Search Results for: NPR

The Return of the Face

From The Delinquent Man: Types of Offenders, 1897. Wikimedia Commons, Photo illustration by Katie Kosma

Adrian Daub | Longreads | October 2018 | 16 minutes (4,170 words)

 

Physiognomy — the attempt to interpret a person’s character by means of their face — was one of those things that educated 19th-century Europeans knew wasn’t supposed to work. In his 1806 work The Phenomenology of Spirit, philosopher G.W.F. Hegel devoted a lengthy, indecipherable chapter to explain why physiognomy, and its cousin phrenology, had to be hokum. But even if Europeans knew they shouldn’t put stock in physiognomy, they found it incredibly difficult to resist the impulse.

To some extent this remains true today. During the Obama years, many of us were sensitive to representations of the new president, knowing full well that the way faces are read and analyzed could easily encode very old and deeply embedded racist ideas. Then Trump was elected. In a heartbeat, we were back to reading his face, playing with his face, and displaying it next to animal faces. Where does this temptation come from?

Read more…

Banished

Photo by Emily Kassie.

Beth Schwartzapfel and Emily Kassie / The Marshall Project / October 2018 / 13 minutes (3,412 words)

This article was co-published with The Marshall Project, a nonprofit news organization covering the U.S. criminal justice system. Sign up for their newsletter, or follow The Marshall Project on Facebook or Twitter.

Part 1: NO MERCY

The sun has barely risen over Miami, and Dale Brown loads an orange shopping cart with everything he owns. Through the morning’s swampy heat, he pushes the cart to the edge of the railroad tracks, where he hauls the items one at a time into some overgrowth and covers them with branches. His tent from Walmart, meticulously rolled and packed. A garbage bag with clothes and a blanket. He unscrews the lid to a plastic gallon jug and empties his urine into the brush.

“You feel like an animal,” says Brown, 63.

This industrial neighborhood just beyond Miami’s far western edge is home to lumber yards, auto parts warehouses, and, in recent months, roving encampments of homeless sex offenders. This summer, Brown and a half-dozen other men were living beside a chain-link fence outside a hardware company. Five blocks away, more lived in tents and makeshift shacks. And 12 blocks from there, about a dozen arrived in cars each night.

A combination of federal, state and local laws has rendered almost all of Miami-Dade County off-limits to sex offenders with young victims. The feds say they’re not allowed in public housing. The state says they can’t live within 1,000 feet of a day care center, park, playground, or school. The county says they can’t live within 2,500 feet of a school. In a place so densely populated, forbidden zones are everywhere. And in the narrow slivers of permitted space, affordable apartments with open-minded landlords are nearly impossible to come by. Read more…

‘I Didn’t Have the Language to Call It Racism’: An Interview with Nicole Chung

Catapult Books / author photo by Erica B. Tappis

Victoria Namkung | Longreads | October 2018 | 11 minutes (3,020 words)

Since the early 1950s, parents in the United States have adopted more than a half-million children from other countries, with the vast majority of them coming from orphanages in Asia, South America, and, more recently, Africa. South Koreans are the largest group of transracial adoptees in the U.S., and by some estimates, make up 10 percent of the nation’s Korean American population.

Nicole Chung, however, was born prematurely and placed for adoption by her Korean immigrant parents in Seattle, and raised in a sheltered Oregon town five hours outside of Portland. Adopted by religious and loving white parents, she grew up as an only child who always felt a bit out of place. The narrative she was always told — that her biological parents made the ultimate sacrifice to give her a better life — comforted Chung as a child, but as she came of age, experiencing racism and finding her own identity as an Asian American and a writer, she began to question the “prepackaged myth” of her adoption. After getting married and becoming pregnant with her first child, a daughter, she went in search of her lost roots.

All You Can Ever Know, her memoir of this search, confronts the ways in which traditional adoption narratives rarely tell the whole story and shows how idealistic and well-intentioned white adoptive parents are often wildly unprepared for raising children of color in a society that is nowhere near the post-racial future of many Americans’ imaginations. She writes: “It feels like my duty as my white family’s de facto Asian ambassador to remind them that I am not white, that we do experience this country in different ways because of it, that many people still know oppression far more insidious and harmful than anything I’ve ever faced. Every time I do this, I am breaking the sacred pact of our family, our once-shared belief that my race is irrelevant in the presence of their love.”   Read more…

‘Just Assimilate Her Into Your Family and Everything Will Be Fine…’

Photo courtesy the author

Nicole Chung | All You Can Ever Know | October 2018 | 14 minutes (3,439 words)

 

My parents’ story together began in the spring of 1973 when they married and struck out west. She was twenty-one, he was twenty-two, and they’d been dating a matter of months when she told him she was leaving Cleveland, a city she had never much liked, for Seattle — where she had always planned to live, and where her own mother had spent the war years, living with her aunt and her uncle, the Swedish fisherman. My mother had not inherited much from her mother, save her red hair, quick temper, and stubborn attachment to the green beauty of provincial Washington State, so different from the smoke and cement of Cleveland and the small farm community outside it where her family lived. She had been to Seattle, carted along on cross-country road trips in the family station wagon, to visit her great-aunt and great-uncle, and she’d never forgotten the pine-scented air or the snow-tipped mountains wreathed in clouds, the hilly city lapped at its edges by a cold saltwater sound. Now she had gotten into nursing school out there — so, was he coming with her or not?

Though their families charged them with desertion, the move had its appeal: they were each one of five siblings, high in the birth order, and in different but defining ways their parents had been hard on them. More than three hundred people attended their wedding. Back then, it was still a little unusual for a Hungarian boy from one neighborhood to marry a Polish girl from another. There were fisticuffs at the reception, and it was generally agreed that the bride’s relatives both began and ended the fight, but everyone was laughing by the time they farewelled the couple.

They did move out west, but not to Seattle; not yet. A printing company had offered him a job in Ketchikan, Alaska, on Revillagigedo Island in the Alexander Archipelago. She found a job at the local hospital. They rented a basement apartment in a cottage on the edge of the Inside Passage, where they could step outside and watch eagles wheeling over the ruffled water. For a pair of born-and-bred Clevelanders, Ketchikan was almost too quaint to be believed with its fishermen and modest tourist trade, its streets and wooden pilings slick with rain one hundred and forty days out of the year. It was not quite the change she had envisioned, but a chance it still was, to escape Ohio and try on a different life. They liked it there, and felt like pioneers.

Still, when the transfer to Seattle came a few years later, they were ready to live in a city again, eager to meet new people. One Sunday, on a whim, they visited a little white-steepled church set into the hills above the neighborhood where they rented an attic apartment. It was nothing like the large, drafty old churches they’d attended as children in Cleveland; everyone wore jeans. The priest’s gentle Polish accent reminded her of her beloved grandfather, but it was someone else at the parish who commandeered their attention: a short, stout nun with blunt brown bangs peeking out from under her minimal wimple, a far cry from the strict, ruler-wielding sisters of their youth. They told Sister Mary Francis they had little interest in organized religion, let alone the church in which they’d both been raised, but the nun somehow convinced them to return. Soon my mother was leading a Bible-study group and my father was running errands for Sister Mary Francis’s elderly mother. They were back in the fold, with barely a token argument raised in their own defense.

This time, though, they were changed: they believed it all. They asked God to move in their lives. They saw his hand at work — in friends met, in jobs found, in day-to-day life — where they had never looked for him before.

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Ugly, Bitter, and True

AP Photo/Eric Risberg

Suzanne Rivecca | Zyzzyva | April 2018 | 84 minutes (16,714 words)

 

The most barbarous of our maladies is to despise our being. –Michel de Montaigne

 

There’s a tiny park on Hyde Street in San Francisco, on the cable car line, and for about a year I half-heartedly planned to kill myself in it. The park is slightly sunken, set off from the street, mostly concrete: one of those wedged-in, rarely utilized “mini-parks” common to this part of the city. There are a few rickety maroon-painted benches, a banner of tattered Mexican party flags, some scattered plants and trees. Sometimes, on warm nights, people sit there and eat ice cream cones from the famous ice cream parlor on the corner. Sometimes people take their dogs there to pee. But most of the time it’s empty.

I zeroed in on it because it’s near my apartment and ill-lit. I’d made only a cursory stab at formulating the logistics. Mostly I fantasized in broad strokes, visualizing the final result rather than the step-by-step labor. I knew this much: I wanted to put my California ID in my pocket, along with a piece of paper with my sister’s contact information, swallow a bunch of Xanax with alcohol, and hang myself from a tree. I didn’t think about what I’d use to hang myself, or what I’d stand on to reach the tree, or what kind of knot I’d tie. I didn’t even know which tree. My reluctance to hammer out these details probably indicated a lack of genuine resolve. Or maybe it was just indicative of the bone-shaking agitation that made it impossible to focus on anything intently enough to make a plan.

I walked by the park almost every day, but found it hard to enter. Sometimes I’d stand on the sidewalk and just stare into it, my heartrate accelerating. I knew this was the place, but I didn’t want to go in and scope out coordinates and vantage points. If it was going to happen, I didn’t want to be methodical about it. I was waiting for some trigger that would make it inevitable: some fresh humiliation, some galling failure. Something that would make it all fall into place, get the ball rolling organically, negate the need for foresight. I may have also been waiting for an irrefutable reason not to do it at all.

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We’re Fat, Not Stupid

I wasn't about to put a cliché photo of fat headless bodies on this, so here's a photo of awesome fat model Tess Holliday being fat and awesome as she arrives at a movie premiere on April 17, 2018, in Los Angeles (Photo by Jordan Strauss/Invision/AP)

Michael Hobbes‘ Highline story on the critical need to rethink how we understand and approach fatness is not without issue — It’d be great to see an actual fat activist who’s been writing about this for years get attention, and “obesity” is a loaded word — but the bigger issue of how society treats fat people is the most important thing, and the story is a good one. How does society treat us? Like crap, and pointing that out isn’t just about not wanting to have our feelings hurt: it’s about pointing out the very material ways fat-shaming impacts our lives, our health, our relationships, and even our careers.

This is how fat-shaming works: It is visible and invisible, public and private, hidden and everywhere at the same time. Research consistently finds that larger Americans (especially larger women) earn lower salaries and are less likely to be hired and promoted. In a 2017 survey, 500 hiring managers were given a photo of an overweight female applicant. Twenty-one percent of them described her as unprofessional despite having no other information about her. What’s worse, only a few cities and one state (nice work, Michigan) officially prohibit workplace discrimination on the basis of weight.

Paradoxically, as the number of larger Americans has risen, the biases against them have become more severe. More than 40 percent of Americans classified as obese now say they experience stigma on a daily basis, a rate far higher than any other minority group. And this does terrible things to their bodies. According to a 2015 study, fat people who feel discriminated against have shorter life expectancies than fat people who don’t. “These findings suggest the possibility that the stigma associated with being overweight,” the study concluded, “is more harmful than actually being overweight.”

Come for the excellent story, stay for the excellent (and sometimes heartbreaking) photos — representation matters.

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‘The Very Top Guy in the Stasi was Personally Involved in Figuring Out How to Destroy Punk.’

"Punkers and policemen face each other during a demonstration against the census on the 9th of May in 1987." Chris Hoffmann/picture-alliance/dpa/AP Images, Algonquin Books

Will Hermes | Longreads | September 2018 | 14 minutes (3,534 words)

Punk rock was revolution-minded from the get-go, at least about aesthetics. Its political consciousness bloomed later –- most vividly in the U.K., then in scenes around the world. Yet for all the anti-Thatcher, anti-Reagan bluster, punk can lay direct claim to just one full regime change. That’s the takeaway from Tim Mohr’s revelatory new book Burning Down The Haus: Punk Rock, Revolution, and the Fall of the Berlin Wall. It chronicles the rise of the scene — essentially seeded, Mohr writes, by a 15-year-old girl whose moniker became Major — in the Soviet Bloc German Democratic Republic in the ’80s. As its numbers swelled, it attracted the attention of the famously ruthless Stasi intelligence and security force (basically the KGB of the GDR), whose mandate included crushing any murmurs of rebelliousness or dissent, and who employed a psychological warfare strategy known as Zersetzung, or decomposition, towards those ends. Kids were picked up and interrogated, for hours and even days, for their haircuts, or clothing, or scraps of paper with song lyrics. For even minor transgressions, they lost college placements, government-controlled apartments, and jobs, their parents and relatives often punished in a similar manner. Kids were arrested and beaten, spent months in prison, threatened with expatriation.

Yet the scene kept growing. Bands like Namenlos and Schleim-Keim formed, playing gigs in church compounds — pretty much the only places alternative culture could exist, since church “open work” spaces were theoretically off-limits to the Stasi, at least initially. There, communities grew; punks connected with environmental activists and others working for change, sharing strategies and collaborating. They staged concerts and festivals, which the Stasi tried to suppress. When street protests began in force, swelling from thousands to hundreds of thousands, and the Berlin Wall finally came down in 1989, it was a culmination of the civil unrest that began in significant part, Mohr suggests, with a handful of strong-willed teenage punks hanging out at a park in Plänterwald.

Mohr encountered this history during his years in East Berlin, where he deejayed in clubs that had sprouted in the free-for-all communities of post-reunification Germany — clubs often created, staffed and attended by the same culture warriors that came up in the ’80s punk scene. Mohr spoke with us from his current home in Brooklyn, NY.

Listen to an audio version of this interview on the Longreads Podcast:

Longreads: So how did you first wind up in Berlin? This was after the wall fell, right?

Tim Mohr: Yeah, it was ‘92, so two years after unification. I was just determined to live abroad for a while, and I didn’t really have much of a clue about Germany. I guess I’d say I was a stupid American at the time. I thought Oktoberfest and Germany were the same thing, and I expected to get off the plane in Berlin and see everyone running around in lederhosen.

Chugging beer…

Yeah, out of giant mugs. And of course, it wasn’t the case. I ended up in a typical Eastern Bloc high rise, far in the East. This was somewhat disappointing. But pretty quickly I discovered the scene that was happening in crumbling old buildings in the central part of town, where people were squatting and the first generation of clubs and bars were up and running.

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Hating Big Pharma Is Good, But Supply-Side Epidemic Theory Is Killing People

Jose A. Bernat Bacete / Getty, Photo illustration by Katie Kosma

Zachary Siegel | Longreads | September 2018 | 20 minutes (5,459 words)

After breakfast each Sunday we had the option to attend a spiritual group. The facility’s spiritual counselor was a tall woman with greying frizzy hair who collected vaguely heart-shaped rocks, and always had several on her desk that she’d gift to patients who stopped by her office.

She wouldn’t give you just any old rock; no, the rock she’d choose for you had a story: its color, unique dents and chips resembled resilience, an ability to withstand harsh elements while retaining your heart’s shape. She insisted the Sunday group wasn’t religious. “Religion is for people who’re afraid of going to hell,” the popular saying around Alcoholics Anonymous goes. “Spirituality is for people who have already been there.” So we sang along to “Let it Be” by The Beatles.

We had mostly blamed ourselves for what landed us inside an addiction treatment facility. But we were young, so we also blamed our parents (thanks Obamacare!). The reason why we were all in treatment and not quarantined in jail is because we were mostly white and upper-middle class. It was the summer of 2012 and young people like me all over the country were developing opioid addictions. The difference between us and the vast majority of others was our family’s resources, namely insurance that covered the $1,000 per day cost for a residential stint at a spiritually tinged hospital-meets-lake-house just outside the Twin Cities (the land of 10,000 treatment centers). The campus edged Medicine Lake, which I always found cruel because the facility didn’t much like to use medicine at the time, medicine that would’ve eased my withdrawal and given me the best chance at kicking for good. “We don’t do that here,” I recall a nice Minnesota doctor saying.

Addiction experienced in the first-person feels like watching a movie shot entirely in extreme close-ups. No matter how hard you try, you can’t see the world beyond the frame. A tolerance builds after a while and you grow used to the shaky, nauseating ride. We couldn’t have possibly known it at the time, that we weren’t the stars in our very own drama. The content of our stories differed in the details, but the tone was uncannily similar: how prescription painkillers first took hold; after pharmaceuticals became scarce and expensive, how we, as a generation in unison, playing a fucked up game of Red Rover, beelined toward heroin. Another thing we had in common was a lot of dead friends. Read more…

People Sorting: An Interview With ‘Personality Brokers’ Author Merve Emre

Jessica Gross | Longreads | September 2018 | 23 minutes (5,900 words)

If you haven’t yet read Merve Emre’s writing on the history of the Myers-Briggs Type Indicator, you might assume that Myers and Briggs were men. In fact, as Emre documented first in a 2015 piece for Digg and with great depth in her new book The Personality Brokers: The Strange History of Myers-Briggs and the Birth of Personality Testing, the indicator was the brainchild of Katharine Cook Briggs and her daughter, Isabel Briggs Myers. Over the course of decades starting in the early twentieth century, and shaped by their interests in childrearing and the theories of Carl Jung—if not formal training in psychology—Katharine and Isabel created what has become one of our preeminent means of categorizing, and thus conceiving, people.

Though her writing ultimately accrues into a critique of the MBTI along several dimensions, including the way it upholds extant social, racial, and class inequalities and its perpetuation of insidious capitalistic values, Emre excavates the history of the indicator from its inception through its modern expression with tremendous rigor, nuance and, ultimately, empathy. It seems as important to her to honor these two women’s work as both inventors and mothers—as well as the profound meaning the MBTI can hold for people—as it is to examine the intent and effects of their creation. Writing in the New York Times Book Review, Jennifer Szalai described the book as “history that reads like biography that reads like a novel — a fluid narrative that defies expectations and plays against type.”

Emre, an associate professor of English at Oxford University, has written prolifically for both academic and popular literary outlets. (Her first book, Paraliterary: The Making of Bad Readers in Postwar America, came out last year.) She is, in my estimation, one of the sharpest critics working today. But we first met long before she published her first piece—in fifth grade.

This past June, when I visited Emre in New Haven, where she was staying with her family before moving to the U.K., we spoke not only about the MBTI but also about our own history. Though we were friendly and moved in similar circles during our childhoods, we didn’t become close until our early twenties, by which point both of us had changed enough that we were able to become real friends. If the MBTI is predicated on the understanding that a person’s personality type never changes, how does one account for personal evolution?

* * *

Even though parts of your Digg piece are incorporated into this book, there’s a great tonal difference overall. The Digg piece is acerbic in a way that was kind of fun, so I assumed the book was going to be more of an outright critique. But it’s much more biographical than critical, and tonally much more subdued. Can you talk about that choice?

The Digg piece was sharper and a little bit snarkier, you’re right. Part of what that was registering was my frustration that I had gone to these great lengths to follow the directions of CAPT [the Center for Applications of Psychological Type, which holds the personal papers of founder Isabel Briggs Myers] in order to get access to their archives, and then they denied me access for no discernible reason or purpose. Or rather, the purpose was discernible, and it was that they wanted to protect this person’s image and they didn’t want anybody to write anything that might be even a little bit critical.

So the Digg piece was in some ways excavating those frustrations. But when you sit with any subject for long enough, certain nodes of sympathy begin to open up that you might not have anticipated.

Once I got access to Katharine’s papers, I saw that there was that there was a real struggle for her and for her daughter to figure out how to take what at times seemed to them like the banal and unpromising labor of motherhood and domestic care and transform that into something that they felt was self-actualizing, and self-actualizing in a very professional way. It’s hard for me not to feel sympathy for that. The more I sat with their materials, with their letters—the more I learned about their lives from primary sources—the less I wanted to write a straightforward critique. Or, I felt that I had written a straightforward critique for Digg, and that it had served its purpose.

For the book, I wanted something that would make a little bit more sense of why we continue to be drawn to an instrument like the MBTI even when I think many of us know that it’s not valid or reliable, that it’s a flat and unspecific understanding of human personality. It seemed to me that I couldn’t answer that question with critique alone—or that critique alone would only answer half of that question and leave the other half, which was about the human desire to know ourselves and to know our intimates, unanswered. Read more…

On Being an Ill Woman: A Reading List of Doctors’ Dismissal and Disbelief

Getty Images

Just months after I turned 18, I sat on the white crinkly paper of a patient bed, waiting for my first neurology appointment. I repeated, I am a Division I athlete, as if reminding myself of my athleticism would somehow erase the strange symptoms of fainting, blurred vision, and dizziness that had plagued me for the previous few weeks. The illness, like a flower from concrete, seemed inconceivable. I had been healthy my whole life.

The doctor rapped on the door, entered, and shook my hand before taking a seat. “The doc at your school called. Thinks you had a bad reaction to medication,” he said, referencing antibiotics I’d been prescribed for bronchitis. “He says you’ve had blurry vision, vertigo, two episodes of syncope.”

“Is syncope fainting?” I asked, feeling as though the language of my body had been translated into something incomprehensible. I wanted to snatch it back.

“Yeah, yeah,” he crooned. “You been running?”

“I’ve been trying,” I told him. Each attempt ended in a swell of vertigo and subsequent collapse. The assistant coach carried me to my trainer, who took my blood pressure and pulse, always murmuring, “you’re fine.” The athletic doctor assigned to our team, after performing several tests, had told me that I presented no abnormalities; he encouraged me to run.

The neurologist pulled out a mallet and tapped my knee. My lower leg reacted as it should, swinging forward like a pendulum. He told me to walk, and watched as I made my way from the bed to the door, and back again. “It’s fine for you to run,” he said, scribbling down notes. “I don’t see what’s holding you back.”

I left the appointment with a sense of unease. If the athletic doctor, a trainer, and a neurologist had seen me and told me I was fine, then was I really sick? At the time, I didn’t know how to advocate for myself while in the position of patient. I felt alone with my illness, scared of my own body.

Eight years have passed since then and, in my own continuing journey toward a diagnosis, I have felt a strange mix of emotions when reading narratives of other women being discredited by medical professionals. I feel outraged when I read about their attempts to voice symptoms, only to be silenced. Guilt — and a desire to work toward reforming our current medical system — washes over me when I am reminded of the extent of my own privilege.

The essays below are both a salve to the years of dismissal from doctors and a call to action. I’m inspired by other women’s efforts to advocate for themselves, practice radical empathy, change policy, and create resources so that other patients don’t endure the same harrowing experiences. When I hear my voice in chorus alongside them, I feel as though I’m somehow part of a community, or at least not alone anymore.

1. “PCOS. POC. Poetry. & Pilates” (Tiana Clark, Lenny Letter, April 13, 2018)

Tiana Clark tries to ignore symptoms of panic attacks, hair loss, brain fog, and more, until her ovary throbs with an excruciating pain that forces her to the walk-in clinic. There, a doctor waves Clark’s symptoms away with painkillers and, at an appointment with a white female gynecologist soon after, Clark’s self-diagnosis of polycystic ovarian syndrome (PCOS) is initially belittled.

Her casual dismissal of my problem reminded me of what I’d so often seen living as a black woman in America: an erasure of my distress.

In this incisive, empowering essay, Clark highlights researched material about black women’s health care in the U.S., relays her own harrowing experiences with medical professionals, and emphasizes the importance of learning to advocate for herself.

2. “Memoirs of Disease and Disbelief” (Lidija Haas, The New Yorker, June 4 & 11, 2018)

By examining female narratives of illness ranging from Virginia Woolf’s essay On Being Ill, Jennifer Brea’s documentary film Unrest, Susan Sontag’s canonical Illness as Metaphor, and Christina Crosby’s book A Body, Undone: Living On After Great Pain, among others, Lidija Haas reviews Porochista Khakpour’s Sick with an eye toward how storytelling can affect treatment, act as a form of escape, and undermine dangerous expectations of what a patient should be.

(Related: read an excerpt of Porochista Khakpour’s Sick here at Longreads.)

3. “Doctors Told Her She Was Just Fat. She Actually Had Cancer” (Maya Dusenbery, Cosmopolitan, April 17, 2018)

After experiencing coughing fits for three years, Rebecca Hiles visits the doctor, only to be told her condition is “weight-related.” Hiles is not the only one to be dismissed in this way; in this insightful and eye-opening essay, Dusenbery collects stories of women who have been fat-shamed by doctors rather than being treated with care, resulting too often in dangerous downward spirals in illness.

4. “The Reality of Women’s Pain” (Rachel Vorona Cote, The New Republic, March 7, 2018)

Rachel Vorona Cote situates Abby Norman’s Ask Me About My Uterus: A Quest to Make Doctors Believe in Women’s Pain, a book about Norman’s arduous experiences receiving treatment for endometriosis within a long history of “wild theories about female anatomy” such as the “wandering womb” theory of Ancient Greece, Freud’s dismissal of patients as hysterical, and others.

As Norman communicates so powerfully, a woman’s relationship to her pain is a snarled coil of memory and socialization.

(Related: read Abby Norman’s Women’s Troubles, from Harper’s.)

5. “On Telling Ugly Stories: Writing with a Chronic Illness” (Nafissa Thompson-Spires, The Paris Review April 9, 2018)

Nafissa Thompson-Spires not only chronicles the emergency room visit and appointments that led to her initial diagnosis of endometriosis, but also writes about what it means to be a woman with an invisible chronic illness, and her identity as a black woman within the realm of the medical world.

In Ain’t I a Woman: Black Women and Feminism and Talking Back: Thinking Feminist, Thinking Black, bell hooks problematizes the persistent myth of the strong black woman. This myth contributes to real-life consequences in medicine and elsewhere.

6. “Checkbox Colonization: The Erasure of Indigenous People in Chronic Illness” (Jen Deerinwater, Bitch Magazine, June 8, 2018)

When Jen Deerinwater visits the doctor, her identity as “a citizen of the Cherokee Nation of Oklahoma” is erased by problematic intake forms that only include the options of “American Indian” or “Native American,” and she is often asked “degrading and humiliating questions” by medical professionals. Deerinwater lists a litany of ways in which Native people are ignored and mistreated by the healthcare system, resulting in lack of access to resources and treatments, shortened lifespans, and a host of other harms.

(Related: read other essays from the 15-part “In Sickness” series from Bitch Magazine.)

7. “Health Care System Fails Many Transgender Americans” (Neda Ulaby, NPR, November 21, 2017)

As of November 2017, 31 percent of transgender Americans lacked regular access to healthcare, due in part to how difficult it is for transgender people to find jobs. Neda Ulaby notes that “insurance companies and many medical professionals still treat them as though their bodies don’t make any sense,” which causes anxiety for trans people when visiting physicians, something Planned Parenthood is trying to ameliorate through staff training.

(Related: read Making Primary Care Trans-Friendly by Keren Landman, from The Atlantic.)

8. “A Matter of Life & Death: Why Are Black Women in the U.S. More Likely to Die During or After Childbirth?” (Meaghan Winter, Essence, September 26, 2017)

When Fathiyyah “Tia” Doster was pregnant, she began to feel bloated late one night. Luckily, she visited the hospital, where she safely delivered her baby. A diagnosis of hemolysis, elevated liver enzymes, low platelet count (HELLP) syndrome left her hospitalized for more than three months, but alive. Other pregnant women are not so lucky. Meaghan Winter explores the historic backdrop of healthcare for black women, the current political climate which is threatening women’s access to insurance and clinics, and bias within hospitals, all of which have contributed to rising rates of maternal mortality.

The complex web of causes — which includes genetic predispositions, chronic stress, racial bias and structural barriers to health care — contributes to the racial disparity in maternal health.

In the end, Winter offers strategies for health providers, reformers, and patients and their families to implement necessary change.

Jacqueline Alnes is working on a memoir of running and illness.