Search Results for: Aeon

In the Grand Scheme of Things

Illustration by: Kjell Reigstad

Hana Schank | From ‘The Edge of Normal’ | June 2015 | 11 minutes (2,634 words)

 

The following is an excerpt from The Edge of Normal, Hana Schank’s story about what it’s like to raise a child with albinism, a genetic condition whose most striking characteristic is white blonde hair and pale skin. Many people with albinism are also legally blind. Writes Schank, “The story is not just one of life with an unusual special need, but also the story of how I’ve changed, and continue to change, as I help my daughter navigate the world.”

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Two weeks after the pediatrician had introduced the word “albinism” to my vocabulary, my husband and I sat in the stuffy waiting room at the neurologist’s, gently rocking my daughter’s car seat. This was the man who would tell us what was going on with my perfect-imperfect daughter. There was still a chance the pediatrician was wrong. After all, everyone else agreed it was probably nothing. Or a brain tumor or cancer. Those were also things that could cause nystagmus or visual impairment. But it was probably nothing. Or albinism. Or nothing. It was probably nothing. Read more…

Chewing, We Hardly Knew Ye: A Soylent Reading List

Image: Bryan Ward.

Meal-replacement mix Soylent had a wildly successful Kickstarter, a year of massive growth where demand far outpaced supply, and has now raised $20 million in funding, led by Andreessen Horowitz. Some hail it as the health-ensuring time-saver we’ve all been waiting for. Others lament it as the latest harbinger of our Silicon Valley-enfoced dystopian future. But what’s it actually like to drink the stuff, physically — and emotionally? These five writers muse on what it feels like — and means for us as a food-centric society — to be free from food.

1. “Freedom from Food” (Nicola Twilley, Aeon, October 2014)

In the end, the time and money saved by switching to drinkable meals couldn’t make up for one fundamental drawback for Twilley: taste. “The only real upside to replacing food with Soylent was that my first real food after five days – half a proper New York bagel with butter, Cowgirl Creamery Mt Tam cheese, a perfect Jersey tomato, and a pinch of Maldon Sea Salt – tasted so utterly, incredibly good that the hand with which I lifted it to my mouth started shaking uncontrollably.” Read more…

Session In Progress: Five Stories About Therapy

My therapist hasn’t called me back. Let me clarify: my potential therapist. I read her LinkedIn profile. I read her website. I tried to find her Facebook page. I left a voicemail on the office phone number. And then I received a call from a number I didn’t recognize, but it sounded like a butt-dial, so I don’t think it was her. But still, that was two months ago. “Just call her back!” you say. Hmm, no, I don’t think so, because what if the butt-dial was her way—subconscious or no—of rejecting me? Like I said: I need therapy. So do the folks included in this week’s reading list. We’re going all over the world: from improv classes, hospitals and living rooms in Belgium, New York City and Minnesota.

1. The Town of Geel

“Psychiatric Community Care: Belgian Town Sets Gold Standard.” (Karin Wells, CBC News, March 2014)

“The Geel Question.” (Mike Jay, Aeon, January 2014)

Since the Middle Ages, Geel has been a safe haven for the mentally ill. Now, its numbers are dwindling. Will this beacon of family-based psychiatric care survive? Read more…

The Top 5 Longreads of the Week

Photo courtesy of Matthew Teague

Below, our favorite stories of the week. Kindle users, you can also get them as a Readlist.

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Mysteries of the Universe, Still Out of Our Reach

Photo by Carl Jones

Cosmology’s hot streak has stalled. Cosmologists have looked deep into time, almost all the way back to the Big Bang itself, but they don’t know what came before it. They don’t know whether the Big Bang was the beginning, or merely one of many beginnings. Something entirely unimaginable might have preceded it. Cosmologists don’t know if the world we see around us is spatially infinite, or if there are other kinds of worlds beyond our horizon, or in other dimensions. And then the big mystery, the one that keeps the priests and the physicists up at night: no cosmologist has a clue why there is something rather than nothing.

To solve these mysteries, cosmologists must make guesses about events that are absurdly remote from us. Guth’s theory of inflation is one such guess. It tells us that our Universe expanded, exponentially, a trillionth of a trillionth of a trillionth of a second after the Big Bang. In most models of this process, inflation’s expansive kick is eternal. It might cease in particular parts of the cosmos, as it did in our region, after only a fraction of a second, when inflation’s energy transformed into ordinary matter and radiation, which time would sculpt into galaxies. But somewhere outside our region, inflation continued, generating an infinite number of new regions, including those that are roaring into existence at this very moment.

Ross Andersen, in Aeon, exploring the questions we still haven’t begun to answer about the beginning of the universe.

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Rest in Peace: Stories About Death Care

I. I’ve been thinking: What would my life look like if I were not afraid of death? Thinking too closely about not existing, not having a consciousness, sends me spiraling into a panic attack. Protestant Christians believe in an afterlife—a heaven, a hell. I did, too, for a while. I was confident, fervent, about heaven. I was no longer afraid to die. Now I’m not so sure. Nothingness scares me, but so does an eternity spent somewhere else.

A month ago, I shared a reading list about architecture. My pick from The Stranger was about Katrina Spade, an  archeologist from Seattle interested in environmentally friendly, community-centered death care: city centers dedicated to composting human beings and reuniting their bodies with nature. It’s called the Urban Death Project. A few days ago, Spade debuted her fundraising campaign to make the project a reality.

I studied artist Iris Gottlieb’s drawings of plants and fungi and Spade’s architectural plans. I liked the idea that the composting hubs would be unique to each city—much like libraries, which take on aspects of their communities while serving the same essential purpose worldwide, Spade explained. Reading the details of Spade’s proposal, I felt genuinely moved, and, for the first time in a decade, peaceful. Read more…

I Ship It: Six Stories About Fanfiction

Photo: Karen Roe

OTP: You and this reading list. I’ve wanted to share writing about fanfiction for some time. Fanfiction is often ridiculed (Why can’t the authors keep from inserting themselves into the story? Why is everyone having sex? Why does 50 Shades of Grey exist?!), but it’s a legitimate creative outlet. Fanfiction has played a small but significant role in my own life, and I’ll elaborate in my list. If you’re totally lost right now, check out Vulture’s beautiful, if patchy, primer (#3 on this list), and then plunge into these funny, fascinating stories about the world of fanfiction.

1. “Stories are Waves.” (Michelle Nijhuis, Aeon, July 2014)

I love–love–this essay from Aeon about a mother who gender-bends classic characters (meet Girl Bilbo!) at her daughter’s request. It’s advocacy for diversity and equality in literature, as well as the power of seeing yourself in a story–which fanfiction often provides. Read more…

What Burns Within Us: Five Stories About Fire

Photo: Camila MP

I’m assistant stage managing a play called The Arsonists. It’s an allegory about appeasement during World War II; in a town wracked by mysterious fires, two strangers arrive on the doorstep of a well-to-do businessman. As the strangers stockpile gasoline and fuse wire in the attic, the hapless businessman and his wife can’t bear to think they might be complacent in impending destruction. In rehearsals we listen to music about fire, sung by The Doors, Johnny Cash, Bruce Springsteen and David Byrne. Fire is on my mind, particularly its mythic proportions in the cycle of creation and destruction, and for the purpose of this list, the traditions and careers it informs and influences. Here are five pieces on fire-eaters, firefighters, fire-walkers and fire-growers.

1. “Trial By Fire.” (Dimitris Xygalatas, Aeon, September 2014)

Welcome to San Pedro Manrique. If what matters most is how well you walk through the fire, Dimitris Xygalatas and his team are there to measure how your body and your friends and family are affected by your participation in this extreme ritual. Read more…

Longreads Best of 2014: Essay Writing

We asked a few writers and editors to choose some of their favorite stories of the year in specific categories. Here, the best in essay writing.

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Meaghan O’Connell
Freelance writer, “Birth Story” author, motherhood columnist at The Cut, who believes her best work is at The Billfold.

The Empathy Exams (Leslie Jamison, The Believer)

I did not know who Leslie Jamison was before I read her essay “Empathy Exams” late one night at the pie shop that I use as an office when the library is closed. I was hungry, and it was dark out, and I was very pregnant and needed to get home. But I stayed in that uncomfortable chair and read it the whole way through, bursting with excitement. I G-chatted friends in all caps asking them if they’d read it. I Googled her, saw she had a book coming out, and floated home feeling like, “Yes, let’s do this. Let’s write some fucking personal essays, people!” I think Jamison, especially here, convinced or re-convinced a lot of people of the possibilities and the value of writing in the first person. Of course I think it’s horse shit that it takes a white lady with a veneer of intellectualism to make it okay, but I’ll take it where I can get it. Jamison, for her part, rises to the occasion. She certainly reminded me to hang onto the art of the thing, all the while going deeper, letting the problem of whatever you’re trying to do take up its own space. Read more…

Longreads Best of 2014: Science Stories

We asked a few writers and editors to choose some of their favorite stories of the year in specific categories. Here, the best in science writing.

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Virginia Hughes
Science reporter and soon-to-be science editor at BuzzFeed.

The Itch Nobody Can Scratch (Will Storr, Matter)

I’ve thought about this story (an excerpt from Storr’s book, The Unpersuadables) many, many times since reading it. It’s superficially about Morgellons, a disease in which people think that they’re infected with bugs or fibers. But it’s really about the nature of disease and diagnosis, evidence and belief. It’s creepy, fascinating, and profound. The best part about it is the way Storr describes these patients and their delusions. It would be easy to make them seem stupid or crazy or worse. But Storr’s writing creates empathy and understanding. The not-insignificant downside of this piece: it makes you feel itchy. Read more…