nearly has his territory wrested from him by a lady, and a barbarian to boot?
What about her daughters, the two girls who helped spark the rebellion? Neither Dio nor Tacitus says what happened to them, so we can only speculate. Maybe they died in the battle. Maybe Boudicca slipped them a dose of poison. Maybe the Romans captured them. Maybe they escaped, went into hiding, lived out the rest of their lives as farmer’s wives who, on cold nights, would spin tales for their children about watching Londinium burn.
It’s frustrating that so little concrete information about Boudicca exists, not just because it would be satisfying to fill the gaps in her story, but because the existing records reduce her to this one, brief period in her life. What was her life like back before she entered recorded history as a bloodthirsty warrior queen? I try to imagine her in quiet moments of bliss — on her wedding night, or touching her daughters’ hair as they sleep, or hurtling alone in a chariot down a track. I hope that even in her last days she had times when she felt happy, or at least powerful. I hope she enjoyed every second of those debauched victory feasts.
There is no record of where Boudicca was buried. Several theories have sprung up over the years, including one that says her remains are somewhere under Platform 8 at King’s Cross Station. English writer Jane Holland published a collection of poems called Boudicca & Co. in 2006, the final poem closes with the lines “The end/was confused. Some screaming, vomit./It hurt, I know that much./Nothing else. Just good British dirt/and closing my mouth on it.”
This is how I like to imagine Boudicca: somewhere deep in the rich, dark, earth, nothing but nourishment now. She is reborn again and again, in the stories that we tell, in the fires in our bellies, in every fight against injustice, even the ones that feel unwinnable. She is the opposite of those dead red layers of earth that mark her passing. She is nothing but life now.
LONG LIVE THE FUCKING QUEEN
* * *
Previously:
- Queens of Infamy: Lucrezia Borgia
- Queens of Infamy: Mariamne I
- Queens of Infamy: Njinga
- Queens of Infamy: Josephine Bonaparte, from Martinique to Merveilleuse
- Queens of Infamy: Josephine Bonaparte, from Malmaison to More-Than-Monarch
- Queens of Infamy: Zenobia
- Queens of Infamy: The Rise of Catherine de’ Medici
- Queens of Infamy: The Reign of Catherine de’ Medici
- Queens of Infamy: Joanna of Naples
- Queens of Infamy: Anne Boleyn
- Queens of Infamy: Eleanor of Aquitaine
* * *
Anne Thériault is a Toronto-based writer whose bylines can be found all over the internet, including at the Guardian, the London Review of Books and, obviously, Longreads. She truly believes that your favourite Tudor wife says more about you than your astrological sign. She is currently raising one child and three unruly cats. You can find her on Twitter @anne_theriault.
Editor: Krista Stevens Fact Checker: Julie Schwietert Collazo Illustrator: Louise Pomeroy
The Top 5 Longreads of the Week
Posted by Longreads
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This week, we’re sharing stories from Max Blau, Venessa Wong, Hope Wabuke, David Dayen, and Mark Sundeen.
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1. The Coal Plant Next Door
Max Blau | ProPublica | March 22, 2021 | 9,852 words
“Near America’s largest coal-fired power plant, toxins are showing up in drinking water and people have fallen ill. Thousands of pages of internal documents show how one giant energy company plans to avoid the cleanup costs.”
2. This Is Where 150 Years Of Ignoring Anti-Asian Racism Got Us
Venessa Wong | BuzzFeed News | March 20, 2021 | 5,050 words
“For so long, we’ve thought keeping our heads down and being invisible in America might help us gain acceptance — but the recent wave of racist violence has shattered that myth.”
3. Disney’s Disembodied Black Characters
Hope Wabuke | LA Review of Books | March 23, 2021 | 5,395 words
“Green, blue — Disney has no problem with characters that are different colors, it seems, as long as that color is not brown. What does it say to Black kids watching when the world’s biggest children’s entertainment company cannot give them even one animated film that features a Black person that stays a Black person throughout? What does this say about Blackness to kids who are not Black? About whose life is being portrayed as mattering? And whose does not?”
4. Islands in the Stream
David Dayen | American Prospect | March 22, 2021 | 7,400 words
“Musicians are in peril, at the mercy of giant monopolies that profit off their work.”
5. Notes from a Moab Trailer
Mark Sundeen | Outside | March 23, 2021 | 8,655 words
“I didn’t hear from her. I had flings with other women, but nobody equaled her. Unable to maintain a relationship, I got a dog, a heeler mutt puppy I saw in a cardboard box at the supermarket. I named her Sadie. When Wendy returned a year or so later, she was with a new guy, a fisherman, long hair and a beard, engaged to marry.”
Out There I Have to Smile
Posted by 
Heather Lanier
Heather Lanier Illustration by Ashanti Fortson
Heather Lanier | Longreads | March 2021 | 16 minutes (4,473 words)
A few years ago on a gorgeous June day, I found myself in a windowless bathroom with forget-me-not wallpaper, my butt on a toilet, without any good reason to be there. It was a standard mothering move. Beyond the door, I could hear my two small kids laughing and eating cereal, so I stayed in this little space, smartphone in hand. In an hour, I was headed to a bowling alley with my kids, both of whom could now walk through a doorway on their own. And this was a brilliant new development, not just for the 2-year-old who’d learned to walk at the standard age, but for the 4-year-old, Fiona, who’d spent the past three and a half years in physical therapy striving toward this lofty goal. Forty-five percent of people with Wolf-Hirschhorn syndrome walk, said the report when I first got her diagnosis. Her ability to walk meant I no longer had to consider wheelchair or stroller accessibility. Her ability to walk independently meant she could navigate the tight turns around a bowling ball return without having to steer a clunky walker. So I was taking my kids bowling, as soon as I stopped pretend-peeing and reading on my phone.
I was reading a friend’s blog post about a recent appointment with her counselor. As soon as she mentioned her son, who has the same chromosomal syndrome as my daughter, she began to cry.
The therapist asked, “Why do you always cry when you talk about him in here?”
In here was the therapist’s office, maybe a subdued room with sage walls and elephant statuettes. Out there, my friend pushed her 4-year-old son in a wheelchair.
My friend looked up at the ceiling a moment and thought. Why do I always cry when I talk about him in here? The answer hit her, and she sobbed. She managed this sentence, eked out between heaving breaths: “Because … out there … when I’m talking … about him … I have to smile.”
I put my hand over my mouth. The windowless bathroom. The forget-me-not wallpaper. I burst into tears.
* * *
For bodies that don’t fit into a certain mold, for bodies we call disabled, out there can be a treacherous space. Out there has steps where you need a ramp. Out there has strobe lighting that could make you seize. Out there writes stories over your body (she’s sad, broken, wrong) when you just need toilet paper.
For parents of kids with disabled bodies, out there can be exhausting. It maintains chipper myths about babies that your child breaks. What’s with that feeding tube? It tosses questions at your feet like it’s throwing you something between flowers and rotten fruit. Why’s she so small? What happened? What’s wrong? You answer with a smile, or you answer with fatigue, or you turn your head because none of your business.
Out there is risky. Your son might sit in a classroom led by a teacher who doesn’t believe he can learn. Or your daughter might need medical care from a doctor who thinks she’s a tragedy.
Out there is inconvenient. The doorway isn’t wide enough for your adaptive stroller. The wood chips of the town’s only playground are terrible for wheelchairs. The librarian concludes public story time with a craft that requires scissors, and you must now serve as your child’s occupational therapist, back hunched, palms sweaty, enabling the arduous work of cutting paper.
Out there is not exactly designed for your kind.
* I use both person-first and identity-first language in this essay. As a nondisabled person, I don’t have a right to claim an identity for someone, so I err on the side of identity-first language until I know a person’s preference — and my daughter hasn’t indicated one. I also use identity-first language to stand with disability activists who argue that linguistic acrobatics to avoid the word “disabled” are a manifestation of our culture’s ableism. We do not say, for instance, “I am a person with femaleness.” #saytheword
As a white, straight, cisgender, non-disabled woman, I must imagine how this sentiment holds true for other bodies. My experience as a caregiver to a kid with disabilities* has put me in the closest relationship to this truth. Out there is not designed for many.
Which is why in here spaces are so delightful. And it’s why, especially in early parenting, I often lingered in them for longer than I needed. Idling in the bathroom. Struggling to leave the house. In here applies little pressure. In here asks no questions. In here often lets you and your kin be as you are.
In preschool, my daughter Fiona walked stiltedly. Her gait was not the smooth coordination of typical preschoolers. She slapped her right foot down, and her left foot followed pigeon-toed, afterthought more than intention. She sometimes held her arms out, and because she was nonverbal, she said, “Ahh, ahh,” plowing toward whatever caught her eye. When we were out there, people sometimes looked at her because she was adorable and magnetic and thrilled by life. And sometimes people followed her with a calibrating gaze. I could tell that they weren’t admiring the cuteness of youth but instead trying to answer the question, What’s wrong?
“You’re lucky,” a pediatrician said to me during a routine checkup. “At least you know what’s wrong. Some parents don’t even know that.” He looked up from my kid, his eyes sharp with intensity, and nodded. “You know what I mean?” But it wasn’t a question.
Nothing is wrong with my girl, I wanted to say.
No, of course not, the doctor might have corrected. Inside he’d likely think, Yes, of course there’s something wrong, and then he’d recite the long list of diagnoses in her medical file: epilepsy, hypotonia, hydronephrosis, scoliosis, developmental delay….
Things her medical file has never listed: loves coloring, loves cheese, rocks a Converse sneaker, appreciates jalapeños, finds the beat, will increase speed tenfold for a turn at the swing.
Wrong can slide too quickly into another concept: tragic. There’s a prevalent Hollywood cliché (which bears no resemblance to real-life statistics) that disabled people wish to die. I didn’t need a child with Wolf-Hirschhorn syndrome to spot this cliché; I’d noticed it years before I had Fiona. Million Dollar Baby: a female boxer triumphs in fight after fight only to break her neck, end up quadriplegic, and ask her coach to help her kill herself; he obliges. Me Before You: a grumpy guy in a wheelchair is hell-bent on committing suicide, then falls in love with his caregiver who tries to show him that life is worth living. He kills himself anyway, because, well, you know, wheelchairs. The films are dramatic expressions of the old, ableist assertion that I’d rather die than live like that.
What I didn’t realize until having Fiona is that if a person is intellectually disabled, a parent’s feelings often become a barometer for their kid’s worth. What my friend and I have known, without ever knowing we’ve known, is that our culture judges the worth of our kids by judging our contentment. I hadn’t named this until I sat in the bathroom and read my friend’s blog post on my phone, but along with all the obstacles to surmount or circumnavigate or abandon, out there obliges us to offer our cheer. Are we happy? If so, then maybe the lives of our children aren’t tragic. Out there I have to smile.
* * *
In The Spirit Catches You and You Fall Down, Anne Fadiman tells the story of Hmong child Lia Lee, who has severe epilepsy. It’s a highly lauded book, and for good reason. But midway through, Lia suffers a massive seizure, nearly two hours long, and goes from a happy, hyperactive child to a mostly unresponsive quadriplegic. “Vegetative state,” the doctors said, and I cringed, eager for Fadiman to take the phrase to task. Because Fadiman had thus far done a beautiful job revealing the cultural biases of both the Hmong family and their Western doctors, I figured she’d unveil the ableism inherent in ever likening a human to a carrot or a beet. I thought of Martin Pistorius, who spent 12 years in an unmoving body that doctors assumed was also “as good as not there, a vegetable,” but as he says years later in his TED talk, “I was aware of everything.”
Fadiman fails here. She doubles down on the doctors’ sentiment, offering this description of patients in so-called “vegetative states”: “pasty-skinned carcasses with slack mouths, hair like straw, bodies that smelled of urine even after they were bathed.” Carcasses. The word cuts. It describes shells in which humans once lived. It should not be used to describe actual humans, still living. Fadiman agrees with the family when they think Lia’s soul is gone.
At this point in the story, Fadiman pivots to the mother, oh the mother, and how she adapts to her child’s altered life. Fadiman paints some beautiful portraits. The mother lovingly washes her daughter once or twice a day. The mother wears her daughter in a hand-embroidered cloth carrier. The mother feeds her daughter spoonful after spoonful of rice and then kisses her rice-covered face. “Sometimes I thought: this is not so terrible,” writes Fadiman. Mid-page, I thought Fadiman might lean toward valuing Lia’s new, altered life. Admittedly, she’d do so through the trope of Lia’s gifts to nondisabled people. Look at how much love she brings her family. But gift is certainly better than carcass.
Instead, Fadiman pivots: “But whenever I began to be lulled by this relatively rosy picture, I was drawn up short by an explosion of rage from [the father] or, more frequently, by a sudden seepage of grief from [the mother].” The parents’ feelings tip the scales. Fadiman can’t see the value of Lia’s life if it brings not just love but suffering, if caring for Lia is not just a tender and physical act of love, but also a grief-stricken, arduous job.
Out there we all have to smile.
* * *
Happiness is an encouraged performance in America whether you’re disabled or not. By analyzing photographs, Stanford psychology professor Jeanne Tsai found that U.S. leaders are over six times more likely to display “open, toothy smiles” than Chinese leaders. This same smile, what Tsai calls “the sign of American happiness,” also appears more frequently in American children’s stories and women’s magazines than in East Asian counterparts. “A lot of immigrants have talked to me about how exhausting it is being in the United States,” she told NPR reporter Maiken Scott of The Pulse, “because you have to smile all the time.”
But the stakes of that performance are higher for disabled people and their caregivers. Princeton ethicist Peter Singer has kept his job even after arguing that parents of disabled babies should have the right to kill their kids. Because people with disabilities cause too much suffering, he says.
The birth of a child is usually a happy event for the parents. … It is different when the infant is born with a serious disability. Birth abnormalities … turn the normally joyful event of birth into a threat to the happiness of the parents and of any other children they may have.
Parents may, with good reason, regret that a disabled child was ever born. In those circumstances, the effect that the death of the child will have on its parents can be a reason for, rather than against, killing it.
Singer, whose book Practical Ethics is in its third edition, at one point suggests that his argument about murdering babies applies to disabilities that make a child’s life “so bleak” that it’s “not worth living.” (How would anyone determine a life “not worth living”? And who gets to decide such a thing?) But then he argues that hemophiliacs too could be justifiably killed in infancy because a woman will only have so many children, and the hemophiliac child might prevent her from having another, healthier baby. “It is … plausible to suppose that the prospects of a happy life are better for a normal child” than for a hemophiliac, he writes.
I think of my college roommate, a gregarious extroverted gay man who competitively roller skated and also had hemophilia. While he blasted Latin pop through our kitchen and danced with joie de vivre and sang into a spatula, I, the “normal” non-hemophiliac person, brooded in my room to the tune of melancholy female artists like Tori Amos, while writing poems about romantic angst. Certainly, disability doesn’t determine happiness.
What I didn’t realize until having Fiona is that if a person is intellectually disabled, a parent’s feelings often become a barometer for their kid’s worth.
But the bigger issue is this: Why should a person’s happiness — or lack thereof — be used in proving their right to live? And it’s not just Singer who delivers this message. Here’s disabled writer Nancy Mairs on the subject, from “On Being a Cripple”: “In our society, anyone who deviates from the norm had better find some way to compensate. Like fat people, who are expected to be jolly, cripples must bear their lot meekly and cheerfully. A grumpy cripple isn’t playing by the rules. Early on I vowed that, if I had to have MS, by God I was going to do it well. This is a class act, ladies and gentlemen. No tears, no recriminations, no faint-heartedness.”
You’ll hear parents of kids with disabilities negotiate this pressure to be happy all the time when they describe their children. “He has Down syndrome, and he’s nonverbal,” a father will say, “but he’s happy!” Or a mother will say, “She has cerebral palsy, and she doesn’t walk, but she’s brought us so much joy!” We can’t fault the parents. They add this caveat of happiness because they know it carries necessary currency.
But this can be exhausting. It turns happiness into a rhetorical strategy, and makes the faces of disabled people and their caregivers a walking argument that should never have to exist in the first place.
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* * *
During Fiona’s second year, I started a blog called Star in Her Eye. I wrote it because my child’s eyes were bursting with divine luminescence, and yet an unsmiling pediatrician called her a “bad seed.” I wrote the blog because parents at playdates were talking about babyproofing their outlets, and I was talking about the interesting sculptures at the cardiac unit of the children’s hospital. I wrote it because my girl was coming up with ingenious ways to communicate despite her verbal limitations, and yet because she didn’t babble, an early interventionist declared her “at zero.” I was in a very different field of parenting than the baby books described, and I needed to find my people. I also needed to write about ableism — how I was encountering it, how I was exhuming it from myself. A deep and abiding ethics guided my decisions about what to write and how, but I always wore the weight of my words. Tell too much of a certain kind of a truth, and I could risk further deepening the pervasive story that kids like mine were the B word: burden.
In December 2015, three years into the blog, the disability-themed online venue The Mighty published a satirical article called “Introducing: Meltdown Bingo.” In it, an autistic parent of an autistic child used a bingo card meme to make light of her son’s meltdowns. Readers were rightfully outraged, blasting the article for objectifying a kid’s suffering. (It was eventually taken down.) Critics also noted The Mighty’s slant toward publishing, as blogger Savannah Logsdon-Breakstone put it, “warrior mommy blogger content … focused on bemoaning how hard it is to parent a child with a disability. … This is a dangerous narrative.”
The outrage fueled important conversations about disability representation (#CrippingTheMighty). But articles also popped up admonishing parents for writing about their kids at all. In an article published soon after, the advocacy website Ollibean suggested that parents should not write about their children if they aren’t able to offer consent, a principle that would eradicate the stories of certain intellectually disabled people, pushing them and their caregivers — disproportionately women — to the unwritten, invisible margins. During the years that I wrote the blog, Fiona could not offer me consent, and one of the things I often wrote about was our very efforts to help her communicate so she could loudly disagree with me. But that took time — many years with therapists and a speech device.
The challenges of parenting a disabled child — “the prejudice and ableism, fighting systems for an equal education, equal and accessible medical care, accessibility, insurance coverage for a new wheelchair or communication device,” the Ollibean article noted — are injustices built into a system that needs to change. This is 100% true. But the quote fell under the subheading, “It’s Not Your Disabled Child, It’s the System.” In other words, parenting a kid with disabilities isn’t ever hard because of the inherent difficulties of a disability.
It was not hard, for instance, taking my infant daughter to a swallow study (to make sure she wasn’t dying from her own spit) and two kidney reflux exams (to make sure these vital organs weren’t at immediate risk of failure). It was not hard spending four years helping her learn to walk, or three years helping her tiny, fine-motor-limited fingers navigate a robust communication device so she could tell us what she wanted to eat. Likewise, it was not hard when my husband and I hovered over her body as she jerked in convulsions, her eyes pried open by erratic brain synapses, and it was not hard to check the clock while we did this. More than five minutes, and a seizure can cause brain damage.
Of course it was hard. Or, it was not hard because hard is the word we use to describe cellophane-wrapped candy, while this is blade-sharp, a knife slicing through the gut.
But if we can’t say it was hard, then how can we affect any change that would help people in power understand what kind of support we might need?
And yet, if I do say it was hard, then I am fueling, as Logsdon-Breakstone put it, “a dangerous narrative.” I’m risking the chance that people will see my kid, my glorious beautiful curly-haired feisty stubborn rascal of a kid, and think, That mom’s unhappy; that kid’s life is tragic.
Tell too much of a certain kind of a truth, and I could risk further deepening the pervasive story that kids like mine were the B word: burden.
My facial expressions out there are territory over which ideologies are fighting. My emotions out there have rhetorical power. And I will use everything I have to argue that my kid’s life has equal value to anyone else’s.
So I’ve smiled. Especially in those early years, I smiled at the nurse who called my kid’s name in the waiting room. I smiled as she led us to a room for X-rays. How cute, she said to my 38-inch 5-year-old in purple hospital jammies. I smiled after I unfolded Fiona’s walker with a loud click at the library, eliciting stares, and I smiled while the teacher talked me through Fiona’s low report card scores.
It wasn’t a conscious thing, the smiling, until I read my friend’s story while sitting in the forget-me-not-wallpapered bathroom. But when happiness becomes a rhetorical move, it’s a lot less fun than regular happiness. “The freedom to be happy,” writes Sara Ahmed in The Promise of Happiness, “restricts human freedom if you are not free to be not happy.”
* * *
In “Special Olympics and the Burden of Happiness,” Lawrence Downes of the New York Times argues that Special Olympics doesn’t give itself the freedom to be unhappy either. Downes describes the hours-long medal ceremony at the 2015 World Games as a “cascade of triumphant moments” and a “carefully thought-out strategy” where music swells and the crowd cheers as athletes receive their awards. According to Downes, the organization intentionally uses joy as a rhetorical strategy to advocate for the healthcare, education, and other rights of people with intellectual disabilities. The article acknowledges the global plight of people with intellectual disabilities, many of whom are denied an education, sequestered in institutions, and suffer abuse and neglect. If Special Olympics is trying for a revolution of sorts, “its revolution is televised, happily,” writes Downes, “on ESPN.”
But Downes subtly critiques the efficacy of this strategy, calling Special Olympics “an organization so good at making its athletes and the public happy, so bursting with good will and smiles, that nobody has to take it seriously. It has waged a nearly 50-year battle for inclusion and acceptance for people with intellectual disabilities, and people still think it’s a track meet.”
In March 2009, President Obama told Jay Leno of The Tonight Show about his recent bowling score of 129. “It was like Special Olympics or something,” he said with a laugh. Before the show even aired, he was on the phone, apologizing to chairman Timothy Shriver. According to Shriver, Obama invited the athletes to the White House to school him in the sport and “help him improve his score.” If the silence in news reports is any indication, the match never happened.
* * *
Our bowling match did happen. I eventually wiped my tears and left the in here space of the forget-me-not bathroom. I drove my kids to the bowling alley, parked the car in a blue-painted spot, and hung the handicapped placard on the rearview mirror. One by one, I hauled my kids out of their car seats. I held their hands as we crossed the parking lot. I opened the glass door for them, and in they walked. Right through the door.
When we got into the lobby, my heart sank: The lanes about 50 meters ahead were dark like a nightclub. Red and blue and yellow laser beams flashed across the floor, the ball returns, the scoreboards, and the seats. Pop music blasted from above.
From the shoe rental desk, my friend Kristy, Fiona’s godmother, came to us with a worried expression. “I’m sorry,” she shouted over the music. “They just turned them on.”
I exhaled. Kristy had called in advance to be sure, and the guy on the other end had said no, they didn’t do laser bowling during the day.
I paused, standing near the entrance, trying to figure out what to do. “It’s not like she’s had seizures from strobe lights before,” I said, recalling the EEG where a technician flashed a light in Fiona’s face and measured her brain waves. “It’s just … it’s a risk.” Further inside, I watched the laser lights spin around, casting erratic, broken-up rainbows. New seizure triggers can emerge without warning in people with Wolf-Hirschhorn syndrome.
We rented our shoes and paid for a lane. The red and blue and yellow beams swirled around us. Miley Cyrus blared. “You wanna go first?” Kristy shouted two feet from my face. Any farther and I wouldn’t have heard her. Her teeth glowed white from the blacklight. I went after Fiona, who was toddling down the lane, ready to walk its length. The bottoms of her Converse sneakers glowed.
The place was mostly vacant. Had anyone seen us in the dark, they would have seen two adults and two kids having a leisure afternoon. They would have seen the adults center a kiddie ramp at the top of the lane and help the kids push their balls down the ramp. They would have seen the balls make their slow-rolling treks toward the pins and knock a few down. Yay! the onlookers would have heard Kristy and me say as we clapped. The kids sometimes clapped too, and sometimes turned around unfazed, heading for another spot in the darkness.
These onlookers probably wouldn’t have seen my furrowed brow, or my eyes, straining in the dark, to assess whether my daughter was having myoclonic blinks or jerks. They wouldn’t have seen me silently curse this bowling lane for turning a fun outing into a shitty, stressful event.
Neither would they have seen Fiona seize, because — thank God — she didn’t. And they probably would not have seen me smile much, either. But if I had smiled that day, it would have glowed bright as an incandescent bulb.
* * *
In the summer of 2020, I published a memoir, Raising a Rare Girl. How could I write a book about Fiona that avoided the trap of the “my kid’s so happy” narrative? Because it turns out, my kid is happy — often exceedingly so. Fiona, now age 9, has way more joie de vivre than me. Though not yet a swimmer, she plows her body into ocean waves and screams with delight. She yawps for joy at the mention of Kit Kats. She is really, really stoked to go for walks around the block. She and my old college roommate would get along smashingly. And yet a story that emphasizes the “look, my kid is happy!” narrative would lodge her right into the very pressure Nancy Mairs identifies: “In our society, anyone who deviates from the norm had better find some way to compensate.”
And how could I write a book that also avoided the “my kid is so hard” narrative? Because that’s true, too.
I tried to write a book that showed my daughter’s inherent value — and our culture’s denial of it — whether she was happy or not. I ended up writing a book about what it means to be human. “This belief in the virtue of the ‘happy’ and suffering-free life sterilizes and shrinks us,” I wrote toward the end, “minimizing what makes us most beautifully human: our tenderness, our vulnerability, the profundity of our capacity for heartache, the risks of which deliver us into immense joy.” What I tried to do was show, honestly, the joy and the grief, the hard and the beautiful, and say: It all belongs.
* * *
You ask: Am I happy? I say, sometimes less than before. Because she wakes six times a night. Because regular trips to pediatric specialists are no strolls through the park. Because special educators sometimes see her as broken, in need of fixing. Because her needs often exceed my energy. Because every time I’ve hovered above her convulsing body at night, counting the minutes, I might have gained something like courage or “life experience,” but I also felt gashed in a bodily place that I can’t find, I can’t name.
Because loving someone has never been so hard.
You ask: Am I happy? And I say, sometimes ten times more than before. Because her fine, blondish-brown hair brushes my cheek when we snuggle. Because her sapphire blue eyes seek out mine every day. Because at age 5, after three years of speech therapy, she at last made a hard C sound. Come, she said, and I did. Because when she was 4 and I asked which hat she wanted to wear, this one or that, she pointed and said “gamma!” (meaning “that one”) with such high-pitched glee that it felt like I held not a red wool ski cap but a lifetime supply of joy. Because the stress of a swallow study, the labor of an orthopedist’s appointment, and the fear of EEG results make the good news of a clear airway, an unchanged scoliosis curve, and an unworrying set of brain waves all the more glorious.
Because loving someone has never been so hard.
What I ask is that my answer doesn’t matter in determining her worth.
* * *
Heather Lanier’s memoir, Raising a Rare Girl, was a New York Times Book Review Editor’s Choice. Her recent essays appear in The Atlantic, The Wall Street Journal, and Off Assignment. She is an assistant professor of creative writing at Rowan University. You can find her on Instagram at @heatherklanier.
Editor: Cheri Lucas Rowlands
Illustrator: Ashanti Fortson
Fact-checker: Nora Belblidia
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