The Longreads Blog

The Top 5 Longreads of the Week

Rex Features via AP Images

This week, we’re sharing stories from Roxane Gay, Katherine Heiny, Alexandra Starr, Dionne Searcey, and Anna Silman.

Sign up to receive this list free every Friday in your inbox. Read more…

We’re Going Through Hell, and Men Need to Join Us There

(Photo by Drew Angerer/Getty Images)

I know what you’re thinking: Not another sexual harassment post. Bear with me.

I’ve spoken to many women over the past few weeks who feel exhausted by the current news cycle, I count myself among them: the endless onslaught of horrific stories, interspersed with the occasional, extremely bad non-apology.

I know it’s tempting to look away, and it’s fine if you have to; please take care of yourself. It doesn’t make you a bad person or a bad feminist. But it’s important the stories keep coming out, that the issue remains in the public discourse. It feels like we are in a moment of momentum, working our way towards something better, however clumsy, messy, and painful the process can be. It’s a little cheesy, but I keep thinking of the quote often misattributed to Winston Churchill: “If you’re going through hell, keep going.” This momentum feels like hell, and we have to keep going.

Read more…

The Itch and the Touch

(Alessia Pederzoli / Getty)
 Evan Lavender-Smith | The Southern Review | Fall 2017 | 37 minutes (10,132 words)

I.

Mom called last night to say that when she and my brother went to Good Sam’s yesterday, they found Grandpa John totally naked in the bathroom, his butt basically stuck in the toilet seat, unable to get up, and it was a good thing my brother was with her, Mom said, because dealing with her father when he’s naked is one thing she just can’t bring herself to do. “I can’t deal with his penis,” she said. I told her that I understood, which I do, as often, in recent years, when I’ve been in the position of having to deal with his penis myself, I’ve thought the very same thing, viz., “I can’t deal with his penis.” Mom said that she went into the other room — Grandpa John’s bedroom / dining room / living room — while my brother and a nurse hoisted him from the toilet seat, cleaned him up, and got him dressed. Mom was trying not to cry while describing this scene to me, I could tell; I believe Mom fears crying while talking on the phone with me, worried that if she were to cry, I might get annoyed. Apparently, I am content allowing her to believe that I would get annoyed were she to cry, so she doesn’t. When Grandpa John dies, a death which his GP has suggested is now imminent, I have no doubt that Mom will cry while relating the news to me, but it remains to be seen whether I will or will not get annoyed.

***

Over the past few years I’ve spent a lot of time at Good Sam’s with Grandpa John. A primary topic of discussion has been Grandpa John’s so-called itch.

“How are you feeling today, Grandpa John?” I’ve often asked him.

“Not good,” he’s often replied. “It’s this damn itch again.”

We’ve taken him to several doctors to see what can be done about the itch. When the doctor asks Grandpa John to describe his symptoms, Grandpa John replies thus: “I itch!” And when the doctor asks him to elaborate, thus: “Everywhere! All the time!”

We took him to a dermatologist who told us we ought to see a neurologist. We took him to a neurologist who told us we ought to see a dermatologist.

Grandpa John’s GP finally told me there’s no reason he should be so itchy all the time. She pulled me aside in the exam room to say, “I’m convinced that the itchiness is all in his head. You might consider taking him to see a psychologist.”

“A psychologist!” Grandpa John said, riding shotgun in the minivan on the drive from the GP’s back to Good Sam’s. “But it’s an itch!”

“I’m just telling you what the doctor told me.”

“Do you know what doctors do? Evan, do you know what doctors do?”

“They practice.”

“You’re goddamn right they practice,” he said. “And that’s all they do.”

I suggested that maybe we should give the topical route another go, maybe stop off at Walmart and try to find something there, as none of the various pills he’d been prescribed had seemed to have any effect on curbing the itch.

In the Walmart parking lot, Grandpa John turned to regard me with his amber fit-over sunglasses. “I’ll wait here,” he said. He fished in his wallet, handed me a one-dollar bill.

“Generic, then. Travel size. Good. We’ll see how it works and go from there.”

In his lenses my reflection remained still for a long moment. He fished in his wallet again, pulled out a hundred. “Don’t bring back any change.”

Standing shirtless in his kitchenette later that afternoon, with his arms raised as high as he could get them, Grandpa John said, “You’ve got to get the whole back. And get it low. Yes, like that. Get it lower. Here.” He unbuckled his belt, pulled his pants and underwear all the way down. “Get the cheeks. Get all over the cheeks and then hit the tops of the legs, the fronts and the backs. Get everywhere. And get the crack. Get it good. Yes, like that. Use the whole bottle, we’ve got ten more. We’re going to snuff out this itch if it’s the last thing we do.”

“Grandpa John told me you cured the itch,” Mom said to me on the phone that night. “I can’t believe it. All those doctors! What’s this special itch ointment you found? He said it was expensive.”

“Johnson’s Baby Oil. I bought a hundred dollars’ worth. No itch-relieving properties whatsoever.”

“I don’t understand,” Mom said.

“I think he just wants to be touched.”

“Touched?”

“He’s already got me penciled in for an hour and a half tomorrow, between church and poker.”

“Gosh,” Mom said, struggling to suppress a laugh, “it must be hell getting old, right?”

“I don’t know,” I replied. “Nude massage sounds pretty good to me.”

“Evan, I appreciate you so much. And so does he. And so does the itch, I’m sure.”

“Yeah, right,” I said. “The itch.”

***

On the days I drive over to Good Sam’s I always take a few minutes to come up with a list of things to talk about to which I can later refer while Grandpa John sits in his reclining chair staring at me blankly. Driving over earlier today — the A/C on full blast, fending off yet another sweltering New Mexican early-November afternoon — I considered the possibility of discussing the Republicans’ foreboding sweep of the midterm elections; my predictions for the upcoming Panthers-Eagles Monday Night Football game; my son’s lack of progress at piano; my daughter’s enrollment in hip-hop dance class; the Yankees’ qualifying offer to D-Rob and the likelihood that he would turn it down; the comical nature of our family’s recent trip to the annual Renaissance Faire; the comical nature of our family’s continued failures to housebreak our new puppy; and, if Grandpa John seemed up for it, Mom’s newly established plan for moving him from his assisted-living place at Good Sam’s over to long-term care at a local nursing home called The Aristocrat. My mental list of conversational possibilities would generally consist of even more items, maybe a dozen or so, but my son and daughter, who’d agreed to accompany me to Good Sam’s this afternoon, would serve, I hoped, as they had during past visits, as readily available means of conversational diversion were things to get silent and awkward between Grandpa John and me, or, were Grandpa John in an especially bad mood — were things to get combative between us, as they occasionally do — as conversational wedges, conversational shields.

“So,” I asked the kids, lowering the driver’s side visor to spare my eyes the afternoon sun’s harsh glare, “what are you guys going to talk about with Grandpa John?”

“Probably politics and stuff,” my son said.

“Probably just football and stuff,” my daughter said.

“Not good. Instead, I should like for you,” I said to my son, “to talk to him about stuff besides politics, because I’ve already decided that I’m going to talk to him about politics, especially about the midterm election results, and, besides, you don’t really know anything about politics. And you,” I said to my daughter, “I want you to talk to him about something besides football, because everybody knows you hate football, and because I’ve already got some stuff planned to talk to him about, about football.”

“So what should we talk to him about then?” my son asked.

“Yeah,” my daughter asked, “what should we talk to him about then?”

“What you guys should do is try to think of stuff to talk about that’s going to make Grandpa John feel better about dying,” I said. “Try to come up with stuff about what it’s like to be a kid, to encourage Grandpa John to conjure up images from his childhood and reflect on them with feelings of satisfaction and contentment about a life lived completely. Maybe think about something that happened recently on the playground at school, or in the cafeteria, or in the classroom, or at PE or something. Poignant interactions with other kids, your frustration with curricular requirements, the developmental travails of prepubescence. Something you did that got you in trouble. I know Grandpa John used to get in all sorts of trouble when he was a kid.”

“He did?” my daughter asked. “Like what sort of trouble?”

“Yeah,” my son asked, “what sorts of things did Grandpa John do to get into trouble when he was kid?”

“Talking in class, forgetting his backpack at home,” I said. “Not taking the puppy for long enough walks in the evening.”

“What kind of puppy did Grandpa John have when he was a kid?” my daughter asked.

“Yeah,” my son asked, “what kind of puppy did Grandpa John have when he was a kid?”

“I don’t remember. Maybe a Yorkshire terrier?”

“A Yorkie? You mean like Bucky?”

“That’s right. His puppy was the exact same breed as Bucky.”

“Cool,” my son said.

“Yeah,” my daughter said, “cool.”

“Not so cool, actually. If I remember correctly, Grandpa John’s Yorkie died at a very young age. Nobody ever took it for long enough walks in the evenings so its muscles atrophied and it just sort of withered away. Please don’t mention that to Grandpa John, though. I know he’s worked hard to forget it.”

A stoplight ahead of us turned red. I decelerated, bringing the minivan to a halt. None of us spoke for the duration of the red light.

After we’d started moving again, my daughter said, solemnly, “I’m going to take Bucky for a really long walk tonight.”

I scanned the rearview mirror to find that my son’s face had flushed red. “Dad,” he said, also solemnly, “I think we ought to take Bucky on a really long walk tonight.”

***

the old man and the outhouse

(as recently narrated to me, for the umpteenth time, by Grandpa John)

Can’t remember who he was, some old geezer from the neighborhood. I’m ten, see, eleven, still in my short pants. The old man’s trudging up the hill to the outhouse on his way to take his morning dump, newspaper in one hand, roll of tissue paper in the other. And I’m in the mulberry bushes with my buddies, see, watching, hiding out. And then I says to them, after the old man shuts the door behind him, I says to my buddies, real quiet-like, “OK, boys, now let’s tip the shit house over with the old man inside.”

***

Did Grandpa John have a dog as a kid? The image I have of Grandpa John’s father, given the former’s disturbing tales of abuse suffered at the latter’s hand, the intensity and immediacy of which has always been compounded by Grandpa John’s fondness for the historical present, does not at all jibe with the image of a yapping puppy running around the house. I guess I could imagine them owning a Doberman pinscher or a pit bull, maybe a German shepherd. I suspect that Grandpa John became a serious dog person only later in life, after his wife, my grandmother, the mortally emphysemic Grandma Blanche, died. While Grandpa John is not the type of man to admit of such a correlation — I can’t hear him saying, “Daily cuddles with this shih tzu eases the pain and anxiety associated with the unfortunate early passing of the love of my life” — it seemed obvious enough: during the twenty or so years intervening between Grandma Blanche’s death and Grandpa John’s matriculation at Good Sam’s, he was to be found without a canine cuddling companion for never more than a few days, that being the amount of time it took to have someone come in and dispose of the old dog’s dead body and then have someone else come in with an assortment of new puppies from which Grandpa John would proceed to make an unceremonious and often ill-advised selection.

What you guys should do is try to think of stuff to talk about that’s going to make Grandpa John feel better about dying.

No pets allowed at Good Sam’s, however. With Grandpa John’s escalating depression and his fondness for super cute dogs near to our minds, we decided, a couple of weeks back — associating Grandpa John’s contentedness, even Grandpa John’s happiness, with Grandpa John’s proximity to a real puppy’s wet nose and a real puppy’s rough tongue and a real puppy’s real soft puppy fur, as opposed to these things’ mere photographic representation all over the walls of Grandpa John’s bedroom / dining room / living room — to smuggle our new puppy into Grandpa John’s apartment at Good Sam’s. But, alas, Bucky’s little contraband nails kept puncturing the heavily bruised, grotesquely translucent, tissue-thin skin on Grandpa John’s hands and arms and cheeks. “Your puppy’s claws and my old-man skin aren’t the best of bedfellows,” Grandpa John said. He sat in his recliner, lesions along his arms oozing dark blood, Band-Aid wrappers strewn across his lap.

“They’re not claws, silly,” my daughter said. “They’re fingernails.”

“They’re not fingernails, stupid,” my son said. “They’re pawnails.”

“Nails, claws, whatever. Words don’t matter,” I said. “What matters is Buck’s tearing the shit out of Grandpa John’s old-man skin. Now, you two, put down your iPads and get him off.”

Grandpa John, bleeding, said, “Buck.” He stroked Bucky’s back, giggling.

“That’s right,” I said. “Buck. We named him after you.”

“No we didn’t,” my son said, playing on his iPad. “You said we named him after Starbuck from Moby-Dick.”

“No we didn’t,” my daughter said, playing on her iPad. “We named him after Star­bucks. Dad took me there to get a cake pop right after we got him from the breeder.”

“You got a cake pop?” my son asked, incredulous, looking up from his iPad. “Dad, is that true?”

***

blind par three

(which often follows “TOMATO” in the manner of a coda)

So me and my buddies, we’re twelve, thirteen, see, and we’re hiding out in some bushes, right beside the green, waiting for a threesome to tee off at the bottom of the hill from where they can’t see the flag. As soon as that last ball hits the green, we all of us scramble to gather them up. They trudge up the hill, the golfers do, take about five minutes searching around for their tee shots. Then somebody thinks to check the hole. The looks of disbelief on those men’s faces, Evan, I’m telling you, their hoots and their hollers. Dancing around the green, hugging each other, kissing. They’re over there crying real tears of joy.

And we’re in those bushes crying a few of our own, too.

***

While driving over to Good Sam’s this afternoon, we approached a stoplight. Although we were the only car at the intersection, the stoplight still turned red.

“How come we have to go to Grandpa John’s all the time, anyway?”

It used to be that Grandpa John could drive himself around. A few days before Mom’s official revocation of Grandpa John’s driving privileges, the kids and I found ourselves in the harrowing position of having to trail Grandpa John in our minivan as he drove his own car, a Toyota Solara, across town, from Mom’s house all the way back to Good Sam’s. It reminded me of watching my son play a racing video game called Gran Turismo shortly after we first got it for him: dashed white lines on the asphalt signifying nothing, other cars on the road existing not in relation to the lives of humans and human families but only to that of the POV car’s maniacal caprice.

Grandpa John’s driving privilege coup de grace occurred after we pulled up behind him at a red light and the sound of a police cruiser’s siren issued from somewhere beyond the intersection. I suspected that Grandpa John wouldn’t be able to hear it, given the recent debacle involving his $5,000 hearing aids, the result of which was that he’d been left with only the left-ear one. As the police cruiser came into view, I flailed my arms wildly in the minivan and repeatedly mouthed the word no, hoping, I guess, that Grandpa John might look up at his rearview mirror and see me, causing him to pause long enough — curious as to why his grandson was acting the fool in his minivan — to allow the cruiser to pass through the intersection unimpeded. The light turned green; Grandpa John stepped on the gas. The police cruiser’s tires screeched; its front bumper came to rest only inches before the driver’s side of Grandpa John’s car, which continued to slowly, nonchalantly traverse the intersection. Aghast, I looked on as the officer flailed his arms inside the cruiser, as he repeatedly mouthed what I presumed to be the word no. Beyond the cruiser, off in the middle distance, the driver’s side tires of Grandpa John’s slow-moving Solara left a dashed white line in their wake.

“Yeah, how come we always have to go to Grandpa John’s? Why can’t he ever drive over to our house?”

* * *

Grandpa John sometimes says to me, “It’s hell getting old.”

“You know what my biggest problem is?” Grandpa John sometimes asks me. “What’s that?” I say. “Old age,” he replies.

“Today the doctor finally gave me some information I can work with,” Grandpa John says to me. “Oh yeah?” “Yeah,” he says to me. “She told me that I’m old.”

“Evan, I have some advice for you,” Grandpa John says to me. “Don’t ever get old.”

“Don’t worry,” I says to Grandpa John. “I won’t.”

* * *

I lived with Grandpa John and Grandma Blanche for a summer back in high school. Grandpa John was a senior VP at Waste Management, Inc., and he procured for me summer employment at a local dump.

I recall a torn wrapper from a packet of peanuts lying on the living room floor, Grandma Blanche telling Grandpa John to pick up the wrapper and put it in the trash. “What do I look like to you?” Grandpa John asked, watching televised golf, popping peanuts in his mouth. He wore an immaculate dress shirt, pleated slacks, ribbed socks, sparkling shoes. “You’re a garbage man, John,” Grandma Blanche said. “Do your job.”

When I returned home from work in the evenings, I was not allowed to enter the house until I had stripped down to my skivvies in the garage, placed my reeking work clothes in a trash bag, and cinched it all the way closed. I deposited the bag in the laundry room and raced across the house in my underwear — fearful that Grandpa John would catch a glimpse of my bean-pole figure and make a gibe about it — to the bathroom, where I showered and then sat on the toilet for twenty or more minutes enjoying the bathroom’s cleanliness, its spaciousness, its austerity . . . a far cry from the state of our cramped and often filthy bathroom back home, let alone that of the Porta-Johns at the dump. I would listen expectantly as the soles of Grandpa John’s oxfords tapped toward me from the hallway, as he knocked on the bathroom door to inquire as to whether I’d fallen in, as Grandma Blanche averred that teenagers require privacy of toilet and he really ought to leave me alone.

There was a rumor going around the dump that all of us worked for the mafia. “You mafia?” we’d ask each other, knee-deep in mounds of trash.

I was supposed to be saving up all my paycheck money for college, but I put aside a little each week for a portable CD stereo, which, maybe halfway through the summer, I finally purchased, positioning it on the marble-top dresser well beyond the foot of my bed. In the evenings, after Grandpa John and Grandma Blanche had released me from further familial obligation, I popped Nasty Nas’s groundbreaking Illmatic into the CD player’s tray and kicked back on that glorious California king with my elbows splayed out on either side of my head as it rested comfortably against the bed’s massive mahogany headboard. My hairless legs were crossed, my bare toes wiggled. In the huge gilt-framed mirror hanging above the dresser on the far side of the room, I studied an image of myself rapping along with Nas. Grandpa John’s house in Palm Springs was immense, palatial, nothing at all like his place at Good Sam’s; the guest room was in a whole other wing from where Grandpa John and Grandma Blanche’s bedroom was, so I was afforded the luxury of appreciating Nas at such a volume as Nas was intended to be appreciated: loud. “The World Is Yours” became my anthem. I recall lying on my bed in the guest room, slipping an eager hand beneath the elastic band of my boxer shorts as I watched myself in the mirror — the world was mine. I immersed and projected myself into the music of black culture, spending every weekend afternoon poring over the hip-hop CDs in the music section at the Palm Springs Barnes & Noble, memorizing track listings, taking assiduous note of rappers’ wardrobes — the world was mine. The large metal label on the back pocket of my Karl Kani jeans had scratched the absolute shit out of one of Grandma Blanche’s Windsor armchairs — the world was mine.

A loud banging issued from the other side of the door. Grandpa John entered the guest room, nude, livid. “Turn down the jungle music!” he yelled. His penis looked like a miniature human being.

We watched a movie together, something racy. During a sex scene, Grandma Blanche briefly removed the oxygen mask from her face to ask Grandpa John, “Why don’t you ever make love like that to me?” She returned the mask to her face; I listened to the cadence of compressed oxygen being released into my grandmother’s lungs. Grandpa John steadied his gaze on her. He replied, “Why don’t you ever make love like that to me?”

When I returned home from work in the evenings, I was not allowed to enter the house until I had stripped down to my skivvies in the garage, placed my reeking work clothes in a trash bag, and cinched it all the way closed.

I remember Grandpa John’s forearms resting on the dining room table, straddling his dinner — as if protecting it from some phantom threat: theft, mice, the swaying of a boat — fork in one hand, knife in the other, or, when not grasping cutlery, his fingers in loose fists, his thumbs pointing ceilingward.

And Grandpa John whiffing a three iron, swearing. Grandpa John repeatedly whiffing a wedge, chipping the ball with his foot.

Grandpa John kneeling in the pew, fingering a rosary, supplicating, trembling, the skin above his socks showing. Grandpa John smelling of Brut cologne, shoe polish, dry cleaning.

Grandpa John muttering curses under his breath while steering Grandma Blanche’s wheelchair up the ramp to the pulmonologist’s.

Grandpa John placing a finger above his left cheek, pulling down the skin, widening his eyes, asking, “Do you see anybody in here who cares?”

The three of us watched Jeopardy! together. Alex Trebek said, “He takes a green group of cowhands, prepares them for the drive, and then leads it.” Grandpa John and Grandma Blanche shouted at the TV, simultaneously, “Who is James Cagney!” Alex Trebek: “He watched the eighteen fourteen bombardment of Fort McHenry from a British ship and wrote a poem about it.” Grandpa John and Grandma Blanche, simultaneously: “Who is James Cagney!” “The name of this two- or three-toed mammal comes from Middle English for —” “Who is James Cagney!”

Grandpa John awoke at 4 a.m. every morning and set to work at doing the dishes, as Grandma Blanche no longer possessed the strength required to load the dishwasher without breaking stuff. The kitchen was on the other side of the house, and yet, as I lay in the guest room bed vying for more beauty sleep before having to get up and get going to the dump, it was as if the racket Grandpa John made in the kitchen sink was happening in my ear. I now believe that the cleaning of those dirty dishes was Grandpa John’s cross to bear; he was announcing his frustration with the conditions of his life — viz., the unassailable fact of his wife’s imminent death — via an exaggerated clanging of pots and pans.

On my last day of work at the dump, Grandpa John insisted on picking me up, giving me a break from the long bus ride home. He rolled up to the chain link entrance in his DeVille, all the windows rolled down, the back seat plastered in thick plastic sheeting.

My coworkers, eyes bulging, mouths agape, looked on.

“He mafia,” one of them said.

***

happy birthday

(specially requested on the kids’ birthdays, in hopes they will better appreciate all the good things in their lives)

My old man, that would be your great-grandfather, he says to me, “No way, Buck.” He says, “Buck, you are fifteen years old.” The old man says, “I seen some war myself and it ain’t pretty. No way am I sending a son of mine off to that hell.” But his answer doesn’t go over too well with me, see, so every day I get up out of that bed and I sit down at that table and I have another go at him. “Don’t forget my birthday’s coming up,” I says. “You gotta sign for me.” And every day the old man says back to me, “No way, Buck, I’m not signing it.” But I don’t let it go, no, you bet your ass I don’t. “Ask your mother,” the old man says. Evan, you did not know my mother. If you’d known that woman you’d know there’d be no chance of her ever signing it. So I keep pestering and pestering the old man every day, see, and when my birthday finally rolls around I get out of bed real early and I head over to him with the form and the pen and I says, “Sign it.” The old man looks up at me, it’s the one time in my life I ever seen that man scared. His hands are shaking, like this. The old man looks down at that form, takes up that pen, signs his name to it with tears in his eyes.
“Happy birthday,” he says to me. I grab the form and I run out of that house as fast as I can.

“Yes, it’s true, I got her a cake pop. In fact, I take her there to get cake pops all the time. Whenever you’re not looking, we hop in the car and go to Starbucks for cake pops. Now, I would kindly ask you to get your puppy off your great-grandfather before he skins the old man alive.”

Grandpa John giggled. Bucky sat in his lap chewing on a Band-Aid wrapper.

“Buck’s named after Grandpa John,” I said. “End of story. Another word about it and no screens for a week. Now, Grandpa John, explain to these two rabble-rousers why everybody used to call you Buck.”

Grandpa John dabbed at crimson blood on his arm with a monogrammed hankie, set the hankie down, returned to stroking Bucky’s back. He cleared his throat. “I believe it was on account of my teeth. But then they gave me new teeth in the navy, better teeth. The name stuck.”

“Did you guys hear that? Grandpa John was in the navy. He fought in the Pacific to preserve the freedom and the way of life you two so enjoy today.”

“Thanks, Grandpa,” my daughter said, without looking up from her iPad.

“Dad, can you sign me in?” my son said, handing me his iPad. “Yeah, thanks, Grandpa. It’s a free app, Dad, I swear.”

II.

The first episode of Ken Burns’s 2007 WWII documentary, The War, is entitled “A Necessary War.” Despite having watched this entire documentary three, maybe four, maybe five or six or maybe even seven or eight times — I watch documentaries on my iPhone to help me fall asleep at night — I can remember little of it beyond what the episode titles call to mind. “A Necessary War”: the United States’ entrance into WWII was necessary, unlike so many other wars in which we’ve found ourselves embroiled, because, in the case of WWII . . . but I’m unable to paraphrase Ken Burns’s argument as to why the U.S. involvement in WWII was necessary; I can’t remember it. Although I can, if put to, knowing Ken Burns’s politics as I do, attempt to fudge a summary, with no small confidence in my attempt’s resemblance to Burns’s thesis as I imagine it’s laid out somewhere in the documentary’s first chapter. Thus: Hitler, the persecution of the Jews, to preserve the way of life all of us so enjoy today; contra Vietnam, contra Persian Gulf, contra the so-called War on Terror, wars that involved the U.S.’s largely unnecessary engagement, viz., there was no Hitler involved, there were no millions of Jews being murdered, and, most importantly, there was no actual imminent threat to those many existential comforts afforded the U.S.’s middle and upper classes by means of our country’s hegemonic, globally oppressive late-capitalist regime.

One morning, a couple of weeks back, after a night spent watching and/or sleeping through the first few episodes of The War, I arrived at Good Sam’s eager to pick Grandpa John’s brain about his necessary involvement in WWII’s Pacific theater. Upon arriving, I found him asleep in his recliner with his mouth wide open, the TV on full blast, his raucous snores duking it out with exclamatory constatives from obnoxious local TV ads. I have been repeatedly admonished by both Mom and Grandpa John to wake up the latter whenever I arrive at Good Sam’s to find him sleeping, as they believe that the palliative effects of family interaction trump those of beauty sleep for Grandpa John, but, as I consider sleep a precious resource, one that should never be squandered, doing so remains rather difficult for me. My first recourse is to lower the TV volume and sit down on one of Grandpa John’s barstools in his kitchenette, pretend to play with my iPhone, simply wait it out. If only I possess the patience to wait long enough, Grandpa John will eventually wake up, I know; but, despite possessing great patience, as Mom’s often told me I do, I do not possess such patience as to sit contentedly amid the sound of Grandpa John’s sporadic grunting, the sight of his spittled chin, and the stench of his apartment’s moldy carpet for very long. My next recourse is to silently approach sleeping Grandpa John, kneel down beside the recliner, and whisper sweet nothings into whichever of his ears contains a hearing aid. My next recourse is to pat him gently on the leg. My next recourse is to grasp him by the shoulders and gently shake him. My next recourse is to pull his hair, gently. My next recourse is to yell at him, gently, or to gently pluck out one of his few remaining eyebrow hairs. My next recourse is to dispose with all gentility and retrieve from one of the cupboards in his kitchenette a pot and a pan, which was my final recourse on this day, the morning that found me eager to pick Grandpa John’s brain about the U.S.’s necessary involvement in WWII.

Standing above an openmouthed Grandpa John, studying his fake teeth, I clanged the pot and the pan together. He awoke, scanned the room to get his bearings, assuring himself that he was still alive. “Evan,” he said, wiping spittle from his chin, “thanks for waking me up.”

“Not a problem.” I sat down beside him. “So, Grandpa John, there’s something I’ve been wanting to talk to you about. In my opinion, World War II is the only truly necessary war the U.S. has ever been involved in, wouldn’t you agree?”

“Horseshit!” he replied, spewing saliva in the direction of my mouth.

I placed the pot and pan on the carpet, retrieved a hankie from my pocket, wiped my lips. “What I mean to say is,” I said, “it was necessary for the U.S. to get involved in World War II, in order to preserve the way of life we so enjoy today, in contrast to our engagement in other wars, Vietnam, Persian Gulf, the so-called War on Terror, wars which posed no imminent threat to our way of life. But, in the case of World War II, Hitler was on the march, the Japanese attacked Pearl Harbor, so it was necessary for us to get involved, wouldn’t you agree?”

“You bet your ass it was,” Grandpa John said.

“And so you fought in the Pacific, then?” I said. “At the age of sixteen? And so that’s how you lost your teeth or what?”

Grandpa John did not immediately reply. I’ve often attempted to bait him into telling me about the time he spent, between the ages of sixteen and nineteen, fighting in WWII’s Pacific theater. I’m not sure why this interests me as it does. It may be that the details concerning a teenage Grandpa John fighting for his life in the Pacific feel important to me because they contrast so starkly with details concerning my son’s enjoyment of his life: affixing brightly colored plastic interlocking bricks together, depressing buttons on remote controls, gesturing on touch screens. Could it be that I harbor a secret desire to learn of the horror of Grandpa John’s Pacific theater existence if only to project it, in my imagination, onto an imaginary mode of existence suffered by my son, transferring onto my son’s chubby preteen visage the horrors of war as once experienced by Grandpa John, in order to bring tears to my eyes, in order to watch as my son, in my mind, struggles in the face of wartime atrocity to retain some semblance of continued attachment to the peace of mind he so enjoyed back home while playing with his Legos, playing with his PS3, playing with his iPad mini? Yes, it’s true, I am very eager to place my young son’s life in jeopardy, in my mind. Or could it be that I want to know about Grandpa John’s life, to know as much as I can, before he dies? Grandpa John is dying, he’s been dying for some time, but Grandpa John once lived, too, and it’s important that knowledge of his life is given an opportunity to live on, at least for a time, in someone’s mind — in mine.

“Maybe the itch really is psychological,” I said, “maybe it comes from holding in all that stuff about World War II for all these years, never telling anyone about all the innocent people you killed or whatever, ever think of that? Maybe you should tell me about all of those horrible atrocities you witnessed in the Pacific, Grandpa John, and then maybe the itch will finally go away and I won’t have to keep giving you those full-body nude massages all the time.”

“I may be eighty-eight years young, Evan, but I’m not in short pants anymore.” Grandpa John motioned toward the urine- and spaghetti-stained heather sweat pants covering his legs. “Your parenting tricks won’t work on me.”

It could be, also, that I’m eager to hear Grandpa John tell his war stories simply to afford me an opportunity to throw on my narratologist’s cap and study his use of the historical present a bit more. I’ve always been especially attracted by Grandpa John’s manner of narration; while I’ve never considered myself a particularly gifted storyteller, hearing Grandpa John tell his stories evokes in me a hopeful sense that the gifted-storyteller gene yet resides dormant within my genotype, and perhaps the cadences and the colloquialisms and the excessive use of detail associated with Grandpa John’s historical-present narrative delivery will finally trigger the gene’s phenotypical manifestation in me, in my writing, and at long last I will enjoy that role so often fulfilled by Grandpa John over the course of his eighty-eight years — viz., the life of the party — as I will that of the commercially successful novelist whose gruff, vernacular, and largely transparent prose style finds his reader tearing through pages, having fallen inescapably into the world of story.

‘Maybe the itch really is psychological,’ I said, ‘maybe it comes from holding in all that stuff about World War II for all these years, never telling anyone about all the innocent people you killed or whatever, ever think of that?’

“Grandpa John,” I said, “you’re dying, you’ve been dying for some time, but you once lived, too. And it’s important that your life is given an opportunity to live on, at least for a time, in someone’s mind. Ever think of that?”

“In whose,” Grandpa John said, “yours?”

“That’s right,” I said, “in mine. And then I can later transfer memories of your life, as you’ve related them to me, to my kids’ minds, and then they can later transfer those memories to their kids’ minds, and so on, affording you and your memories a kind of immortality. Ever think of that?”

“Here’s what I think,” Grandpa John said. “Let’s cut out the middleman. Bring those kids of yours over here and I’ll tell them my stories myself.”

“Even better,” I said. “To be honest, the itch stuff and the immortality stuff was all a ruse, you’re right. What I really want is for the kids to hear your stories of wartime atrocity and have the shit scared out of them. I want those kids scared straight, Grandpa John. They need to start appreciating all the good things they have in life. And, moreover, I think it’ll be good for my writing to have one last opportunity to carefully scrutinize your use of the historical present.”

Grandpa John asked, “You’re going to do what to me?”

***

tell carl arenz

(a companion piece to “Happy Birthday,” which I’d heard only dribs and drabs of over the years until a few weeks back when Grandpa John, feeling magnanimous after my curing of his itch, finally agreed to narrate it to me in its entirety)

It’s my sixteenth birthday, see, I already got the form signed by the old man, I’m standing in line at the recruitment office in Ottawa, Illinois. “Army or navy?” the officer asks me. “Marines,” I says to him. He looks me up and down. Back then I was a bean pole, Evan, just like you. “How about we go with navy?” the officer says to me. “That’ll work,” I says to the officer. They put me on a train to boot camp up in
Michigan that same day, I don’t even go home for my things or say good-bye.

(“What?” I says to Grandpa John. “Is that true?”)

You bet your ass it’s true. Six weeks later my mother and the old man show up in Michigan, come by the barracks, but it’s already lights-out so the old man tells me through the window they’ll be back the next afternoon to take me out for a steak dinner. I can see my mother out there weeping, she can barely stand to look me in the eye, she’s got both her hands on the window, moving them around like, trying to get at me through the glass. My folks head on back to the motel. Come morning word arrives we’re shipping out that same day, nobody knows where to. My folks show up to get me
that steak but I’m already long gone. For all they know I’m on my way to France.

(“Are you kidding me?” I says to Grandpa John. “That’s crazy!”)

You’re damn right it’s crazy. From the age of sixteen and one day to the age of nineteen and one day I saw my parents’ faces for exactly two minutes’ time. So now I’m on the train, see, and word is we’re headed to Californy to catch a boat to the Pacific, nobody knows where to, and I’m seeing in my mind my mother standing outside those barracks banging on that window, weeping up a storm, falling to her knees and praying to God, “Don’t let it be true, my baby boy’s headed off to war and I didn’t even kiss him good-bye.” Evan, you did not know my mother. That woman’s heart was bigger than . . . that whole refrigerator there. So I’m on the train a few hours, feeling real sore about it, all tore up inside, crying my eyes out, and then, all of a sudden, I start recognizing places I know, some familiar landmarks out the window. “We’re in Illinois,” I says to myself, “and we’re coming up on Ottawa.” I can’t believe my eyes. We pass through Joliet, Morris, then head down into Streator. You know Streator. The train pulls in at the station to pick up some folks, it’s the dead of night, and I’m home, see, we’re just down the road from Ottawa, but what can I do about it? I’m looking out the window, and right as the train’s fixing to go, I make out in the distance this old hobo strolling through the grass. So I calls out to him, leaning as far out the window as I can, with my hands cupped around my mouth like this, I calls out to the hobo, “You know Carl Arenz?” And he calls out back to me, the hobo does, like this, “Sure I know Carl Arenz, who don’t know Carl Arenz?” See, everybody knew Carl Arenz, even the hoboes, he owned the only automobile dealership for miles around, and he’s also my uncle, see, my mother’s younger brother. So then I calls out to the hobo, like this, “Tell Carl Arenz tell his sister John Lavender’s headed to Californy where he’s gonna catch a boat to the Pacific and fight them Japs!” “OK, will do!” the old hobo calls out to me. And then I calls out to him, I calls out to the hobo like this, “And tell Carl Arenz tell his sister John Lavender misses his mother!” “OK, you got it, no problem,” the old hobo says, “anything else I can do for you?” So then I calls out to him, right as the train’s pulling away, I’m choking on my tears because I’m headed off to war and I didn’t kiss my mama good-bye, also because I can tell the old hobo’s already four sheets to the wind and he probably won’t remember any of what I’m saying, so I cup my hands around my mouth like this and I calls out to him as loud as I can, in a mean, threatening way, like he’s in big trouble if he don’t do it, like I’m a real soldier, like this. “You better tell Carl Arenz tell his sister John Lavender loves his mother! You better tell that Carl Arenz give his sister my mama a kiss good-bye from her baby boy John Lavender!”

That old hobo’s eyes go real wide. I think he gets the message that time.

(“Grandpa, that’s incredible. That’s amazing!”)

You bet your ass it’s amazing. Now, I want you to guess who’s sitting on that porch rocking in that rocking chair when my mother gets home from Michigan.

(“Seriously?”)

My uncle quits his rocking, stands up, and the minute she’s stepped onto that porch he places his hands on his sister’s cheeks, gives her a kiss. “From John,” Carl Arenz says to my mother.

III.

When we finally arrived at Grandpa John’s this afternoon, we found him in his reclining chair, earsplitting shrieks from the TV bouncing between his bedroom / dining room / living room’s four walls, his mouth wide open, his body unmoving. My son and daughter stood before him awhile, heads lowered, arms at their sides, trembling hands precariously holding on to their iPad minis.

“Should we go tell a nurse?” my son finally asked.

“Yeah,” my daughter asked, “shouldn’t we go tell somebody?”

“Guys,” I said, “come on. He’s just not snoring for some reason. It’s nothing to worry about.”

“Dad, it’s totally obvious. Look at him. He’s dead.”

“Yeah, Dad, look at him. He’s totally dead.”

He did look very dead, they were right. And yet often I’d arrived at Grandpa John’s to find him thus, absolutely certain of his death until such time as he’d awaken with a start and call out my name, to ask — as I pilfered his drawers for hawkable keepsakes and spare change — why I was going through all his stuff.

I leaned over Grandpa John, listening for his breath, examining his fake teeth. “Sweetie,” I said, extending my hand toward my daughter while training my eyes on Grandpa John’s shriveled uvula, “take your barrette out. I need to borrow it for something.”

“No way,” my daughter replied. “My hair looks fabulous today.”

“Yeah, Dad,” my son said. “Her hair looks really great today.”

“Do you guys still have that dog whistle app on your iPads?”

“But Grandpa John’s human,” my son replied. “He won’t be able to hear it. And even if he could, it wouldn’t matter anyway.”

“Yeah, Dad,” my daughter said, “it wouldn’t even matter. Dead people can’t hear things.”

“He’s still got his hearing aid in.” I pointed toward Grandpa John’s droopy earlobe. “Turn up the volume all the way and position the iPad’s speaker directly against it. I guarantee you that’ll wake him up.”

“From the dead?” my daughter asked.

“Yeah,” I replied.

My son flipped the cover from his iPad mini and swiped to unlock. He opened the dog whistle app, placed the iPad mini’s Lightning port against Grandpa John’s ear, fired up the inaudible whistle. After a few seconds, Grandpa John’s eyelids fluttered — and then they opened very wide.

“It’s just like in that book,” my daughter whispered, “with the guy.”

My son whispered, “Mary Shelley’s Frankenstein.”

“How are you feeling today, Grandpa John?” I asked Grandpa John.

“I’m alive, aren’t I?” Grandpa John replied.

I shot the kids a knowing glance. They raised their palms and shrugged their shoulders. Grandpa John wiped the spittle from his chin. The kids sat on the floor, crisscross applesauce, positioning their iPad minis in their laps.

“Guys, Grandpa John is more interesting than an iPad,” I said. “How many more chances are you going to have to come over here and socialize with Grandpa John, on the one hand, versus the other hand, the hand which holds not just these iPad minis but which will, doubtless, hold many future-gen iPad minis? There are no next-gen Grandpa Johns on the horizon. Put them up or else. I’m serious.”

The kids grudgingly closed their smart covers. Embarrassed, Grandpa John fake burped. And then he said: “Evan, today’s the day I’m going to tell your kids my war stories.”

“Kids,” I said, turning to the kids, “today’s the day Grandpa John is finally going to tell us his stories of wartime atrocity.” I grabbed the iPads out of the kids’ laps, sat down on the love seat, pulled my pen and notepad out of my pocket, licked my finger. “Grandpa,” I said, “why don’t we start with the story of how you lost your teeth. Do you need some water? Are we good to go here?”

Grandpa John cleared his throat. “The only thing I need, Evan, is for you to get the hell out of this room. I’ll tell these kids my stories on my own.”

“Yeah,” my son said. “Get the heck out of here, Dad.”

“Dad, out,” my daughter said, “right now. Or else.”

“Grandpa John,” I said, “seriously?”

“Hallway,” Grandpa John said to me. “Right now.”

“Out,” Mom said. “Right now, you two,” by which she meant Grandpa John and me. “I’d like to have a minute alone with her,” by which she meant her mom, Grandma Blanche. “Wait in the hallway,” by which she meant the hallway at the hospital, outside Grandma Blanche’s room.

Grandpa John and I shuffled out. We sat on folding chairs beside the door.

“Don’t you ever smoke,” Grandpa John said to me.

“I won’t,” I replied, pretending to massage that portion of quadriceps beneath the right pocket of my jeans in order to assure myself of the continued presence of my pack of cigarettes.

“Those two women in there,” Grandpa John said, turning to me. “They’re the loves of my life.”

He regarded my slightly askew baseball cap, my XL hoodie, my unlaced Timber­lands. His eyes teared up. He patted the leg of my Karl Kani’s, right near where my cigarettes were.

“Those two, plus you,” he said, gripping my hand, “are the three loves of my life.” He squeezed my fingers really hard. “Plus your brother. That makes four.”

I remember sitting in the hospital room after Mom told us it was OK to come back in, receiving eyefuls of the afternoon sun’s harsh rays as they made their way in through gaps in the window blinds. I remember Grandpa John kneeling bedside, fingering a rosary, trembling, supplicating, and I remember Grandma Blanche’s body beneath a long white sheet. I remember her rhythmic, cartoonish jaw movements, like a goldfish breathing.

I remember the window blinds. Crazy knots in the drawstring, bends in the slats, a couple slats missing. I remember Grandpa John getting up to futz around with the blinds’ drawstring, Mom telling him to cut it out or else. As Grandma Blanche inhaled one last time, Grandpa John was still over there at the window trying to coax the mess of slats into place, as if darkness were more amenable to life. After silence greeted Grandma Blanche’s final exhalation, Grandpa John let go of the drawstring. I remember him turning toward us to say, “To hell with it. It doesn’t matter, anyway.”

After returning home from Good Sam’s and eating dinner, the kids suckered me into accompanying them on their walk around the neighborhood with Bucky. We took him all the way to the stop sign at the top of the street, then turned to make our way back home, west — and there was the horizon, and there, atop it, a big fat setting sun, and everywhere a regal New Mexican sky with quilted streaks of lavender, orange, and green.

“Guys,” I said, pointing at the horizon, “there’s no app for that.” I pulled out my phone, snapped a picture. “Eat your heart out, Apple,” I said.

“Yeah, Apple,” the kids said. “Eat it.”

As we began to make our way home, I instructed the kids to relate to me every­thing that Grandpa John had said that afternoon at Good Sam’s concerning his experience in WWII’s Pacific theater, when I’d stood outside in the hallway with my ear pressed against the door attempting and mostly failing to discern the familiar cadences of Grandpa John’s historical-present narrative delivery.

The only thing I need is for you to get the hell out of this room. I’ll tell these kids my stories on my own.

“No way, Dad,” my son said, zipping up his lips. “Grandpa John told us we had to keep it under lockdown.”

“Yeah,” my daughter said, throwing her arm forward, flicking her fingers. “And he told us to throw away the key.”

Bucky stopped, sniffed at some petrified dog poo, maybe his own. I offered to make the kids a deal. If they would be willing to tell me what Grandpa John told them, then I would be willing take Bucky on his nightly walk, sans their accompaniment, for one week’s time.

“Nope. You’re going to have to do better than that.”

“Something way better, Dad.”

We continued walking. A quarter or so of the sun left above the horizon, I told the kids that if they told me every last detail of what Grandpa John had told them, then they could have an additional hour of screen time on Saturday of the upcoming weekend.

“Are you kidding? That’s practically nothing!”

“Yeah, that’s not a good deal at all, Dad!”

Bucky stopped to sniff at a discarded condom. I offered the kids a final deal. If they didn’t tell me every single last detail of what Grandpa John had told them, not only would they lose all their screen time for the upcoming weekend, but I would never again, for as long as they and/or Bucky lived, accompany them on their walks around the neighborhood in the evenings.

“OK, fine, we’ll tell you. But are those other deals still on the table?”

“Yeah, we’ll definitely tell you, Dad, but what about those other deals you offered us before?”

We stopped at the top of the driveway. The other deals’ continued validity was contingent upon the narrative quality of the story they must now proceed to relate to me, I told them. We sat down together on the short crumbling rock wall athwart the drive, and what little light remained at the horizon illuminated Bucky’s tiny teeth and the kids’ lips and cheeks and eyes as they proceeded to relate Grandpa John’s story of orthodontic wartime atrocity, culminating in an instance of highly questionable divine intervention, thus:

***

how grandpa john lost his teeth

(as told to Bucky and me by the kids last night, at the top of the driveway, right as the sun was setting)

So Grandpa John’s job on the boat is to help aim the big gun at the sky and try to shoot stuff down.

Yeah, Grandpa John’s a gunner’s assistant. His job’s to help gun down them Japs.

(“Don’t say Japs, guys. Please call them the Japanese.”)

And he’s out on the ocean in that boat, in the Pacific Ocean, in the ocean near to where the Japanese live, the island of Japan.

Yeah, he’s out on that ocean, Dad, and then all of a sudden these planes start coming in. Bam bam bam bam bam! It’s crazy! There’s planes everywhere. And those planes are shooting at Grandpa John and his friends. Grandpa John is only sixteen years old during this story. That’s barely five years older than me! Isn’t that crazy?

(“That’s totally crazy, yes. I hope that makes you appreciate all the good things you have in life.”)

So everybody’s running around on that deck and everybody thinks they’re going to die.

Yeah, Dad, everybody’s super scared. Everybody thinks they’re totally goners, even Grandpa John.

And so then a bunch of them boys start heading belowdecks. There’s just too many planes in the sky, see. When you look up at first you think all those planes are birds, like seagulls, because you’ve never seen anything like it before, because the only thing you can think it can be is a bunch of seagulls flying around.

But they’re not seagulls, Dad. They’re Japanese fighter planes trying to kill Grandpa
John.

Yeah, and all of Grandpa John’s buddies, too! All them boys!

And so then Grandpa John’s buddy, the main gunner guy, he, like, totally bails.

Dad, the main gunner guy gets so scared he pees his pants. He has to go below­decks to get a new pair of pants.

No, that’s not what happened.

But that’s what Grandpa said. He said the main gunner guy had to go change his pants.

He was just joking about that part, stupid.

You’re stupid!

No, you’re stupid!

(“Guys.”)

So Grandpa John is all alone up there with the big gun now because his buddy got scared so he has to start shooting the gun himself. Dad, we’re going to have to tell you all about how those guns work because you won’t understand this story if you don’t know anything about how those big guns really work.

Dad, there’s this thing that can get super hot on the gun, see, and it’s the assistant gunner’s job to take that thing off the gun when it gets hot and replace it with another one of those things that’s not super hot so that thing doesn’t get too hot and explode the whole gun.

But Dad, now that the main gunner guy peed his pants and Grandpa John took over the main gunner’s job to shoot, there’s nobody to take off the thing when it gets super hot.

Yeah and Grandpa John’s aiming the gun up in the sky without any help and shooting it all on his own!

And he’s shooting them seagulls down like crazy!

What? No. He’s shooting them Japanese.

Yeah, he’s shooting them Japanese. That’s what I said.

No, you said he’s shooting the seagulls.

No.

Yes.

No.

Yes!

No!

(“Guys, come on. This is important. Please.”)

And Grandpa’s shooting so much that the thing on the gun starts getting super hot, but there’s no one there to take the thing off now because that was Grandpa’s job but now he’s shooting the gun on his own because everybody else totally bailed and went down belowdecks.

He’s shooting that gun at those Japanese planes so much and the gun starts getting super hot and now it’s burning his hands off but he has to keep shooting it or else we might lose the whole war out there!

Yeah, Dad, we’re about to lose the war out there in that Pacific!

And then the gun starts turning bright red like the bottom of the fireplace. But even redder than that, Grandpa John said.

Yeah, way redder. But he still keeps shooting that gun even though his hands are getting totally burned.

His hands are totally on fire, Dad!

Yeah, Grandpa John’s hands are on fire for real now then the whole gun explodes right in his face because there’s nobody to take off the hot thing and that’s how he lost his teeth.

Dad, the gun exploded right into Grandpa John’s mouth! It melted all his teeth!

Not melted them. Knocked them out.

Yeah, that’s what I said. It knocked out all his teeth.

But then this is the really crazy part.

Yeah, this is the really crazy part, Dad. You’re not going to believe this part but it’s true.

Dad, Grandpa John died for a little while out there in the Pacific.

Yeah, Grandpa John died for a little bit. He went to heaven. Did you know about that part, Dad?

(“No, I don’t think I was aware of that.”)

Yeah, Grandpa John totally died. Isn’t that crazy?

(“Totally.”)

Grandpa John totally died and went to heaven and that’s when he had a little one-on-one with God.

Yeah, Dad, Grandpa John had some face time with God, for real, up in heaven.

But Dad, now this is the part that Grandpa John made us swear never to tell you.

Yeah, our lips are totally sealed on this part. You’re going to have to offer us something really good this time.

Like new iPads.

With retina displays.

And not minis.

Yeah and not minis. With expensive cases, too.

Deal?

Yeah, Dad, deal?

(“How about I take away your current ones only for an evening, rather than a fortnight?”)

Deal.

Deal and so Grandpa John says to God, “I sees what’s going on here, God, I sees what you have in mind for me, and I’m not too happy about it.”

Yeah and Grandpa John says to God, “God, listen up. I’ll make you a deal.”

Grandpa John says, “I’m not too happy about any of this because I’m only sixteen years old, see, and I haven’t even barely lived yet and already you have it in mind for me to die.”

“And so here’s the deal, God,” Grandpa John says to God. “You let me live today and I promise I’m going to do something real special for you.”

Yeah, Dad. Grandpa John says, “If you let me live, I’m going to marry a woman named Blanche, and with this Blanche I will have a daughter named Gail.”

He meant Grandma Gail, Dad. That’s your mom!

Yeah, Dad, totally! And listen to this. And then Grandpa John says to God, “God. And my daughter Gail will have a son named Evan.”

That’s you, Dad! Grandpa John was totally talking to God about you!

Totally, Dad. And then this is what Grandpa John says next. This is for sure the best part. Grandpa John says to that God, “OK, God. And then my grandson Evan will have two children of his own. And their names will be Jackson and Sofia.”

That’s us! Grandpa John totally told God about us! Can you believe it?

But now wait, this is totally the most amazing part. Grandpa John says, “Now you listen up, God, and you listen good. I’m making you a real good deal here. If you let me live, there are going to be two kids in the world named Jackson and Sofia, and that Jackson and Sofia are going to be just great, they’re going to be the best kids in the history of the world, even if they fight a lot. So what do you say, God, because this is my final offer. Deal?”

And Dad, you’re not going to believe what happened next. You’re not even going to believe what God says to Grandpa John.

God puts his hand on Grandpa John’s shoulder, like this. And then God says, “Deal.”

Dad, God told him he’s got a deal! And he even touched Grandpa John on the shoulder! Like this!

Yeah and then Grandpa John woke up in a hospital somewhere on some boat.

Yeah, but Grandpa John totally died, Dad, for real.

Dad, it’s true. But Grandpa John totally lived, too.

***

This essay first appeared in The Southern Review, the venerable quarterly journal of nonfiction, fiction, and poetry published by the Louisiana State University Press in Baton Rouge. Our thanks to the author and The Southern Review staff for allowing us to reprint this essay at Longreads.

Language Acquisition

Dennis K. Johnson/Lonely Planet Images/Getty

Diana Spechler | Longreads | October 2017 | 16 minutes (3,875 words)

It begins at an outdoor café while you’re working for a month in central Mexico. From one table away, you zero in on his brown forearm, the two black cuffs tattooed around it. You want to touch those cuffs, encircle his arm with your hands. Soon you’ll learn the word esposas, which means both “handcuffs” and “wives,” but today you know only polite Spanish, please-and-thank-you Spanish. You smile at him until he approaches. When he asks if you have a boyfriend, you start to cry and can’t stop. You want to explain something to him — that you loved someone the way a dog loves her owner — but the only available language is snot. He holds a cocktail napkin to your nose. “Blow,” he says. For a second, you think he’s serious. Then you laugh so hard you feel something shift, the way the sky shifts from blue to pink.

***

His socks never match. His clothes and his dog are splattered with paint. His mother embroiders designs on his guayaberas and does his laundry. At night, he crashes wherever he is — on a porch, on a couch, by the lake in his pueblo. He takes you hiking to see the bursting white moon. He takes you to meet the shaman who can erase your pain with feathers. He takes you to see pyramids and an eagle carved into a mountain. He knows how to build a fire. He knows how to prepare a sweat lodge. He knows how to get people to buy him drinks. He knows how to wrap your hair around one hand and undress you with the other. During sex, he says all kinds of things you wish you understood. By the lake, you get so stoned together he stares at your face and asks if you’re Buddha.

“If I were Buddha, I couldn’t tell you,” you say.

“You have the face of Buddha.” He takes a drag, exhales a cloud, leans back on one elbow. “But don’t tell me. You are right. It is better not to tell me.”

Read more…

What Makes a Disability Undesirable?

(Ton Koene / VWPics via AP Images)

Who gets to decide if a disability is bad? This is one of the fundamental questions raised by a recent STAT feature on the genetic testing of embryos, which also looks at how that decision is reached. Andrew Joseph follows two women who knowingly pursue a pregnancy with an embryo that has a mutation that would put their child at a higher risk for certain cancers. It was the only viable embryo the couple had, so if they wanted a baby they didn’t have much of a choice.

Read more…

The Teen Girls Who Defied Boko Haram

In this photo taken Wednesday, Dec. 24, 2014. Zahra'u Babangida, a 13 year-old girl arrested with explosives strapped to her body in Kano on Dec. 10, 2014. following a double suicide bombing, seen at the police headquarters in Kano, Nigeria. A 13-year-old says her father gave her to Boko Haram extremists and that she was arrested after refusing to explode a suicide bomb in Kano, Nigeria's second largest city in the north. (AP Photo)

At the The New York Times, Dionne Searcey reports on teen girls who were kidnapped by Boko Haram in Nigeria to become suicide bombers for their cause. Unwilling to hurt and kill innocents, these girls — some as young as 13 years old — bravely defied the militants and sought help from citizens and soldiers alike to remove the bombs strapped to their bodies before anyone could be harmed.

Aisha, 15, fled her home with her father and 10-year-old brother, but Boko Haram caught them. The fighters killed her father and, soon after, she watched them strap a bomb to her brother, squeeze him between two militants on a motorbike and speed away.

The two militants returned without him, cheering. Her little brother had blown up soldiers at a barracks, she learned. The militants told her not to cry for him. “He killed wicked people,” they told her.

Later, they tied a bomb on her, too, instructing her to head toward the same barracks.

Like some of the other girls, Aisha said she had considered walking off to an isolated spot and pressing the detonator, far from other people, to avoid hurting anyone else. Instead, she approached the soldiers and persuaded them to remove the explosives from her body, delicately.

Read the story

The Intimacy of an Android: An Interview With Alex Mar

(Cait Opperman / Wired)

Alex Mar’s cover story for Wired‘s November issue, “Love in the Time of Robots” is an epic look at the life and work of Hiroshi Ishiguro, director of the Intelligent Robotics Laboratory, who has spent his life and career in pursuit of a more perfect android. He has made copies of his friends, family, and himself with his “Geminoid” project, and he delights in the moment when a human confronts its twin. What could have been a simple profile of Ishiguro goes much, much deeper — at nearly 12,000 words, it is one of the longest features that Wired has run in print — as Mar explores the origins of human nature and intimacy, and the desire to turn to a robot for comfort or companionship. “Most of us already allow technology to mediate what was once simple, direct human interaction,” Mar writes, “what really is the difference?” I spoke with Mar via email about her experience with Ishiguro and the freedom of writing at a length far beyond the typical magazine feature.

***

How many times did you meet with Hiroshi Ishiguro? How did your understanding of him and his work change with each meeting?

I’ve been in touch with Hiroshi for over two years and we spent about three weeks in each other’s constant company in Japan, between Osaka and Tokyo. He was immediately forthcoming with me, very open and direct. We had a great, natural rapport from our first Skype chat, and that was a big part of why I decided to pursue the story. Almost immediately he announced himself as less of a roboticist and more of an artist, which I could relate to more than an engineer’s perspective — he was turned on by big concepts and risk-taking.

Over time he did become more open about his family, a subject that’s pretty verboten for him, as he’s always been a firm believer in keeping his family life separate from his public, professional life. (Ironic, considering his first major experiment was an android copy of his then 5-year-old daughter.) He’s a charismatic figure, and he and his work have gotten plenty of press coverage internationally over the years. It took a moment for him to realize I was also interested in very minute details about his life — his childhood, his personal habits — things that he at first dismissed as too boring to discuss. It’s funny how often people assume that the kind of minutia that really makes a story, the intimate stuff, isn’t worth mentioning.

Ishiguro closely studies the small physical cues involved in human interaction in order to build a better android. (He notices, for example, that people never sit completely still.) But you seem to think his understanding of humanity is lacking. How did your understanding of his work change over time?

I don’t know if Hiroshi’s understanding of humanity is lacking any more than yours or mine. It’s more that his project is immense and requires a lot of hubris. He’s studying, measuring, and trying to replicate something that remains pretty intangible: the human presence, which the Japanese call sonzai-kan. The ineffable thing that signals to us that we’re sitting across from a living, breathing, thinking, feeling person. Plenty of people would call that a soul — something that, by definition, is impossible to replicate. So I think the bigger question here is: Do you think that human-ness is something that we can measure and weigh and build from scratch? Hiroshi’s answer to that, at least in public, is a resounding yes. But in private, I think that Hiroshi is conflicted. Personally, he seems to be struggling with his own deep desire for human connection — he spoke to me repeatedly of his feelings of loneliness — and I don’t know if he’ll ever be able to reconcile that with his work.

When did you suspect you would have to be a part of this story? How did you decide how much of yourself to put in?

I consider myself a “literary” non-fiction writer, but not a particularly confessional one. I believe in using the first person sparingly in journalism; in my longform stories I’ve tended to use it more as a light-handed framing device. But with my first book, Witches of America, about the present-day witchcraft movement around the country, I was surprised and a little bit horrified when I realized I needed to go all-in and insert myself as a character. I needed to be honest with myself and the reader about my curiosity about witchcraft, and to be frank about how subjective my experience of these Pagan rituals was — there’s no “objective” way to take part in a religious ceremony. My approach to the book became very personal and immersive, and any other approach would have felt dishonest.

When I returned from my first reporting trip to Japan, I had that feeling again: The subject of the story required a writer who was also a stand-in for the audience. I had to be able to describe in a very immediate way the experience of being around those androids, of being immersed in Hiroshi’s world and his way of thinking about humanity. When events in my personal life began to get all tangled up with the ideas I was absorbing in Hiroshi’s labs, I felt the only honest way to write this story was to weave that in.

Do you think that inventors who work at the edge of what is technically possible — with artificial intelligence, virtual reality, and so on — lose sight of what humans actually want, what we actually need? It seems like much of what Silicon Valley provides serves the interests of a narrow subset of people in the name of helping humanity.

It seems to me that the goal of a lot of research and development is to anticipate a need, or perhaps to create a desire where previously there was none. Android development is less about a concrete need — a robot doesn’t have to have a human face to perform surgery, or rescue someone from a war zone — but it does seem like an extension of the parts of our lives technology has already colonized. So many of our relationships are already virtual or text-based: entire friendships with people we almost never see in person, interactions with avatars people have created to stand in for themselves online. I’m willing to bet that internet porn, for those who are more or less addicted to it, is rewiring their sexual instincts and, to a degree, eliminating the need for actual human contact. And what about the constant need for affirmation that Instagram or Facebook satisfies? Are we really interacting with humans when we’re interacting on social media, or would that shot of cortisol to the brain be just as satisfying coming from a bot? If you go down this rabbit hole, it becomes possible to imagine a market for android companions, whether platonic or sexual, that goes beyond a “narrow subset” of people.

But putting that longer-term apocalyptic talk aside, here’s something else to consider: AI, android science, VR, etc. — these are clearly male-dominated fields, whether we’re talking about Japan or the U.S. Therefore the needs and desires research and development is addressing are, for the most part, the needs and desires of men — the fantasies of men projected onto the not-so-distant future. When I learned that Hiroshi had produced some two dozen attractive female androids, I thought, of course they were female, young-looking, and pretty. He may be a radical, independent thinker, but he’s ultimately following the dictates of an industry built by men.

This is one of the longest features Wired has ever run in print, over 12,000 words. Was having that kind of length helpful for this subject, or was it unwieldy at times to tell a story of that length?

My very first draft of the story was close to this length, and it felt natural. I’m very grateful that Wired was willing to give it that space, about twice their typical feature length. I think there was a consensus that this story needed that kind of room because of how it continues to evolve all the way to the last page. Hiroshi’s work has a breadth of scope that requires that much space if you’re going to push beyond “man who creates good-looking androids” terrain to get to something deeper. My editor Mark Robinson was a real believer in the piece and wanted to avoid any cuts that might subtract from what he thought made it different and strange and intimate.

There’s also the fact that, for whatever reason, 12,000 words is a sweet spot for me with magazine features. I like to hurl myself into the subject and write my way out of it, and it seems to land at that length nearly every time. But I believe that every story has a length that it naturally wants to land at, once you’re plugged into the writing process. That’s why it’s so valuable to have magazines that are willing to take this kind of risk and go long. This kind of freedom is the greatest gift an editor can give you.

Read the story

“No Fatties”: When Health Care Hurts

Illustration by Hannah Perry

Carey Purcell  |  Longreads  |  October 2017  | 4280 words (16 minutes)

Kasey Smith began gaining weight as a teenager. The numbers on the scale started increasing overnight, and no matter how few calories she consumed, they continued to go up. “It will even out,” she thought, crediting the change to puberty and hormones. But it didn’t, and her hair and skin began changing as well. “Something was definitely wrong.”

Each medical appointment, and there were many, concluded with doctors telling her to go on a diet. Smith (not her real name) remembers telling the endocrinologist about her frustrations with burning off the 900 calories she consumed each day and still gaining weight. “He looked at me and said, ‘Maybe you can cut back your McDonald’s to twice a week.’ I was stunned silent, and I went into the bathroom and broke down. ‘He doesn’t believe me. He thinks I’m just fucking with him.’”

As Smith’s weight went up, her food intake went down. Her mother signed her up for Nutrisystem, and her diet hung on the fridge for everyone in her family to see. Shame and humiliation narrowed her life down to three questions: what to eat, what not to eat, and how to burn more calories. She began to form dangerous habits, sometimes eating little more than lettuce.

Smith ultimately received a diagnosis of polycystic ovary syndrome, a hormonal disorder that can lead to excess male hormones, irregular menstrual cycles, and weight gain. She was prescribed Metformin and quickly began to lose weight, but the damage had been done. The 18-year-old developed anorexia, leaving for college at 130 pounds and coming back four months later and 30 pounds lighter, her hair falling out in clumps.

No one thought anything was wrong.

“I would go to the doctor, and there were no red flags. It was ‘You look fantastic!’ Not ‘This is alarming.’” Smith continued starving herself for another year until she ended up in the hospital, undergoing a colectomy to remove a foot and a half of her intestines, which had twisted as a result of her severe calorie restriction.

One year after the surgery, her worst nightmare returned: She was gaining weight. Celiac disease was the cause this time, but it wasn’t diagnosed until after Smith was in the habit of purging the little food she ate every day. She would regularly run in the park and pass out afterward. “I would starve all day, then I’d eat something at night, then I would purge it. In my head, I’m thinking, ‘I’m literally not consuming anything. The weight has to fall off.’”

She realized she needed professional help, and Smith found a therapist who specialized in eating disorders and began treatment at The Renfrew Center, a residential facility in Pennsylvania. She continues to struggle with discussing her weight at medical appointments. After she told her endocrinologist about her treatment at Renfrew, his reply was “I see you need to lose some weight.”

* * *

According to the National Association to Advance Fat Acceptance, one out of three doctors responds to obesity negatively and associates it with poor hygiene, hostility, dishonesty, and noncompliance, viewing fat patients as “lazy, lacking in self-control, non-compliant, unintelligent, weak-willed and dishonest.”

“Doctors may think they are doing their jobs by focusing on patients’ weights,” said Dr. Rebecca Puhl, deputy director of the Rudd Center for Food Policy and Obesity. But the effects of weight discrimination, both physical and mental, can be harmful to patients. “I do see this in health providers just as much as the general population, which is that maybe stigma isn’t such a bad thing. Maybe it will motivate people to lose weight. Maybe it will provide incentives for weight loss. But that is not what we see in research. We see the opposite — that in fact, stigmatizing people about their weight actually reinforces behaviors in health that increase body weight and obesity.”

The doctor looked at me and said, ‘Maybe you can cut back your McDonald’s to twice a week.’

As weight discrimination has increased in recent years — roughly 40 percent of adults report having experienced some form of weight stigma — so have obesity rates. A positive correlation between experiencing weight bias and developing eating disorders has been documented, and two studies have reported that overweight children are more likely to binge after being teased about their weight. Nor do these habits change as we age. In a 2006 study of more than 2,000 overweight and obese women who were part of a weight loss support group, 79 percent said they turned to food after experiencing weight stigma. Another common response: refusing to diet.

Johanna Tan encountered that stigma when she gained 80 pounds in three months after beginning the hormonal birth control Depo-Provera. Her doctor suggested weight loss, and she chose a weight loss clinic. In the weeks after undergoing her doctor-mediated diet of 500 to 800 calories a day, Tan began experiencing episodes of chest pain so severe she made more than one trip to the emergency room. Her general practitioner blamed her symptoms on her large breasts. “Never mind that my boobs have always been this big, and this was a new symptom,” Tan said, laughing wryly as she explained she had been performing special exercises and getting massage treatments to help ease the symptoms. But it wasn’t her breasts that were causing the pain, it was her gallbladder. Gallstones had blocked her common bile duct, and if left untreated it could cause acute liver failure. The cause of the gallstones? Rapid weight loss. Neither Tan’s weight gain nor her loss had been correctly assessed by her doctors. (Depo-Provera lists weight gain as a common side effect. When Tan voiced concerns to one doctor, she was told, “Everyone gets more hungry. You just need to not eat more.”)

The assumption that any health issues a fat person experiences can be chalked up to weight has not gone unnoticed by the fat community. Marilyn Wann was motivated to pursue fat activism after what she describes as her Really Bad Day, when a man she was dating told her he was embarrassed to introduce her to his friends because of her weight, and she was denied health insurance because Blue Shield of California deemed her morbidly obese.

“This double whammy of social and institutional exclusion based on my weight woke me up,” she said. “Until then, I had hoped to avoid the impact of anti-fat attitudes by avoiding the whole topic. But hiding and silence and avoidance didn’t keep the yuck from finding me. So I recognized that I had to come out as a fat person. The next day, I went to a copy store and made up business cards for my new print zine, which I decided to call FAT!SO? — ‘For People Who Don’t Apologize for Their Size!’ Immediately, my life became less stressful. Of course, I still encounter anti-fat attitudes and weight-based exclusions, but I have drawn a line between me and the hatefulness. It makes a huge difference.”

Wann still experiences bias, especially at the doctor. “I know before I enter the door that the whole system prioritizes its prejudice over my well-being,” she said. “The prejudice is what’s necessary to the institution as it stands. The medical establishment, the insurance agencies, public health agencies that are government-based have always advanced their agenda on the back of fat people. … The institutions of our supposed health systems — in the government agencies, in the insurance companies, in all of the medical practices — are saturated or have deeply ingrained anti-fat bigotry.”

Establishing the balance of information and compassion while discussing a patient’s weight is constantly on Rebecca Zuckerman’s mind. “It puts medical professionals in a weird catch-22,” said Zuckerman, a fourth-year medical student at the Pritzker School of Medicine at the University of Chicago, who understands the motivation of fat activists but whose education includes the negative medical impacts of obesity. “It’s something I’ve struggled with personally. You can only explain it and tell people their options. You can ask if it’s OK to talk about weight loss or give more information. If they say, ‘No, I don’t want to hear it,’ you have to respect that.”

Still, the intense schedule of medical professionals, who are often allotted only 15 to 20 minutes per patient, often results in less-than-ideal communication. It’s easier to reach for the quickest conclusion: telling the patient to lose weight. Says Zuckerman, “A lot of doctors and nurses experience burnout, and they start losing empathy and don’t view the patients as people anymore. Your hands are tied to stay within those 20 minutes. Everyone’s trying to make more money, and the doctors are a cog in the wheel.”

That’s along with pervasive stereotyping about fat people in the medical community. In a study of 318 family physicians, two-thirds reported that their obese patients lacked self-control, and 39 percent stated that their obese patients were lazy. Even health care professionals specializing in nutrition thought poorly of their obese patients: “Attitudes toward obesity and the obese among professionals,” a study in the Journal of the American Dietetic Association, reports that 87 percent of health care professionals specializing in nutrition believe that obese persons are indulgent, 74 percent believe that they have family problems, and 32 percent believe that they lack willpower. In 2013, the American Medical Association labeled obesity a disease.

The misdiagnoses that occur lead directly to poor health outcomes. Johanna Tan ultimately spent three years in pain, leading to four weeks of hospitalization, a series of invasive surgical procedures, and lengthy rehab — procedures that wouldn’t have been necessary had the gallstones been caught earlier. While she was enduring severe pain following her first surgery and struggling to complete her postsurgical rehab, the hospital staff accused her of being lazy. “I spent two weeks in hospital post-surgery,” she said, “copping abuse for being lazy and not participating in my own rehab, before they realized they fucked up.” Tan said the nurses were condescending, saying, “I know it hurts. It’s major surgery. You still have to get up.” The pain didn’t ease until her doctors realized they had missed some gallstones and had to perform a second surgery. Tan wasn’t able to walk more than 10 feet at a time for the first month following her surgeries. It took six months for her to be able to walk further than a block.

* * *

Fat patients also often find themselves facing off with doctors who refuse to write prescriptions or referrals until patients lose an arbitrary amount of weight, a common scenario for those seeking joint replacement surgery. Despite being in “crazy amounts of pain,” Melinda Belles-Preston was required to lose 30 pounds before receiving an operation on her hips. Losing between one and two pounds a week, a healthy pace according to the Centers for Disease Control, would delay her surgery by several months. Heavier patients see longer lags. A required loss of 50 to 100 pounds can postpone a procedure for months or even years unless the patient undergoes weight loss surgery. Without surgery, the time spent in pain is prolonged, opening the door to painkiller dependence. It took Belles-Preston roughly six months to lose the weight, and she was in pain the entire time.

“Going in nutrient-deprived and starved is probably not a good way to send someone into heart surgery or major any surgery,” Wann said; her tone made it clear she was stating what she thought should be obvious. “Someone who’s been losing weight may have worse outcomes than someone who’s stayed the same weight. … It’s amazing how someone can just look at you and decide how a random number of pounds can shift you from someone who doesn’t deserve care to someone who does.”

Pain management was barely discussed when Virgie Tovar, activist and author of Hot & Heavy: Fierce Fat Girls on Life, Love & Fashion, went to the doctor after being injured on an amusement park ride. Suffering what she described as “debilitating back spasms” that made movement “electrifyingly painful,” she was told she had to lose weight before anything could be done for her. “It was like this dogged commitment to not helping me until I was at a different weight,” she recalled. “Let’s say I lose weight at what is considered a normal pace that doesn’t endanger a person’s life. For me to get to the weight you’re talking about is like 10 years. So I just get to be in pain until I’m at that weight. And if I’m still in pain after a decade of weight loss, then you’ll think about taking care of this?”

Ideally, preventive care helps patients avoid catastrophic health problems, but it’s not always accessible to fat patients, whether because of issues with doctors, issues with technology, or both. Fat patients have been refused medical screenings, such as Pap smears, mammograms, and colonoscopies, that are considered routine and vital for thin patients. The American Cancer Society advises women to get mammograms yearly beginning at age 45 and colonoscopies every 10 years beginning at age 50, but fat people often struggle to find facilities that will perform the screenings and are told they cannot fit in the machines.

A required loss of 50 to 100 pounds can postpone a procedure for months or even years… It took Belles-Preston roughly six months to lose the weight, and she was in pain the entire time.

The importance of an MRI comes from its ability to provide higher-quality images. But the machines that provide those images are small, and other options, like CAT scans or ultrasound, don’t provide a comparable alternative. “All those scans need to penetrate the body to create an image. If a body is larger and has more fat tissue to penetrate, the image quality is poorer and blurrier, and it’s harder to make out structures,” Zuckerman explained. “It’s harder for skilled radiologists to diagnose things in patients who are larger for that reason. … The fact is, MRI machines are tiny. Some people literally cannot fit in them. So we do something else like an ultrasound or CT that is not quite as good. It’s better than nothing, but it doesn’t give us the image quality that an MRI does. You run the risk of missing something because the picture that you’re getting is not clear.”

The need for hospital equipment that can accommodate fat people has grown, and imaging devices are now available. This equipment is not available everywhere, however, and sometimes patients are referred to their local zoos. When Wann called the San Francisco Zoo’s medical department to ask about accessing its technology, the person on the phone sighed and said, “I wish people would stop saying that,” referring to requests to use the department’s CT and MRI scanners. While vet schools and zoos have larger-capacity devices, they can’t allow human subjects, and scanning humans in machines intended for animal subjects is banned by formal policies in most facilities. “That’s really beyond their certification,” explained Wann. They’re not licensed as an institution to practice medicine on people. Their entire institutional certification is being put on the line because our human medical system refuses to accommodate people above a certain size. It draws an arbitrary line and says, ‘Go beyond this line, and they’re monsters.’”

Without being properly screened, patients can’t be diagnosed. A 2008 review of previously published studies, 32 in total, reported that white, female, obese patients were less likely to be screened for breast and cervical cancer. A study from 2006 reported that only 68 percent of women with a BMI of greater than 55 were given Pap tests, while 86 percent of other women were tested.

In some cases, this is a result of fat patients opting out of health care entirely, even if they otherwise have the ability to access health care facilities and are insured: According to the International Journal of Obesity, 19 percent of participants reported that if they felt stigmatized about their weight by their doctor, they would avoid future medical appointments, and 21 percent said they would seek a new doctor.

“Fat people don’t go to the doctor often. They tend to avoid it,” writer and activist Kitty Stryker said. “A lot of fat people are ashamed of being naked. They don’t want to be touched. When I say I have a lower-back problem, I know they’re going to say, ‘Lose some weight, and that will go away.’ So what’s the point? Why bother continuing to try to get to the root of my health problems when I know the only thing they will ever tell me is ‘Lose weight’?”


Kickstart your weekend reading by getting the week’s best Longreads delivered to your inbox every Friday afternoon.

Sign up


Patients often face added risk beyond concerns of being dismissed or the necessary treatment being denied: the possibility of weight loss treatments and procedures being strenuously suggested at inopportune or irrelevant moments. While the American Academy of Family Physicians recommends screening for obesity along with monthly sessions of counseling and behavioral interventions, the timing of these suggestions is crucial to the impact of motivational interviewing — and execution is often poor. Tan was mid-Pap smear when her doctor asked if she wanted a Weight Watchers pamphlet.

“The speculum’s already in and open. And she says, ‘I can tell you’re getting upset. Do you want me to continue?’” Tan recalled in disbelief. “I said yes because I didn’t want to have to make another appointment for my Pap smear. I was so mad, I was crying at this point. I couldn’t move. I couldn’t yell. She said, ‘I can tell I’ve made you upset, but weight is a serious issue.’”

Although familiar with the prejudice that came with her weight, Belles-Preston was still shocked when her general practitioner recommended weight loss surgery — while she was pregnant. “I walked out of the room. It was so incredibly offensive to me. I’m coming to you for medical advice about my pregnancy, and you’re talking to me about weight loss surgery, which is the furthest thing from my mind.”

“I have tons of resources and attitudes for confronting this kind of stuff, and it can still kill me,” Wann said as I marveled at her calm approach to discussing prejudice so severe it can result in death. “I understand not going [to the doctor]. I think it’s self-protective to some extent.… Every time I go to any kind of medical appointment I anticipate facing weight bias. I anticipate being denied the sort of services thin people would receive with no problem or being targeted for weight-based treatments that I don’t want and could harm me. I’m not interested in stomach amputation or stomach squeezing. I don’t think those are therapeutic practices in any sense. Every time I go see a doctor I’m aware they may casually say the only thing they want me to do is have my stomach cut off.”

* * *

The effects of that bias were traumatizing and long-lasting for Tan. Triggered by her uncomfortable experiences in hospital environments, Tan’s first job as an audiologist after graduate school provoked frequent panic attacks because of its location at a hospital. “I used to have to go to work early so that I could tamp down the panic associated with being in a hospital at all,” she said. “This fear of hospitals hasn’t quite gone away. Most recently, a few months ago, we had to spend a few days in ICU as my partner’s dad passed, and just being back in ICU rattled me so badly it was a month before I could stop popping several Valium a day.”

It was the adversarial relationship she had developed with doctors and nurses that contributed to Tan’s panic. And she’s not alone. For many, thin means healthy and fat means unhealthy. So small and slender equates with good health and is encouraged by medical providers, often resulting in strained relationships with their patients.

The idea that the lower the weight, the healthier the person, escalated into life-threatening conditions for Smith, who was frequently complimented on how healthy she looked while she was starving herself. “When you’re restricting [calories] you can brag about it,” she said, recalling her preparation for the colectomy. “[Doctors] asked, ‘Are you eating well and exercising?’ I said, ‘I’m very healthy. I exercise all the time. I only eat vegetables.’ It’s a funny dichotomy. Just because the scale is low does not mean that you’re healthy. A lot of doctors forget to be careful of that.”

But as the number on the scale climbs, the less flattering characteristics — greed, lack of control, messiness, lack of self-care, laziness, automatic unhealthiness — are associated with fat people, only to be furthered by the media’s portrayal of fat characters, who are typically the butt of jokes or seen as slovenly and undesirable. Women are often the punch lines, much more than men. BMI standards also are more harsh for women than for men, which is apparent in the statistics regarding weight loss surgery: Obesity rates in America are split fifty-fifty between genders, but 80 percent of bariatric surgeries are performed on women. In a 2014 study from Kansas State University, 72.8 percent to 94 percent of overweight and obese men were satisfied with their health as compared with 56.7 percent to 85 percent of overweight and obese women. There’s a reason all the stories and sources here are about and told by women.

“The truth is that there are reasons why fit people live longer, better lives,” Tovar said. “It’s because the entire culture is constructed to benefit them.” Weight discrimination is associated with an increase in mortality risk of nearly 60 percent for both women and men.

Fat activists are working to provide recourse at the community level; patients share the names of fat-friendly doctors or establishments, and Wann uses her social networks to help people get referrals for doctors and other medical providers. She also assists people with planning responses to doctors and providers who inflict weight bias. Fat activist Stef Maruch maintains a list of doctors who do not inflict bias or are fat positive, and Wann encourages people to update it whenever they can. NAAFA also publishes brochures and tool kits to assist fat people in navigating bias and fighting anti-fat legislation. A monthly newsletter updates recipients with the latest research and provides referrals to practical tools like products made for people of size. After Hurricane Harvey devastated Texas, NAAFA released a special-edition newsletter and sent plus-size clothing and supplies.

Obesity rates in America are split fifty-fifty between genders, but 80 percent of bariatric surgeries are performed on women.

The organization has also updated the brochure it gives health care providers treating fat patients. It was last updated in 2011, and per the recommendation of one of NAAFA’s advisers, its language is being revised to be much more aggressive when discussing weight bias with medical professionals. “Up until this point we’ve been trying to inform and be a little bit gentle,” explained Peggy Howell, NAAFA’s vice chairman and public relations director, citing the research scientists, Ph.D.s, and professors in medicine, law, nutrition, social work and more who serve on NAAFA’s advisory board. “The advisers came back and said, ‘I think we need to take a different approach. I think we need to be more assertive about this. There are lots of studies that support that this bias does more harm than good to the patients.’” The nonprofit’s 2011 brochure states, “NAAFA is working to help ensure that health care providers provide the best possible care by keeping in mind the special needs of their fat patients.” The new brochure reads, “We currently live in an environment that stigmatizes anyone who does not meet the aesthetic or medically defined categories of an ‘attractive’ or ‘healthy’ weight… [it] creates and sustains fat phobia and oppression, which includes weight bias, prejudice, stigma, discrimination, bullying, violence, and cultural imperialism. … Sometimes the internalized biases of health care providers directly contribute to further stigmatization of fat people.”

There is some movement on the medical end as well, driven by health care providers seeking training and resources. The Rudd Center has developed educational videos, which have been tested and found to reduce weight bias. Viewing the two 17-minute films — “Weight Prejudice: Myths and Facts” and “Weight Bias in Health Care” — resulted in improvement in attitudes toward obese people. The Rudd Center has also created a media repository of 400-plus photos and more than 80 B-roll videos that portray children and adults with obesity in non-stigmatizing ways, intended as a resource of respectful, rather than stereotypical, images for the media as well as scientists and health professionals to use when making educational presentations.

“We’ve created online courses and all different kinds of resources to use to try to increase awareness about this issue and educate providers that this is more than a social justice issue,” Puhl said. “This is a full public health issue. The stigma is making their patients’ health worse.”

For many fat people, the response is too little, too late. “I would rather doctors have signs on their door saying, ‘I don’t treat fat people,’” Wann said. “It would save everyone time and money if they had a sign on their door that said, ‘No fatties.’ At least they would be honest and own their bias.”

***

Carey Purcell is a New-York based writer who covers culture, politics and current events from a feminist perspective. She has been published in The New York Times, Vanity Fair, Politico and other publications. She has been a featured guest on AM Joy and Good Morning America, and her writing can be read at CareyPurcell.com.

***

Editor: Michelle Weber
Illustrator: Hannah Perry
Fact checker: Matt Giles
Copy-editor: Sylvia Tan

Fats Domino’s Secret to Writing Great Songs: ‘Bein’ Lucky’

(AP Photo/Cheryl Gerber)

The legendary musician Fats Domino died today at the age of 89.

Ten years ago, Fats Domino traveled to New York City for the first time in over two decades. As Charles Young explained in a Rolling Stone piece at the time, Domino had largely stopped touring and even performing at all, playing only occasionally in his hometown of New Orleans. As shy as he was legendary, “talking to people he doesn’t know” ranked “near the top of his list of least-favorite activities.”

“Most stress of all is probably talking to strange people with notebooks,” Young wrote. When Young finally works up the nerve to take out his notebook and ask Domino “the secret of writing great songs,” the reticent musician replied, “Bein’ lucky.”

“Lucky” wasn’t how you’d describe Domino at that time, since Hurricane Katrina ruined his beloved home in New Orleans. His occasional attempts at touring hadn’t gone well and, as New Orleans Times-Picayune writer Keith Spera reported in 2007, his friends felt the octogenarian musician had grown more forgetful since the storm. Nevertheless, some of those friends rallied around Domino and coordinated the trip to New York, inviting Spera along to document it.

Spera’s piece is cobbled together from his updates from the road and, fittingly for his New Orleans audience, talks about Domino as though his reader already knows and understands him. Young’s takes a wider view for a broader audience. Both are well-worth a read for anyone looking to remember the musician who at age 21 recorded a song that was, as Young writes, “one of the first and biggest steps toward” rock and roll.

When he was twenty-one, in 1949, he recorded a song called “The Fat Man,” which he and his producer/writing partner, Dave Bartholomew, reworked from a tune called “Junker’s Blues” on the theory that singing about being fat was more commercial than singing about being a junk­ie. Antoine changed his name to “Fats,” and the song became a huge hit. It was also, strangely, not jazz. With its rollicking beat and thunderously repetitive pop sensibility, it was something else. It was, in hindsight, rock & roll, or at least one of the first and big­gest steps toward it.

Read the story

Idaho Conservatives Are Trying to Move the American GOP Further Right

AP Photo/Otto Kitsinger

At BuzzFeed, Anne Helen Petersen reports from Northern Idaho, where many conservatives have moved to enjoy a life among like minds in this white, right wing sanctuary. Once a Democratic region of loggers and miners, conservatives have successfully converted the area into a Republican stronghold. But to the ultra-right wing Kootenai County Republican Central Committee, the GOP isn’t Republican enough. This Committee’s loose confederation rallies around an outspoken, slightly mysterious man named Brent Regan, who works better as a behind-the-scenes strategist and source of funding than a public face. One critic calls Regan’s contingent “the whole constellation of wackadoodles,” but they seem too effective and extreme to dismiss.

Tyler and others say the only membership requirement to be in Regan’s camp is to be a true, liberty-loving conservative, but the truth is more complicated. You don’t necessarily need to be a Christian, but you should believe in Christian values — and the ability for Christians to practice their beliefs without restriction, which includes supporting “school choice,” aka using federal funds to support religious schools. You believe that the Johnson Amendment — which forbids nonprofit organizations, including churches, from making political contributions — is unconstitutional. You should be against any increase in “unnecessary” spending, any expensive public works — like the pricey renovation of a lakeside park in Coeur d’Alene, which prompted an attempted recall of the mayor and city council, or the recently proposed transit center, dubbed “a Taj Mahal for government employees” by Alex Barron. You should also oppose the growth of government, especially Obamacare and the “perverse incentives and waste,” as Regan put it to me, that have resulted from it. And you must disaffiliate yourself with those who don’t believe these things.

Christa Hazel’s conservative credentials have been challenged, for example, because she posted pictures to Facebook that included “known” liberals. A far-right blog accused Duane Rasmussen, one of the founders of the North Idaho Pachyderm Club, of “bringing Socialism to Kootenai County” for making friends with Spokesman-Review columnist Dave Oliveria, who often published photos Rasmussen had taken of GOP events. When lieutenant gubernatorial candidate Steve Yates spoke at a recent Central Committee meeting, he was challenged for attending Johns Hopkins, a liberal school.

For many, it’s an exacting, and exhausting, sort of tribalism. As Deborah Rose, a political observer who’s been warring with Regan and his followers in the comments of newspaper articles for months, put it to me, “Here’s what bothers me so much: I agree with them on 95% of this stuff! But then the 5% that I don’t — that’s what makes them call me a liberal.”

Read the story